Parents' Perspectives on Hospital Care for Children and Adolescents with Life-Limiting Conditions: A Grounded Theory Analysis of Narrative Interviews.

abstract：: Background: Mobile health (mHealth) is a promising tool for improving health outcomes. However, the benefits of using mHealth in palliative care are under studied. Objective: As a first step to designing meaningful palliative c...

journal_title：Journal of palliative medicine

authors： Dickman Portz J,Ford K,Bekelman DB,Boxer RS,Kutner JS,Czaja S,Elsbernd K,Bull S

更新日期：2020-02-01 00:00:00

abstract：PURPOSE:To summarize evidence on conservative, nondialytic management of end-stage renal disease regarding 1) prognosis and 2) symptom burden and quality of life (QOL). METHODS:Medline, Cinahl, and Cochrane were searched for records indexed prior to March 1, 2011. Bibliographies of articles and abstracts from recent m...

journal_title：Journal of palliative medicine

authors： O'Connor NR,Kumar P

更新日期：2012-02-01 00:00:00

abstract：:Good communication is a fundamental skill for all palliative care clinicians. Patients present with varied desires, beliefs, and cultural practices, and navigating these issues presents clinicians with unique challenges. This article provides an overview of the evidence for communication strategies in delivering bad n...

journal_title：Journal of palliative medicine

authors： Barclay JS,Blackhall LJ,Tulsky JA

更新日期：2007-08-01 00:00:00

abstract：OBJECTIVES:To continuously assess overall quality of life (QOL) and disease progression in patients with amyotrophic lateral sclerosis (ALS) at different stages of the disease and compare the results between these two variables. DESIGN/SUBJECTS:Twenty-six patients with ALS were interviewed with a questionnaire to asse...

journal_title：Journal of palliative medicine

authors： Nygren I,Askmark H

更新日期：2006-04-01 00:00:00

abstract：BACKGROUND:Previous research has reported improved pain after adding methadone to another opioid, but did not quantify this benefit using a validated outcome measure. OBJECTIVE:To assess quantitatively the effectiveness of adding methadone to another opioid for moderate to severe cancer-related pain. DESIGN:All outpa...

journal_title：Journal of palliative medicine

authors： Wallace E,Ridley J,Bryson J,Mak E,Zimmermann C

更新日期：2013-03-01 00:00:00

abstract：: Background: Research on what children wished they had done differently after their sibling's death has not been reported. Objective: Examine what children wished they had/had not done, and their coping after a sibling's neonata...

journal_title：Journal of palliative medicine

authors： Youngblut JM,Brooten D

更新日期：2020-07-08 00:00:00

abstract：BACKGROUND:The study of how the quality of pediatric end-of-life care varies across systems of health care delivery and financing is hampered by lack of methods to adjust for the probability of death in populations of ill children. OBJECTIVE:To develop a prognostication models using administratively available data to ...

journal_title：Journal of palliative medicine

authors： Feudtner C,Hexem KR,Shabbout M,Feinstein JA,Sochalski J,Silber JH

更新日期：2009-02-01 00:00:00

abstract：: Background: End-of-life dreams and visions (ELDVs) are prevalent experiences that provide comfort and meaning to dying individuals. Limited research has examined the impact of ELDVs on the bereaved. Objective: This study aimed ...

journal_title：Journal of palliative medicine

authors： Grant PC,Depner RM,Levy K,LaFever SM,Tenzek KE,Wright ST,Kerr CW

更新日期：2020-01-01 00:00:00

abstract：: Background: Bereavement programs provide institutions with an avenue for obtaining feedback from family members about their experiences during a patient's illness and end-of-life (EOL) period that can be used to improve both patient care and the care of bereaved individual...

journal_title：Journal of palliative medicine

authors： Morris SE,Nayak MM,Block SD

更新日期：2020-08-01 00:00:00

abstract：: Background: Diabetes is increasingly prevalent globally, including in palliative care. Guidelines vary as to the ideal glycemic goals for patients near the end of life. The relationship between hyperglycemia and attributable symptoms late in life remains ill defined. ...

journal_title：Journal of palliative medicine

authors： Kleinig PA,Woodman RJ,Currow DC

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Dyspnea is a very distressing symptom present in the vast majority of patients with advanced cancer. There are limited data on the characteristics and correlates of dyspnea in this population. The purpose of this study was to characterize dyspnea, explore the differences between breakthrough and continuous p...

