Improving Advance Care Planning in Outpatients With Decompensated Cirrhosis: A Pilot Study.

Abstract:

BACKGROUND:Despite significant morbidity and mortality among patients with decompensated cirrhosis, reported rates of advance directive (AD) completion and goals of care discussions (GCDs) between patients and providers are very low. We aimed to improve these rates by implementing a hepatologist-led advance care planning (ACP) intervention. MEASURES:Rates of AD and GCD completion, as well as self-reported barriers to ACP. INTERVENTION:Provider-led ACP in patients with decompensated cirrhosis without a prior documented AD. OUTCOMES:Sixty-two patients were seen over 115 clinic visits. After the intervention, AD completion rates increased from 8% to 31% and GCD completion rates rose from 0% to 51%. Women (P = 0.048) and nonmarried adults (P = 0.01) had greater changes in AD completion compared to men and married adults, respectively. Needing more time during visits was seen as the major barrier to ACP among providers. CONCLUSIONS/LESSONS LEARNED:Addressing provider and system-specific barriers dramatically improved documentation rates of ACP.

journal_name

J Pain Symptom Manage

authors

Patel A,Kogekar N,Agarwal R,Cohen C,Esteban JP,Pourmand K,Tsai E,Harty A,Pelham-Braithwaite A,Perumalswami P,Dieterich D,Schiano T

doi

10.1016/j.jpainsymman.2019.12.355

subject

Has Abstract

pub_date

2020-04-01 00:00:00

pages

864-870

issue

4

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(19)31060-7

journal_volume

59

pub_type

杂志文章
  • The infusion of opioids during terminal withdrawal of mechanical ventilation in the medical intensive care unit.

    abstract:CONTEXT:Most deaths in intensive care units occur after limitation or withdrawal of life-sustaining therapies. Often these patients require opioids to assuage suffering; yet, little has been documented concerning their use in the medical intensive care unit. OBJECTIVES:To determine the dose and factors influencing the...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.10.256

    authors: Mazer MA,Alligood CM,Wu Q

    更新日期:2011-07-01 00:00:00

  • Living with the dying: an early AIDS experience.

    abstract::The HIV/AIDS epidemic in boys and men with hemophilia began in the early 1980s with the puzzling occurrence of systemic illness and fatal opportunistic infections in patients who had received plasma-derived clotting factor concentrates. This brief narrative describes one physician's experience in caring for patients w...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2013.02.017

    authors: Ballard JO

    更新日期:2013-07-01 00:00:00

  • Iyengar yoga for young adults with rheumatoid arthritis: results from a mixed-methods pilot study.

    abstract:CONTEXT:Rheumatoid arthritis (RA) is a chronic disease that often impacts patient's quality of life. For young people with RA, there is a need for rehabilitative approaches that have been shown to be safe and to lead to improved functioning. OBJECTIVES:This pilot study investigated the feasibility of a single-arm, gro...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2009.09.018

    authors: Evans S,Moieni M,Taub R,Subramanian SK,Tsao JC,Sternlieb B,Zeltzer LK

    更新日期:2010-05-01 00:00:00

  • Factors that affect quality of dying and death in terminal cancer patients on inpatient palliative care units: perspectives of bereaved family caregivers.

    abstract:CONTEXT:There is an increasing use of palliative care units (PCUs) for the treatment of terminally ill cancer patients. Thus, it is important to evaluate the care and quality of life of terminally ill cancer patients treated in PCUs so that improvements can be made. Limited research has investigated the quality of dyin...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.04.010

    authors: Choi JY,Chang YJ,Song HY,Jho HJ,Lee MK

    更新日期:2013-04-01 00:00:00

  • Trajectories of Terminally Ill Patients' Cardiovascular Response to Receptive Music Therapy in Palliative Care.

    abstract:CONTEXT:Relaxation interventions are frequently used to promote symptom relief in palliative care settings, but little is known about the underlying mechanisms. OBJECTIVES:The present analysis aimed at examining the psychophysiological pathways of terminally ill patients' cardiovascular response to a live music therap...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2016.01.008

    authors: Warth M,Kessler J,Hillecke TK,Bardenheuer HJ

    更新日期:2016-08-01 00:00:00

  • The end-of-life care experiences of relatives of brain dead intensive care patients.

