Abstract:
OBJECTIVE:This study describes the process elements of decision-making for dementia, in order to enrich a model to facilitate shared decision-making for professionals working with people with dementia and their informal caregivers. METHODS:We performed a qualitative study based on secondary analysis of 117 interviews from 23 care networks consisting of people with dementia, their informal caregivers and professionals. Findings were compared to an existing model of collaborative deliberation. RESULTS:We made an enhancement to the existing collaborative deliberation model, to include: (1) constructive network engagement, (2) recognizing the need for a decision, (3) defining what to decide on, (4) developing alternatives, (5) constructing preferences through deliberation and trying out alternatives, (6) multiple preference integration, and (7) evaluating decision-making. CONCLUSION:In describing the process elements of decision-making in dementia, this empirical study proposes a modification of the model of collaborative deliberation for the context of dementia care. The adaptation highlights the special attention needed to recognize and define what to decide on, try out alternatives, and handle conflicting interests and preferences. PRACTICE IMPLICATIONS:Professionals should be attentive to mark the start of the decision-making process and work with participants towards a shared view on the pressing matters at hand.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Groen van de Ven L,Smits C,Elwyn G,Span M,Jukema J,Eefsting J,Vernooij-Dassen Mdoi
10.1016/j.pec.2017.01.024subject
Has Abstractpub_date
2017-07-01 00:00:00pages
1329-1337issue
7eissn
0738-3991issn
1873-5134pii
S0738-3991(17)30061-7journal_volume
100pub_type
杂志文章abstract:OBJECTIVE:This study aimed to translate and validate German, Italian, and French versions of the Short-Test of Functional Health Literacy (S-TOFHLA), to be used in Switzerland and its neighboring countries. METHODS:The original English version of the S-TOFHLA was translated by applying standardized translation methods...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.08.018
更新日期:2013-01-01 00:00:00
abstract:OBJECTIVE:Considered as a reflection of human rights in our modern day, patient rights have been gaining increasing importance. This particular subject has been discussed from various perspectives in different countries and legal sanctions imposed. "Patient Rights Directives" in Turkey came into effect in 1988. The pre...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.02.013
更新日期:2006-04-01 00:00:00
abstract:OBJECTIVE:To assess the associated obstetric and sociodemographic risk of vulnerability to postnatal depression in a population-based study. METHODS:All women presenting for postpartum care (n=1656) were surveyed at pregnancy care units of southern-eastern Hungary between January 2004 and May 2006 with an anonymously ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.02.004
更新日期:2007-07-01 00:00:00
abstract::Although 'patient-centred' consulting skills are increasingly seen as crucial for the delivery of effective primary care, there is significant lack of clarity over the precise definition of the term, optimal methods of measurement, and the relationship between patient-centred care and patient outcomes. The present stu...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(02)00099-x
更新日期:2002-09-01 00:00:00
abstract:OBJECTIVE:The main aim of this study was to establish the contents of the lay illness models on depression, cancer, hypertension, schizophrenia and influenza in healthy and ill people suffering from these diseases who have/have not coexisted with people with these health alterations. METHODS:Dimensions of lay illness ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.03.016
更新日期:2007-07-01 00:00:00
abstract::Early hospital discharges, greater reliance on outpatient care, and the growing prevalence of chronic diseases has increased the demands on family members who care for patients at home. Family caregivers need information and training to insure that patients' needs are met and that home care is coordinated with that of...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(95)00790-3
更新日期:1996-01-01 00:00:00
abstract:OBJECTIVE:To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD). METHODS:91 first year psychology students and 91 RA pat...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2011.06.001
更新日期:2012-03-01 00:00:00
abstract:OBJECTIVE:Studies of physicians' professional development highlight the important effect that the learning environment has in shaping student attitudes, behaviors, and values. The objective of this study was to better understand the interplay among relationships and experiences in mediating the effects of the learning ...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2008.05.016
更新日期:2008-09-01 00:00:00
abstract:OBJECTIVES:Dialysis patients report a low health-related quality of life (HRQOL) due to high disease burden and far-reaching consequences of dialysis treatment. This study examined several cognitive-behavioral and social factors, with a focus on negative outcome expectancies, that might be relevant for HRQOL in end-sta...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.019
更新日期:2020-11-25 00:00:00
abstract:OBJECTIVE:This study examines the preferences of patients with metastatic cancer regarding notification of imaging results, as well as distress surrounding the process. METHODS:On imaging day, preferences for notification, expectations of results, health literacy, and social support were measured. After receiving resu...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.08.032
更新日期:2020-02-01 00:00:00
abstract:OBJECTIVE:This study aimed to assess the inter-rater and intra-rater reliability of the English translation of the original Italian version of the VR-MICS and to evaluate its sensitivity by comparing the coding of English and Italian general practice consultations with emotionally distressed and non-distressed patients...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.01.001
更新日期:2005-09-01 00:00:00
abstract::A video was produced to inform men diagnosed with localised prostate cancer of the different management options for their disease. It was tested for increased knowledge and understanding on a healthy population of similar age (n=10), who were assessed before and after watching the video (20 interviews). The video was ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00187-8
更新日期:2003-03-01 00:00:00
abstract:OBJECTIVE:To gain an understanding of how patient satisfaction (PS) with the doctor (PSD) is conceptualized through an empirical review of how it is currently being measured. The content of PS questionnaire items was examined to (a) determine the primary domains underlying PSD, and (b) summarize the specific doctor-rel...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2015.05.020
更新日期:2015-06-10 00:00:00
