Abstract:
OBJECTIVE:Lifetime parental caregivers of adults with intellectual disabilities (ID) may also become caregivers to other family members. This study investigated caregiver experiences of compound caregiving (i.e. additional caregiving roles) and its association with caregiver quality of life. PARTICIPANTS:Ninety-one older caregivers living with their adult son/daughter with ID were interviewed. Mean age of the caregivers was 60 years and their sons'/daughters' mean age was 29 years. MAIN OUTCOME MEASURES:Compound caregiving status, physical and mental health, life satisfaction, depressive symptomatology, and desire for alternative residential placement for their co-residing son/daughter. RESULTS:Thirty-four (37%) reported being current compound caregivers to an additional care recipient, predominantly a mother, father, or spouse. Caregivers averaged 39 hours per week fulfilling their primary caregiving tasks, an additional 12 hours per week on the compound caregiving role, and the median duration of compound caregiving was 3 years. Compared with the non-compound caregivers, the compound caregivers had increased desire to place their son/daughter into residential care, though no group differences were apparent in life satisfaction, depressive symptomatology, physical health, or mental health. The most problematic issues reported by compound caregivers were having little personal time and a lack of adequate help from others. CONCLUSION:Compound caregiving was often experienced, and may galvanize these lifetime caregivers to start making future plans for their sons/daughters. Future research is warranted to refine more homogeneous groupings of compound caregivers, who may be at greater risk for adverse outcomes.
journal_name
Rehabil Psycholjournal_title
Rehabilitation psychologyauthors
Perkins EA,Haley WEdoi
10.1037/a0021521subject
Has Abstractpub_date
2010-11-01 00:00:00pages
409-17issue
4eissn
0090-5550issn
1939-1544pii
2010-25727-010journal_volume
55pub_type
杂志文章abstract:OBJECTIVE:Describe the development and preliminary evaluation of a safety awareness program for women with disabilities. DESIGN:Baseline and postintervention questionnaires administered to a sample of women who completed a safety awareness program. PARTICIPANTS:Seven women with diverse disabilities. INTERVENTION:Eig...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/a0019916
更新日期:2010-08-01 00:00:00
abstract:PURPOSE/OBJECTIVE:A measure of worry about affording health care was developed in people with multiple sclerosis (MS) to further the study of how trouble affording health care can affect health. This study examined whether the measure showed bias by gender, age, insurance type, income, and type of MS. Absence of bias w...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000105
更新日期:2016-11-01 00:00:00
abstract:UNLABELLED:Reports an error in "Individual and Dyadic Planning Predicting Pelvic Floor Exercise Among Prostate Cancer Survivors" by Jan Keller, Silke Burkert, Amelie U. Wiedemann, Aleksandra Luszczynska, Mark Schrader and Nina Knoll (Rehabilitation Psychology, Advanced Online Publication, Jul 6, 2015, np). Aleksandra L...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,已发布勘误
doi:10.1037/rep0000053
更新日期:2015-08-01 00:00:00
abstract::Weight gain and inactivity are common problems for individuals living with a traumatic brain injury (TBI). Yet, interventions to support a healthy lifestyle specific to individuals with TBI are lacking. The purpose of this study was to complete a program evaluation of a 12-month evidence-based healthy lifestyle interv...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000253
更新日期:2019-02-01 00:00:00
abstract:PURPOSE/OBJECTIVE:According to Social Identity Theory, minority group members, like people with disabilities, manage stigma by either "passing" as majority group members or identifying with their minority group. Approximately 15% of the world's population has a disability, but only a fraction of those individuals ident...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000132
更新日期:2017-11-01 00:00:00
abstract:OBJECTIVE:Several studies of people with spinal cord injury (SCI) have indicated that high levels of hope are linked with better adjustment, but none has assessed the extent to which hope predicts change in adjustment over time. This study examines the effect of hope assessed within the first months post-SCI onset on c...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000209
更新日期:2018-05-01 00:00:00
abstract:OBJECTIVE:To describe a coordinated interdisciplinary approach to the treatment of functional neurological symptom (conversion) disorder (FNSD), mixed symptoms, including motor dysfunction, in a rehabilitation setting. DESIGN:Adult patient was admitted with worsening neurological symptoms in the absence of contributor...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000063
