Perspectives of patients and family members regarding psychological support using intensive care diaries: An exploratory mixed methods study.

Abstract:

PURPOSE:Diaries summarizing intensive care are routine practice in some countries, although evidence to support diary use is limited. The purpose of this study was to identify whether distress post-intensive care influences patients' and relatives' choice as to whether they would like to receive a diary and what information delivery method is preferred. MATERIALS AND METHODS:Intensive care patients admitted for at least 3 days and their relatives participated in an exploratory mixed methods study. Interviews were conducted 3 to 5 months after discharge. Psychological distress was assessed using Kessler-10 and Posttraumatic Stress Disorder Symptom Checklist - 5. Perceptions of benefit of diaries were assessed using a 4-point Likert scale. Differences were examined using Fisher exact test (P<.05). RESULTS:Fifty-seven patients and 22 relatives consented to participation, with 22 patients and 22 relatives interviewed before data saturation. Psychological distress was evident in 25 (47%) patients and 5 (23%) relatives. Participants' psychological health was similar for those who perceived diaries as beneficial, and those who did not. Themes included memory, process, and impact, although opinions were diverse. CONCLUSIONS:Patient and relative preferences of receiving a diary are not related to psychological distress. Diverse opinions around common themes suggest the need for a range of interventions to aid psychological recovery.

journal_name

J Crit Care

journal_title

Journal of critical care

authors

Aitken LM,Rattray J,Kenardy J,Hull AM,Ullman AJ,Le Brocque R,Mitchell M,Davis C,Castillo MI,Macfarlane B

doi

10.1016/j.jcrc.2016.12.003

subject

Has Abstract

pub_date

2017-04-01 00:00:00

pages

263-268

eissn

0883-9441

issn

1557-8615

pii

S0883-9441(16)30298-2

journal_volume

38

pub_type

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