Coping with a cleft II: Factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents.

Abstract:

OBJECTIVE:TO explore the factors that predict psychosocial adjustment in young people with a cleft and their parents. DESIGN, PARTICIPANTS, SETTING: The study used a cross-sectional postal questionnaire design involving young people aged between 11 and 16 and their parents from two cleft services. Data are presented for 91 adolescents and their mothers. MAIN OUTCOME MEASURES:Participants completed measures of psychological adjustment, coping, social experiences, satisfaction with appearance, stressful life events, cleft-related factors, and demographic information. RESULTS:Psychosocial adjustment in adolescents was predicted by their social experiences and maternal well-being. Satisfaction with appearance, perceived speech problems, and the use of avoidant coping strategies were also important factors relating to their adjustment. For mothers, adjustment was predicted by use of coping strategies such as self-blame, venting, and acceptance, in addition to perceived problems with their child's hearing and the number of stressful life events experienced. CONCLUSIONS:The findings are discussed in relation to the concepts of adjustment, coping, satisfaction with appearance, and maternal mental health. Directions for future research are outlined, and a number of opportunities and challenges for cleft services regarding the provision of timely interventions for this age group and their families are discussed.

authors

Berger ZE,Dalton LJ

doi

10.1597/08-094

subject

Has Abstract

pub_date

2011-01-01 00:00:00

pages

82-90

issue

1

eissn

1055-6656

issn

1545-1569

journal_volume

48

pub_type

杂志文章
  • Speech in Adults Treated for Unilateral Cleft Lip and Palate: Long-Term Follow-Up After One- or Two-Stage Palate Repair.

    abstract:OBJECTIVE:To evaluate speech in adults treated for unilateral cleft lip and palate with one-stage or two-stage palate closure and compare the speech of the patients with that of a noncleft control group. DESIGN:Cross-sectional study with long-term follow-up. PARTICIPANTS/SETTING:All unilateral cleft lip and palate pa...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-037

    authors: Morén S,Mani M,Lilian S,Lindestad PÅ,Holmström M

    更新日期:2017-11-01 00:00:00

  • Three-Dimensional Printing of Personalized Nasal Stents for Patients With Cleft Lip.

    abstract:OBJECTIVE:This report describes the design and printing of personalized nasal stents for cleft lip using 3-dimensional (3D) technology. MATERIALS AND METHODS:We used silicone rubber to make the impressions, a 3D laser scanner to obtain 3D data, and Dental SG resin cartridges as printing material. We printed the person...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665618782804

    authors: Luo D,Li T,Wang H,Chen Y

    更新日期:2019-04-01 00:00:00

  • An Intraoral Appliance to Retract the Protrusive Premaxilla in Bilateral Cleft Lip Patients Presenting Late for Primary Lip Repair.

    abstract::The protruding and deviated premaxilla in bilateral complete cleft lip and palate (BCL/P) patients causes a perplexing problem in achieving a tension-free primary lip closure. An innovative noninvasive active intraoral Fixed Pre-Surgical Cleft Orthopedic (FPSCO) appliance is presented that has enabled to successfully ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617732783

    authors: Vura N,Gaddipati R,Palla Y,Kumar P

    更新日期:2018-04-01 00:00:00

  • Evaluation of an auditory assessment protocol for Chinese infants with nonsyndromic cleft lip and/or palate.

    abstract:OBJECTIVE:To objectively investigate the auditory status of mainland Chinese infants with nonsyndromic cleft lip and/or palate and to evaluate an auditory assessment protocol for this group. DESIGN:Prospective cohort case review. PATIENTS OR OTHER PARTICIPANTS:A total of 42 Chinese infants with nonsyndromic cleft lip...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/09-140.1

    authors: Yang FF,McPherson B,Shu H

    更新日期:2012-09-01 00:00:00

  • Vocal Loudness as Contributory to the Occurrence of Obligatory Posterior Nasal Turbulence.

    abstract::Two cases are presented that show increased loudness as contributory to the occurrence of audible posterior nasal turbulence as an obligatory symptom. Case 1 was an 18-month-old boy with repaired cleft palate who exhibited sporadic posterior nasal turbulence with velar flutter that was associated with increased loudne...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617730366

    authors: Zajac DJ,Eshghi M

    更新日期:2018-02-01 00:00:00

  • The Tessier number 5 facial cleft: surgical strategies and outcomes in six patients.

