Systematic review of barriers and enablers to the delivery of palliative care by primary care practitioners.

abstract：:This paper presents a qualitative study exploring the meaning of 'dignity' to patients, relatives and professionals. It examines the impact of advanced illness and treatment and the issues pertinent to caring for dignity. Depth interviews were conducted with eight patients, six relatives and seven members of the multi...

journal_title：Palliative medicine

authors： Enes SP

更新日期：2003-04-01 00:00:00

abstract：OBJECTIVES:To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. DATA SOURCES:Seven electronic databases were searched for the period January 1994--November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metal...

journal_title：Palliative medicine

authors： Docherty A,Owens A,Asadi-Lari M,Petchey R,Williams J,Carter YH

更新日期：2008-03-01 00:00:00

abstract：BACKGROUND:ENABLE (Educate, Nurture, Advise Before Life Ends) II was one of the first randomized controlled trials (RCTs) examining the effects of a concurrent oncology palliative care intervention on quality of life, mood, and symptom control for advanced cancer patients and their caregivers. However, little is known ...

journal_title：Palliative medicine

authors： Maloney C,Lyons KD,Li Z,Hegel M,Ahles TA,Bakitas M

更新日期：2013-04-01 00:00:00

abstract：BACKGROUND:Of deaths in high-income countries, 75% are caused by progressive advanced chronic conditions. Palliative care needs to be extended from terminal cancer to these patients. However, direct measurement of the prevalence of people in need of palliative care in the population has not been attempted. AIM:Determi...

journal_title：Palliative medicine

authors： Gómez-Batiste X,Martínez-Muñoz M,Blay C,Amblàs J,Vila L,Costa X,Espaulella J,Espinosa J,Constante C,Mitchell GK

更新日期：2014-04-01 00:00:00

abstract：:The question of whether a coherent tradition in research and research methods (or paradigm) exists in palliative care is explored in this paper through an examination of the discussion and debate surrounding palliative care; attempts at achieving consensus for research through priority setting exercises; and a critica...

journal_title：Palliative medicine

authors： Corner J

更新日期：1996-07-01 00:00:00

abstract：BACKGROUND:A study designed to explore the experiences of patients with severe chronic obstructive pulmonary disease (COPD) and their carers, particularly with regard to ongoing and palliative care needs. METHODS:The participants were nine men and one woman with severe COPD and the carers of eight of the men, in East ...

journal_title：Palliative medicine

authors： Seamark DA,Blake SD,Seamark CJ,Halpin DM

更新日期：2004-10-01 00:00:00

abstract：BACKGROUND:Hospitalizations in patients with metastatic cancer occur commonly at the end of life but have not been well-described in individuals with metastatic breast cancer. AIM:To describe the reasons for admission and frequency of palliative care and hospice utilization in hospitalized patients with metastatic bre...

journal_title：Palliative medicine

authors： Shin JA,Parkes A,El-Jawahri A,Traeger L,Knight H,Gallagher ER,Temel JS

更新日期：2016-10-01 00:00:00

abstract：BACKGROUND:Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM:The aim of this study was to investigate the feasibility and acce...

journal_title：Palliative medicine

authors： Ugalde A,Mathers S,Hennessy Anderson N,Hudson P,Orellana L,Gluyas C

更新日期：2018-04-01 00:00:00

abstract：:Depression is the most common psychiatric illness in patients with terminal cancer. Depression not only lowers the quality of life for the patients and their families, but patients who are depressed may also have physical symptoms that are difficult to palliate and that improve as their depression is appropriately tre...

journal_title：Palliative medicine

authors： Lloyd Williams M,Payne S

更新日期：2003-06-01 00:00:00

abstract：:We describe training in CBT techniques for 20 palliative care practitioners delivered as 12 days' equivalent teaching plus skills-building supervision over a six month period. Audiotapes of trainees' interactions with patients during their usual work were rated using a specially devised 'Cognitive First Aid' rating sc...