    abstract::Brain death is a traumatic and sudden event following a severe injury to the brain. Most patients with brain death spend the last days of life in an intensive care unit (ICU), where some families will be approached to ask for organ donation. This qualitative study was carried out with relatives of patients who had die...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2008.04.013

    authors: Lloyd-Williams M,Morton J,Peters S

    更新日期:2009-04-01 00:00:00

  • Cognitive failure in patients with terminal cancer: a prospective study.

    abstract::In a prospective open study, 61 consecutive patients with terminal cancer admitted to the hospital underwent cognitive assessment using the Mini-Mental State Questionnaire three times a week between admission and discharge or death. Mini-Mental State Questionnaire score upon admission was 28 +/- 1.5 in patients who we...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(92)90074-r

    authors: Bruera E,Miller L,McCallion J,Macmillan K,Krefting L,Hanson J

    更新日期:1992-05-01 00:00:00

  • Neuropathic pain in cancer patients: mechanisms, syndromes, and clinical controversies.

    abstract::The identification of a neuropathic pain syndrome in a cancer patient requires a focused clinical evaluation based on knowledge of common neuropathic pain syndromes. If a tumor is directly involved in the etiology of the pain, oncologic treatment is an initial consideration and may include surgery, radiation, or chemo...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/s0885-3924(97)00009-2

    authors: Martin LA,Hagen NA

    更新日期:1997-08-01 00:00:00

  • Accuracy of a Diagnostic Algorithm to Diagnose Breakthrough Cancer Pain as Compared With Clinical Assessment.

    abstract:CONTEXT:Breakthrough cancer pain (BTCP) is a heterogeneous condition, and there are no internationally agreed standardized criteria to diagnose it. There are published algorithms to assist with diagnosis, but these differ in content. There are no comparative data to support use. OBJECTIVES:To compare the diagnostic ab...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2015.05.006

    authors: Webber K,Davies AN,Cowie MR

    更新日期:2015-10-01 00:00:00

  • Dextroamphetamine or methylphenidate as adjuvants to opioid analgesia for adolescents with cancer.

    abstract::The doses of opioid analgesics required to control pain in patients with cancer may result in somnolence and reduced interaction with family members. Psychostimulants such as dextroamphetamine (DA, Dexedrine) or methylphenidate (MP, Ritalin) have been used in adults to counteract the sedation of opioid analgesia. We r...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(94)90165-1

    authors: Yee JD,Berde CB

    更新日期:1994-02-01 00:00:00

  • Spirituality in Aotearoa, New Zealand: Personal Reflections From a Spirituality in Health Care Researcher.

    abstract::Spirituality is about what is of utmost value; it is a values lens that asks "what really matters most to me, my family, our community, our country, and our world." This personal reflection comes from a New Zealand academic who works in the spirituality and health care research field. Although largely biographical, th...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.12.331

    authors: Egan R

    更新日期:2019-05-01 00:00:00

  • The Role of Inflammation in the Pain, Fatigue, and Sleep Disturbance Symptom Cluster in Advanced Cancer.

    abstract:CONTEXT:Symptom researchers have proposed a model of inflammatory cytokine activity and dysregulation in cancer to explain co-occurring symptoms including pain, fatigue, and sleep disturbance. OBJECTIVES:We tested the hypothesis that psychological stress accentuates inflammation and that stress and inflammation contri...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2018.01.008

    authors: Kwekkeboom KL,Tostrud L,Costanzo E,Coe CL,Serlin RC,Ward SE,Zhang Y

    更新日期:2018-05-01 00:00:00

  • Objective physical activity and self-reported quality of life in patients receiving palliative chemotherapy.

    abstract::There is little objective data on how cancer and its therapy affect physical activity. The main aims of this pilot study were 1) to compare physical activity in patients receiving palliative chemotherapy and healthy controls, and 2) to explore the relationship between patients' activity, quality of life (QoL), and cli...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2006.09.024

    authors: Dahele M,Skipworth RJ,Wall L,Voss A,Preston T,Fearon KC

    更新日期:2007-06-01 00:00:00

  • Episodic breathlessness in patients with advanced disease: a systematic review.

    abstract:CONTEXT:Although episodic breathlessness (EB) is reported to be highly prevalent in advanced disease, our understanding about it is limited. OBJECTIVES:The aim of this study was to systematically review and synthesize the evidence on EB regarding definition, characteristics, and patients' experiences. METHODS:Systema...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.jpainsymman.2012.02.022

    authors: Simon ST,Bausewein C,Schildmann E,Higginson IJ,Magnussen H,Scheve C,Ramsenthaler C

