A comparison between two educational methods in the rehabilitation of the microstomia in systemic sclerosis: a randomized controlled trial.

Abstract:

OBJECTIVE:To test the effectiveness of an educational intervention including "face to face" training, compared to a standard information program, to reduce microstomia in women with systemic sclerosis. DESIGN:Single-blind, two-arm, randomized controlled study with a 12-month follow-up period. SETTING:Hospital wards of a large Italian dermatological reference center. SUBJECTS:Female inpatients with diagnosis of systemic sclerosis. INTERVENTIONS:For both groups an information brochure and an audio-visual DVD were developed specifically for the study. The control group was assigned to educational materials alone (i.e. brochures and DVD), while the experimental group, in addition to the same educational materials, received specific "face-to-face" interventions, repeated at each follow-up visit. MAIN MEASURES:Primary outcome was measurement of the opening of the mouth. Secondary outcomes was the self-reported mouth disability. RESULTS:The intention-to-treat analysis included 63 patients. Compared to the baseline measurement, we observed an increase of the mouth opening of 0.31 cm (95% confidence interval: 0.13-0.49), P = 0.003; in the control group, the increase was 0.13 cm (95% confidence interval: 0.01-0.25), P = 0.06. The difference in improvement between the two groups was not statistically significant (P = 0.10); however, it reached statistical significance in the per-protocol analysis (39 patients, P = 0.02). CONCLUSION:Face-to-face nursing rehabilitation training seems to improve microstomia to a greater extent, when compared to a standard intervention based only on written and audio-visual materials.

journal_name

Clin Rehabil

journal_title

Clinical rehabilitation

authors

Uras C,Mastroeni S,Tabolli S,Masini C,Pallotta S,Teofoli P,Rocco G,Mazzanti C,Abeni D

doi

10.1177/0269215519858395

subject

Has Abstract

pub_date

2019-11-01 00:00:00

pages

1747-1756

issue

11

eissn

0269-2155

issn

1477-0873

journal_volume

33

pub_type

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