journal_title：Journal of palliative medicine

authors： Reddy SK,Parsons HA,Elsayem A,Palmer JL,Bruera E

更新日期：2009-01-01 00:00:00

abstract：: Background: The number of hospital-based palliative care consultation teams (PCCTs) has increased in Japan, and quality improvement (QI) of PCCTs is an issue. The Japanese Society for Palliative Medicine is building a framework for continuous QI of PCCT activities. ...

journal_title：Journal of palliative medicine

authors： Nakazawa Y,Sakashita A,Kaizu M,Abo H,Ise Y,Shinada Y,Sugano K,Yamashiro A,Akizuki N,Kato M

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Approximately 20% of deaths in the United States occur in the intensive care unit (ICU). Physician trainees lack the practical communication skills required for end-of-life care, including establishing patient preferences, participating in shared decision making, discussing prognosis, and delivering bad news...

journal_title：Journal of palliative medicine

authors： Smith L,O'Sullivan P,Lo B,Chen H

更新日期：2013-01-01 00:00:00

abstract：BACKGROUND:Respiratory signs and symptoms are commonly encountered by physicians who care for cancer patients. Supplemental oxygen (SOx) has long been used for treatment of hypoxic respiratory insufficiency, but data reveal mixed efficacy results. The use and outcome patterns of technologically advanced oxygen delivery...

journal_title：Journal of palliative medicine

authors： Epstein AS,Hartridge-Lambert SK,Ramaker JS,Voigt LP,Portlock CS

更新日期：2011-07-01 00:00:00

abstract：BACKGROUND:Outpatient palliative care (PC) has been shown to positively impact quality of life and decrease healthcare utilization, but there are limited data describing what activities render these benefits. OBJECTIVE:Describe the topics addressed by an outpatient PC team during scheduled visits. DESIGN:Longitudinal...

journal_title：Journal of palliative medicine

authors： Bischoff K,Yang E,Kojimoto G,Shepard Lopez N,Holland S,Calton B,Adkins SH,Cheng S,Miller BJ,Rabow MW

更新日期：2018-07-01 00:00:00

abstract：:Alzheimer's dementia and related dementias are incurable illnesses for which curative treatment currently does not exist, and the efficacy of remittive treatment is extremely limited. Persons with advanced dementia commonly develop fever and are at high risk for death. We preformed a systematic review of outcome follo...

journal_title：Journal of palliative medicine

authors： Pinderhughes ST,Morrison RS

更新日期：2003-06-01 00:00:00

abstract：PURPOSE:To identify issues affecting the quality of life (QoL) in women receiving palliative therapy for ovarian cancer. METHODS:Twenty women with advanced recurrent ovarian cancer were interviewed to establish what issues affect QoL. All patients were receiving palliative chemotherapy or other palliative therapy in t...

journal_title：Journal of palliative medicine

authors： Houck K,Avis NE,Gallant JM,Fuller AF Jr,Goodman A

更新日期：1999-01-01 00:00:00

abstract：: Background: Depression is common in the oncology patient population. Little data exist on the impact of depression on health care utilization. Objectives: We evaluated the prevalence of depression and the relationship between d...

journal_title：Journal of palliative medicine

authors： Ye S,Williams CP,Gilbert AD,Huang CH,Salter TL,Rocque GB

更新日期：2021-01-21 00:00:00

abstract：BACKGROUND:Residents struggle with advance care planning (ACP) discussions in the inpatient setting, and may not be aware of newer models for ACP that stress the importance of giving prognostic information and making a recommendation about cardiopulmonary resuscitation to patients and families. METHODS:A controlled st...

journal_title：Journal of palliative medicine

authors： Jacobsen J,Robinson E,Jackson VA,Meigs JB,Billings JA

更新日期：2011-03-01 00:00:00

abstract：BACKGROUND:Significant gaps exist in the availability of palliative care in rural hospitals and communities, even though rural populations are often disproportionately elderly and chronically ill. Few studies have examined what models of palliative care would be sustainable in a rural community. METHODS:We studied the...

