Barriers for individuals with spinal cord injury returning to the community: a preliminary classification.

Abstract:

BACKGROUND:With decreased length of stay for inpatient rehabilitation, individuals with newly acquired spinal cord injury (SCI) might be discharged back into the community without the level of knowledge and functional skills necessary to live successfully post injury. This research studied the course of recovery and outcomes after the delivery of a coordinated inpatient rehabilitation system of care for individuals with SCI. OBJECTIVE:Individuals with newly acquired SCI face numerous barriers during reintegration into the community. The purpose of this article is to identify and develop a preliminary classification of barriers to community reintegration that persons with SCI experience during the post-acute period. METHODS:This 1-year study is the qualitative arm of a randomized controlled pilot study. Twenty-six people with SCI participated (mean age 40.6 years, 81% male and 54% tetraplegic). Self-reported data were collected during the first year post discharge from inpatient rehabilitation. RESULTS:The three most common categories of self-reported barriers were mobility and equipment issues (23%), lack of environmental, and home assistance (20%), and insurance issues (18%). The two most common specific barriers were lack of insurance coverage (6.5% of all reported barriers) and residing in a nursing home (5.4%). CONCLUSION:Our findings provide a preliminary classification of the barriers newly injured persons with SCI encounter during the post-acute period.

journal_name

Disabil Health J

authors

Silver J,Ljungberg I,Libin A,Groah S

doi

10.1016/j.dhjo.2012.03.005

subject

Has Abstract

pub_date

2012-07-01 00:00:00

pages

190-6

issue

3

eissn

1936-6574

issn

1876-7583

pii

S1936-6574(12)00047-7

journal_volume

5

pub_type

杂志文章,随机对照试验
  • Disparities in receipt of family planning services by disability status: New estimates from the National Survey of Family Growth.

    abstract:BACKGROUND:A substantial and increasing population of US women of childbearing age live with disability. Disability-based disparities in access to family planning services have been previously documented, but few studies have used population-based data sources or evidence-based measures of disability. OBJECTIVE:To det...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.03.014

    authors: Mosher W,Bloom T,Hughes R,Horton L,Mojtabai R,Alhusen JL

    更新日期:2017-07-01 00:00:00

  • Accelerometer-assessed light-intensity physical activity and mortality among those with mobility limitations.

    abstract:BACKGROUND:Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity. OBJECTIVE:To examine the association between accelerometer-assessed light-intensity physical activit...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.08.007

    authors: Frith E,Loprinzi PD

    更新日期:2018-04-01 00:00:00

  • Pain intensity is associated with self-reported disability for several domains of life in a sample of patients with musculoskeletal pain aged 50 or more.

    abstract:BACKGROUND:Most studies that investigate the impact of pain on function have focused on a particular pain site and use unidimensional measures of disability, making it difficult to know how pain impacts on different areas of functioning and whether different pain characteristics impact differently on function. AIM:To ...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.04.007

    authors: Silva AG,Alvarelhão J,Queirós A,Rocha NP

    更新日期:2013-10-01 00:00:00

  • Obesity as a disability - A representative survey of individuals with obesity from Germany.

    abstract:BACKGROUND:While obesity can be an antecedent of disability and the prevalence of disabilities in increased in individuals with obesity, it has been highly debated whether obesity itself should be considered a disability. The European Court of justice has set a precedent in 2014, ruling that severe forms of obesity qua...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2016.06.007

    authors: Luck-Sikorski C,Riedel-Heller SG

    更新日期:2017-01-01 00:00:00

  • Predicting medication adherence in multiple sclerosis using telephone-based home monitoring.

    abstract:BACKGROUND:Poor medication adherence exerts a substantial negative impact on the health and well-being of individuals with multiple sclerosis (MS). Improving adherence rates requires a proactive approach of frequent and ongoing monitoring; however, this can be difficult to achieve within traditional, reactive health ca...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2015.08.008

    authors: Turner AP,Roubinov DS,Atkins DC,Haselkorn JK

    更新日期:2016-01-01 00:00:00

  • A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome.

