Abstract：
:Families of patients are well poised to comment on the end-of-life (EOL) care received by those patients and can provide feedback to care providers and decision makers. To better understand family-member evaluations of the quality of in-patient EOL care, this study draws on qualitative interview data (n = 24) to identify core aspects of EOL care that are important for family members. Based on this analysis, a conceptual framework of family members' assessments of their experiences with EOL health care services is developed. Findings suggest the need to distinguish between perceived substantive or tangible features of received care, interpretations of the causes and symbolic meanings of that care, and personal and affective outcomes. Practitioners are encouraged to reflect on how behaviours and communications may be interpreted by families. Attention also needs to be given to the changes in practice and organizational decision making that can facilitate more positive experiences for families and patients.
journal_name
J Palliat Carejournal_title
Journal of palliative careauthors
Stajduhar KI,Funk L,Cohen SR,Williams A,Bidgood D,Allan D,Norgrove L,Heyland Dsubject
Has Abstractpub_date
2011-01-01 00:00:00pages
261-9issue
4eissn
0825-8597issn
2369-5293journal_volume
27pub_type
杂志文章,多中心研究abstract：:This study used a randomized controlled trial design to investigate the impact of hospice at home (HAH) on caregiver bereavement outcome. Secondary analyses considered the association between bereavement, place of death, and carers' assessment of support. Ninety-six informal carers of patients referred to HAH were sur...
journal_title：Journal of palliative care
pub_type： 临床试验,杂志文章,随机对照试验
doi：
更新日期：2004-07-01 00:00:00
abstract：OBJECTIVE:Palliative, end-of-life care (PEOLC) providers are poorly resourced in addressing the needs of patients with mental health challenges, and the dying experiences of this cohort-particularly those with a comorbid, chronic and persistent mental illness (CPMI)-are poorly documented. We sought to explore the exper...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859720951360
更新日期：2020-08-18 00:00:00
abstract：UNLABELLED:In Poland, medical curricula cover palliative care for adults, not for children. This paper evaluates feedback of students who participated in a pilot pediatric palliative care education program. METHOD:An anonymous questionnaire was designed for the students; they were asked to assess each aspect of the pr...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2012-01-01 00:00:00
abstract：INTRODUCTION:Health system restructuring combined with the preferences of many terminally ill care recipients and their caregivers has led to an increase in home-based palliative care, yet many care recipients die within institutional settings such as hospitals. This study sought to determine the place of death and its...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2010-01-01 00:00:00
abstract：:COVID-19 has stressed the healthcare system in ways our society has not seen before. Less visibly, elderly patients and their caregivers have been stressed as well, both by the virus and by the public health measures required to slow its spread. After months of isolating, patients with dementia and their caregivers ar...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859720984567
更新日期：2021-01-12 00:00:00
abstract：:Current definitions of "symptom burden" are largely derived from clinicians, and there are many variations in the way the term is used, defined, and operationalized. The aim of this study was to explore patient perceptions of symptom burden in the context of advanced and incurable disease. A group of 58 cancer patient...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2012-07-01 00:00:00
abstract：OBJECTIVE:This study aimed to characterize the strategies and psychosocial conditions that influence how resilient people live in the face of advanced cancer. METHODS:Grounded theory interviews and a survey of 10 resilient people with advanced cancer were collected and analyzed. FINDINGS:Personal assets - including p...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2013-07-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2000-04-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859719855020
更新日期：2020-07-01 00:00:00
abstract：OBJECTIVES:Little is known about how clinicians perceive prognostic uncertainty. Our study objective was to identify factors that influence how prognostic uncertainty is viewed by physicians, as it relates to their communications with families. DESIGN:Thirty semi-structured interviews with qualitative content analysis...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859719845005
更新日期：2020-01-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：1998-01-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2012-04-01 00:00:00
abstract：PURPOSE:To evaluate the perception of attending physicians, medical residents, and undergraduate medical students about death and dying, the end of life (EoL), and palliative care (PC) during training and clinical practice, highlighting knowledge gaps, and the changes needed in medical school curricula. METHOD:Cross-s...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859720923435
更新日期：2020-05-10 00:00:00
abstract：:Doctor-patient communication is a quintessential part of medical care. Yet, several factors challenge its effectiveness. The author, a third year Pediatrics resident, explores the ways medical education creates distance between doctors' and patients' ability to achieve mutual understanding in the clinical setting and ...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859718795438
更新日期：2019-01-01 00:00:00
abstract：PURPOSE::The primary objective of this study was to quantify cancer family caregiver (FCG) quality of life (QOL) in a Southern Albanian population and to determine whether differences exist between 4 domains of QOL (physical, psychological, social, and spiritual). This study also sought to compare QOL in our cohort to ...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859718812432
更新日期：2019-04-01 00:00:00
abstract：:Chronic obstructive pulmonary disease (COPD) is a leading cause of mortality and disability worldwide. For many patients, maximal therapy for COPD produces only modest relief of disabling symptoms and these symptoms result in a significantly reduced quality of life. Despite the high morbidity and mortality, patients w...