journal_title：Journal of palliative medicine

authors： Ceronsky L,Shearer J,Weng K,Hopkins M,McKinley D

更新日期：2013-03-01 00:00:00

abstract：:Continuing the momentum of geriatric palliative medicine research achieved during the past decade requires a focus on research methods priorities that span the continuum of research from small pilot studies testing new interventions to large multisite studies evaluating implementation of proven interventions and model...

journal_title：Journal of palliative medicine

authors： Aldridge Carlson MD

更新日期：2013-08-01 00:00:00

abstract：BACKGROUND:Additional evidence is needed regarding the impact of inpatient palliative care (IPC) on the quality of end-of-life care and downstream utilization. AIM:Examine the effects of IPC on quality of end-of-life care and acute and postacute care use in a large integrated system. DESIGN:Retrospective cohort desig...

journal_title：Journal of palliative medicine

authors： Khang PS,Wang SE,Liu IA,Watson HL,Koyama SY,Huynh DN,Lee JS,Nguyen HQ

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:After prenatal diagnosis of lethal fetal abnormality (LFA), some couples choose to continue the pregnancy rather than opt for termination of the pregnancy. This may result in the requirement for neonatal palliative care, which in France is prescribed by the Leonetti Law. These rare situations raise various q...

journal_title：Journal of palliative medicine

authors： Tosello B,Dany L,Gire C,Bétrémieux P,Vriet-Ndour ME,Le Coz P,D'Ercole C,Siméoni U,Einaudi MA

更新日期：2014-08-01 00:00:00

abstract：BACKGROUND:Nurses play an integral role in providing care for patients with end of life (EOL) symptoms refractory to conventional treatments and that may necessitate palliative sedation (PS). A paucity of research on nurses' attitudes, knowledge, and experience with PS exists, despite nurses being instrumental in evalu...

journal_title：Journal of palliative medicine

authors： Patel B,Gorawara-Bhat R,Levine S,Shega JW

更新日期：2012-04-01 00:00:00

abstract：BACKGROUND:Identifying people who are at risk of deteriorating and dying is essential to inform goals of care, appropriate treatment decisions, patient autonomy, and effective end-of-life care. Limited literature exists on predicting survival near the end of life for people with a hematological malignancy. OBJECTIVE:T...

journal_title：Journal of palliative medicine

authors： Button E,Gavin NC,Chan RJ,Chambers S,Butler J,Yates P

更新日期：2018-12-01 00:00:00

abstract：CONTEXT:Unmet spiritual needs have been associated with decreased patient ratings of quality of care, satisfaction, and quality of life. Few instruments exist to measure spiritual needs particularly among non-English speaking patients in the U.S. OBJECTIVE:To develop an internally consistent and reliable Chinese versi...

journal_title：Journal of palliative medicine

authors： Astrow AB,Sharma RK,Huang Y,Xu Y,Sulmasy DP

更新日期：2012-12-01 00:00:00

abstract：:A patient with advanced pancreatic cancer is presented to demonstrate the clinical challenge of diagnosing depression in palliative care. The conundrum related to the relative roles of somatic and psychological symptoms in screening or diagnosing depression in these patients is illustrated and discussed. There is no c...

journal_title：Journal of palliative medicine

authors： Pereira J,Bruera E

更新日期：2001-04-01 00:00:00

abstract：BACKGROUND:African Americans in the United States have worse end-of-life care and cancer outcomes than whites. Palliative care may improve this disparity. Community Health Workers may provide a means to improve palliative care disparities. METHODS:Semistructured in-depth interviews (five) and stakeholder focus groups ...

journal_title：Journal of palliative medicine

authors： Johnston FM,Neiman JH,Parmley LE,Conca-Cheng A,Freund KM,Concannon TW,Smith TJ,Cooper LA

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:End-of-life care quality deficiencies have in part been linked to inadequate physician skill in the technical and communication domains of palliative care. Yet few studies have examined physicians' perspectives regarding their experiences caring for patients approaching the end of life. OBJECTIVE:To underst...

journal_title：Journal of palliative medicine

authors： Winzelberg GS,Patrick DL,Rhodes LA,Deyo RA

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:Pediatric intensive care units (PICUs) are highly technological settings in which advanced care is used to restore health to critically ill children; however, they are also places where children die. Understanding the needs of parents bereaved in this setting is essential for better family care. OBJECTIVE:T...

journal_title：Journal of palliative medicine

authors： Meert KL,Schim SM,Briller SH

更新日期：2011-08-01 00:00:00