Abstract:
OBJECTIVES:Aboriginal people are under-represented in epidemiological research, largely due to past failures to engage and recruit Aboriginal communities, research fatigue and the use of culturally inappropriate methods. A qualitative study was undertaken in rural and urban Aboriginal communities in north-eastern and south-western Ontario to identify culturally congruent public health research methodologies. STUDY DESIGN:A qualitative participatory research study using focus group discussions. METHODS:This study employed a participatory research framework to elicit methodological suggestions for conducting public health research with Aboriginal communities during focus groups with healthcare providers from six diverse Aboriginal health organizations in Ontario, Canada. RESULTS:Continuing requests for participation in health research studies have led to community exhaustion. Discussions explored appropriate methods to obtain community approval and support for a study, the need for cultural sensitivity training for researchers, the value of conducting studies of interest and benefit to the community, advantages and disadvantages of qualitative and quantitative studies, the benefit of both Aboriginal and non-Aboriginal ethics reviews, the importance of safeguarding trusted information, types of incentives that may enhance study participation, suggestions to improve the collection of questionnaire information and biological specimens, how to resolve contentious issues and dissemination of study results. CONCLUSION:In order to successfully engage Aboriginal people in health studies, researchers need to build rapport with communities, have a community presence, be respectful and collaborative, utilize incentives, and employ flexible and adaptive methodologies of reasonable length. Oral interviews are preferred to self-completed information. The use of more mixed methods methodologies was suggested when quantitative data collection is necessary. Communities expect presentations about research findings.
journal_name
Public Healthjournal_title
Public healthauthors
Maar MA,Lightfoot NE,Sutherland ME,Strasser RP,Wilson KJ,Lidstone-Jones CM,Graham DG,Beaudin R,Daybutch GA,Dokis BR,Lesage MT,Raymond M,Williamson Pdoi
10.1016/j.puhe.2011.08.006subject
Has Abstractpub_date
2011-11-01 00:00:00pages
747-53issue
11eissn
0033-3506issn
1476-5616pii
S0033-3506(11)00253-8journal_volume
125pub_type
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