Abstract：
OBJECTIVE:To examine the experience of a discharge letter received by patients suffering from epilepsy and parents with children who suffer from epilepsy. DESIGN:Qualitative research inspired by a phenomenological methodology approach. SETTING:Face-to-face interviews with patients and parents of epileptic children in their own homes. SAMPLE:Participants (total n = 11). METHODS:In-depth interviews were recorded verbatim, transcribed and analysed. RESULTS:Two themes were identified: (i) it was written about me and (ii) a sense of feeling secure. By being discharged with a personalised letter, the participants felt seen and heard. The discharge letter enabled them to contact their doctor and the Filadelfia hospital more efficiently if needed. Parents indicated that the discharge letter bridged the uncertainty that they often experienced when dealing with the child's school or authorities in general. CONCLUSIONS:The discharge letter enables the participants to make the transition into everyday life with the best and most up-to-date information about themselves and their current condition as an epilepsy patient. The discharge letter empowers the patient or parents to face everyday life. The discharge becomes a kind of passport to the outside world when encountering the general practitioner, the school or other circumstances where the patient engages. The discharge letter becomes a patient-centred tool proving that enhanced communication and understanding between healthcare professionals, patients and parents succeeds. This example could be transferable to other hospitals to heighten the patient's self-efficacy and quality of life after being discharged from the hospital.
journal_name
Scand J Caring Scijournal_title
Scandinavian journal of caring sciencesauthors
Lindhardt CL,Maerkedahl M,Brandt CE,Madsen SRdoi
10.1111/scs.12846subject
Has Abstractpub_date
2020-04-02 00:00:00eissn
0283-9318issn
1471-6712pub_type
杂志文章,评审abstract：AIM:The aim of this study was to examine the role and responsibilities of intensive care unit (ICU) nurses regarding the spiritual aspects of end-of-life care in the ICU, from the chaplains' perspectives. METHOD:An explorative study including inductive thematic analysis was used. Two focus group interviews with in tot...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12371
更新日期：2017-09-01 00:00:00
abstract：:Rehabilitation is a key component of nursing and allied healthcare professionals' roles in most health and social care settings. This paper reports on stage 2 of an action research project to ascertain older adult's experience of rehabilitation. Twenty postdischarge interviews were conducted and the interview transcri...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2007.00469.x
更新日期：2007-09-01 00:00:00
abstract：OBJECTIVE:To explore patients' perceptions of their pain while participating in a weekly yoga program. METHODS:A consecutive convenience sample was recruited from a Multidisciplinary Pain Centre. Seven adult patients (six women), agreed to participate in an 8-week Hatha yoga program, including weekly group sessions an...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2010.00842.x
更新日期：2011-09-01 00:00:00
abstract：:There has been little research that has addressed the practices of nurses who go beyond the usual scope of practice to demonstrate caring. In this study, a grounded theory methodology was used to interview 18 nurses identified as exceptional caring nurses. The core process identified was giving and involved gifts (par...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1046/j.1471-6712.2002.00102.x
更新日期：2002-12-01 00:00:00
abstract：BACKGROUND:Coronary artery disease is one of the most important health problems among heart diseases in the world, with high morbidity and mortality. Lifestyle changes in particular are recommended in the latest guidelines for implementing secondary prevention. AIM:The aim of this study was to evaluate the effectivene...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章,评审
doi：10.1111/scs.12785
更新日期：2020-09-01 00:00:00
abstract：:The purposes of this study were twofold. The first was to investigate if relaxation training conducted by nurses as an integral part of their caring activities affected breast cancer patients' experiences of radiotherapy sessions as well as their general wellbeing. Second was to evaluate a pedagogical model for large ...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.1992.tb00149.x
更新日期：1992-01-01 00:00:00
abstract：OBJECTIVES:This study examined the main sources of strain and the presence of psychological distress in a sample of centenarians' children who assumed the role of primary caregivers. METHOD:A sample of 43 children (M age = 67.10 ± 6.67 years; 90.7% female) caring for a centenarian parent was interviewed and asked abou...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12423
