Constructing the illness narrative: a grounded theory exploring patients' and relatives' use of intensive care diaries.

Abstract:

OBJECTIVE:After a stay in the intensive care unit, patients risk experiencing delusional memories, memory loss, and symptoms of posttraumatic stress. Since the 1990s, diaries have been kept for intensive care unit patients to help fill in memory gaps, aid psychosocial recovery, and improve health-related quality of life. More insight is needed into the application of diaries. The aim of our study was to explore how patients and relatives use diaries in the context of the illness trajectory. DESIGN:Qualitative multicentered design using in-depth semistructured interview technique. SETTING:A nine-bed general intensive care unit and a 13-bed thoracic surgical intensive care unit in Denmark. PATIENTS:A sample of 19 patients at 6-12 months postintensive care unit discharge and 13 relatives (n = 32). INTERVENTIONS:Intensive care diaries and handover 1 or 3 months postintensive care unit discharge. MEASUREMENTS AND MAIN RESULTS:Grounded theory method was used to explore the use of diaries as a psychosocial process of recovery involving patients and relatives. Data were managed by NVivo software. The core category was "constructing the illness narrative," which was a process of narration embedded in our emerging theory of psychosocial recovery after critical illness. The main categories within the patient perspective were information acquisition and gaining insight, and the main categories within the relative perspective were supporting the patient, supporting oneself, and negotiating access. CONCLUSIONS:Intensive care diaries are useful to patients as well as their relatives. Patients need to construct their illness narrative, and diaries are among the sources they use. The patients' project was to combine various sources of information in a process of information acquisition, narration, and evolving insight progressing toward recovery. The relatives supported the patients' project and also supported themselves by using the diary to uphold their own healing process. We recommend intensive care diaries as a low-technology, low-cost rehabilitative intervention for patients and relatives to help bridge the span from intensive care to recovery.

journal_name

Crit Care Med

journal_title

Critical care medicine

authors

Egerod I,Christensen D,Schwartz-Nielsen KH,Agård AS

doi

10.1097/CCM.0b013e31821e89c8

subject

Has Abstract

pub_date

2011-08-01 00:00:00

pages

1922-8

issue

8

eissn

0090-3493

issn

1530-0293

journal_volume

39

pub_type

杂志文章,多中心研究
  • Migration of human monocytes in response to procalcitonin.

    abstract:OBJECTIVE:Circulating serum levels of procalcitonin rise significantly during bacterial infection. Because calcitonin is known to be a monocyte chemoattractant, we investigated whether procalcitonin, a prohormone of calcitonin, also affects leukocyte migration. DESIGN:Prospective, controlled in vitro study. SETTING:U...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-200205000-00025

    authors: Wiedermann FJ,Kaneider N,Egger P,Tiefenthaler W,Wiedermann CJ,Lindner KH,Schobersberger W

    更新日期:2002-05-01 00:00:00

  • Medical, legal and ethical issues in critical care.

    abstract::This report is intended to familiarize the reader with the current legislation concerning state definitions of death, the pertinent judicial decisions concerning termination of life support and the current status of medical/ethical committees. However, it is of paramount importance to all health care personnel to beco...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:

    authors: Wallace-Barnhill G,Roth MD,Briggs BA,Bastron DR,Barrocas A

    更新日期:1982-01-01 00:00:00

  • Relative Hyperglycemia Is an Independent Determinant of In-Hospital Mortality in Patients With Critical Illness.

    abstract:OBJECTIVES:To determine whether relative hyperglycemia was associated with in-hospital mortality in critically ill patients independent of other prognostic variables and whether this association is affected by background glycemia. DESIGN:Prospective observational study. SETTING:Mixed medical-surgical ICU in a metropo...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0000000000004133

    authors: Lee TF,Drake SM,Roberts GW,Bersten A,Stranks SN,Heilbronn LK,Mangoni AA,Burt MG

    更新日期:2020-02-01 00:00:00

  • Experience with percutaneous venoarterial cardiopulmonary bypass for emergency circulatory support.