    abstract::The Tessier no. 5 facial cleft is an extremely rare congenital malformation. Only 26 cases have been described in the English-language literature. The cleft begins in the upper lip just medial to the oral commissure, extending across the cheek as a groove ending at the junction of the middle and lateral thirds of the ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-192.1

    authors: da Silva Freitas R,Alonso N,Shin JH,Busato L,Dall'Oglio Tolazzi AR,de Oliveria e Cruz GA

    更新日期:2009-03-01 00:00:00

  • Carotid artery dissection and stroke complicating treatment of postmandibular distraction ankylosis: a case report.

    abstract::Mandibular distraction osteogenesis is an increasingly accepted treatment option for severe upper airway obstruction in grade 3 Robin sequence. Complications are rarely reported but can include fracture, pin dislodgement, tooth bud damage, and temporomandibular joint ankylosis. Operative correction of these complicati...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/14-008

    authors: Arnspiger SA,Felder JM 3rd,Wood BC,Rogers GF,Oh AK

    更新日期:2015-05-01 00:00:00

  • The parental dentocraniofacial phenotype-an orofacial clefting microform.

    abstract:OBJECTIVE:Using the systematic review method, (1) to identify the investigations of the parental dentocraniofacial phenotype in orofacial clefting, (2) synthesize the data to derive a model of the phenotypic features that will assist in the identification of cleft morphogenes, and (3) make recommendations for the futur...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/08-158.1

    authors: Mossey PA,Batra P,McIntyre GT

    更新日期:2010-01-01 00:00:00

  • Factors influencing early childhood caries of cleft lip and/or palate children aged 18 to 36 months in southern Thailand.

    abstract:OBJECTIVE:To clarify whether oral health care behavior or oral cleft status influences early childhood caries in southern Thailand cleft children. DESIGN:A comparative cross-sectional study. PATIENTS, PARTICIPANTS:A total of 138 southern Thai children aged 18 to 36 months comprised two groups of 69 participants, one ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-017.1

    authors: Mutarai T,Ritthagol W,Hunsrisakhun J

    更新日期:2008-09-01 00:00:00

  • Team-oriented care for orofacial clefts: a review of the literature.

    abstract::Objective : To examine the process of team-oriented care for children with orofacial clefts. Design : Systematic review of available studies reporting team-oriented management of children and adults with orofacial clefts. We identified studies from OVID, PsychINFO, REHABDATA, PubMed, and The Cleft Pa...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/11-137

    authors: McGrattan K,Ellis C

    更新日期:2013-01-01 00:00:00

  • Ultrasound-guided surgery of particulate cancellous bone and marrow from the iliac crest for cleft palate.

    abstract::Minimally invasive procedures for treatment of disease have become increasingly popular and require specialized instruments and precise imaging guidance. We here propose a technique of minimally invasive surgery with ultrasound echo-guided procedures as a less traumatic and invasive procedure to get particulate cancel...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/13-054

    authors: Kamatani T,Shirota T,Kondo S,Shintani S

    更新日期:2014-11-01 00:00:00

  • Evaluating Autologous Lipofilling for Parry-Romberg Syndrome-Associated Defects: A Systematic Literature Review and Case Report.

    abstract:BACKGROUND:Parry-Romberg syndrome (PRS) is a rare craniofacial disease that causes progressive hemifacial atrophy of the soft tissue before spontaneously entering remission. Autologous fat grafting may provide a less invasive alternative, producing aesthetically pleasing results while avoiding the need for traditional ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/14-232

    authors: Rodby KA,Kaptein YE,Roring J,Jacobs RJ,Kang V,Quinn KP,Antony AK

    更新日期:2016-05-01 00:00:00

  • Double-loop technique using titanium molybdenum alloy wire for fabrication of nasal stents in nasoalveolar molding therapy for cleft lip and palate patients.

    abstract::This article presents a technique for fabricating a modified nasoalveolar molding appliance using 0.032-inch titanium-molybdenum alloy wire for nasal stents incorporating a double loop. The nasal stents are included in the acrylic molding plate at the time the appliance is inserted. The acrylic retention button used i...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/13-251

    authors: Nagraj N,Nagarjuna M,Desai AK,Gandedkar N,Jayade B,Gopalakrishnan K

    更新日期:2015-03-01 00:00:00

  • Secondary Dentition Characteristics in Children With Nonsyndromic Unilateral Cleft Lip and Palate: A Retrospective Study.

