Abstract:
BACKGROUND:The Department of Health and Human Services (HHS) Advisory Committee on Heritable Disorders in Newborns and Children ("Advisory Committee") makes recommendations to the HHS Secretary regarding addition of new conditions to the national Recommended Uniform Screening Panel for newborns. The Advisory Committee's decision-making process includes assessing the net benefit of screening for nominated conditions, informed by systematic evidence reviews generated by an independent Condition Review Workgroup. The evidence base regarding harms associated with screening for specific conditions is often more limited than that for benefits. PROCEDURES:The process for defining potential harms from newborn screening reviewed the frameworks from other public health evidence-based review processes, adapted to newborn screening by experts in systematic review, newborn screening programs and bioethics, with input from and approval by the Advisory Committee. MAIN FINDINGS:To support the Advisory Committee's review of nominated conditions, the Workgroup has developed a standardized approach to evaluation of harms and relevant gaps in the evidence. Types of harms include the physical burden to infants; psychosocial and logistic burdens to families from screening or diagnostic evaluation; increased risk of medical treatment for infants diagnosed earlier than children with clinical presentation; delayed diagnosis from false negative results; psychosocial harm from false positive results; uncertainty of clinical diagnosis, age of onset or clinical spectrum; and disparities in access to diagnosis or therapy. CONCLUSIONS:Estimating the numbers of children at risk, the magnitude, timing and likelihood of harms will be integrated into Workgroup reports to the Advisory Committee.
journal_name
Matern Child Health Jjournal_title
Maternal and child health journalauthors
Goldenberg AJ,Comeau AM,Grosse SD,Tanksley S,Prosser LA,Ojodu J,Botkin JR,Kemper AR,Green NSdoi
10.1007/s10995-015-1869-9subject
Has Abstractpub_date
2016-03-01 00:00:00pages
693-700issue
3eissn
1092-7875issn
1573-6628pii
10.1007/s10995-015-1869-9journal_volume
20pub_type
杂志文章abstract::Objective Appropriate and timely complementary feeding practices are fundamental to a child's growth, health, and development during the first 2 years of life. This study aimed to understand (1) Ghanaian mother's complementary feeding practices, and (2) their perceived and observed impacts of complementary feeding on ...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-016-1994-0
更新日期:2016-09-01 00:00:00
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更新日期:2016-06-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-007-0221-4
更新日期:2008-01-01 00:00:00
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journal_title:Maternal and child health journal
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doi:10.1007/s10995-013-1425-4
更新日期:2014-10-01 00:00:00
abstract::Despite recommendations in the U.S. for routine HPV vaccination of adolescent girls since 2006, rates of vaccination continue to be low. This study reports vaccination uptake, factors associated with vaccine uptake and reasons for non-vaccination within a national sample of adolescent females during 2010. Using a comp...
journal_title:Maternal and child health journal
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更新日期:2012-12-01 00:00:00
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更新日期:2020-11-17 00:00:00
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doi:10.1007/s10995-005-4351-2
更新日期:2005-06-01 00:00:00
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journal_title:Maternal and child health journal
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更新日期:2011-11-01 00:00:00
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journal_title:Maternal and child health journal
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doi:10.1007/s10995-019-02790-9
更新日期:2019-09-01 00:00:00
abstract::Middle-income countries in the intermediate stages of the nutrition transition are facing a complex picture of nutrition-related diseases with child stunting and maternal obesity coexisting within single households (SCOB). A debate exists as to whether SCOB is a true phenomenon or a statistical artefact. In this study...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-014-1634-5
更新日期:2015-06-01 00:00:00
abstract:OBJECTIVE:To determine predictors of bacterial vaginosis (BV) and the level of three common BV-related microorganisms by racial group. METHODS:Prospective cohort study of 1,886 pregnant women. BV was measured with Nugent's Gram Stain criteria, smoking status with urinalysis of cotinine levels, and stress with Cohen's ...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-008-0372-y
更新日期:2009-07-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-014-1457-4
更新日期:2014-11-01 00:00:00
abstract:OBJECTIVES:This study investigated the agreement between self-reported and medical record assessment of exposure to violence and the impact of misclassification on the estimation of the association between exposure to violence and infant death and very low birthweight. METHODS:The study population consisted of women w...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-006-0108-9
更新日期:2006-09-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-012-1086-8
更新日期:2013-08-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-016-2135-5
更新日期:2017-03-01 00:00:00
abstract:BACKGROUND:The primary purpose of this study was to determine the association between type of healthcare provider delivering prenatal care and intent to exclusively breastfeed. METHODS:A self-report survey was administered to 455 expectant mothers. Logistic regression was performed to determine the association between...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-015-1884-x
更新日期:2016-05-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-012-0975-1
更新日期:2013-02-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-009-0492-z
更新日期:2010-07-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1023/a:1011349902582
更新日期:2001-03-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章,评审
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更新日期:2008-01-01 00:00:00
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pub_type: 杂志文章
doi:10.1007/s10995-011-0892-8
更新日期:2012-08-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-017-2407-8
更新日期:2018-03-01 00:00:00
abstract::Poor birth outcomes are associated with illicit drug use during pregnancy. While prenatal cigarette exposure has similar effects, cessation of illicit drug use during pregnancy is often prioritized over cessation of smoking. The study goal was to examine the impact of pregnancy tobacco use, relative to use of illicit ...
journal_title:Maternal and child health journal
pub_type: 杂志文章
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更新日期:2012-02-01 00:00:00
abstract::To describe and evaluate recruitment techniques used to enroll 152 healthy pregnant women fewer than 15 weeks gestation into a prospective study of environmental chemical exposure during pregnancy. Posters, a website, online and print advertising, recruitment emails, media coverage, recruitment from clinic waiting roo...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-010-0739-8
更新日期:2012-02-01 00:00:00
abstract:BACKGROUND:Postpartum depressive symptoms negatively affect the quality of life and daily functioning of mothers and infants. Little research has examined the impact of situational factors such as physical symptom burden and function on early postpartum depressive symptoms. OBJECTIVES:To explore the association betwee...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-005-0048-9
更新日期:2006-03-01 00:00:00
abstract:OBJECTIVE:To determine whether delivery hospitals that perform poorly for women also perform poorly for high-risk infants and to what extent Black and Hispanic women receive care at hospitals that perform poorly for both women and infants. METHODS:We examined the correlation between hospital rankings for severe matern...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-020-02911-9
更新日期:2020-06-01 00:00:00
abstract::Objectives To investigate the impact of the Special Supplemental Nutrition Program for Women, Infants and Children (WIC) on a variety of infant health outcomes using recent South Carolina Vital Statistics data (2004-2012). Methods To account for non-random WIC participation, the study relies on a maternal fixed effect...
journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1007/s10995-016-1951-y
更新日期:2016-07-01 00:00:00
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journal_title:Maternal and child health journal
pub_type: 杂志文章
doi:10.1023/a:1022359407306
更新日期:1998-12-01 00:00:00