Abstract:
:Prior to the 1990s, most 46,XX infants with clitoromegaly secondary to congenital adrenal hyperplasia were treated with feminizing genitoplasty to make their cosmetic appearance congruent with their genotypic sex. A 2006 consensus statement for the management of intersex disorders accepted input from patient advocates and did not support purely cosmetic surgery for clitoromegaly. This study examined the extent to which the desired change was implemented in practice. Retrospective chart review was performed at a single Midwestern tertiary care medical center for patients born between 1979 and 2013. Of 45 virilized patients, 40 had clitoromegaly and 39 had urogenital sinus or posterior labial fusion. Twenty-seven (67.5%) patients underwent clitoroplasty and 33 (84.6%) underwent perineoplasty, including vaginoplasty, urethroplasty, imperforate vagina repair, and/or posterior labial fusion repair. There was a linear decline in the rate of clitoroplasty over time for the patient cohort. This study demonstrates the power of patient advocacy to improve medical practice.
journal_name
Clin Pediatr (Phila)journal_title
Clinical pediatricsauthors
Schoer MB,Nguyen PN,Merritt DF,Wesevich VG,Hollander ASdoi
10.1177/0009922818803407subject
Has Abstractpub_date
2018-12-01 00:00:00pages
1664-1671issue
14eissn
0009-9228issn
1938-2707journal_volume
57pub_type
杂志文章abstract::Anemia is defined as a reduction in red blood cell mass or hemoglobin concentration in blood. It is statistically differentiated from normal states as a hemoglobin concentration or hematocrit 2 SD below the mean for the healthy population adjusted for age and sex. Anemias may be classified based on the morphologic fun...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922808323115
更新日期:2009-01-01 00:00:00
abstract::The aim of this study was to evaluate the safety and efficacy of nonoperative treatment of esophageal perforation (EP) in children. Between 1999 and 2004, 13 episodes in 12 patients were evaluated. The treatment program consisted of broad-spectrum antibiotics, nasopharyngeal aspiration, parenteral and/or enteral nutri...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992280504400204
更新日期:2005-03-01 00:00:00
abstract::This study evaluated the effects of Certified Child Life Specialist (CCLS) intervention on pediatric distress and pain and family satisfaction during routine peripheral intravenous (PIV) line placement in the emergency department (ED). A convenience sample of 78 children (3-13 years) requiring PIV placement for their ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922818798386
更新日期:2018-11-01 00:00:00
abstract::The effectiveness of tepid sponging, in addition to antipyretic medication, in the reduction of temperature in febrile children living in a tropical environment, was assessed in a prospective, randomized, open trial. Seventy-five children aged between 6 and 53 months who attended the casualty department of the Childre...
journal_title:Clinical pediatrics
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1177/000992289403300407
更新日期:1994-04-01 00:00:00
abstract::The "upside-down stomach" is a rare form of organo-axial neonatal volvulus, which occurs because of absent or attenuated anatomical anchors and abnormal motility of the stomach. It is considered a surgical emergency that requires immediate correction. We report a previously undescribed etiology of gastric neonatal vol...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288802700612
更新日期:1988-06-01 00:00:00
abstract::The American Academy of Pediatrics California Chapter 3 created a 20-minute training video targeting barriers to strong provider recommendation of the human papillomavirus (HPV) vaccine. The video included clinical vignettes featuring pediatricians modeling counseling techniques with vaccine-hesitant families. Ninety-...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922818805217
更新日期:2019-01-01 00:00:00
abstract::To compare parental compliance with after-hours triage advice provided by telephone advice nurses and on-call pediatricians, a randomized controlled trial was undertaken at a university general pediatrics practice that enrolled parents or guardians calling for after-hours advice. Advice calls were randomized to a call...
journal_title:Clinical pediatrics
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1177/000992280304200707
更新日期:2003-09-01 00:00:00
abstract::The purpose of this study was to compare the bacteriologic and clinical efficacy of oral penicillin versus amoxicillin as first-line therapy for group A beta-hemolytic streptococcal (GABHS) tonsillopharyngitis. The prospective observational study was conducted over 18 months (January 2000-June 2001). Children enrolled...
journal_title:Clinical pediatrics
pub_type: 临床试验,杂志文章,评审
doi:10.1177/000992280304200305
更新日期:2003-04-01 00:00:00
abstract::Patient-centered medical home (PCMH) transformation has been challenging for pediatric practices, in part because of the National Committee for Quality Assurance (NCQA) PCMH focus on conditions and processes specific to adult patients. Realizing the potential challenges faced by pediatric practices, Vermont supported ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922816669788
更新日期:2017-06-01 00:00:00
abstract::We present the case of a young boy who was born to a human immunodeficiency virus (HIV)-positive mother and originally found to be uninfected. Evidence-based guidelines were followed regarding the mother's prenatal and infant's postnatal care, including the avoidance of breast milk. HIV DNA polymerase chain reaction q...
journal_title:Clinical pediatrics
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doi:10.1177/0009922815601032
更新日期:2016-06-01 00:00:00
abstract::The Adult Congenital and Pediatric Cardiology (ACPC) Section of the American College of Cardiology sought to develop quality indicators/metrics for ambulatory pediatric cardiology practice. The objective of this study was to report the creation of metrics for patients with Kawasaki disease. Over a period of 5 months, ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922819896098
更新日期:2020-03-01 00:00:00
abstract::Asthma is the most prevalent chronic condition affecting children and a common chief complaint in emergency departments (EDs). We aimed to improve parents' understanding of their child's asthma severity on accessing our pediatric ED for an acute asthma exacerbation. A retrospective chart review was conducted to determ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922813479163
更新日期:2013-07-01 00:00:00
abstract::This study was designed to objectively examine depression and distress levels in parents of ill versus parents of healthy neonates by utilizing two well-validated questionnaires, the Beck Depression Inventory (BDI) and Kellner Symptom Questionnaire (KSQ). In addition, morbidity of infants was assessed by the Minde-Whi...