更新日期:2016-02-01 00:00:00
abstract:OBJECTIVES:To increase understanding regarding precipitating and preventative factors of suicidal behavior and to highlight past experiences and recommendations regarding services aimed at suicide prevention among Veterans with a history of traumatic brain injury (TBI). STUDY DESIGN:Qualitative. PARTICIPANTS:Sample o...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/a0017802
更新日期:2009-11-01 00:00:00
abstract:PURPOSE:To determine the efficacy of a custom-made wheelchair simulation in training children to use a powered wheelchair (PWC). DESIGN:Randomized controlled trial employing the 4C/ID-model of learning. Twenty-eight typically developing children (13M, 15F; mean age 6 years, SD 6 months) were assessed on their operatio...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,随机对照试验
doi:10.1037/a0034088
更新日期:2013-11-01 00:00:00
abstract:OBJECTIVE:Unintentional injuries such as road traffic injuries constitute a major facet of health and disability in low- and middle-income countries. Survivors of moderate or severe unintentional injuries are at risk of psychological distress, although many people show resilience during recovery. This article describes...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000289
更新日期:2020-02-01 00:00:00
abstract:PURPOSE:Sexual dysfunction and low sexual satisfaction are common among individuals with multiple sclerosis (MS); however, little is known about factors that influence sexual satisfaction within this population. As such, the purpose of this study was to investigate the extent to which changes in negative and positive p...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,随机对照试验
doi:10.1037/a0023362
更新日期:2011-05-01 00:00:00
abstract:PURPOSE/OBJECTIVE:To assess the efficacy of modafinil for the treatment of new learning and memory deficits and fatigue in multiple sclerosis. Only 1 previous study in the literature, to our knowledge, examined the effect of modafinil on cognition specifically in persons with multiple sclerosis. RESEARCH METHOD/DESIGN...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,随机对照试验
doi:10.1037/a0039919
更新日期:2016-02-01 00:00:00
abstract:OBJECTIVE:This study developed a comprehensive framework for understanding the process of sibling adjustment to pediatric acquired brain injury (ABI). PARTICIPANTS:Grounded theory methodology was employed to inductively explore the issues siblings perceived to be their main concerns and how they managed these concerns...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000225
更新日期:2018-08-01 00:00:00
abstract:OBJECTIVE:To assess the role that social contextual factors exert on the way people with disproportionate short stature (dwarfism) cope with the negative consequences of discrimination. METHOD:Using multigroup structural equation modeling, we compare the coping process of people with dwarfism from Spain (N = 63) and t...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,多中心研究
doi:10.1037/a0029280
更新日期:2012-08-01 00:00:00
abstract:PURPOSE/OBJECTIVE:Previous studies have demonstrated important associations between personal resources and pain interference. Using latent profile analysis, the present study (a) identified subgroups of individuals with chronic pain who have different personal resource profiles; (b) explored sociodemographic difference...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000261
更新日期:2019-08-01 00:00:00
abstract:PURPOSE/OBJECTIVE:The purpose of this systematic review was to synthesize existing empirical research on disability identity development. This review is organized to present the demographics of participants and types of disabilities represented in the existing data, measures of disability identity development and theor...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,评审
doi:10.1037/rep0000134
更新日期:2017-05-01 00:00:00
abstract:OBJECTIVE:Caregivers for individuals with Parkinson's disease (PD) can experience high burden, which underlies the importance of examining the needs of caregivers to be able to support them in the caregiving role. The current study aims to assess the relationships among PD symptoms and four measures of caregiver qualit...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000313
更新日期:2020-05-01 00:00:00
abstract:OBJECTIVE:Despite the popularity of the concept of resilience, little research has been conducted on populations in physical rehabilitation settings. Our purpose was to identify three trajectories of psychological adjustment to an acquired severe physical injury characterized by resilience, recovery, or distress in a l...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/a0018415
更新日期:2010-02-01 00:00:00