    更新日期:2013-03-01 00:00:00

  • Validation of the Pediatric Functional Assessment of Cancer Therapy Questionnaire (Version 2.0) in brain tumor survivors aged 13 years and older.

    abstract::We evaluated the reliability and validity of the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivor Questionnaire (pedsFACT-BrS, Version 2). This was specifically directed to patients aged 13 years and older (adolescents). The pedsFACT-BrS was translated and cross-culturally adapted into ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.01.024

    authors: Yoo H,Kim DS,Shin HY,Lai JS,Cella D,Park HJ,Ra YS,Kim WC,Shin YS

    更新日期:2010-10-01 00:00:00

  • The Hot Flash Related Daily Interference Scale: a tool for assessing the impact of hot flashes on quality of life following breast cancer.

    abstract::To assess the psychometric properties of the Hot Flash Related Daily Interference Scale (HFRDIS), a sample of breast cancer survivors and an age-matched comparison group completed a questionnaire packet and 2-day prospective hot flash diary at an initial time point and again 6 months later. There were 71 breast cancer...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(01)00353-0

    authors: Carpenter JS

    更新日期:2001-12-01 00:00:00

  • Testing the effects of treatment complications on a cognitive-behavioral intervention for reducing symptom severity.

    abstract::Patients (n = 231) diagnosed with solid tumors and undergoing chemotherapy were randomly assigned to the experimental arm (n = 114) or to conventional care (n = 117). A symptom severity index based on summed severity scores across 15 symptoms was the primary outcome. Building on previously published work, an analysis ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2006.02.013

    authors: Sikorskii A,Given C,Given B,Jeon S,McCorkle R

    更新日期:2006-08-01 00:00:00

  • Triaging the Terminally Ill-Development of the Responding to Urgency of Need in Palliative Care (RUN-PC) Triage Tool.

    abstract:CONTEXT:Evidence-based resource allocation is receiving increasing attention as we strive for equity, transparency, and cost-effectiveness across health care. In the context of finite resources, which of our patients with terminal illness should be prioritized for urgent palliative care? OBJECTIVES:To develop the scor...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.08.009

    authors: Russell B,Vogrin S,Philip J,Hennessy-Anderson N,Collins A,Burchell J,Le B,Brand C,Hudson P,Sundararajan V

    更新日期:2020-01-01 00:00:00

  • Fatigue During and After Breast Cancer Therapy-A Prospective Study.

    abstract:CONTEXT:Chronic fatigue (CF) in breast cancer (BC) survivors is multifactorial and may be caused by immune activation triggered by BC or its treatment. In the Neoadjuvant Avastin in Breast Cancer study, BC patients received neoadjuvant chemotherapy (FEC100→taxane) ± bevacizumab, a monoclonal antibody with fatigue as a ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.jpainsymman.2016.09.011

    authors: Reinertsen KV,Engebraaten O,Loge JH,Cvancarova M,Naume B,Wist E,Edvardsen H,Wille E,Bjøro T,Kiserud CE

    更新日期:2017-03-01 00:00:00

  • Hospital mortality rates: how is palliative care taken into account?

    abstract:CONTEXT:Using mortality rates to measure hospital quality presumes that hospital deaths are medical failures. To be a fair measure of hospital quality, hospital mortality measures must take patient-level factors, such as goals of care, into account. OBJECTIVES:To answer questions about how hospital mortality rates are...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.07.005

    authors: Cassel JB,Jones AB,Meier DE,Smith TJ,Spragens LH,Weissman D

    更新日期:2010-12-01 00:00:00

  • Clinitron therapy and pain management in advanced cancer patients.

    abstract::Many patients with advanced malignancy develop bone metastases, pathologic fractures, and skin breakdown, all of which compromise comfort and interfere with the delivery of patient care. In 1986, 38 Clinitron beds were utilized at Calvary Hospital, a specialty hospital for advanced cancer, for patients who were immobi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(05)80009-0

    authors: Walsh M,Brescia FJ

    更新日期:1990-02-01 00:00:00

  • Patient autonomy problems in palliative care: systematic development and evaluation of a questionnaire.

