Information provision as evaluated by people with cancer and bereaved relatives: A cross-sectional survey of 34 specialist palliative care teams.


OBJECTIVE:To explore how individuals with cancer and bereaved relatives evaluate information provision by specialist palliative care services (PCSs). METHODS:A cross-sectional survey was conducted within four multidisciplinary palliative homecare teams (HCTs), 17 hospital-based palliative care units (PCUs) and 13 hospital-based mobile palliative support teams (PSTs) in Belgium. During four measurement periods, structured questionnaires were administered to people being guided by PCSs and relatives of patients who had died while under the care of PCSs. RESULTS:In total, 628 patients (80%) and 980 relatives (55%) responded; 73-82% and 75-77% respectively reported having received the right amount of information. Compared with those receiving care within a PCU, those being supported by a PST were more likely to report suboptimal information provision and decision-making. Relatives of those who had died while under the guidance of a PST were also more likely to report suboptimal information provision than their PCU counterparts. CONCLUSION:Although information provision to cancer patients and relatives being supported by PCSs is generally evaluated positively, evaluations depend on the type of service. PRACTICE IMPLICATIONS:Information provided within PCUs offering highly personalised, continuous care appears to both groups more satisfactory than that provided by palliative care teams mainly supporting care staff.


Patient Educ Couns


Verkissen MN,Leemans K,Van den Block L,Deliens L,Cohen J




Has Abstract


2019-04-01 00:00:00














  • Tailored interactive multimedia computer programs to reduce health disparities: opportunities and challenges.

    abstract:OBJECTIVE:To review the theory and research evidence suggesting that tailored interactive multimedia computer programs (IMCPs) aimed at optimizing patient health behaviors could lessen socio-demographic health disparities. METHODS:Selective critical review of research regarding IMCPs tailored to psychological mediator...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Jerant A,Sohler N,Fiscella K,Franks B,Franks P

    更新日期:2011-11-01 00:00:00

  • Explaining the causal links between illness management and symptom reduction: Development of an evidence-based patient education strategy.

    abstract:OBJECTIVE:To determine whether explaining the causal links between illness management and symptom reduction would help younger and older adults learn and apply health information. METHOD:Ninety younger and 51 older adults read about a fictitious disease with or without explanations about the cause-and-effects (causal ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Zhang KM,Swartzman LC,Petrella RJ,Gill DP,Minda JP

    更新日期:2017-06-01 00:00:00

  • What you "see" is how you communicate: Medical students' meaning making of a patient's vignette.

    abstract:OBJECTIVES:To examine how medical students notice issues in a vignette and construct their meaning, and how this construction influences their plan to communicate with the patient. METHODS:Following a breaking bad news course for 112 senior medical students, we qualitatively analyzed the participants' written descript...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Karnieli-Miller O,Michael K,Eidelman S,Meitar D

    更新日期:2018-09-01 00:00:00

  • The experience and impact of chronic disease peer support interventions: a qualitative synthesis.

    abstract:OBJECTIVE:Our aim was to synthesise qualitative literature about the perceived impact and experience of participating in peer support interventions for individuals with chronic disease. METHODS:We carried out a meta-ethnography to synthesize 25 papers meeting specific inclusion criteria. RESULTS:Thirteen concepts wer...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Embuldeniya G,Veinot P,Bell E,Bell M,Nyhof-Young J,Sale JE,Britten N

    更新日期:2013-07-01 00:00:00

  • Patient and clinician perspectives on optimizing graphical displays of longitudinal medication adherence data.

    abstract:OBJECTIVE:New pharmacological measures assessing medication adherence, including longitudinal drug levels in hair, are emerging. Little is known, however, about how best to present results from such measures to patients and clinicians in comprehensive, easy-to-understand, acceptable formats. We, therefore, developed th...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Pack AP,Golin CE,Hill LM,Carda-Auten J,Wallace DD,Cherkur S,Farel CE,Rosen EP,Gandhi M,Asher Prince HM,Kashuba ADM