abstract:PURPOSE/OBJECTIVE:Metrics to estimate premorbid cognitive ability, such as word reading tests, are important for clinical determination of cognitive changes following brain injury. In the present study, reading adjusted scores for the National Institutes of Health Toolbox Cognition Battery (NIHTB-CB) fluid tests were d...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000198
更新日期:2017-11-01 00:00:00
abstract:OBJECTIVE:Follow-up intervention boosters are supposed to promote exercise maintenance beyond initial treatment. The current quasi-experimental study investigated the benefits of adding telephone-delivered intervention boosters to a self-management exercise intervention for rehabilitants. Psycho-social mechanisms by wh...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/a0033885
更新日期:2013-11-01 00:00:00
abstract::This paper examines the utility of evidentiary pluralism, a research strategy that selects methods in service of content questions, in the context of rehabilitation psychology. Hierarchical views that favor randomized controlled clinical trials (RCTs) over other evidence are discussed, and RCTs are considered as they ...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/a0012963
更新日期:2008-08-01 00:00:00
abstract:: Objective: To examine the relationship between medical comorbidities and psychological health outcomes at 2 and 5 years following traumatic brain injury (TBI). Method: Veterans Affairs (VA) TBI Model System participants who com...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000366
更新日期:2020-10-29 00:00:00
abstract:OBJECTIVE:The goal of this study was to explore the psychometric properties of the Patient Health Questionnaire-9 (PHQ-9; R. L. Spitzer, K. Kroenke, & J. B. W. Williams, 1999). METHOD:Factor analysis and Rasch rating scale analysis were used to examine the psychometric properties of the PHQ-9. The sample consisted of ...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/a0015529
更新日期:2009-05-01 00:00:00
abstract:OBJECTIVE:While reintegration of concussed youth back into sports has been increasingly studied over the past decade, a noticeably lacking yet growing body of research has begun to focus on issues surrounding return to academics or "return-to-learn" (RTL). The objective of this article was to conduct a comprehensive li...
journal_title:Rehabilitation psychology
pub_type: 杂志文章,评审
doi:10.1037/rep0000155
更新日期:2017-08-01 00:00:00
abstract:OBJECTIVE:To assess the parenting sense of competence in mothers and fathers with MS compared to a matched group of healthy parents and to evaluate whether illness features, mood, coping and social support influence parenting sense of competence in mothers and fathers with MS. METHOD/DESIGN:Participants in both groups...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000211
更新日期:2018-08-01 00:00:00
abstract::Although the relationship between negative affect and psychiatric symptoms has been well-demonstrated in research, less is known about positive affect relative to negative affect, and its relationship to psychiatric symptoms, especially among veterans. This study examined how levels of positive and negative affect are...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000017
更新日期:2015-02-01 00:00:00
abstract:PURPOSE/OBJECTIVE:To examine resilience in the context of adjustment to traumatic brain injury (TBI), including the relative roles of demographic and theoretically related constructs such as coping, social support, and positive affectivity on resilience within the first 5 years postinjury. RESEARCH METHOD/DESIGN:This ...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000069
更新日期:2016-08-01 00:00:00
abstract:OBJECTIVES:While resilience has been an area of increasing research, there are no measures that are specific to the psychological, social, and physical factors associated with resilience in persons with multiple sclerosis (PwMS). This study aimed to develop the MS Resiliency Scale (MSRS), a multidimensional measure. It...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000219
更新日期:2018-08-01 00:00:00
abstract:PURPOSE:Existing research suggests that the decision to grant or deny workplace accommodations for people with disabilities is influenced by a range of legal and nonlegal factors. However, less is known about how these factors operate at the within-person level. Thus, we proposed and tested a multilevel model of the ac...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000120
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:This study examined the relationship between hearing impairment and mental distress. We hypothesized that fear of negative evaluation by others and avoidant communication strategies are associated with increased symptoms of depression. METHOD:Hearing-impaired adults (N = 105) who signed up for a stress manag...
journal_title:Rehabilitation psychology
pub_type: 杂志文章
doi:10.1037/rep0000028
更新日期:2015-02-01 00:00:00