journal_title：Palliative medicine

authors： Mannix KA,Blackburn IM,Garland A,Gracie J,Moorey S,Reid B,Standart S,Scott J

更新日期：2006-09-01 00:00:00

abstract：BACKGROUND:The lack of a clear definition of the palliative care patient hampers the comparison of results across different studies and impedes implementation of research findings in everyday practice. AIM:The aim of this article is to propose minimum characteristics that define a palliative care patient. DESIGN:The ...

journal_title：Palliative medicine

authors： Van Mechelen W,Aertgeerts B,De Ceulaer K,Thoonsen B,Vermandere M,Warmenhoven F,Van Rijswijk E,De Lepeleire J

更新日期：2013-03-01 00:00:00

abstract：:Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family...

journal_title：Palliative medicine

authors： Giles S,Miyasaki J

更新日期：2009-03-01 00:00:00

abstract：:We determined the relationship between symptom severity and distress for multiple cancer symptoms, and examined patient demographic influences on severity and distress in advanced cancer. A Cochran-Armitage trend test determined whether symptom distress increased with severity. Chi-square, Fisher's exact test and logi...

journal_title：Palliative medicine

authors： Kirkova J,Walsh D,Rybicki L,Davis MP,Aktas A,Tao Jin,Homsi J

更新日期：2010-04-01 00:00:00

abstract：BACKGROUND:the right for patients of all diagnoses to be in receipt of palliative care from an early point in the diagnosis of a life-limiting condition is now enshrined in policy in a number of countries and increased emphasis is placed upon the role of generalist palliative care. However, little is known as to how th...

journal_title：Palliative medicine

authors： Gott M,Seymour J,Ingleton C,Gardiner C,Bellamy G

更新日期：2012-04-01 00:00:00

abstract：:Patients with advanced cancer experience multiple demands and losses that place them at risk for experiencing psychological distress. Researchers can face challenges in conducting research among this population because of their poor levels of physical and cognitive functioning. This paper aims to develop our understan...

journal_title：Palliative medicine

authors： Ryan D,Gallagher P,Wright S,Cassidy E

更新日期：2012-03-01 00:00:00

abstract：:Separate accounts of care were recorded weekly from staff, patients and relatives in a randomised sample of patients with terminal cancer referred to a home care service with readily available beds. Various services were involved but nurses made most contacts, 3.0 visits and 2.4 phone calls weekly, rising sharply in t...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1996-04-01 00:00:00

abstract：:This study reports UK doctors' opinions about legalisation of medically assisted dying (euthanasia and physician-assisted suicide), comparing this with the UK general public. A postal survey of 3733 UK medical practitioners was done. The majority of UK doctors are opposed to legalisation, contrasting with the UK gener...

journal_title：Palliative medicine

authors： Seale C

更新日期：2009-04-01 00:00:00

abstract：BACKGROUND:A normal vitamin D status is required for bones and muscles to maintain their function and structure, but it also contributes to the functional integrity of other multiple physiologic systems in the body. AIM:To assess the relationship of Vitamin D deficiency with health-related quality-of-life issues, fati...

journal_title：Palliative medicine

authors： Martínez-Alonso M,Dusso A,Ariza G,Nabal M

更新日期：2016-01-01 00:00:00

abstract：BACKGROUND:Chronic kidney disease palliative care guidelines would benefit from more diverse and objectively defined health status measures. AIM:The aim is to identify high-risk patients from administrative data and facilitate timely and uniform palliative care involvement. DESIGN:It is a retrospective cohort study. ...

journal_title：Palliative medicine

authors： Nenova Z,Hotchkiss J Jr

更新日期：2019-04-01 00:00:00

abstract：BACKGROUND:Palliative care requires a multidisciplinary care team. General practitioners often ask specialised palliative home care teams for support. Working with specialised nurses offers learning opportunities, also called workplace learning. This can be enhanced by the presence of a learning facilitator. OBJECTIVE...