    abstract:OBJECTIVE:Children with cleft lip and palate are reported to be commonly associated with higher prevalence of dental anomalies such as hypodontia, supernumeraries, and abnormalities in tooth size, shape, and position. This study investigated the prevalence of dental anomalies in a longitudinal cohort of children with u...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617750489

    authors: Tan ELY,Kuek MC,Wong HC,Ong SAK,Yow M

    更新日期:2018-04-01 00:00:00

  • Multidisciplinary Approach for Reestablishing Function and Aesthetic of Unilateral Cleft Lip Defect: A Case Report.

    abstract::Cleft lip and/or cleft palate defects often result in a functional deficiency in the patient's chewing, speech ability, and aesthetic appearance, usually demanding multidisciplinary effort for addressing the aesthetic and functional patient's requirements. This clinical report describes the planned oral rehabilitation...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665620946560

    authors: Cumerlato CBDF,Dos Santos CS,Dos Santos MBF,Bergoli CD,Boscato N

    更新日期:2020-08-07 00:00:00

  • Two cases of axenfeld-rieger syndrome, report of the complex pathology and treatment.

    abstract::The purpose of this case report is to report the orthodontic surgical treatment and subsequent dental rehabilitation in two patients with Axenfeld-Rieger syndrome. Axenfeld-Rieger syndrome is a rare autosomal dominant condition characterized by ocular, dental, craniofacial, and periumbilical abnormalities. The treatme...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/12-295

    authors: Bender CA,Koudstaal MJ,van Elswijk JF,Prahl C,Wolvius EB

    更新日期:2014-05-01 00:00:00

  • Clinical applications of orthodontic microimplant anchorage in craniofacial patients.

    abstract::Microimplant anchors, also known as temporary anchorage devices, mini- and micro-screws, have been used to enhance orthodontic anchorage for difficult tooth movements. Here, the authors describe how microimplants can be used to help treat craniofacial patients by supporting distraction osteogenesis procedures, maxilla...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/06-219.1

    authors: Vachiramon A,Urata M,Kyung HM,Yamashita DD,Yen SL

    更新日期:2009-03-01 00:00:00

  • Experimental Tooth Movement Into New Bone Area Regenerated by Use of Bone Marrow-Derived Mesenchymal Stem Cells.

    abstract:OBJECTIVE:The aim of this study was to examine experimental tooth movement into regenerated bone in alveolar cleft with mesenchymal stem cells and a granulated carbonated hydroxyapatite scaffold. DESIGN:An artificial bone defect was created bilaterally in upper incisor regions of beagle dogs to simulate alveolar cleft...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/12-232

    authors: Tanimoto K,Sumi K,Yoshioka M,Oki N,Tanne Y,Awada T,Kato Y,Sugiyama M,Tanne K

    更新日期:2015-07-01 00:00:00

  • Myoplasty for congenital macrostomia.

    abstract:OBJECTIVE:To describe the different myoplasty techniques that could be used for limited commissural reconstruction. METHODS:Twelve cases of congenital macrostomia are reported, with different cleft lengths and termination sites. For each case, an orbicular myoplasty was performed, and in the case of extension to the a...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-190.1

    authors: Gleizal A,Wan DC,Kwan MD,Beziat JL

    更新日期:2008-03-01 00:00:00

  • Shprintzen-Goldberg syndrome: case report.

    abstract:OBJECTIVE:The Shprintzen-Goldberg syndrome is an extremely rare syndrome with a characteristic face. This is one of a group of disorders characterized by craniosynostosis and marfanoid features. The aim of this study was to present a new sporadic case of the syndrome and describe in detail the findings at the maxillofa...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2003_040_0433_sscr_2.0.co_2

    authors: Topouzelis N,Markovitsi E,Antoniades K

    更新日期:2003-07-01 00:00:00

  • Early maxillary orthopedics in a child with an oblique facial cleft.

    abstract:OBJECTIVE:Oblique facial clefts are extremely rare. In view of their variability, surgical treatment cannot be standardized. To date, early maxillary orthopedics in the treatment of oblique facial clefts have not been reported. The case described here presents a newborn child with a Tessier 3 cleft. Because of the enor...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1997_034_0147_emoiac_2.3.co_2

    authors: Stellzig A,Basdra EK,Mühling J,Komposch G

    更新日期:1997-03-01 00:00:00

  • Respiratory Polysomnographic Findings in Patients Treated Primarily for Unilateral Cleft Lip and Palate.

    abstract::Cleft lip and palate (CLP) is the most common congenital craniofacial abnormality. Obstructive sleep apnea syndrome (OSAS) is a highly prevalent but underdiagnosed disease and is frequently associated with craniofacial anomalies. There are few studies describing the sleep breathing pattern of children with CLP. This s...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617726538

    authors: Sobral DS,Faller GJ,Collares MVM

    更新日期:2018-02-01 00:00:00

  • A Qualitative Study of Children's Perspectives on Their Peer Relationships in the Context of Living With a Craniofacial Anomaly.