更新日期：2017-12-01 00:00:00
abstract：:This paper is based on a comparative, psychologically informed ethnographic study of maternal goals and infant care during the first year of life for 20 mothers and infants in each of three Western settings: Stockholm, Sweden, outside Rome, Italy, and suburban Boston, in the United States. Two research questions were ...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.1994.tb00233.x
更新日期：1994-01-01 00:00:00
abstract：:The aim of the study was to identify factors of decisive importance for women's motivation to perform breast self-examination (BSE), which could form the basis of an intervention programme. Interviews were conducted in 1994 with 48 women focusing on four different areas: 1) why the women examined did not examine their...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.1997.tb00460.x
更新日期：1997-01-01 00:00:00
abstract：:This study examines factors that contribute to work satisfaction among Swedish dental hygienists. A questionnaire was used to collect data on health, demographics, work-history, work characteristics, work satisfaction and social support at work. The questionnaire was mailed to 471 hygienists; 77.3% responded. 70% of t...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.1996.tb00344.x
更新日期：1996-01-01 00:00:00
abstract：OBJECTIVES:To investigate the quality of standardized care plans and the extent to which they are used within Swedish in-hospital somatic care. Further, to examine the quality of the knowledge summaries on which existing standardized care plans were supposed to be based. DESIGN:Submitted documents were reviewed with s...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2009.00687.x
更新日期：2009-12-01 00:00:00
abstract：BACKGROUND:Norway has a higher incidence of hip fractures than any other country. For older individuals, a hip fracture may cause dramatic changes in health status like incontinence and daily activities. Patients with hip fractures are at high risk of urinary incontinence (UI) after surgical repair. A urinary indwellin...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2012.01075.x
更新日期：2013-09-01 00:00:00
abstract：BACKGROUND:Beliefs have been found to have an effect on how people deal with illness. Therefore, knowing healthcare practitioners' beliefs about specific high frequency illnesses are vital when caring for vulnerable populations such as school-age children with chronic illnesses or disorders. AIM:To psychometrically te...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12457
更新日期：2018-03-01 00:00:00
abstract：:Moving into a residential care facility requires a great deal of adjustment to an environment and lifestyle entirely different from that of one's previous life. Attachment to place is believed to help create a sense of home and maintain self-identity, supporting successful adjustment to contingencies of ageing. The pu...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12011
更新日期：2013-12-01 00:00:00
abstract：:The purpose of this study was to describe the factors promoting and hindering nurses' use of nonpharmacological methods in children's surgical pain relief, and demographic variables related to this. The data were collected by a Likert-type questionnaire, which was completed by nurses (n = 162) who were working in one ...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1046/j.0283-9318.2003.00239.x
更新日期：2003-12-01 00:00:00
abstract：:Nursing care can figuratively be described as a gift that is given by the nurse in the nurse-patient relationship where attitudes play an important role for the gift's appearance. Sometimes patients are unwilling to or incapable of accepting the gift and this can lead to situations in which nurses are not able to hand...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2005.00316.x
更新日期：2005-03-01 00:00:00
abstract：BACKGROUND:Stroke is highly debilitating and requires long-term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers' well-being and may adversely impact on their caregiving quality and subsequently on stroke surviv...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12657
更新日期：2019-09-01 00:00:00
abstract：BACKGROUND:Home care service (HCS) for sick children is a complex healthcare service, which can be organised in various models. Despite the possibility to support family everyday life, the accessibility and utilisation may still be limited. The aim of this study was to (i) determine characteristics in referrals to coun...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12678
更新日期：2019-12-01 00:00:00
abstract：:Empirical realities and technological advances in the clinical practice context continuously call for ethical dialogue among healthcare providers. The nurse's voice of advocacy for humane caring grounded in an existential understanding of the complexities of the health experience remains a salient responsibility of mo...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章,评审