    abstract::No instrument to assess autonomy problems in palliative care is currently available. The purpose of this study was to develop a comprehensive and concise questionnaire to measure autonomy problems in palliative cancer patients and to study its validity and reliability. We systematically developed a questionnaire throu...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2005.03.010

    authors: Vernooij-Dassen MJ,Osse BH,Schadé E,Grol RP

    更新日期:2005-09-01 00:00:00

  • Assessing fatigue in persons with cancer: further validation of the Wu Cancer Fatigue Scale.

    abstract::Cancer-related fatigue (CRF) is a significant clinical symptom. Effective assessment of CRF attributes from the patients' perspective is essential. This study tested the psychometric properties of the Wu Cancer Fatigue Scale (WCFS). A total of 172 outpatients with breast cancer, who were at various stages and on vario...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2006.06.001

    authors: Wu HS,Wyrwich KW,McSweeney M

    更新日期:2006-09-01 00:00:00

  • Cost trajectories at the end of life: the Canadian experience.

    abstract::A significant proportion of health care resources are consumed at end of life. As a result, decision and policy makers seek cost savings to enhance program planning. Most literature, however, combines the cost of all dying patients and, subsequently, fails to recognize the variation between trajectories of functional ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2009.04.007

    authors: Fassbender K,Fainsinger RL,Carson M,Finegan BA

    更新日期:2009-07-01 00:00:00

  • Spinal cord stimulation in complex regional pain syndrome and refractory neuropathic back and leg pain/failed back surgery syndrome: results of a systematic review and meta-analysis.

    abstract::The drive for good quality evidence has highlighted the importance of well-conducted systematic reviews and meta-analyses that critically evaluate and grade studies for new or existing therapies. A systematic review and meta-analysis was performed to review the efficacy, safety, and cost effectiveness of spinal cord s...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.jpainsymman.2005.12.010

    authors: Taylor RS

    更新日期:2006-04-01 00:00:00

  • PC-FACS.

    abstract::PC-FACS (Fast Article Critical Summaries for Clinicians in Palliative Care) provides hospice and palliative care clinicians with concise summaries of the most important findings from more than 100 medical and scientific journals. If you have colleagues who would benefit from receiving PC-FACS, please encourage them to...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.12.333

    authors: Davis MP

    更新日期:2018-02-01 00:00:00

  • A comparison of pain and its treatment in advanced dementia and cognitively intact patients with hip fracture.

    abstract::Advanced dementia patients may be at substantial risk for undetected or undertreated pain. To examine the treatment of pain following hip fracture, a prospective cohort study was conducted in an academic teaching hospital. Fifty-nine cognitively intact elderly patients with hip fracture and 38 patients with hip fractu...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(00)00113-5

    authors: Morrison RS,Siu AL

    更新日期:2000-04-01 00:00:00

  • A randomized, double-blind, placebo-controlled study of intrathecal ziconotide in adults with severe chronic pain.

    abstract::Safety and efficacy data from a study of slow intrathecal (IT) ziconotide titration for the management of severe chronic pain are presented. Patients randomized to ziconotide (n = 112) or placebo (n = 108) started IT infusion at 0.1 microg/hour (2.4 microg/day), increasing gradually (0.05-0.1 microg/hour increments) o...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2005.10.003

    authors: Rauck RL,Wallace MS,Leong MS,Minehart M,Webster LR,Charapata SG,Abraham JE,Buffington DE,Ellis D,Kartzinel R,Ziconotide 301 Study Group.

    更新日期:2006-05-01 00:00:00

  • Prevalence of Sudden Death in Palliative Care: Data From the Australian Palliative Care Outcomes Collaboration.

    abstract:CONTEXT:Advanced, life-limiting illnesses are likely to have a predictable functional decline through a terminal phase to death, but some patients may also die suddenly. To date, empirical evidence characterizing "sudden death" in hospice/palliative care is lacking. OBJECTIVES:The aim of this study was to determine pr...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.02.015

    authors: Ekström M,Vergo MT,Ahmadi Z,Currow DC

    更新日期:2016-08-01 00:00:00

  • Multidimensional problems among advanced cancer patients in Cuba: awareness of diagnosis is associated with better patient status.

    abstract::Cancer is one of the major causes of death in Cuba, and in current practice, patients are not usually informed of their diagnosis. Palliative care is an emerging discipline in this country. Cuban cancer patients with advanced disease completed the Palliative Outcome Scale (POS), and the researcher elicited patients' k...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2008.02.015

    authors: Justo Roll I,Simms V,Harding R

    更新日期:2009-03-01 00:00:00