What is symptom burden: a qualitative exploration of patient definitions.

Abstract:

:Current definitions of "symptom burden" are largely derived from clinicians, and there are many variations in the way the term is used, defined, and operationalized. The aim of this study was to explore patient perceptions of symptom burden in the context of advanced and incurable disease. A group of 58 cancer patients followed by a palliative care team answered a single open-ended question: "Please define 'symptom burden'". Three authors independently coded and analyzed patient responses using a grounded theory approach. They identified six themes, the most frequently coded of which were: "can't do usual activities", "psychological suffering" and "specific severe symptoms". Our findings indicate that the concept of symptom burden is complex and extends beyond numerical symptom-scoring systems. In addition to inquiring about specific symptoms, it may be important to directly ask patients about their overall burden or experience of symptoms.

journal_name

J Palliat Care

authors

Gill A,Chakraborty A,Selby D

subject

Has Abstract

pub_date

2012-07-01 00:00:00

pages

83-9

issue

2

eissn

0825-8597

issn

2369-5293

journal_volume

28

pub_type

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