    abstract:OBJECTIVE:Mechanical circulatory support can maintain vital organ perfusion in patients with cardiac failure unresponsive to standard pharmacologic treatment. The purpose of the current study was to report complication and survival rates in patients supported with emergency percutaneous venoarterial cardiopulmonary byp...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/01.CCM.0000053522.55711.E3

    authors: Schwarz B,Mair P,Margreiter J,Pomaroli A,Hoermann C,Bonatti J,Lindner KH

    更新日期:2003-03-01 00:00:00

  • 4-Aminopyridine, A Blocker of Voltage-Dependent K+ Channels, Restores Blood Pressure and Improves Survival in the Wistar Rat Model of Anaphylactic Shock.

    abstract:OBJECTIVES:Anaphylactic shock is associated with severe hypotension. Potassium channel blockers, such as 4-aminopyridine, induce vasoconstriction. The objective of this study was to test the ability of 4-aminopyridine to restore blood pressure and increase survival in anaphylactic shock. DESIGN:Experimental study. SE...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0000000000001822

    authors: Bellou A,Al-Hammadi S,Aburawi EH,Dhanasekaran S,Nemmar A,Oulhaj A,Shafiuallah M,Zerrouki M,Yasin J,Bellou L,Alper SL,Bellou S,Kazzam E

    更新日期:2016-11-01 00:00:00

  • Consequences of bed rest.

    abstract::Bed rest is frequently prescribed for critically ill patients because it is assumed to be beneficial for preventing complications, for conserving scarce metabolic resources, and for providing patient comfort. Furthermore, higher levels of physical activity in critically ill patients have been assumed to be impractical...

    journal_title:Critical care medicine

    pub_type: 杂志文章,评审

    doi:10.1097/CCM.0b013e3181b6e30a

    authors: Brower RG

    更新日期:2009-10-01 00:00:00

  • Comparative effects of early versus delayed use of norepinephrine in resuscitated endotoxic shock.

    abstract:OBJECTIVE:To assess hemodynamic, tissue oxygenation, and tissue perfusion changes by comparing traditional therapy (fluid resuscitation followed by vasopressor treatment) and alternative therapy (early vasopressor treatment) in a hyperkinetic and sedated model of endotoxic shock. DESIGN:Prospective controlled experime...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/01.CCM.0000269028.28521.08

    authors: Sennoun N,Montemont C,Gibot S,Lacolley P,Levy B

    更新日期:2007-07-01 00:00:00

  • Ethical decision-making in critical care in Hong Kong.

    abstract:OBJECTIVES:Biomedical ethics has assumed an increasingly important role in medicine over the past 30 yrs, and its development has served the important goal of protecting patients' rights and interests. However, medical ethics has evolved within a Western tradition, and conflict often arises when trying to apply Western...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-199803000-00013

    authors: Ip M,Gilligan T,Koenig B,Raffin TA

    更新日期:1998-03-01 00:00:00

  • Early identification of patients at risk for symptomatic vasospasm after aneurysmal subarachnoid hemorrhage.

    abstract:OBJECTIVE:To develop a scheme for early identification of individuals at risk for symptomatic vasospasm after subarachnoid hemorrhage (SAH). DESIGN:Analysis of prospectively collected data from the placebo-treated group in a multicenter clinical trial. SETTINGS:Fifty-four neurosurgical centers in North America. MEAS...

    journal_title:Critical care medicine

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1097/00003246-200004000-00012

    authors: Qureshi AI,Sung GY,Razumovsky AY,Lane K,Straw RN,Ulatowski JA

    更新日期:2000-04-01 00:00:00

  • Forward displacement of the larynx for nasogastric tube insertion in intubated patients.