journal_title：Palliative medicine

authors： Pype P,Mertens F,Wens J,Stes A,Van den Eynden B,Deveugele M

更新日期：2015-05-01 00:00:00

abstract：BACKGROUND:The complexity of end-of-life care, represented by a large number of units caring for dying patients, different types of organizations and difficulties in identification and prognostication, signifies the importance of finding ways to measure the quality of end-of-life care. AIM:To establish, test and manag...

journal_title：Palliative medicine

authors： Lundström S,Axelsson B,Heedman PA,Fransson G,Fürst CJ

更新日期：2012-06-01 00:00:00

abstract：:We investigated the impact of perception of socioeconomic burden on beliefs regarding a patient's autonomy in end-of-life (EOL) decision making. We also sought to identify the characteristics of individuals who advocate patient autonomy and their attitudes toward other EOL issues. A total of 1055 individuals from the ...

journal_title：Palliative medicine

authors： Kwon YC,Shin DW,Lee JH,Heo DS,Hong YS,Kim SY,Yun YH

更新日期：2009-01-01 00:00:00

abstract：:In this population-based study, we found that parents who are aware that their child will die from a malignancy are more likely to care for their child at home during the child's last month of life compared to parents who are not aware. End-of-life home care was comparable to hospital care for satisfactory pain relief...

journal_title：Palliative medicine

authors： Surkan PJ,Dickman PW,Steineck G,Onelöv E,Kreicbergs U

更新日期：2006-04-01 00:00:00

abstract：OBJECTIVES:To explore the experiences of people involved in UK palliative care day services (PCDS) and identify the important outcomes of this service. METHODS:Focus groups were carried out separately with patients, informal carers and volunteers from four purposively selected palliative care day units and with day un...

journal_title：Palliative medicine

authors： Low J,Perry R,Wilkinson S

更新日期：2005-01-01 00:00:00

abstract：BACKGROUND:We have undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services. AIM:To find out in the existing literature what features of hospice at home models work best, for whom and under what cir...

journal_title：Palliative medicine

authors： Hashem F,Brigden C,Wilson P,Butler C

更新日期：2020-01-01 00:00:00

abstract：BACKGROUND:Death anxiety is important but understudied in palliative care. New self-report measurements have been developed, but their interpretation and clinical utility may not be evident. AIM:To inform our understanding of death anxiety in patients with advanced cancer by exploring the relationship between this sel...

journal_title：Palliative medicine

authors： Tong E,Deckert A,Gani N,Nissim R,Rydall A,Hales S,Rodin G,Lo C

更新日期：2016-09-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00

abstract：BACKGROUND:End-of-life implantable cardioverter defibrillator deactivation discussions should commence before device implantation and be ongoing, yet many implantable cardioverter defibrillators remain active in patients' last days. AIM:To examine associations among implantable cardioverter defibrillator knowledge, pa...

journal_title：Palliative medicine

authors： McEvedy SM,Cameron J,Lugg E,Miller J,Haedtke C,Hammash M,Biddle MJ,Lee KS,Mariani JA,Ski CF,Thompson DR,Chung ML,Moser DK

更新日期：2018-01-01 00:00:00

abstract：:Access to palliative care (PC) is a major need worldwide. Using hospital charts of all patients who died over one year (April 2008-March 2009) in two mid-sized hospitals of a large Canadian city, similar in size and function and operated by the same administrative group, this study examined which patients who could be...

journal_title：Palliative medicine

authors： Cohen J,Wilson DM,Thurston A,MacLeod R,Deliens L

更新日期：2012-01-01 00:00:00

abstract：BACKGROUND:The Surprise Question ("Would I be surprised if this patient were to die within the next 12 months?") is widely used to identify palliative patients, though with low predictive value. To improve timely identification of palliative care needs, we propose an additional Surprise Question ("Would I be surprised ...

journal_title：Palliative medicine

authors： Ermers DJ,Kuip EJ,Veldhoven C,Schers HJ,Perry M,Bronkhorst EM,Vissers KC,Engels Y

更新日期：2021-01-11 00:00:00