Improving health care transition and longitudinal care for adolescents and young adults with hydrocephalus: report from the Hydrocephalus Association Transition Summit.


:The health care needs of children with hydrocephalus continue beyond childhood and adolescence; however, pediatric hospitals and pediatric neurosurgeons are often unable to provide them care after they become adults. Each year in the US, an estimated 5000-6000 adolescents and young adults (collectively, youth) with hydrocephalus must move to the adult health care system, a process known as health care transition (HCT), for which many are not prepared. Many discover that they cannot find neurosurgeons to care for them. A significant gap in health care services exists for young adults with hydrocephalus. To address these issues, the Hydrocephalus Association convened a Transition Summit in Seattle, Washington, February 17-18, 2017.The Hydrocephalus Association surveyed youth and families in focus groups to identify common concerns with HCT that were used to identify topics for the summit. Seven plenary sessions consisted of formal presentations. Four breakout groups identified key priorities and recommended actions regarding HCT models and practices, to prepare and engage patients, educate health care professionals, and address payment issues. The breakout group results were discussed by all participants to generate consensus recommendations.Barriers to effective HCT included difficulty finding adult neurosurgeons to accept young adults with hydrocephalus into their practices; unfamiliarity of neurologists, primary care providers, and other health care professionals with the principles of care for patients with hydrocephalus; insufficient infrastructure and processes to provide effective HCT for youth, and longitudinal care for adults with hydrocephalus; and inadequate compensation for health care services.Best practices were identified, including the National Center for Health Care Transition Improvement's "Six Core Elements of Health Care Transition 2.0"; development of hydrocephalus-specific transition programs or incorporation of hydrocephalus into existing general HCT programs; and development of specialty centers for longitudinal care of adults with hydrocephalus.The lack of formal HCT and longitudinal care for young adults with hydrocephalus is a significant health care services problem in the US and Canada that professional societies in neurosurgery and neurology must address. Consensus recommendations of the Hydrocephalus Association Transition Summit address 1) actions by hospitals, health systems, and practices to meet local community needs to improve processes and infrastructure for HCT services and longitudinal care; and 2) actions by professional societies in adult and pediatric neurosurgery and neurology to meet national needs to improve processes and infrastructure for HCT services; to improve training in medical and surgical management of hydrocephalus and in HCT and longitudinal care; and to demonstrate the outcomes and effectiveness of HCT and longitudinal care by promoting research funding.


J Neurosurg


Journal of neurosurgery


Williams MA,van der Willigen T,White PH,Cartwright CC,Wood DL,Hamilton MG




Has Abstract


2018-11-01 00:00:00










  • Effect of intraoperative subthalamic nucleus DBS on human single-unit activity in the ipsilateral and contralateral subthalamic nucleus.

    abstract:OBJECT:Insight may be gained into the physiological mechanisms of deep brain stimulation (DBS) by analyzing local and contralateral subthalamic nucleus (STN) single-unit activity during activation of previously placed DBS electrodes. Special techniques are required to perform such analysis due to the presence of a larg...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Toleikis JR,Metman LV,Pilitsis JG,Barborica A,Toleikis SC,Bakay RA

    更新日期:2012-05-01 00:00:00

  • Electrospinogram and spinal and cortical evoked potentials in experimental spinal cord trauma.

    abstract::Studies in 28 traumatized cats showed the following acute changes after spinal cord compression in the cord segment below the trauma: 1) increase in size of the spinal cord evoked potential; 2) increase in size of the electrospinogram; and 3) increase in frequency of the electrospinogram. ...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Morrison G,Lorig RJ,Brodkey J,Nulsen FE

    更新日期:1975-12-01 00:00:00

  • Distinctive electrophysiological characteristics of functionally discrete brain areas: a tenable approach to functional localization.

    abstract::The direct cortical response (DCR), an electrical potential recorded in the immediate vicinity of a surface cortical stimulus, shows a configuration in the primary sensory areas of animals that is different from the one observed in association cortex. This suggested the possibility that systematic study of the DCR in ...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Goldring S,Harding GW,Gregorie EM

    更新日期:1994-04-01 00:00:00

  • Painful supernumerary phantom arm following motor cortex stimulation for central poststroke pain. Case report.

    abstract::In this report, the authors describe a case in which the patient began to experience a supernumerary phantom arm after she received motor cortex stimulation for central pain. The patient had a history of right thalamocapsular stroke. It is speculated that the motor cortex activation triggered a response in the patient...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Canavero S,Bonicalzi V,Castellano G,Perozzo P,Massa-Micon B

    更新日期:1999-07-01 00:00:00

  • Tuberculous brain abscess. Case report.