    abstract::Simple insertion of a nasogastric (NG) tube was successful in only 52 of 100 anesthetized intubated patients. After the larynx was manually pulled forward, the NG tube was successfully inserted in 33 patients. In the remaining 15 patients, the NG tube was inserted only with the aid of a finger or a laryngoscope used w...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-198503000-00013

    authors: Perel A,Ya'ari Y,Pizov R

    更新日期:1985-03-01 00:00:00

  • Prolonged mechanical ventilation alters diaphragmatic structure and function.

    abstract:OBJECTIVE:To review current knowledge about the impact of prolonged mechanical ventilation on diaphragmatic function and biology. MEASUREMENTS:Systematic literature review. CONCLUSIONS:Prolonged mechanical ventilation can promote diaphragmatic atrophy and contractile dysfunction. As few as 18 hrs of mechanical ventil...

    journal_title:Critical care medicine

    pub_type: 杂志文章,评审

    doi:10.1097/CCM.0b013e3181b6e760

    authors: Powers SK,Kavazis AN,Levine S

    更新日期:2009-10-01 00:00:00

  • Bradyarrhythmias, temporary and permanent pacing.

    abstract::Bradycardia is common in critical care units. It may be transient, asymptomatic and of little consequence, or life-threatening. Bradycardia may result from abnormalities of the sinus node, atrioventricular node, or the His-Purkinje system. It may also be precipitated by drug effects or enhanced vagal tone. Proper diag...

    journal_title:Critical care medicine

    pub_type: 杂志文章,评审

    doi:10.1097/00003246-200010001-00003

    authors: Kaushik V,Leon AR,Forrester JS Jr,Trohman RG

    更新日期:2000-10-01 00:00:00

  • Skeletal muscle glutathione is depleted in critically ill patients.

    abstract:OBJECTIVE:To investigate the concentrations of reduced and total glutathione in relation to the muscle free amino acid pattern in critically ill patients and matched healthy controls. DESIGN:Prospective case control. SETTING:University hospital intensive care unit (ICU). PATIENTS:Eleven critically ill patients in th...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-199701000-00016

    authors: Hammarqvist F,Luo JL,Cotgreave IA,Andersson K,Wernerman J

    更新日期:1997-01-01 00:00:00

  • Survival, cost of hospitalization, and prognosis in infants critically ill with respiratory distress syndrome requiring mechanical ventilation.

    abstract::It was found that, during 1974, it cost an average of $8842 ($12,909 in 1979) to care for a survivor of severe respiratory distress syndrome (RDS) who required mechanical ventilation in this ICU compared to $2448 ($3574 in 1979) for nonsurvivors. Death in 15 out of the 16 nonsurvivors was accompanied by grade III-IV i...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-198102000-00005

    authors: Shannon DC,Crone RK,Todres ID,Krishnamoorthy KS

    更新日期:1981-02-01 00:00:00

  • Thermodilution and Fick cardiac index determinations following cardiac surgery.

    abstract::With the thermodilution technique, repeated determination of cardiac index (CI) has become a rapid, easily accomplished, safe procedure. We paired 77 CI determinations measured by direct Fick and thermodilution techniques in 21 patients who underwent myocardial revascularization. Commercially available thermistor-tipp...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-197509000-00002

    authors: Hodges M,Downs JB,Mitchell LA

    更新日期:1975-09-01 00:00:00

  • Renal function in critically ill postoperative patients: sequential assessment of creatinine osmolar and free water clearance.

    abstract::Sequential assessment of renal function in 50 critically ill postoperative patients was done by simultaneous determinants of osmolar, free water, creatinine and sodium clearances, and fractional excretion of sodium. The traumatic and nontraumatic critically ill surgical patients had a characteristic pattern of creatin...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-198002000-00004

    authors: Brown R,Babcock R,Talbert J,Gruenberg J,Czurak C,Campbell M

    更新日期:1980-02-01 00:00:00

  • Management of gallbladder perforation by percutaneous cholecystostomy.

