Abstract:
BACKGROUND AND OBJECTIVES:Advance care planning (ACP) is increasingly regarded as the gold standard in the care of patients with life-limiting illnesses. Research has focused on adults, but ACP is also being practiced in pediatrics. We conducted a systematic review on empirical literature on pediatric ACP (pACP) to assess current practices, effects, and perspectives of pACP. METHODS:We searched PubMed, BELIT, and PSYCinfo for empirical literature on pACP, published January 1991 through January 2012. Titles, abstracts, and full texts were screened by 3 independent reviewers for studies that met the predefined criteria. The evidence level of the studies was assessed. Relevant study outcomes were retrieved according to predefined questions. RESULTS:We included 5 qualitative and 8 quantitative studies. Only 3 pACP programs were identified, all from the United States. Two of them were informed by adult programs. Major pACP features are discussions between families and care providers, as well as advance directives. A chaplain and other providers may be involved if required. Programs vary in how well they are evaluated; only 1 was studied by using a randomized controlled trial. Preliminary data suggest that pACP can successfully be implemented and is perceived as helpful. It may be emotionally relieving and facilitate communication and decision-making. Major challenges are negative reactions from emergency services, schools, and the community. CONCLUSIONS:There are few systematic pACP programs worldwide and none in Europe. Future research should investigate the needs of all stakeholders. In particular, the perspective of professionals has so far been neglected.
journal_name
Pediatricsjournal_title
Pediatricsauthors
Lotz JD,Jox RJ,Borasio GD,Führer Mdoi
10.1542/peds.2012-2394subject
Has Abstractpub_date
2013-03-01 00:00:00pages
e873-80issue
3eissn
0031-4005issn
1098-4275pii
peds.2012-2394journal_volume
131pub_type
杂志文章,评审相关文献
PEDIATRICS文献大全abstract:OBJECTIVE:We measured the relative impact of influenza and respiratory syncytial virus (RSV) infections in young children in terms of emergency department (ED) visits, clinical care requirements, and overall resource use.
METHODS:Patients who were aged journal_title:Pediatrics pub_type: 杂志文章 doi:10.1542/peds.2008-3074 更新日期:2009-12-01 00:00:00
abstract::Serum apolipoprotein A-I (apo A-I) and apolipoprotein B (apo B) profiles were examined in 2,854 children, 5 to 17 years of age, from a total biracial community. Black boys had higher apo A-I levels than white boys (P less than .001), whereas girls showed no such race-related difference. Black-white difference in apo A...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1986-08-01 00:00:00
abstract::Hydrocarbon ingestions account for a substantial number of accidental poisonings; when aspirated, it can lead to severe pneumonitis. Treatment for severe pneumonitis is generally supportive, and outcomes are frequently poor. We report here the case of a 19-month-old girl who was treated successfully with early adminis...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2010-3229
更新日期:2011-06-01 00:00:00
abstract::Ifosfamide is widely used in the treatment of pediatric solid tumors. Its main adverse effects are various forms of renal tubular and glomerular damage. Many risk factors have been proposed to play a role in the development and severity of nephrotoxicity in children receiving ifosfamide, among which are 1) patient's a...
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:10.1542/peds.101.6.e8
更新日期:1998-06-01 00:00:00
abstract:OBJECTIVE:To examine factors associated with the maternal perception of the weight status in related and unrelated children and to examine whether associated health risks for children's physical and mental health are recognized. PATIENTS AND METHODS:Two hundred nineteen mothers with children between 3 and 6 years of a...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2008-1845
更新日期:2009-07-01 00:00:00
abstract:OBJECTIVE:To determine if serum levels of S100B are higher in children with CHT and ICI as detected by cranial CT and if long bone fractures affect the level of S100B in children with CHT and skeletal injury. METHODS:Children <18 years of age who presented to an urban pediatric emergency department or were transferred...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2008-1493
更新日期:2009-10-01 00:00:00
abstract::The present study tested the predictive validity at 3 years of age of a screening device for the early identification of later cognitive delay. The screening device, administered between 3 and 7 months of age, is based on the infant's differential fixation "to novel" over previously shown pictures. The sample was comp...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1986-12-01 00:00:00
abstract:BACKGROUND AND OBJECTIVE:Diagnostic imaging procedures (DIPs) producing radiation exposure in children have been associated with increased cancer risk. To develop effective clinical practice interventions that reduce pediatric radiation exposure, a longitudinal assessment of DIP ordering practices in the current clinic...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2012-1228
更新日期:2013-01-01 00:00:00
abstract::Diabetic retinopathy (DR) is the leading cause of blindness in young adults in the United States. Early identification and treatment of DR can decrease the risk of vision loss in affected patients. This clinical report reviews the risk factors for the development of DR and screening guidance for pediatric patients wit...
