Abstract:
BACKGROUND:Autonomous use of online health care services without interaction with a health care provider challenges existing models for achieving informed consent (IC); current examinations of this issue have focused on commercial direct-to-consumer genetic testing. As IC is integral to publicly funded clinical testing services, we incorporated pre-test concepts necessary for IC in GetCheckedOnline (GCO), British Columbia's online sexually transmitted and blood-borne infection (STBBI) testing service. OBJECTIVE:We assessed the acceptability of this IC step and its design options among potential users during usability testing of GCO. METHODS:English-speaking participants≥19years were recruited from Craigslist and among provincial STI clinic clients for usability testing of an early version of GCO, which included a consent webpage presenting 8 pre-test statements for review prior to completing testing. Participants were interviewed regarding their acceptability, perceptions, and understanding of the consent page; transcripts were analyzed thematically. RESULTS:We conducted 13 interviews (9 males, 4 females; 9 self-identified as heterosexual; all had previously tested for STBBI). We identified three main themes: i) the meaning of IC (consent page viewed as important and for protection of individual and organization; participants demonstrated varying understandings of specific components); ii) the impact of previous experience on understanding IC (participants understood difference between online and in-person testing; IC concepts were better understood by participants with more testing experience); iii) the role of website design on achieving IC (design of page to disrupt speedy click-throughs was valued and demonstrated seriousness of the consent page). CONCLUSIONS:Our careful attention to both content and design of the consent page of GCO was highly valued by potential users of the service, and effective in disrupting routinization of consent on websites. We argue that principles of IC apply equally in online self-testing programs as in clinical practice, and can be effectively achieved without detracting from the user experience.
journal_name
Int J Med Informjournal_title
International journal of medical informaticsauthors
Gilbert M,Bonnell A,Farrell J,Haag D,Bondyra M,Unger D,Elliot Edoi
10.1016/j.ijmedinf.2017.05.020subject
Has Abstractpub_date
2017-09-01 00:00:00pages
38-48eissn
1386-5056issn
1872-8243pii
S1386-5056(17)30169-7journal_volume
105pub_type
杂志文章abstract:INTRODUCTION:Epilepsy is a chronic neurological disorder characterized by recurrent spontaneous seizures. Over 70% epilepsy patients can live normally if their seizures can be controlled. For this, many factors should be tracked and managed, but doing so is hard because of individual differences. There are mobile appli...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.104051
更新日期:2020-02-01 00:00:00
abstract:BACKGROUND:This study assessed current perspectives and expectations for telemedicine by nursing home caregivers and families of nursing home patients in Taipei, Taiwan. METHODS:A total of 116 interviews were conducted with family members (n=37) and caregivers (n=79) using an original, four-part questionnaire devised ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2009.02.009
更新日期:2009-07-01 00:00:00
abstract:BACKGROUND:Given that China has free universities dedicated solely to the elderly, such universities may be the perfect place to provide large numbers of elderly with a systematic program of self-management. Yet, testing health applications in this location has not occurred, partly because time-consuming training is re...
journal_title:International journal of medical informatics
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.ijmedinf.2019.104010
更新日期:2020-01-01 00:00:00
abstract:OBJECTIVE:To describe the kinds of unintended consequences related to the implementation of computerized provider order entry (CPOE) in the outpatient setting. DESIGN:Ethnographic and interview data were collected by an interdisciplinary team over a 7 month period at four clinics. MEASUREMENTS:Instances of unintended...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2006.05.017
更新日期:2007-06-01 00:00:00
abstract::Funding constraints, demands for improved efficiency, low staff to student ratios and improved computer software (D. Wright, The use of multimedia computers and software in nurse education, Health Inf. 1 (3) (1995) 101-107.) all combine to produce a situation where a dramatic increase in the use of CBE for tertiary nu...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(98)00057-4
更新日期:1998-06-01 00:00:00
abstract::Effective security arrangements, which both protect and assure those information assets of healthcare providers, doctors and patients, are fundamental requirements in a modern electronic healthcare culture. At the heart of healthcare information systems in future will be those infrastructure components and services, w...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(00)00109-x
更新日期:2000-11-01 00:00:00
abstract::The present computer system is the first of its kind based on problem-oriented medical record (POMR) design developed and operated in a hospital in Hong Kong. It went live in May 1996 with two workstations installed in the medical record office (MRO). Doctors have no direct access to it. They dictate medical notes on ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(99)00019-2
更新日期:1999-07-01 00:00:00
abstract::The research questions, strategies, and results of a 7-year qualitative study of computerized physician order entry implementation (CPOE) at successful sites are reviewed over time. The iterative nature of qualitative inquiry stimulates a consecutive stream of research foci, which, with each iteration, add further ins...