    abstract::Percutaneous cholecystostomy was employed successfully as an alternative to cholecystectomy for the treatment of acute cholecystitis with perforation in an elderly woman. The procedure, performed portably in the cardiac care unit, was selected because progressive cardiac and renal decompensation made the patient an ex...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-198508000-00017

    authors: Longmaid HE 3rd,Bassett JG,Gottlieb H

    更新日期:1985-08-01 00:00:00

  • Use of Doppler ultrasound in performing percutaneous cannulation of the radial artery.

    abstract::Doppler ultrasound has been used extensively in assessing adequacy of circulation. We have found it to be convenient in the identification of blood flow, particularly in hypotensive states where percutaneous radial artery cannulation of the vessel is tedious and difficult to perform. The technique is simple, atraumati...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-197611000-00011

    authors: Nagabhushan S,Colella JJ Jr,Wagner R

    更新日期:1976-11-01 00:00:00

  • Lung Purinoceptor Activation Triggers Ventilator-Induced Brain Injury.

    abstract:OBJECTIVES:Mechanical ventilation can cause ventilator-induced brain injury via afferent vagal signaling and hippocampal neurotransmitter imbalances. The triggering mechanisms for vagal signaling during mechanical ventilation are unknown. The objective of this study was to assess whether pulmonary transient receptor po...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0000000000003977

    authors: González-López A,López-Alonso I,Pickerodt PA,von Haefen C,Amado-Rodríguez L,Reimann H,Niendorf T,Kuebler W,Albaiceta GM,Francis RCE,Spies CD

    更新日期:2019-11-01 00:00:00

  • Thromboembolic disease: prophylaxis and treatment.

    abstract::Thromboembolic disease ranks among the most dangerous and common complication in the postoperative or post-traumatic patient. As previously mentioned, the incidence is increasing and fatalities from this complication have also risen substantially. The pathogenesis of thromboembolic disease and the predictability of it...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-197603000-00004

    authors: Evarts CM

    更新日期:1976-03-01 00:00:00

  • Use of corticosteroid therapy in patients with sepsis and septic shock: an evidence-based review.

    abstract:OBJECTIVE:In 2003, critical care and infectious disease experts representing 11 international organizations developed management guidelines for the use of corticosteroid therapy in patients with sepsis and septic shock that would be of practical use for the bedside clinician, under the auspices of the Surviving Sepsis ...

    journal_title:Critical care medicine

    pub_type: 杂志文章,评审

    doi:10.1097/01.ccm.0000142983.15421.11

    authors: Keh D,Sprung CL

    更新日期:2004-11-01 00:00:00

  • Impact of Gram-positive resistance on outcome of nosocomial pneumonia.

    abstract::Among Gram-positive pathogens, Staphylococcus aureus is the leading cause of death from nosocomial pneumonia. The bacterium developed progressive resistance to beta-lactams, and methicillin-resistant strains emerged in the 1980s. In consequence, vancomycin has become the drug of choice for treatment of this infection ...

    journal_title:Critical care medicine

    pub_type: 杂志文章,评审

    doi:10.1097/00003246-200104001-00005

    authors: Bodi M,Ardanuy C,Rello J

    更新日期:2001-04-01 00:00:00

  • Burden of early-onset candidemia: analysis of culture-positive bloodstream infections from a large U.S. database.

    abstract:OBJECTIVES:: To characterize the epidemiology and burden of early-onset, nonnosocomial candidemia. DESIGN:: Retrospective review of Cardinal Health Outcomes Research Database, which comprises all acute care admissions at participating hospitals. SETTING:: A total of 176 acute care hospitals. PATIENTS:: All patients ...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0b013e3181a0f95d

    authors: Shorr AF,Gupta V,Sun X,Johannes RS,Spalding J,Tabak YP

    更新日期:2009-09-01 00:00:00

  • Lipiodol embolism following transarterial chemoembolization: an atypical case.