doi：10.1111/j.1471-6712.2007.00586.x
更新日期：2008-03-01 00:00:00
abstract：:Comparatively little is known about the experiential aspect of moral decision making in psychiatric nursing. Earlier research in this area has mainly focused on the cognitive aspects of moral reasoning, using hypothetical cases. The purpose of this study was to examine the experience of moral decision making in psychi...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.1993.tb00196.x
更新日期：1993-01-01 00:00:00
abstract：:The aim of this study is to describe the idea pattern of nursing ethics in the textbook written by the Swedish nurse Estrid Rodhe (1911). The purpose is to increase understanding of the ideas in early written history of nursing ethics by using the method of history of ideas. A theoretical premise, but also a fascinati...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2012.01010.x
更新日期：2012-12-01 00:00:00
abstract：AIM:This study presents the results of an interpretative research synthesis undertaken to explore the essence of love when encountering suffering. The idea of caring as an expression of love and compassion belongs with ideas that have shaped caring for hundreds of years. Love and suffering are the core concepts in cari...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2012.01038.x
更新日期：2013-06-01 00:00:00
abstract：BACKGROUND:Patients' participation is essential to their well-being and sense of coherence, as well as to their understanding of and adherence to prescribed treatments. Ward rounds serve as a forum for sharing information between patient and caregiver. The purpose of the ward round is to obtain information and plan med...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12059
更新日期：2014-06-01 00:00:00
abstract：BACKGROUND AND RATIONALE:SPECAL is a model of care for people with dementia based on a novel conceptualisation of memory and how this changes in dementia. Carers adapt their communication style to prevent distress and promote well-being for the person with dementia. However, there is limited scientific evidence on the ...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12778
更新日期：2020-09-01 00:00:00
abstract：:Postoperative adjustment and the psychosocial consequences of cystectomy were studied in 34 patients with bladder carcinoma. Urinary diversion was accomplished via a conduit in 20 patients and a continent caecal reservoir in 14. Interviews with the patients were conducted according to a semistructured outline. The gre...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.1991.tb00097.x
更新日期：1991-01-01 00:00:00
abstract：:Two questions were investigated: whether cancer patients (n = 32) and staff (n = 30) have different cognitive representations of the concepts 'caring' (Swedish: 'omvårdnad') and 'clinical care' (Swedish: 'vård'), and whether results differ between forced vs. free choice response formats. Two Swedish versions of the CA...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：
更新日期：1998-01-01 00:00:00
abstract：:Quantitative research on Therapeutic Touch (TT), published in referred nursing journals from 1985 to 1995, is reviewed. Therapeutic Touch is defined by Dolores Krieger, the founder of this nursing intervention. The authors of this Integrative Review examine what is known and not known to date in order to facilitate ap...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章,评审
doi：10.1111/j.1471-6712.1997.tb00452.x
更新日期：1997-01-01 00:00:00
abstract：BACKGROUND:Theories exist to challenge current practice, create new approaches to practice and remodel the structure of rules and principles. One question is whether nurses could find in psychosocial theories of ageing a theoretical foundation on which to base support of older people in their ageing process. AIM:The a...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章,评审
doi：10.1111/j.1471-6712.2006.00414.x
更新日期：2006-09-01 00:00:00
abstract：:The aim of this study was to determine the economic outcomes (service use, health care and nonhealth care out-of-pocket costs) related to total hip arthroplasty from the perspective of patients. Also, examined was the relationship between economic outcomes and health-related quality of life (HRQOL). One hundred patien...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/j.1471-6712.2007.00580.x
更新日期：2009-03-01 00:00:00
abstract：AIM:To describe medication safety, transformational leadership and their relationship as evaluated by Registered Nurses. BACKGROUND:Medication safety is one of the aspects of patient safety and an important part of nurses' daily practices. Nurse managers can ensure medication safety by adopting a transformational lead...
journal_title：Scandinavian journal of caring sciences
pub_type： 杂志文章
doi：10.1111/scs.12737
更新日期：2020-06-01 00:00:00