    abstract::An abscess was removed from the left occipital region in a 73-year-old woman with no previous history of tuberculosis. The patient later died from aspiration bronchopneumonia. Autopsy revealed a basilar tuberculous meningitis and miliary tuberculosis in the peritracheal lymphatic glands, the liver, the spleen, and in ...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: González PR,Herrero CV,Joachim GF,Ocaña CR,Sevilla GC,Loyzaga PG

    更新日期:1980-03-01 00:00:00

  • Management of symptomatic deep venous thrombosis and pulmonary embolism on a neurosurgical service.

    abstract::The authors present a retrospective analysis of the management of deep vein thrombosis (DVT) and pulmonary embolism (PE) in neurosurgical patients at the Massachusetts General Hospital from January, 1978, through June, 1982. There were 44 cases of DVT and 13 cases of PE. Management modalities included observation only...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Swann KW,Black PM,Baker MF

    更新日期:1986-04-01 00:00:00

  • The prophylactic use of transluminal balloon angioplasty in patients with Fisher Grade 3 subarachnoid hemorrhage: a pilot study.

    abstract:OBJECT:Recent advances in neuroradiology have made it possible to dilate vasospastic human cerebral arteries after aneurysmal subarachnoid hemorrhage (SAH), but the time window is short and the success rate for reversal of delayed ischemic neurological deficits (DINDs) varies between 31% and 77%. In a dog model of vaso...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Muizelaar JP,Zwienenberg M,Rudisill NA,Hecht ST

    更新日期:1999-07-01 00:00:00

  • Characterization of functional outcome and quality of life following subarachnoid hemorrhage in patients treated with and without nicardipine prolonged-release implants.

    abstract:OBJECT:The use of nicardipine prolonged-release implants (NPRIs) is associated with a significant improvement in the therapy of patients suffering from aneurysmal subarachnoid hemorrhage (aSAH) regarding the occurrence and severity of cerebral vasospasm, new infarcts, and functional outcome (FO). Because quality of lif...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章,多中心研究,随机对照试验


    authors: Barth M,Thomé C,Schmiedek P,Weiss C,Kasuya H,Vajkoczy P

    更新日期:2009-05-01 00:00:00

  • A microsurgical study of the anatomy and course of the ophthalmic artery and its possibly dangerous anastomoses.

    abstract:OBJECT:The authors studied the microsurgical anatomy of the ophthalmic artery (OphA), paying particular attention to its possibly dangerous anastomoses with the middle meningeal artery (MMA). METHODS:The microsurgical anatomy of the OphA and its anastomoses with the MMA were studied in 14 vessels from seven adult cada...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Perrini P,Cardia A,Fraser K,Lanzino G

    更新日期:2007-01-01 00:00:00

  • Role of the mode of sensory stimulation in presurgical brain mapping in which functional magnetic resonance imaging is used.

    abstract:OBJECT:The aim of this study was to evaluate different types of sensory stimulation used to distinguish between microvasculature and venous drainage on functional magnetic resonance (fMR) images with blood oxygen level-dependent (BOLD) contrast. METHODS:Seven volunteers received three sensory stimulations. One consist...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Le Rumeur E,Allard M,Poiseau E,Jannin P

    更新日期:2000-09-01 00:00:00

  • Reduction of neural adhesions by biodegradable autocrosslinked hyaluronic acid gel after injury of peripheral nerves: an experimental study.

    abstract:OBJECT:Adhesion formation is a serious problem in peripheral nerve surgery, frequently causing dysfunction and pain. The authors aimed to develop an objective biomechanical method of quantifying nerve adhesions and to use this technique for the evaluation of the efficacy of an autocrosslinked hyaluronic acid (HA) gel a...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Smit X,van Neck JW,Afoke A,Hovius SE

    更新日期:2004-10-01 00:00:00

  • Sphenopalatine ganglion stimulation for vasospasm after experimental subarachnoid hemorrhage.

    abstract:OBJECT:Sphenopalatine ganglion stimulation activates perivascular vasodilatory nerves in the ipsilateral anterior circle of Willis. This experiment tested whether stimulation of the ganglion could reverse vasospasm and improve cerebral perfusion after subarachnoid hemorrhage (SAH) in monkeys. METHODS:Thirteen cynomolg...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Takahashi M,Zhang ZD,Macdonald RL

    更新日期:2011-04-01 00:00:00

  • Persistent high lactate level as a sensitive MR spectroscopy indicator of completed infarction.

    abstract::Serial proton (1H) and phosphorus-31 (31P) magnetic resonance (MR) spectroscopy of cerebral infarction was performed in rats to assess the sensitivity of these techniques for use in clinical cerebral infarction. In this experimental chronic infarction model, 31P spectroscopy tended to return to a "normal" pattern with...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Houkin K,Kwee IL,Nakada T