    abstract:OBJECTIVE:Transarterial chemoembolization is a widely used therapy for the treatment of hepatocellular carcinoma. A rare adverse event is acute respiratory distress syndrome from pulmonary embolization of Lipiodol, an iodinated oil commonly used during the procedure. The objective of this report is to describe an atypi...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0000000000000307

    authors: Taupin D,Mukherjee V,Nathavitharana R,Green DA,Fridman D

    更新日期:2014-06-01 00:00:00

  • Osmotherapy with hypertonic saline attenuates water content in brain and extracerebral organs.

    abstract:OBJECTIVE:Because of their beneficial effects in patients with hemorrhagic shock and multiple-system trauma, hypertonic saline solutions are increasingly being used perioperatively for volume resuscitation. Although the anti-edema effects of hypertonic saline on brain are well documented in a variety of brain injury pa...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/01.CCM.0000253309.44567.A6

    authors: Toung TJ,Chen CH,Lin C,Bhardwaj A

    更新日期:2007-02-01 00:00:00

  • Long-Term Mental Health Problems After Delirium in the ICU.

    abstract:OBJECTIVES:To determine whether delirium during ICU stay is associated with long-term mental health problems defined as symptoms of anxiety, depression, and posttraumatic stress disorder. DESIGN:Prospective cohort study. SETTING:Survey study, 1 year after discharge from a medical-surgical ICU in the Netherlands. PAT...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0000000000001861

    authors: Wolters AE,Peelen LM,Welling MC,Kok L,de Lange DW,Cremer OL,van Dijk D,Slooter AJ,Veldhuijzen DS

    更新日期:2016-10-01 00:00:00

  • Respiratory and cardiac function in children after acute hypoxemic respiratory failure.

    abstract:OBJECTIVE:To examine the pulmonary and cardiac function of children who survived an episode of acute hypoxemic respiratory failure. DESIGN:Descriptive cohort analysis. SETTING:Pediatric clinical research center of a university hospital. PATIENTS:Utilizing the criteria of PaO2 < 75 torr (< 10 kPa) with an FIO2 of > 0...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-199601000-00024

    authors: Weiss I,Ushay HM,DeBruin W,O'Loughlin J,Rosner I,Notterman D

    更新日期:1996-01-01 00:00:00

  • Pulmonary fluid balance and hemodynamics after perfluorocarbon infusion in the dog lung.

    abstract::Perfluorocarbon (PFC) emulsions are promising oxygen-carrying blood supplements for the treatment of shock and in organ preservation for transplantation. We used the isolated, blood-perfused, canine right lower lung lobe (RLL) to determine the effect of a PFC emulsion, Oxypherol (FC-43), upon lung fluid balance and he...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/00003246-198512000-00006

    authors: Hall JE,Ehrhart IC,Hofman WF

    更新日期:1985-12-01 00:00:00

  • Meta-analysis of subclavian insertion and nontunneled central venous catheter-associated infection risk reduction in critically ill adults.

    abstract:OBJECTIVE:Catheter-associated infections are common, costly, and potentially lethal. The impact of catheter insertion site on infection risk remains controversial. We aimed to establish whether nontunneled central venous catheters inserted in the subclavian vein are associated with lower risk of catheter-associated inf...

    journal_title:Critical care medicine

    pub_type: 杂志文章,meta分析

    doi:10.1097/CCM.0b013e31823e99cb

    authors: Parienti JJ,du Cheyron D,Timsit JF,Traoré O,Kalfon P,Mimoz O,Mermel LA

    更新日期:2012-05-01 00:00:00

  • Oxygen blood transport during experimental sepsis: effect of hypothermia*.

    abstract:OBJECTIVES:The aim of this study was to highlight the link between induced hypothermia and increased survival duration as observed in the septic model developed by the laboratory. To reach this objective, survival duration and blood oxygen transport capacity were measured at two temperatures-38 °C (induced normothermia...

    journal_title:Critical care medicine

    pub_type: 杂志文章

    doi:10.1097/CCM.0b013e3182373134

    authors: Léon K,Pichavant-Rafini K,Quéméner E,Sébert P,Egreteau PY,Ollivier H,Carré JL,L'Her E

    更新日期:2012-03-01 00:00:00