abstract:OBJECTIVE:Primary care providers (PCPs) are encouraged to counsel their obese patients about weight loss. We used focus groups to explore how PCPs communicate with patients about weight management. METHODS:During the summer of 2010, we conducted five focus groups of community-based PCPs who had patients enrolled in a ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.06.033
更新日期:2012-10-01 00:00:00
abstract:OBJECTIVE:to systematically review all available studies that investigated the longitudinal relationships between the psychological characteristics of children and adolescents suffering from asthma and those of their caregivers, and the onset and course of the asthma. METHODS:relevant studies were identified using Med...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.03.011
更新日期:2011-01-01 00:00:00
abstract::Clients seek genetic counseling in order to become informed, to make better decisions, and, if possible, to be reassured. Genetic knowledge, however, is fragmentary and incomplete and therefore it may involve more uncertainty than is desirable. In a cohort of 30 counseling sessions we studied the genetic information t...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(97)00052-9
更新日期:1997-09-01 00:00:00
abstract:OBJECTIVE:To examine which counseling behavior among GPs can be achieved after counseling training when organizational support is provided. METHODS:A random sample of 39 general practices was drawn, 34 took part. GPs received a pre-study assessment followed by a training session for smoking counseling. All patients sh...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.11.005
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:To compare and contrast the duration and content of physician-patient interaction for patients presenting to an emergency department with problems of low acuity in 1990 and 2005 treated by different grades of physician. METHODS:Observational study with data collection in May-July 1990 and May-July 2005. Pati...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.02.005
更新日期:2008-08-01 00:00:00
abstract:OBJECTIVE:We aimed to evaluate the effect of a decision aid (DA) with patient narratives on decisional conflict in surgery choice for Japanese women with early-stage breast cancer. METHODS:Two hundred ten women with early-stage breast cancer were randomly assigned to an intervention or control group. Groups 1 and 2 re...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2016.09.011
更新日期:2017-03-01 00:00:00
abstract:OBJECTIVE:A clinician's ability to infer patients' thoughts and feelings is a critical component of high quality care. The goal of this article is to present a new test to measure this ability in clinicians, called the Test of Accurate Perception of Patients' Affect (TAPPA). METHODS:Audiovisual clips were taken from p...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.10.004
更新日期:2014-02-01 00:00:00
abstract:OBJECTIVE:To explore whether reversibility, decision timing, and uncertainty are relevant to men deciding on treatment for localized prostate cancer (LPC). DESIGN:Secondary qualitative data analysis of unstructured interviews. METHODS:Content analysis of previously collected qualitative data (31 individual interviews...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.03.017
更新日期:2009-11-01 00:00:00
abstract:OBJECTIVE:We examined the reach and impact of five decision aids (DAs) routinely distributed to breast cancer patients as part of a shared decision making demonstration project. METHODS:From 2005 to 2008, we surveyed patients' change in knowledge and decisional conflict (DC) before and after their review of DAs. Using...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.05.011
更新日期:2012-02-01 00:00:00
abstract:OBJECTIVE:This paper explores factors that influence the formulation of risk perception among men with a family history of prostate cancer who are currently attending a prostate cancer screening clinic. METHODS:Semi-structured interviews were conducted with fifteen participants. Interview transcripts were analyzed usi...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.11.020
更新日期:2011-11-01 00:00:00
abstract:OBJECTIVE:This study aimed to describe disparities and temporal trends in the level of perceived patient-provider communication quality (PPPCQ) in the United States, and to identify sociodemographic and health-related factors associated with elements of PPPCQ. METHODS:A cross-sectional analysis was conducted using nat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.12.007
更新日期:2016-05-01 00:00:00
abstract:OBJECTIVE:To explore outcomes and measures of success that matter most to 'positive outlier' children who improved their body mass index (BMI) despite living in obesogenic neighborhoods. METHODS:We collected residential address and longitudinal height/weight data from electronic health records of 22,657 children ages ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.06.007
更新日期:2015-11-01 00:00:00
abstract::This paper reports on an evaluation of the reactions of participants in a computer-controlled telephone conversation system (telephone-linked care, TLC) designed to offer nutrition and exercise counseling. After 6 months in the study, subjects were asked a series of questions about their opinions of the TLC system, in...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(02)00076-9
更新日期:2003-02-01 00:00:00
abstract:OBJECTIVE:In an effort to examine the decreasing oral health trend of Australian dental patients, the Health Belief Model (HBM) was utilised to understand the beliefs underlying brushing and flossing self-care. The HBM states that perception of severity and susceptibility to inaction and an estimate of the barriers and...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.06.014
更新日期:2010-02-01 00:00:00
abstract:OBJECTIVE:This article explores the effect of conflicting information, defined as contradictory information about medication topics from different sources, on medication adherence in a sample of chronically ill patients. We specifically investigate whether conflicting information and physician support directly affect m...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.11.006
更新日期:2010-11-01 00:00:00
abstract::In this study, the relationship between (a) doctor's and patients' communication and (b) doctors' patient-centredness during the oncological consultation and patients' quality of life and satisfaction was examined. Consultations of 96 consecutive cancer patients were recorded and content analysed by means of the Roter...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00108-1
更新日期:2000-09-01 00:00:00
abstract::Since publication of Unequal Treatment by the Institute of Medicine in 2003, there has been a growing recognition of the role of provider implicit racial bias in patient care. Provider implicit racial bias has been consistently negatively associated with both care satisfaction and provider trust among racial/ethnic mi...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.04.023
更新日期:2019-09-01 00:00:00