    更新日期:1990-05-01 00:00:00

  • Patients with brain contusions: predictors of outcome and relationship between radiological and clinical evolution.

    abstract:OBJECT:Traumatic parenchymal mass lesions are common sequelae of traumatic brain injuries (TBIs). They occur in up to 8.2% of all TBI cases and 13%-35% of severe TBI cases, and they account for up to 20% of surgical intracranial lesions. Controversy exists concerning the association between radiological and clinical ev...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章,多中心研究


    authors: Iaccarino C,Schiavi P,Picetti E,Goldoni M,Cerasti D,Caspani M,Servadei F

    更新日期:2014-04-01 00:00:00

  • Gamma Knife surgery for craniopharyngioma: report on a 20-year experience.

    abstract:OBJECT:Although craniopharyngiomas are benign intracranial tumors, their high recurrence rates and intimate associations with surrounding neurovascular structures make gross tumor resection challenging. Stereotactic radiosurgery has been introduced as a valuable adjuvant therapy for recurrent or residual craniopharyngi...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Lee CC,Yang HC,Chen CJ,Hung YC,Wu HM,Shiau CY,Guo WY,Pan DH,Chung WY,Liu KD

    更新日期:2014-12-01 00:00:00

  • Release of endothelium-derived relaxing factor after subarachnoid hemorrhage.

    abstract::The purpose of this study was to determine the cause of the loss of endothelium-dependent relaxation observed in chronic cerebral vasospasm. A bioassay system was developed to measure the release of endothelium-derived relaxing factor (EDRF) from canine basilar arteries. Subarachnoid hemorrhage (SAH) was induced in do...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Kim P,Lorenz RR,Sundt TM Jr,Vanhoutte PM

    更新日期:1989-01-01 00:00:00

  • Fully endoscopic expanded endonasal approach treating skull base lesions in pediatric patients.

    abstract:OBJECT:The authors reviewed their experience with endoscopic approaches to determine their safety and efficacy in the treatment of pediatric patients who harbor skull base lesions. Although they were interested in ascertaining outcomes after surgery as well as validating and defining indications and limitations of thes...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Kassam A,Thomas AJ,Snyderman C,Carrau R,Gardner P,Mintz A,Kanaan H,Horowitz M,Pollack IF

    更新日期:2007-02-01 00:00:00

  • Resective surgery for medically intractable epilepsy associated with schizencephaly.

    abstract::Four adults with unilateral (three cases) or bilateral (one case) closed schizencephaly, medically intractable epilepsy, and otherwise normal neurological examinations are presented. Three were examined preoperatively with magnetic resonance imaging and one with computerized tomography. Scalp electroencephalographic (...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Silbergeld DL,Miller JW

    更新日期:1994-05-01 00:00:00

  • Apoplectic lymphocytic hypophysitis. Case report.

    abstract::Pituitary apoplexy has not been reported in the setting of lymphocytic hypophysitis. The authors present the case of a woman with sudden vision loss and headache. Magnetic resonance imaging revealed focal hemorrhages in a sellar lesion with suprasellar extension. The results of histopathological analysis were consiste...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Lee MS,Pless M

    更新日期:2003-01-01 00:00:00

  • Cerebral acid-base homeostasis after severe traumatic brain injury.

    abstract:OBJECT:Brain tissue acidosis is known to mediate neuronal death. Therefore the authors measured the main parameters of cerebral acid-base homeostasis, as well as their interrelations, shortly after severe traumatic brain injury (TBI) in humans. METHODS:Brain tissue pH, PCO2, PO2, and/or lactate were measured in 151 pa...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Clausen T,Khaldi A,Zauner A,Reinert M,Doppenberg E,Menzel M,Soukup J,Alves OL,Bullock MR

    更新日期:2005-10-01 00:00:00

  • Relationship between patient safety indicator events and comprehensive stroke center volume status in the treatment of unruptured cerebral aneurysms.

    abstract::OBJECTIVE The Agency of Healthcare Research and Quality (AHRQ) has defined Patient Safety Indicators (PSIs) for assessments in quality of inpatient care. The hypothesis of this study is that, in the treatment of unruptured cerebral aneurysms (UCAs), PSI events are less likely to occur in hospitals meeting the volume t...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Washington CW,Taylor LI,Dambrino RJ,Clark PR,Zipfel GJ

    更新日期:2018-08-01 00:00:00

  • Grafting of perfused adrenal medullary tissue into the caudate nucleus of patients with Parkinson's disease. Clinica Puerta de Hierro Neural Transplantation Group.

    abstract::The authors report results obtained in 20 severely affected patients with Parkinson's disease (Grade IV or V) who received an autotransplant of perfused adrenal medullary tissue. This study seems to indicate that these autoimplants can improve the parkinsonian symptomatology and induce amelioration in the patients' pe...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: López-Lozano JJ,Bravo G,Abascal J