    更新日期:2019-06-01 00:00:00

  • Level of agreement between patient self-report and observer ratings of health-related quality of life communication in oncology.

    abstract:OBJECTIVE:To determine the level of agreement between patients and observers regarding the frequency with which health-related quality of life topics are discussed during outpatient clinical oncology visits. METHODS:The sample (n=50) consisted of a consecutive series of cancer patients undergoing chemotherapy. Both th...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Hilarius DL,Kloeg PH,Detmar SB,Muller MJ,Aaronson NK

    更新日期:2007-01-01 00:00:00

  • An exploration of how positive emotions are expressed by older people and nurse assistants in homecare visits.

    abstract:OBJECTIVE:We don´t know how positive emotions are being expressed by patients and health care providers in consultations. The aim of this study is to identify positive emotions expressed by older people and nurse assistants to discuss the function of these in the visits. METHOD:This paper presents secondary analysis o...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Heyn L,Ellington L,Eide H

    更新日期:2017-11-01 00:00:00

  • Improving self-care among older patients with type II diabetes: the "Sixty Something..." Study.

    abstract::A 10-session, self-management training program was designed specifically for persons over 60 years of age having Type II diabetes. It targeted social learning variables, especially problem-solving skills and self-efficacy, found to be related to diabetes self-care in earlier correlational research. One hundred two adu...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验


    authors: Glasgow RE,Toobert DJ,Hampson SE,Brown JE,Lewinsohn PM,Donnelly J

    更新日期:1992-02-01 00:00:00

  • Are socioeconomic disparities in health behavior mediated by differential media use? Test of the communication inequality theory.

    abstract:OBJECTIVE:Communication inequality has been offered as one potential mechanism through which social determinants influence multiple health behaviors. The purpose of this study was to examine the underlying mechanisms between communication inequality and health behaviors. METHODS:Data from a nationally representative c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Ishikawa Y,Kondo N,Kawachi I,Viswanath K

    更新日期:2016-11-01 00:00:00

  • Attitudes of nursing staff towards involvement in medical end-of-life decisions: a national survey study.

    abstract:OBJECTIVES:To investigate nursing staff attitudes towards involvement and role in end-of-life decisions (ELDs) and the relationships with sociodemographic and work-related characteristics. METHODS:Survey study among nationally representative Dutch research sample consisting of care professionals. Nursing staff working...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Albers G,Francke AL,de Veer AJ,Bilsen J,Onwuteaka-Philipsen BD

    更新日期:2014-01-01 00:00:00

  • Promoting men's knowledge of cancer risk reduction: A systematic review of interventions.

    abstract:OBJECTIVE:To critically appraise and discuss evidence from interventions designed to increase men's knowledge about cancer risk reduction. METHODS:A systematic review was conducted. Six electronic databases were searched for interventions published between January 1st 2006 and May 30th 2016 in English. Studies were in...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Reidy M,Saab MM,Hegarty J,Von Wagner C,O'Mahony M,Murphy M,Drummond FJ

    更新日期:2018-08-01 00:00:00

  • Effectiveness of workplace diabetes prevention programs: A systematic review of the evidence.

    abstract:PURPOSE:The primary purpose is to review diabetes workplace interventions and the degree to which they improve diabetes-related outcomes in employees diagnosed with or at risk for T2DM. METHODS:Three electronic databases and ancestry searches were used to identify peer reviewed articles published in English from 2000 ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Brown SA,García AA,Zuñiga JA,Lewis KA

    更新日期:2018-06-01 00:00:00

  • Attitudes and anxiety levels of medical students towards the acquisition of competencies in communication skills.

    abstract:OBJECTIVE:Results of third year medical students' attitudes and stress levels towards the acquisition of communication skills before and after a Communication and Clinical Skills Course (CCSC) at the Faculty of Medicine of the University of Porto (FMUP), Portugal, are presented. METHODS:115 students attending third-ye...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Loureiro EM,Severo M,Bettencourt P,Ferreira MA

    更新日期:2011-12-01 00:00:00

  • Development and feasibility of a patient feedback programme to improve consultation skills in general practice training.