journal_title:International journal of medical informatics
pub_type: 杂志文章,多中心研究
doi:10.1016/j.ijmedinf.2005.05.005
更新日期:2005-08-01 00:00:00
abstract:OBJECTIVE:To obtain an overview of study designs and study methods used in research evaluating IT in health care, to present a list of quality criteria by which all kinds of reported evaluation studies on IT systems in health care can be assessed, and to assess the quality of reported evaluation studies on IT in health...
journal_title:International journal of medical informatics
pub_type: 杂志文章,评审
doi:10.1016/j.ijmedinf.2006.11.009
更新日期:2008-01-01 00:00:00
abstract:OBJECTIVE:To apply cognitive task analyses of the Biomedical query mediation (BQM) processes for EHR data retrieval at multiple sites towards the development of a generic BQM process model. MATERIALS AND METHODS:We conducted semi-structured interviews with eleven data analysts from five academic institutions and one g...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2016.06.006
更新日期:2016-09-01 00:00:00
abstract::To assure sustainability of our health systems and improve quality, implementing integrated wellness, health and social care service models have been proposed. They will need the enabling power of Health ICT facilitated systems and applications. Such solutions support the efficient coordination of service provision ac...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2012.05.008
更新日期:2013-04-01 00:00:00
abstract:OBJECTIVE:There is a growing interest in using natural language processing (NLP) for healthcare-associated infections (HAIs) monitoring. A French project consortium, SYNODOS, developed a NLP solution for detecting medical events in electronic medical records for epidemiological purposes. The objective of this study was...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2018.06.002
更新日期:2018-09-01 00:00:00
abstract::Traditionally, diagnosis and treatment have been seen as two distinct tasks. Consequently, most approaches to computer supported health care focus on one of the two-mostly on diagnosis or rather on the interpretation of measurements which is much better understood and formalised. However, in practice diagnosis and tre...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(02)00064-3
更新日期:2002-12-18 00:00:00
abstract:OBJECTIVES:Non-steroidal anti-inflammatory drugs (NSAIDs) are frequently prescribed for musculoskeletal pain and inflammatory conditions. A better understanding of patient information seeking behavior can help bridge the gap between patient knowledge and health care resources. This study examines the primary sources of...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2016.07.017
更新日期:2016-10-01 00:00:00
abstract:BACKGROUND AND OBJECTIVE:Diabetic foot is one of the important complications of diabetes, which is occurred due to the destructive parameters in different anatomical sites of feet. Management and monitoring of these parameters are very important to decrease or prevent foot ulcers. We aimed to develop a smart wearable d...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2020.104343
更新日期:2021-02-01 00:00:00
abstract:BACKGROUND:Trauma resuscitation involves multidisciplinary teams under surgical leadership in most US trauma centers. Because many trauma centers have also incorporated emergency department (ED) physicians, shared and cross-disciplinary leadership structures often occur. Our study identifies leadership structures and e...