    abstract:BACKGROUND:Many health conditions have been described in children with Down syndrome (DS). However, there are little comparative population-based data available. OBJECTIVE/HYPOTHESES:We sought to examine the health impacts associated with DS and other disabling conditions in U.S. children included in the 2005-2006 Nat...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2010.06.001

    authors: Schieve LA,Boulet SL,Kogan MD,Van Naarden-Braun K,Boyle CA

    更新日期:2011-04-01 00:00:00

  • Frequency of purchase and associated costs of assistive technology for Washington State Medicaid program enrollees with spina bifida by age.

    abstract:BACKGROUND:Assistive technology (AT) is one strategy to mitigate or eliminate barriers to independence for individuals with disabilities, including those with spina bifida (SB). However, little is known about current use and costs of AT for people with SB, including the cost burden to medical insurance payees. OBJECTI...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2009.10.009

    authors: Bamer AM,Connell FA,Dudgeon BJ,Johnson KL

    更新日期:2010-07-01 00:00:00

  • Report of the state of the science in aging with developmental disabilities: charting lifespan trajectories and supportive environments for healthy community living symposium.

    abstract:BACKGROUND:This paper is an introduction to four papers that present the findings of the 2007 "State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living" symposium. The overall goal of this symposium was to increase our underst...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2008.04.001

    authors: Heller T

    更新日期:2008-07-01 00:00:00

  • Birth outcomes among US women with intellectual and developmental disabilities.

    abstract:BACKGROUND:Women with intellectual and developmental disabilities (IDD) are bearing children at increasing rates. However, there is very little research about pregnancy experiences and birth outcomes among women with IDD. No studies to date have examined birth outcomes with a US population-based sample. OBJECTIVE:The ...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.02.010

    authors: Akobirshoev I,Parish SL,Mitra M,Rosenthal E

    更新日期:2017-07-01 00:00:00

  • The myth and reality of disability prevalence: measuring disability for research and service.

    abstract::The concept of disability has medical, functional, and social components. We review the frameworks for the definition of disability and endorse a multidimensional approach that is parsimonious and has utility for epidemiology. We need to be able to count people with disabilities to quantify service and support needs, ...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2010.06.002

    authors: McDermott S,Turk MA

    更新日期:2011-01-01 00:00:00

  • Self-reported incidence and age of onset of chronic comorbid medical conditions in adults aging with long-term physical disability.

    abstract:BACKGROUND:Adults with long-term disability are living longer and may experience accelerated aging. More information is needed to understand the incidence of chronic comorbid medical conditions in this population. OBJECTIVE:To examine the incidence, prevalence, age of onset and predictors of five chronic conditions in...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2016.02.002

    authors: Smith AE,Molton IR,Jensen MP

    更新日期:2016-07-01 00:00:00

  • The motivational process for physical activity in young adults with autism spectrum disorder.

    abstract:BACKGROUND:Many young adults, specifically those with a diagnosis of autism spectrum disorder (ASD), do not meet the national physical activity (PA) guidelines. One way to address this problem may be to examine the factors that motivate individuals to engage in PA. However, the majority of current literature does not c...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2018.05.004

    authors: Hamm J,Yun J

    更新日期:2018-10-01 00:00:00

  • "Paying the price to get there": Motherhood and the dynamics of pregnancy deliberations among women with disabilities.

    abstract:BACKGROUND:Women with disabilities report fewer pregnancies than those without disabilities. OBJECTIVE:To explore the range of factors involved in pregnancy decision-making among women with disabilities, and give insight into the decision making process. METHODS:Data were obtained from 4 focus groups conducted with 2...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.02.011

    authors: LaPierre TA,Zimmerman MK,Hall JP

    更新日期:2017-07-01 00:00:00

  • Cross-lagged longitudinal analysis of pain intensity and sleep disturbance.

    abstract:BACKGROUND:There is substantial evidence that pain intensity and sleep are related, with findings generally suggesting more support for the influence of sleep on pain intensity than vice versa. However, the strength and direction of the relationship has been found to vary among different populations, with few studies i...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2020.100908

    authors: Amtmann D,Bamer AM,Askew R,Jensen MP

    更新日期:2020-07-01 00:00:00

  • Routine identification of patients with disabilities in primary care: A mixed-methods study.