journal_title:Pediatrics
pub_type: 杂志文章,实务指引
doi:10.1542/peds.2005-0875
更新日期:2005-07-01 00:00:00
abstract:OBJECTIVE:The aim of this article was to describe how providers in an Indian NICU reach life-or-death treatment decisions. METHODS:Qualitative in-depth interviews, field observations, and document analysis were conducted at an Indian nonprofit private tertiary institution that provided advanced neonatal care under con...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2008-3227
更新日期:2009-08-01 00:00:00
abstract::Today clinical information is used for a multitude of purposes beyond patient care documentation including quality review and improvement processes, allocation of resources, budgetary and long-term planning, productivity measurement, and justification to payers for services provided. Providers in perinatal medicine ar...
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:
更新日期:1999-01-01 00:00:00
abstract:BACKGROUND AND OBJECTIVES:Family-centered rounds (FCRs) have become standard of care, despite the limited evaluation of FCRs' benefits or interventions to support high-quality FCR delivery. This work examines the impact of the FCR checklist intervention, a checklist and associated provider training, on performance of F...
journal_title:Pediatrics
pub_type: 杂志文章,随机对照试验
doi:10.1542/peds.2016-1688
更新日期:2017-05-01 00:00:00
abstract::We report the preliminary 3-month outcome of a multicenter randomized trial of cryotherapy for treatment of retinopathy of prematurity (ROP). Transscleral cryotherapy to the avascular retina was applied to one randomly selected eye when there was threshold disease (defined as five or more contiguous or eight cumulativ...
journal_title:Pediatrics
pub_type: 临床试验,杂志文章,随机对照试验
doi:
更新日期:1988-05-01 00:00:00
abstract:OBJECTIVES:Children with generalized hypermobility of the joints and musculoskeletal complaints frequently visit pediatric clinics, but many show no currently known collagen or other possibly related diseases. Whether the symptoms are confined to the musculoskeletal system is unknown. We assessed whether such children ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.111.3.e248
更新日期:2003-03-01 00:00:00
abstract:OBJECTIVE:This article reviews the available information concerning the disease burden, epidemiology, and etiology of otitis media in developing countries and the likelihood that case management with appropriate antibiotic therapy can reduce the burden of this disease. METHODOLOGY:The available literature was reviewed...
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:
更新日期:1995-07-01 00:00:00
abstract::The safe sedation of children for procedures requires a systematic approach that includes the following: no administration of sedating medication without the safety net of medical supervision; careful presedation evaluation for underlying medical or surgical conditions that would place the child at increased risk from...
journal_title:Pediatrics
pub_type: 杂志文章,实务指引
doi:10.1542/peds.2006-2780
更新日期:2006-12-01 00:00:00
abstract:OBJECTIVES:The reported increasing prevalence of autism spectrum disorder (ASD) and attendant health and family impact make monitoring of ASD prevalence a public health priority. METHODS:The prevalence of parent-reported diagnosis of ASD among US children aged 3 to 17 years was estimated from the 2007 National Survey ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2009-1522
更新日期:2009-11-01 00:00:00
abstract::Fragile X syndrome (an FMR1-related disorder) is the most commonly inherited form of mental retardation. Early physical recognition is difficult, so boys with developmental delay should be strongly considered for molecular testing. The characteristic adult phenotype usually does not develop until the second decade of ...