journal_title:International journal of medical informatics
pub_type: 杂志文章,多中心研究
doi:10.1016/j.ijmedinf.2011.01.004
更新日期:2011-04-01 00:00:00
abstract:UNLABELLED:Given the increasing prevalence of multimorbidity in primary care (PC), interdisciplinary PC teams supported by appropriate clinical information systems (CIS) are needed in order to deal with the complexity of multimorbid patients' care. Our team has developed such a system, called the Da Vinci system. Howev...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2011.11.002
更新日期:2012-02-01 00:00:00
abstract:BACKGROUND:Worldwide, patients have posted millions of online reviews for their doctors. The rich textual information in the online reviews holds the potential to generate insights into how patients' experience with their doctors differ across nations and how should we use them to improve our health service. OBJECTIVE...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2016.12.007
更新日期:2017-03-01 00:00:00
abstract:BACKGROUND:Despite attempts to reform the healthcare delivery system in the Middle East, expectations for its progress have been-and for some still are-somewhat slow. OBJECTIVE:This study reviewed progress in the use and adoption of telemedicine in Middle Eastern countries. The key dimensions affecting the progress of...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2020.104232
更新日期:2020-09-01 00:00:00
abstract:PURPOSE:Shared Electronic Health Record (EHR) systems, which provide a health information exchange (HIE) within a community of care, were found to be a key enabler of informational continuity of diabetes mellitus (DM) care. Quantitative analyses of the actual contribution of Shared EHR systems to informational continui...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2016.05.001
更新日期:2016-08-01 00:00:00
abstract:PURPOSE:To develop, implement and test a novel audience response system (ARS) that allows image based interaction for radiology education. METHODS:The ARS developed in this project is based on standard Personal Digital Assistants (PDAs) (HP iPAQ 114 classic handheld) running Microsoft® Windows Mobile® 6 Classic with a...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2011.05.002
更新日期:2011-08-01 00:00:00
abstract:OBJECTIVE:To develop and characterize a large, representative sample of guideline recommendations that can be used to better understand how current recommendations are written and to test the adequacy of guideline models. We refer to this sample as the Yale Guideline Recommendation Corpus (YGRC). METHOD:To develop the...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2008.11.001
更新日期:2009-05-01 00:00:00
abstract:OBJECTIVES:To compare the usability of different Picture Archiving and Communication System (PACS) workstations, determine whether a usability test has added value with respect to the traditional way of comparing PACSs based on functional requirements, and to evaluate the appropriateness of a task-based methodology for...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2013.10.003
更新日期:2014-01-01 00:00:00
abstract:OBJECTIVES:Since the launch of a nationwide general health check-up and instruction program in Japan in 2008, interest in strategies to improve implementation of the program based on predictive analytics has grown. We investigated the performance of prediction models developed to identify individuals classified as "req...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2017.12.009
更新日期:2018-03-01 00:00:00
abstract:BACKGROUND:Community-based multiple screening for common cancers and chronic diseases has increasingly gained attention. However, as infrastructure and evaluation system are more diversified and complicated compared with single screening, the development of a novel health information system is paramount. METHODS:The m...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2005.07.033
更新日期:2006-05-01 00:00:00
abstract:BACKGROUND:Recent developments in positioning systems and telecommunications have provided the technology needed for the development of location aware medical applications. We developed a system, named EmerLoc, which is based upon this technology and uses a set of sensors that are attached to the patient's body, a micr...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2006.07.010
更新日期:2007-10-01 00:00:00
abstract:OBJECTIVES:This paper has two objectives. First, it categorizes the Twitter handles tweeted flu related information based on the amount of replies and mentions within the Twitter network. The collected Twitter accounts are categorized as media, health related individuals, organizations, government, individuals with no ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2016.04.009
更新日期:2016-07-01 00:00:00
abstract::It is becoming increasingly essential for individuals to be able uniquely to identify themselves and each other, even where they may never meet. Access to and use of privileges of membership, whether of a professional association, computer network or health insurance policy depends upon the 'members' being able to pro...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(00)00119-2
更新日期:2000-11-01 00:00:00
abstract::In the last years, multidisciplinary post-discharge treatment programs, such as telemonitoring, have been promoted as a strategy for Heart Failure (HF) management. However, the distinctive requirements that a telemonitoring system should have, have not been clearly identified. To this aim, the most relevant requiremen...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2020.104204
更新日期:2020-09-01 00:00:00
abstract::A model of expertise for monitoring antiepileptic drug treatment was implemented in a decision support system. We validated the advice of the system regarding treatment decisions at first follow-up with 265 paper cases based on patient records. The reference for comparison is based on the opinions of neurologists. We ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(99)00052-0
更新日期:1999-11-01 00:00:00