    更新日期:1991-08-01 00:00:00

  • Revascularization of the extracranial vertebral artery at any level without cross-clamping.

    abstract::Hemodynamic insufficiency resulting from extracranial vertebral artery stenosis or occlusion is believed to be the major cause of vertebrobasilar transient ischemic attacks. The major difficulties in treating this disorder have been exposure of the vertebral artery distal to the stenosis and the risk of vertebral arte...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Senter HJ,Bittar SM,Long ET

    更新日期:1985-03-01 00:00:00

  • Use of a Peltier chip with a newly devised local brain-cooling system for neocortical seizures in the rat. Technical note.

    abstract::Local cortical cooling for termination of epileptic discharges (EDs) has recently become a focus of research. The authors report on a newly devised cooling system that uses a thermoelectric (Peltier) chip and examine the system's performance in experimental neocortical seizures. Experiments were performed in adult mal...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Imoto H,Fujii M,Uchiyama J,Fujisawa H,Nakano K,Kunitsugu I,Nomura S,Saito T,Suzuki M

    更新日期:2006-01-01 00:00:00

  • No effect of enoxaparin on outcome of aneurysmal subarachnoid hemorrhage: a randomized, double-blind, placebo-controlled clinical trial.

    abstract:OBJECT:From the moment an intracranial aneurysm ruptures, cerebral blood flow is impaired, and this impairment mainly determines the outcome in patients who survive after the initial bleeding. The exact mechanism of impairment is unknown, but activation of coagulation and fibrinolysis correlate with clinical condition ...

    journal_title:Journal of neurosurgery

    pub_type: 临床试验,杂志文章,随机对照试验


    authors: Siironen J,Juvela S,Varis J,Porras M,Poussa K,Ilveskero S,Hernesniemi J,Lassila R

    更新日期:2003-12-01 00:00:00

  • The impact of raised intracranial pressure on cerebral venous hemodynamics: a prospective venous transcranial Doppler ultrasonography study.

    abstract:OBJECT:The effect of increased intracranial pressure (ICP) on cerebral venous blood flow has been the subject of very few clinical and experimental studies. The authors assessed the usefulness of venous transcranial Doppler (TCD) ultrasonography as a noninvasive monitoring tool for predicting raised ICP. METHODS:Seria...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Schoser BG,Riemenschneider N,Hansen HC

    更新日期:1999-11-01 00:00:00

  • Working memory deficits after resection of the dorsolateral prefrontal cortex predicted by functional magnetic resonance imaging and electrocortical stimulation mapping. Case report.

    abstract::Electrocortical stimulation mapping (ESM) is the clinical standard for localizing critical sensorimotor and language functions, but other functions can be assessed with this technique as well. The authors describe an 8-year-old girl with a left frontal desmoplastic gangliocytoma and medically intractable epilepsy who ...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Kho KH,Rutten GJ,Leijten FS,van der Schaaf A,van Rijen PC,Ramsey NF

    更新日期:2007-06-01 00:00:00

  • Ultrasound determination of cerebrospinal fluid shunt patency. Technical note.

    abstract::A technique employing a Doppler ultrasound flowmeter in determining cerebrospinal fluid shunt patency is described. The technique has proven to be a valuable aid in the elevaluation of the patient in whom shunt function is in question. ...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Flitter MA,Buchheit WA,Murtagh F,Lapayowker MS

    更新日期:1975-06-01 00:00:00

  • Inhibition of proliferative growth in glioma cells by calmodulin antagonists.

    abstract::The effects of several calmodulin antagonists, such as N-(6-aminohexyl)-5-chloro-1-naphthalene-sulfonamide hydrochloride (W-7) and its dechlorinated structural analogue (W-5), on the growth and proliferation of cultured and transplanted glioma (GA-1, chemically induced from rat glioblasts) were evaluated. Under cultur...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Suzuki N,Kanno T,Nagata Y,Kato T

    更新日期:1986-07-01 00:00:00

  • The role of surgery for high-grade intracranial dural arteriovenous fistulas: importance of obliteration of venous outflow.

    abstract:OBJECT:Surgical intervention may be required if endovascular embolization is insufficient to completely obliterate intracranial dural arteriovenous fistulas (DAVFs). The authors report their 14-year experience with 23 patients harboring diverse intracranial DAVFs that required surgical intervention. METHODS:Between 19...

    journal_title:Journal of neurosurgery

    pub_type: 杂志文章


    authors: Liu JK,Dogan A,Ellegala DB,Carlson J,Nesbit GM,Barnwell SL,Delashaw JB

    更新日期:2009-05-01 00:00:00