journal_title：Journal of palliative care
pub_type： 杂志文章,评审
doi：
更新日期：2005-10-01 00:00:00
abstract：BACKGROUND:The Patient Self-Determination Act (PSDA) requires hospitals, home health agencies, nursing homes, and hospice providers to offer new patients information about advance directives. There is little evidence regarding whether encounters with these health-care providers prompt advance directive completion by pa...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859718769099
更新日期：2018-07-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：1994-04-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2001-10-01 00:00:00
abstract：:Medical professional societies have traditionally opposed physician-assisted suicide and euthanasia (PAS-E), but this opposition may be shifting. We present 5 reasons why physicians shouldn't be involved in PAS-E. 1. Slippery slopes: There is evidence that safeguards in the Netherlands and Belgium are ineffective and ...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859718777325
更新日期：2018-10-01 00:00:00
abstract：AIM:The aim of this study was to evaluate the utility of the Edmonton Symptom Assessment System (ESAS-r) Scale on a tertiary palliative care unit. METHOD:There were 92 admitted patients who participated in the study; the scale was administered to those able to participate on day 1 (n = 35, 38 percent), on day 4 (n = 2...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/082585971503100107
更新日期：2015-01-01 00:00:00
abstract：BACKGROUND:One challenge for those who manage amyotrophic lateral sclerosis (ALS) is to understand patients' needs. AIM:The aim of this study was to examine the needs of Singapore ALS patients from their perspective as well as that of their caregivers and healthcare professionals in order to develop a template for bet...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/082585971503100304
更新日期：2015-01-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：10.1177/0825859718791427
更新日期：2018-08-16 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2004-04-01 00:00:00
abstract：BACKGROUND:Despite the central role of hospice in end-of-life care, little is known about the proportion of terminally ill patients referred for hospice and the physician factors associated with hospice referral. METHODS:Cross-sectional data from a self-administered survey of 231 physicians were used to estimate the p...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2000-01-01 00:00:00
abstract：:Health care workers often perceive a conflict between autonomy and beneficence when dealing with clients living at risk in the community. Respect for personal freedom and the desire to help and protect vulnerable people frequently appear to demand opposite interventions. The assessment of decision-making capacity is a...
journal_title：Journal of palliative care
pub_type： 杂志文章,评审
doi：
更新日期：1998-04-01 00:00:00
abstract：BACKGROUND:Health professionals are expected to support family caregivers of patients requiring palliative care. However, there is a dearth of empirical evidence to help clinicians identify caregivers who might be at risk of poor psychosocial functioning. PURPOSE:This secondary analysis of baseline data from a larger ...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2006-10-01 00:00:00
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journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：1992-01-01 00:00:00
abstract：BACKGROUND:Little is known about current practice in using the anticonvulsant gabapentin in the management of cancer-related neuropathic pain. OBJECTIVES:The main objective of this study was to describe the pattern of gabapentin use as an adjuvant analgesic for cancer-related neuropathic pain in patients admitted to a...
journal_title：Journal of palliative care
pub_type： 杂志文章
doi：
更新日期：2003-10-01 00:00:00
abstract：:The emphasis of palliative care has been to support both patients and their family caregivers, and to maintain the caregivers' involvement through the patient's illness and death. This study challenges the assumption that people with amyotrophic lateral sclerosis (ALS) and those who care for them at home have a simila...
journal_title：Journal of palliative care
pub_type： 杂志文章
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更新日期：2001-01-01 00:00:00