    abstract:OBJECTIVE:To develop an attractive and effective patient feedback training programme for general practice trainees (GPTs). METHODS:First, an exploratory study was conducted in which patients and GPTs were interviewed after they had worked with patient feedback. This contributed to the development of the patient feedba...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Reinders ME,Blankenstein AH,van Marwijk HW,Schleypen H,Schoonheim PL,Stalman WA

    更新日期:2008-07-01 00:00:00

  • Does cultural competency training matter? A national study of anti-gay bias among cancer care professionals.

    abstract:PURPOSE:This study examined whether higher levels of self-reported cultural competency training were associated with less anti-gay bias among a cancer healthcare provider sample (n = 404) recruited in January 2017. METHODS:A factorial analysis of variance (ANOVA) was performed to examine anti-gay bias across professio...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Pratt-Chapman ML

    更新日期:2020-12-25 00:00:00

  • Development, pilot testing and psychometric validation of a short version of the coronary artery disease education questionnaire: The CADE-Q SV.

    abstract:OBJECTIVE:To develop, pilot test and psychometrically validate a shorter version of the coronary artery disease education questionnaire (CADE-Q), called CADE-Q SV. METHODS:Based on previous versions of the CADE-Q, cardiac rehabilitation (CR) experts developed 20 items divided into 5 knowledge domains to comprise the f...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Ghisi GLM,Sandison N,Oh P

    更新日期:2016-03-01 00:00:00

  • Provider-interpreter collaboration in bilingual health care: competitions of control over interpreter-mediated interactions.

    abstract:OBJECTIVE:This study examines (a) providers' and interpreters' perception of their competition in controlling the content and process of provider-patient interactions, and (b) the challenges to providers' and interpreters' collaboration in bilingual health care. METHODS:I recruited 26 professional medical interpreters...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Hsieh E

    更新日期:2010-02-01 00:00:00

  • Evaluation of risk communication in a mammography patient decision aid.

    abstract:OBJECTIVES:We characterized patients' comprehension, memory, and impressions of risk communication messages in a patient decision aid (PtDA), Mammopad, and clarified perceived importance of numeric risk information in medical decision making. METHODS:Participants were 75 women in their forties with average risk factor...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Klein KA,Watson L,Ash JS,Eden KB

    更新日期:2016-07-01 00:00:00

  • The patient, the doctor and the emergency department: a cross-sectional study of patient-centredness in 1990 and 2005.

    abstract:OBJECTIVE:To compare and contrast the duration and content of physician-patient interaction for patients presenting to an emergency department with problems of low acuity in 1990 and 2005 treated by different grades of physician. METHODS:Observational study with data collection in May-July 1990 and May-July 2005. Pati...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Dale J,Sandhu H,Lall R,Glucksman E

    更新日期:2008-08-01 00:00:00

  • Pathways of empowerment perceptions, health literacy, self-efficacy, and self-care behaviors to glycemic control in patients with type 2 diabetes mellitus.

    abstract:OBJECTIVE:To validate a hypothesized model exploring the influencing pathways of empowerment perceptions, health literacy, self-efficacy, and self-care behaviors to glycosylated hemoglobin (HbA1c) levels in patients with type 2 diabetes (T2DM). METHODS:Overall, 295 patients with T2DM were recruited from five endocrine...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Lee YJ,Shin SJ,Wang RH,Lin KD,Lee YL,Wang YH

    更新日期:2016-02-01 00:00:00

  • A comparison of GP, pharmacist and nurse prescriber responses to patients' emotional cues and concerns in primary care consultations.

    abstract:OBJECTIVE:Recognising patients' cues and concerns is an important part of patient centred care. With nurses and pharmacists now able to prescribe in the UK, this study compared the frequency, nature, and professionals' responses to patient cues and concerns in consultations with GPs, nurse prescribers and pharmacist pr...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Riley R,Weiss MC,Platt J,Taylor G,Horrocks S,Taylor A

    更新日期:2013-04-01 00:00:00

  • Transfer of communication skills training from workshop to workplace: the impact of clinical supervision.