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:10.1542/peds.2010-3500
更新日期:2011-05-01 00:00:00
abstract:BACKGROUND:In previous studies, the oral calcium loading and deprivation test has been used to distinguish between children with renal (fasting) hypercalciuria (RH) and absorptive hypercalciuria (AH). OBJECTIVE:We evaluated the long-term clinical course of 30 children with idiopathic hypercalciuria and investigated th...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1996-02-01 00:00:00
abstract::A ganglioneuroblastoma developed in a 35-month-old boy with both the fetal hydantoin and fetal alcohol syndromes. Our case, plus two recent reports in the literature, would very likely establish the relationship between fetal hydantoin syndrome and the development of neural crest tumors. Infants exposed in utero to hy...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1979-04-01 00:00:00
abstract:OBJECTIVE:To determine the sensitivity, specificity, predictive value, and accuracy of a program of pulse oximetry screening of asymptomatic newborns for critical congenital cardiovascular malformation (CCVM). METHODS:Pulse oximetry was performed on asymptomatic newborns in the well-infant nurseries of 2 hospitals. Ca...
journal_title:Pediatrics
pub_type: 杂志文章,多中心研究
doi:10.1542/peds.111.3.451
更新日期:2003-03-01 00:00:00
abstract:BACKGROUND:Two of the most prevalent problems facing youth in the United States are injury and obesity. Obesity increases the risk of injury, prolongs recovery time, and increases morbidity among injured children. OBJECTIVE:The purpose of this study was to compare characteristics of injuries between obese and nonobese...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2009-2367
更新日期:2010-04-01 00:00:00
abstract::The possibility that arterial oxygen saturation (SaO2) decreases during sleep in children with chronic bronchial asthma was investigated. The relationship between decreases in sleep SaO2 and airflow obstruction and ventilatory drives, as characterized by ventilatory and inspiratory muscle activity responses to hypoxia...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1980-11-01 00:00:00
abstract:OBJECTIVE:Type 2 diabetes is a growing problem among adolescents, but little is known about self-management behaviors in this population. Our aim was to examine self-management behaviors and glycemic control among adolescents with type 2 diabetes. METHODS:From 2003 to 2005, a telephone survey of adolescents with type ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2007-1484
更新日期:2008-04-01 00:00:00
abstract:OBJECTIVE:This study evaluates the potential association of vaccination and death in the Vaccine Safety Datalink (VSD). METHODS:The study cohort included individuals ages 9 to 26 years with deaths between January 1, 2005, and December 31, 2011. We implemented a case-centered method to estimate a relative risk (RR) for...
journal_title:Pediatrics
pub_type: 杂志文章,多中心研究
doi:10.1542/peds.2015-2970
更新日期:2016-03-01 00:00:00
abstract::Millions of children are subjected to abuse, neglect, and displacement, and millions more are at risk for not achieving their developmental potential. Although there is a global movement to change this, driven by children's rights, progress is slow and impeded by political considerations. The United Nations Convention...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2019-0487
更新日期:2019-12-01 00:00:00
abstract::A review of hospital admissions of patients with status asthmaticus at the Childrens Hospital of Los Angeles showed a marked increase in admissions in recent years. Asthma mortality did not increase. Patients tended to be young, boys, and black as compared with patients admitted to a general hospital. Interviews with ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1989-07-01 00:00:00
abstract::Adenovirus infection is common in childhood and is generally associated with self-limited disease. Cidofovir, a viral DNA polymerase inhibitor, is used to treat adenovirus infection in select populations but is not often recommended for immunocompetent patients because of limited antiviral activity and nephrotoxicity....
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:10.1542/peds.2019-1632
更新日期:2020-01-01 00:00:00
abstract:OBJECTIVES:To assess trends in incidence of Candida spp. central line-associated bloodstream infections (CLABSIs) in US NICUs, 1999-2009. METHODS:Data from NICUs participating in the National Nosocomial Infections Surveillance (1999-2004) and National Healthcare Safety Network (2006-2009) were analyzed. Overall and bi...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2011-3620
更新日期:2012-07-01 00:00:00
abstract:OBJECTIVE:We assessed the immunogenicity and safety of a combination measles, mump, rubella, and varicella vaccine (MMRV) (ProQuad [Merck & Co, Inc, West Point, PA]) administered to healthy children concomitantly with a pneumococcal 7-valent conjugate vaccine (PCV-7) (Prevnar [Pfizer, Philadelphia, PA]). PATIENTS AND ...
journal_title:Pediatrics
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1542/peds.2010-2132
更新日期:2011-12-01 00:00:00