    abstract:OBJECTIVE:To gain understanding of perspectives on peer relationships from children with congenital craniofacial anomalies (CFA). DESIGN:This was qualitative research based in a phenomenological approach, using narratives that captured children's responses to open-ended and objective questions about peer relations and...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-060

    authors: Pope AW,Klein TP,Bergman AJ

    更新日期:2016-09-01 00:00:00

  • Subphenotyping and Classification of Orofacial Clefts: Need for Orofacial Cleft Subphenotyping Calls for Revised Classification.

    abstract::Nonsyndromic orofacial clefting (OFC) describes a range of phenotypes that represent the most common craniofacial birth defects in humans, with an overall birth prevalence of 1:700 live births. Because of the lifelong negative implications on health and well-being associated with OFC and the numbers of people affected...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-029

    authors: McBride WA,McIntyre GT,Carroll K,Mossey PA

    更新日期:2016-09-01 00:00:00

  • Isolated cleft palate in Danish multiple births, 1970-1990.

    abstract::The etiology of most cases of isolated cleft palate (CP) is unknown. The relative importance of genes and environment can be studied using the classical twin method but only few and potentially highly selected CP twin data are available. The present CP twin study was based on four Danish nationwide ascertainment sourc...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1993_030_0469_icpidm_2.3.co_2

    authors: Christensen K,Fogh-Andersen P

    更新日期:1993-09-01 00:00:00

  • Development of a microportable imaging system for otoscopy and nasoendoscopy evaluations.

    abstract:OBJECTIVE:Imaging systems for patients with cleft palate typically are not portable, but are essential to obtain an audiovisual record of nasoendoscopy and otoscopy procedures. Practitioners who evaluate patients in rural, remote, or otherwise medically underserved areas are expected to obtain audiovisual recordings of...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-063.1

    authors: VanLue M,Cox KM,Wade JM,Tapp K,Linville R,Cosmato C,Smith T

    更新日期:2007-03-01 00:00:00

  • A three-dimensional computed tomographic analysis of the cervical spine in unoperated infants with cleft lip and palate.

    abstract:OBJECTIVE:To investigate anatomical variations and abnormalities of cervical spine morphology in unoperated infants with cleft lip and palate. DESIGN:Retrospective cross-sectional investigation of infants born with nonsyndromic cleft lip and palate using computed tomography scans acquired for investigation of a spectr...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-023

    authors: Rajion ZA,Townsend GC,Netherway DJ,Anderson PJ,Yusof A,Hughes T,Shuaib IL,Halim AS,Samsudin AR,David DJ

    更新日期:2006-09-01 00:00:00

  • Submucous cleft palate: a systematic review of surgical management based on perceptual and instrumental analysis.

    abstract::Objective : Submucous cleft palate (SMCP) is a congenital condition associated with abnormal development of the soft palate musculature. In a proportion of cases, this results in velopharyngeal insufficiency (VPI), the treatment for which includes pharyngeal flap surgery, pharyngoplasty, and palate reconstruction. The...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/13-046

    authors: Gilleard O,Sell D,Ghanem AM,Tavsanoglu Y,Birch M,Sommerlad B

    更新日期:2014-11-01 00:00:00

  • Nasalance-Based Preclassification of Oral-Nasal Balance Disorders Results in Higher Agreement of Expert Listeners' Auditory-Perceptual Assessments: Results of a Retrospective Listening Study.

    abstract:OBJECTIVE:Reliable perceptual and instrumental assessment of oral-nasal balance disorders is a persistent problem in speech-language pathology. The goal of the study was to evaluate whether nasalance-based preclassification of oral-nasal balance disorders improves listener agreement. DESIGN:Retrospective listening stu...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619873506

    authors: de Boer G,Marino VCC,Dutka JCR,Pegoraro-Krook MI,Bressmann T

    更新日期:2020-04-01 00:00:00

  • Adult Cleft Palate Repair: It's Worth a Shot.

    abstract::Repair of cleft palate in the adult population is controversial. We present a case of a 66-year-old woman who underwent secondary cleft palate repair. The patient was born with a cleft palate and at age 15 years underwent palate repair that subsequently broke down. She had profound velopharyngeal incompetence, was dif...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665620974572

    authors: Haydon N,Semple H,Parkin M,Taplin M,Boorer C,Ho K

    更新日期:2020-11-25 00:00:00