journal_title:Clinical pediatrics
pub_type: 临床试验,杂志文章
doi:10.1177/000992289403300203
更新日期:1994-02-01 00:00:00
abstract::Knowledge of the characteristics of family structure may be helpful to the pediatrician for predicting child abuse. During the past several decades progressive shifts from the classic family unit of two biological parents and their children to a variety of parental living arrangements have occurred. Most notable are t...
journal_title:Clinical pediatrics
pub_type: 杂志文章,评审
doi:10.1177/000992280604500201
更新日期:2006-03-01 00:00:00
abstract::A scoring method was developed to assess severity of stool retention using plain abdominal radiographs. To determine whether the technique was clinically valid in identifying chronic stool retention, the method was used to evaluate films taken of children with known stool retention before and after therapy. The method...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992287901801103
更新日期:1979-11-01 00:00:00
abstract::Three children presented with acute onset of hemiplegia following an upper respiratory infection. Angiography revealed irregulaities, beading, and slow flow of a peripheral branch of a middle cerebral artery. In addition, one child had narrowing of the cervical segment of the internal carotid artery. An inflammatory a...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992287601501209
更新日期:1976-12-01 00:00:00
abstract::This study examines primary care provider (PCP) experiences with the initial parental disclosure of cystic fibrosis (CF) newborn screening (NBS) results in order to identify methods to improve parent-provider communication during the CF NBS process. PCPs of infants who received positive CF NBS results participated in ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922814545619
更新日期:2015-01-01 00:00:00
abstract::Background. Testicular torsion is a common surgical emergency in children that requires a high index of suspicion, early diagnosis, and exploration. Most children present early to their primary pediatricians or physicians. The aim of this retrospective study is to determine the surgical outcome of testicular torsion w...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922820903037
更新日期:2020-05-01 00:00:00
abstract::The goal of this study was to determine the value of a certified child life specialist (CCLS) on the patient and staff experiences in an epilepsy monitoring unit (EMU). We integrated a CCLS into the EMU for all children as well as adults with intellectual disability. We surveyed families to determine the impact of chi...
journal_title:Clinical pediatrics
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doi:10.1177/0009922818769469
更新日期:2018-10-01 00:00:00
abstract::Five cases of bacterial epididymo-orchitis are presented. These patients demonstrate three distinct mechanisms of bacterial infection of the intrascrotal structures: epididymo-orchitis as a presentation and a complication of urinary tract infection; epididymo-orchitis associated with sexually transmitted disease; and ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288001901206
更新日期:1980-12-01 00:00:00
abstract::It has been estimated that as many as 250,000 adolescents are using anabolic steroids (AS). Recently, anecdotal reports suggest that athletes may also be using human growth hormone (HGH). The purpose of the present study was to determine the following: 1) if adolescents in two suburban midwestern high schools (83% whi...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289203101206
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journal_title:Clinical pediatrics
pub_type: 杂志文章,随机对照试验
doi:10.1177/0009922818821878
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journal_title:Clinical pediatrics
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doi:10.1177/0009922818805241
更新日期:2019-01-01 00:00:00
abstract::During 1981, we treated 20 infants, less than 24 months old, for nontyphoid Salmonella (NTSal) gastroenteritis (GE). Blood cultures were obtained in 17 cases, and Salmonella bacteremia was demonstrated in 8 (47%). Of the 13 children 3 to 24 months of age, 7 (54%) had positive blood cultures. One child (8 months old) a...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288302200901
更新日期:1983-09-01 00:00:00
abstract::This study describes urban emergency department (ED) utilization and follow-up referral patterns among adolescents. ED visits for 14-19-year-old patients at an urban university hospital with adjacent adult and pediatric emergency departments during specified months in 1993 were retrospectively reviewed. A subgroup (n=...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992280003900806
更新日期:2000-08-01 00:00:00
abstract::This study examined whether physical pain, mental health symptoms, and provider characteristics were associated with the discussion of children's behavior, mood, getting along with others, school performance, family stress, and parent stress during 800 pediatric primary care visits to 54 providers in 13 clinics. The d...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922807304144
更新日期:2007-11-01 00:00:00
abstract::Sleep-disordered breathing (SDB) is prevalent in children and most commonly treated by surgery with adenotonsillectomy. We aimed to learn physician perspectives of social and communication factors that influence decision making for treatment of pediatric SDB. Purposive sampling identified 10 physician key informants a...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922817702939
更新日期:2017-10-01 00:00:00
abstract::During the years 1976 through 1980, 118 children with osteomyelitis were seen at our hospital, an incidence of almost 24 cases per year. Twenty-eight of these had sickle cell disease. Males were more commonly affected than females, with a ratio of 2.1 to 1, and bones of the lower extremities were more commonly involve...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288402301003
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journal_title:Clinical pediatrics
pub_type: 杂志文章
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更新日期:2018-10-01 00:00:00
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journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922807302508
更新日期:2007-10-01 00:00:00