Abstract:
:This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper was drafted by Alzheimer Europe in collaboration with members of INTERDEM and the European Working Group of People with Dementia. It has been formally adopted by the Board of Alzheimer Europe and endorsed by the Board of INTERDEM and by the JPND working group 'Dementia Outcome Measures - Charting New Territory'. Alzheimer Europe is keen to promote the involvement of people with dementia in research, not only as participants but also in the context of PPI, by generating ideas for research, advising researchers, being involved in consultations and being directly involved in research activities. This position paper is in keeping with this objective. Topics covered include, amongst others, planning involvement, establishing roles and responsibilities, training and support, managing information and input from PPI, recognising the contribution of people with dementia involved in research in this way, promoting and protecting the rights and well-being of people with dementia, training and support, and promoting an inclusive approach and the necessary infrastructure for PPI in dementia research.
journal_name
Aging Ment Healthjournal_title
Aging & mental healthauthors
Gove D,Diaz-Ponce A,Georges J,Moniz-Cook E,Mountain G,Chattat R,Øksnebjerg L,European Working Group of People with Dementia.doi
10.1080/13607863.2017.1317334subject
Has Abstractpub_date
2018-06-01 00:00:00pages
723-729issue
6eissn
1360-7863issn
1364-6915journal_volume
22pub_type
杂志文章abstract::International policy initiatives have highlighted the need to include older lesbian, gay, bisexual and transgender (LGBT) issues in the provision of appropriate health and social care. However, empirical studies in the area remain sparse. The aim of this study was to investigate the experiences and needs of LGBT peopl...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2012.751583
更新日期:2013-01-01 00:00:00
abstract:OBJECTIVES:Depression is common in older adults and is linked to morbidity and mortality. The aim of this study was to investigate whether specific symptoms of depression (dysphoria, anhedonia and anergia) predicted mortality in older Australian Aged Care residents. METHODS:Eighty older adults (M = 83.16 ± 7.14) witho...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2021.1872491
更新日期:2021-01-18 00:00:00
abstract::The purpose of this study was to consider the contribution of intergenerational exchange to mental health. Using data from a national sample of Jewish Israelis age 60 and over with children (n = 1799), reciprocal and non-reciprocal exchange patterns were identified and examined in relation to respondents' scores on a ...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860410001669723
更新日期:2004-05-01 00:00:00
abstract:OBJECTIVES:The main objective is to examine the sense of coherence (SOC) of spouse caregivers. The aim was further investigate the association of SOC, health-related quality of life (HRQoL), depressive symptoms, distress and how severity of Alzheimer's disease (AD) affects SOC. METHOD:17O patient-spouse caregiver dyad...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860903046487
更新日期:2009-11-01 00:00:00
abstract:OBJECTIVES:This study aimed at investigating the point prevalence of life weariness and suicidal thoughts and their relationship with socio-demographic characteristics in a population of older adults in Sweden. METHOD:Data from 7913 individuals aged 60 years and older were drawn from the Swedish National Study on Agin...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2017.1348484
更新日期:2018-10-01 00:00:00
abstract:OBJECTIVES:To identify latent subgroups of women in late life who are alike in terms of their mental health trajectories. METHOD:Longitudinal data are for 9683 participants in the 1921-1926 cohort of the Australian Longitudinal Study on Women's Health, who completed at least two surveys between 1999 (aged 73-78 years)...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2015.1060943
更新日期:2016-10-01 00:00:00
abstract::Objectives: Mentally stimulating leisure activities and cognitive interventions are associated with delayed cognitive decline, although evidence has not been unequivocal, possibly due to differential contribution of the two types of activities. This study aimed to examine the respective contributions of mentally activ...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2019.1636204
更新日期:2020-11-01 00:00:00
abstract::Objectives: Poor social connections may be associated with poor cognition in older people who are not experiencing mental health problems, and the trajectory of this association may be moderated by cognitive reserve. However, it is unclear whether this relationship is the same for older people with symptoms of depress...
journal_title:Aging & mental health
pub_type: 杂志文章,多中心研究
doi:10.1080/13607863.2018.1506742
更新日期:2019-12-01 00:00:00
abstract::In many countries there is a concern to improve assessment procedures for older people to avoid misplacement in nursing homes and ensure that rehabilitation takes place where possible. The study examined assessment documentation in 126 care homes in North West England. On a set of core domains for assessing need, the ...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860600637794
更新日期:2006-09-01 00:00:00
abstract::Objectives: The aim of the current study was to assess the associations between dynapenia and the onset and persistence of depression and anxiety among older adults.Methods: This prospective cohort study enrolled community-living older adults (N = 5271; 51.1% females) aged ≥ 50 years (mean age = 63.2, standard deviati...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2019.1699021
更新日期:2019-12-12 00:00:00
abstract:OBJECTIVES:The objective of this study was to understand the relationship between mental health service use and comorbid any anxiety and commonly occurring physical conditions (i.e., arthritis, cardiovascular disease, and gastrointestinal disease) in a national sample of older Canadians. METHODS:The sample consisted o...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2015.1033678
更新日期:2016-01-01 00:00:00
abstract::The purpose of this study was to determine how health impairment, socioeconomic status, and social support relate to life satisfaction in later life. Using data from a sample of 320 older adults from The Georgia Centenarian Study, we constructed a structural model of life satisfaction. LISREL analysis was performed to...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860600638388
更新日期:2006-09-01 00:00:00
abstract::Objectives: The stress-related psychological symptoms experienced by informal family caregivers do not always improve or resolve after the death of the care recipient. The purpose of this study was to explore the independent associations of sociodemographic variables, personality and coping, environmental variables, a...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2018.1531375
更新日期:2020-02-01 00:00:00