    abstract:BACKGROUND:People with disabilities experience barriers to receiving healthcare and often have worse health outcomes, but data on disability is rarely routinely collected in a standardized way. OBJECTIVE:This study examined how patients responded to being asked about disabilities as part of a routine, self-administere...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100872

    authors: Pinto AD,Shenfeld E,Lattanzio R,Aratangy T,Wang R,Nisenbaum R,Kiran T

    更新日期:2020-04-01 00:00:00

  • Life course health and socioeconomic profiles of Americans aging with disability.

    abstract:BACKGROUND:While cross-sectional data have been invaluable for describing national trends in disability over time, we know comparatively little, at a population level, about the long term experiences of persons living with a disability over the adult life course. OBJECTIVE:In this paper we use nationally representativ...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.08.008

    authors: Clarke P,Latham K

    更新日期:2014-01-01 00:00:00

  • Disparities in chronic conditions and health status by type of disability.

    abstract:BACKGROUND:Prior research has established health disparities between people with and without disabilities. However, disparities within the disability population, such as those related to type of disability, have been much less studied. OBJECTIVE:To examine differences in chronic conditions and health status between su...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.04.006

    authors: Horner-Johnson W,Dobbertin K,Lee JC,Andresen EM,Expert Panel on Disability and Health Disparities.

    更新日期:2013-10-01 00:00:00

  • Development of an audio-computer assisted self-interview to investigate violence and health in the lives of adults with developmental disabilities.

    abstract:BACKGROUND:Audio computer-assisted self-interviews (ACASIs) have safely and effectively obtained sensitive research data from the general public and have been recommended for use with people with disabilities. However, few studies have used ACASIs with people with disabilities and ACASIs have not been used to investiga...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2014.01.002

    authors: Oschwald M,Leotti S,Raymaker D,Katz M,Goe R,Harviston M,Wallington A,Howard L,Beers L,Nicolaidis C,Robinson-Whelen S,Hughes RB,Lund E,Powers LE,Partnering with People with Disabilities to Address Violence Consortium.

    更新日期:2014-07-01 00:00:00

  • Patterns of inpatient care for prostate cancer in men with spina bifida.

    abstract:BACKGROUND:Advances in medical care have increased the long-term survival of patients with spina bifida. Despite this growing population, limited knowledge is available on age-related illnesses in adults with spina bifida, particularly prostate cancer for which there is no published data. OBJECTIVE:Our aim was to desc...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100866

    authors: Johnston AW,Wolf S,Alkazemi MH,Pomann GM,Wood H,Wiener JS,Routh JC

    更新日期:2020-04-01 00:00:00

  • Educating health science students about disability: Teachers' perspectives on curricular gaps.

    abstract:BACKGROUND:People living with disabilities are significantly more likely than their peers to find health professionals' skills and facilities inadequate. The 66th World Health Assembly called for better health care for people with disabilities including more inclusive health services and a stronger focus on professiona...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2020.100985

    authors: Peiris-John R,Jain NR,Hogan A,Ameratunga S

    更新日期:2021-01-01 00:00:00

  • Prevalence of long-term disability in Portugal, 2014: Evidence of variation by personal and contextual factors.

    abstract:BACKGROUND:Disability is not just a health problem. It is a wider phenomenon that reflects the gap between a person's capacities and their ability to fully perform the role demanded by society. Both personal and environmental factors are major contributors to disability. OBJECTIVE:We aimed to estimate the prevalence o...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2020.101043

    authors: Raposo Dos Santos JR,Cascão Torres AR,Neto M,Namorado S

    更新日期:2020-11-19 00:00:00

  • Towards Universal Eye Health: Hospital-based disability-disaggregated data collection in Takeo province, Cambodia.

    abstract:BACKGROUND:Universal access and equity are salient principles of the World Health Organization global action plan 'Towards Universal Eye Health'. However, collection of disability-disaggregated data to measure access to eye hospitals in low- and middle income countries, including referral to rehabilitative services, ar...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2018.07.005

    authors: Mörchen M,Bonn TS,Lewis D

    更新日期:2018-10-01 00:00:00

  • The relation of abuse to physical and psychological health in adults with developmental disabilities.