    abstract:OBJECTIVE:Recent studies have recognised that the communication skills learned in the training environment are not always transferred back into the clinical setting. This paper reports a study which investigated the potential of clinical supervision in enhancing the transfer process. METHODS:A randomised controlled tr...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验


    authors: Heaven C,Clegg J,Maguire P

    更新日期:2006-03-01 00:00:00

  • Developing a dyadic OPTION scale to measure perceptions of shared decision making.

    abstract:OBJECTIVE:Our aim was to develop a measurement which enables research into the interdependent nature of clinical encounters. The prime objective was to develop an instrument capable of assessing the extent to which patients have been involved in (shared) decision making from two viewpoints-that of the patient and the c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Melbourne E,Sinclair K,Durand MA,Légaré F,Elwyn G

    更新日期:2010-02-01 00:00:00

  • Autism genetic testing information needs among parents of affected children: A qualitative study.

    abstract:OBJECTIVE:Leading health agencies recommend physicians to provide information regarding genetic testing for autism spectrum disorders (ASD) to parents of affected children. How to effectively provide this information, however, is unclear for physicians. This qualitative study examined the information needs regarding AS...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Li M,Amuta A,Xu L,Dhar SU,Talwar D,Jung E,Chen LS

    更新日期:2016-06-01 00:00:00

  • Striving for quality or length at the end-of-life: attitudes of the Dutch general public.

    abstract::Questionnaires were mailed to 1777 members of the Dutch public (response: 78%), measuring to what extent respondents appreciate life-prolonging treatment, even if it would seriously impair their quality of life. The association between these attitudes and personal characteristics and initiatives to engage in advance c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Rietjens JA,van der Heide A,Voogt E,Onwuteaka-Philipsen BD,van der Maas PJ,van der Wal G

    更新日期:2005-11-01 00:00:00

  • Predicting cancer patients' participation in support groups: a longitudinal study.

    abstract:OBJECTIVE:Few patients participate in cancer support groups despite their benefits. This study investigated the importance of Theory of Planned Behaviour variables in predicting group participation, relative to disease impact, existing support, coping and demographic variables. METHODS:Longitudinal study of patients w...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Grande G,Arnott J,Brundle C,Pilling M

    更新日期:2014-08-01 00:00:00

  • Patient empowerment: myths and misconceptions.

    abstract:OBJECTIVE:The purpose of this article is to clarify the concept of empowerment and to correct common misconceptions about its use in diabetes care and education. METHODS:The patient empowerment approach is well suited to helping patients make self-selected changes related to weight, nutrition, and physical activity. A...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Anderson RM,Funnell MM

    更新日期:2010-06-01 00:00:00

  • Cross-cultural validation of the Patient-Practitioner Orientation Scale (PPOS).

    abstract:OBJECTIVES:Translate, adapt and validate the Patient-Practitioner Orientation Scale (PPOS) for use in Brazil. METHODS:The PPOS was translated to Portuguese using a modified Delphi technique. The final version was applied to 360 participants. Reliability (test-retest and internal consistency) and construct validity (ex...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Pereira CM,Amaral CF,Ribeiro MM,Paro HB,Pinto RM,Reis LE,Silva CH,Krupat E

    更新日期:2013-04-01 00:00:00

  • Improving empowerment, motivation, and medical adherence in patients with poorly controlled type 2 diabetes: A randomized controlled trial of a patient-centered intervention.

    abstract:OBJECTIVE:To test whether an intervention consisting of four patient-centered consultations improves glycemic control and self-management skills in patients with poorly regulated type 2 diabetes (T2DM), compared to a control group receiving usual care. METHODS:Unblinded parallel randomized controlled trial including 9...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验


    authors: Varming AR,Rasmussen LB,Husted GR,Olesen K,Grønnegaard C,Willaing I

    更新日期:2019-12-01 00:00:00

  • Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group.

    abstract:OBJECTIVE:Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxie...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Coulson NS,Buchanan H,Aubeeluck A

    更新日期:2007-10-01 00:00:00