Abstract：
:Primary spinal tumors are rare diseases. Primary spinal tumor registry would be useful to help decision making in this complex field of spine surgery. In this article the authors present the latest findings from the Primary Spinal Tumor Registry at the National Centre for Spinal Disorders, Hungary. The registry is based on a novel database management software, the REDCap electronic data capture system. It contains data of 323 patients treated surgically during an 18-year period. Among the 126 malignant tumors, the most frequent was chordoma (61 cases). In the case of benign tumors schwannoma showed the largest prevalence (45 cases). The authors conclude that due to the rarity of the disease and the complexity of the management, multicenter, prospective registries are required to provide high level of evidence. The structure of the Primary Spinal Tumor Registry in the National Centre for Spinal Disorders in Hungary is optimal for user-friendly, fast and secure data collection providing a prospective database for scientific researches and clinical follow-up. :A primer gerincdaganatok ritka betegségek. A gerincdaganat-regiszter kialakítása fontos információforrásként szerepelhet, elősegítheti a terápiás döntéshozatal tudományos megalapozását, növelve a gerincdaganatos betegek túlélési esélyeit. A szerzők bemutatják az Országos Gerincgyógyászati Központban működő Primer Gerinctumor Regisztert, amely egy modern adatbázis-kezelő szoftverre, a RedCap adatbázisra épül. A regiszter 18 év során összesen 323, primer gerincdaganattal diagnosztizált beteg adatát tartalmazza. 126 malignus daganat közül a leggyakrabban előforduló szövettani típus a chordoma volt (61 eset), míg a benignus daganatok közül a schwannoma prevalenciája volt a legmagasabb (45 eset). A regiszter adatait számos aspektusból elemezték. A szerzők rámutatnak arra, hogy a primer gerincdaganatok biológiai viselkedésének és terápiás lehetőségeinek vizsgálata csak akkor lehetséges, ha nagyszámú betegről szisztematikus adatgyűjtés történik. Az Országos Gerincgyógyászati Központban létrehozott Primer Gerincdaganat Regiszter felépítése lehetővé teszi a gyors, felhasználóbarát adatbevitelt, optimális adatbázist biztosítva a betegek utánkövetéséhez és a betegség tudományos kutatásához. Orv. Hetil., 2014, 155(19), 745–749.
journal_name
Orv Hetiljournal_title
Orvosi hetilapauthors
Szövérfi Z,Lazáry A,Varga PPdoi
10.1556/OH.2014.29920subject
Has Abstractpub_date
2014-05-11 00:00:00pages
745-9issue
19eissn
0030-6002issn
1788-6120pii
132R79220772N33Mjournal_volume
155pub_type
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