abstract::Little is known about the prevalence of dementia and its associated risk factors in developing countries. Some studies suggest that the prevalence of dementia is lower in developing countries than it is in high-income nations. We sought to determine risk factors for dementia in elderly persons in central Nigeria. Usin...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860600736182
更新日期:2006-11-01 00:00:00
abstract::Medication adherence is a substantial problem in the elderly. It may be even more important among elderly persons with memory problems, since other factors that lead to non-adherence may be compounded with the memory problems themselves. The objective was to determine whether a model that integrates research on medica...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860500410011
更新日期:2006-07-01 00:00:00
abstract::This paper reviews the proposals from the Lord Chancellor's Department for new Mental Incapacity law for England and Wales as they may impact on older people with dementia. Various concerns and issues are raised, particularly from the perspective of health care professionals, and the focus is the interface between suc...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860120080279
更新日期:2001-11-01 00:00:00
abstract::The Dysfunctional Attitudes Scale Form A (DAS-A), a self-report measure of depression-related attitudes, has been used in numerous depression studies. The DAS-A has a two-factor structure that has been found consistently with college student samples and clinically depressed samples of middle-aged adults, but it has no...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860410001649572
更新日期:2004-03-01 00:00:00
abstract:OBJECTIVE:Late-life suicide is a complex clinical and public health problem. METHOD:In this article, some of the key complexities inherent in studying late-life suicide are discussed in the service of promoting high-quality late-life suicide prevention science. RESULTS:We discuss the following research issues: the re...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2015.1065791
更新日期:2016-01-01 00:00:00
abstract::Objective: Both caregivers and the older adults they care for can experience declines in quality of life (QOL) over the course of the dementia trajectory. Little research has examined QOL in African-American caregivers and even less in African-American persons with dementia (PWDs), making it difficult to identify asso...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2020.1711865
更新日期:2020-01-10 00:00:00
abstract::Objectives: Humans often hold structured generalizations about themselves, which include attributes of qualities or characteristics they consider as important to their personal self-definitions. In this regard, holding one's age as an important defining personal category (high age awareness) was demonstrated to be con...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2019.1566815
更新日期:2020-06-01 00:00:00
abstract:OBJECTIVES:Frailty affects an estimated 15% of community dwelling older adults. Few studies look at psychosocial variables like self-efficacy (confidence to perform well at a particular task or life domain) in relation to frailty. The purpose of this study was to evaluate associations between pre-frailty/frailty and se...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2019.1639136
更新日期:2020-12-01 00:00:00
abstract:OBJECTIVES:There is a paucity of research on antisocial personality disorder (ASPD) in the geriatric population and the majority of knowledge on the disorder is drawn from young adult samples. Researchers posit that the prevalence of ASPD as well as other personality disorders (PDs) is underestimated among older adults...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2020.1839867
更新日期:2020-10-27 00:00:00
abstract:OBJECTIVES:In the UK and elsewhere, specialist community mental health teams (CMHTs) are central to the provision of comprehensive services for older people with mental ill health. Recent guidance documents suggest a core set of attributes that such teams should encompass. This article reports on a systematic literatur...
journal_title:Aging & mental health
pub_type: 杂志文章,评审
doi:10.1080/13607863.2011.651431
更新日期:2012-01-01 00:00:00
abstract:OBJECTIVE:Integrated care has been identified as means of managing the demands on the healthcare budget while improving access to and quality of services. It is particularly pertinent to rural health services, which face limited access to specialist and support services. This paper explores the capacity of three rural ...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2017.1320702
更新日期:2018-08-01 00:00:00
abstract:OBJECTIVE:There have been few studies examining the relationship between chronic obstructive pulmonary disease (COPD) and psychiatric morbidity in Hong Kong. This study aimed to examine the prevalence of depressive disorders (major depression, dysthymia and adjustment disorder with depressed mood) in Chinese patients w...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2013.856862
更新日期:2014-07-01 00:00:00
abstract:OBJECTIVES:The purpose of this study was to examine factors associated with the bereavement service utilization of bereaved dementia caregivers. Grounded in Andersen's behavioral model of health service use, this study examined predisposing, enabling, and need factors as potential predictors of bereavement service use....
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2010.543661
更新日期:2011-05-01 00:00:00
abstract:BACKGROUND:Similarities exist in behavioral expression of autism spectrum disorder (ASD) and Alzheimer's disease and related dementias (ADRD). The purpose of this study was to assess presence of behavioral and psychiatric symptoms of dementia (BPSD) and ASD-like behaviors in adults with ADRD. METHODS:Using a cross-sec...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2020.1849025
更新日期:2020-11-23 00:00:00
abstract:OBJECTIVES:This study explored how war commemorations such as the Cenotaph Service in the UK enable older veterans to benefit from a feeling of integration and belonging gained from both comradeship and acknowledgement from wider society. METHOD:Focus groups preceded by a video clip of the Cenotaph Service with 45 vet...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607860802224268
更新日期:2008-07-01 00:00:00
abstract::Objectives: This study aimed to examine the mediating effect of coping strategies on the relationship between family functioning and posttraumatic growth in family caregivers of people with dementia (PwD).Methods: A total of 124 family caregivers of PwD from a memory clinic were investigated from July to October 2017....
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2020.1786800
更新日期:2020-07-07 00:00:00
abstract:OBJECTIVE:Few studies have examined health anxiety in older adults, and it is unknown which factors account for age-related differences in health anxiety. Given similarities between health anxiety and the anxiety disorders, anxiety-related constructs, including anxiety sensitivity, intolerance of uncertainty, emotion r...
journal_title:Aging & mental health
pub_type: 杂志文章
doi:10.1080/13607863.2012.688192
更新日期:2012-01-01 00:00:00