    abstract:BACKGROUND:People with developmental disabilities are at disproportionately high risk of abuse. Although considerable evidence exists on the health-related consequences of abuse in the general population, little is known about those consequences in people with developmental disabilities. OBJECTIVE:To examine the relat...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2018.09.007

    authors: Hughes RB,Robinson-Whelen S,Raymaker D,Lund EM,Oschwald M,Katz M,Starr A,Ashkenazy E,Powers LE,Nicolaidis C,Partnering with People with Disabilities to Address Violence Consortium.

    更新日期:2019-04-01 00:00:00

  • An examination of pain, disability, and the psychological correlates of Chiari Malformation pre- and post-surgical correction.

    abstract:BACKGROUND:50% of patients with Chiari Malformation (CM) report a history of depression; however, rates of other psychological symptoms are unknown. Further, it is unclear whether surgical correction impacts pain, disability, and psychological symptoms. OBJECTIVE:/Hypothesis: We examined rates of symptoms in a nationw...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.05.004

    authors: Garcia MA,Allen PA,Li X,Houston JR,Loth F,Labuda R,Delahanty DL

    更新日期:2019-10-01 00:00:00

  • The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities: historical review, rationale, and implications 5 years after publication.

    abstract::This article reviews much of the history of the Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities and its implications 5 years after publication. This article also reviews historical trends related to disability legislation such as the Social Security Act, the Civil Right...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2010.07.004

    authors: Carmona RH,Giannini M,Bergmark B,Cabe J

    更新日期:2010-10-01 00:00:00

  • Intimate partner violence, reproductive coercion, and unintended pregnancy in women with disabilities.

    abstract:BACKGROUND:Women with disabilities experience higher rates of intimate partner violence (IPV) than the general population. Reproductive coercion, a type of intimate partner violence, is associated with an increased risk of unintended pregnancy (UIP), yet little is known about this relationship among women with disabili...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100849

    authors: Alhusen JL,Bloom T,Anderson J,Hughes RB

    更新日期:2020-04-01 00:00:00

  • A perinatal health framework for women with physical disabilities.

    abstract:BACKGROUND:Studies suggest that women with disabilities experience health and health care disparities before, during, and after pregnancy. However, existing perinatal health and health care frameworks do not address the needs and barriers faced by women with physical disabilities around the time of pregnancy. A new fra...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2015.05.007

    authors: Mitra M,Long-Bellil LM,Smeltzer SC,Iezzoni LI

    更新日期:2015-10-01 00:00:00

  • Changes in perceived social support predict changes in depressive symptoms in adults with physical disability.

    abstract:BACKGROUND:Perceived social support has been found to be associated with depression, subjective well-being and psychological health in cross-sectional studies in people with physical disabilities. No longitudinal studies have been conducted to examine these associations over time using a comprehensive measure of social...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2018.09.005

    authors: de la Vega R,Molton IR,Miró J,Smith AE,Jensen MP

    更新日期:2019-04-01 00:00:00

  • A systematic search and technical review of online information pertaining to medical care for people with disability.

    abstract:BACKGROUND:Little is known about the availability and technical quality of online information related to the medical care of people with disability, despite the potential of this information to alter clinical interactions and treatment decisions. OBJECTIVES:This review examines the utility of internet search engines f...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100877

    authors: Goss KD,Ioerger M,Young V,Flanders RM,Turk MA

    更新日期:2020-04-01 00:00:00

  • The supportive care needs of parents caring for a child with a rare disease: A scoping review.

    abstract:BACKGROUND:Parents caring for a child with a rare disease report unmet needs, the origins of which are varied and complex. Few studies have systematically attempted to identify the supportive care needs of parents with a child with a rare disease comprehensively. We have used the widely accepted Supportive Care Needs F...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2015.03.009

    authors: Pelentsov LJ,Laws TA,Esterman AJ

    更新日期:2015-10-01 00:00:00