Could disease labelling have positive effects? An experimental study exploring the effect of the chronic fatigue syndrome label on intended social support.

Abstract:

:Objective Chronic fatigue syndrome (CFS) patients report limited social support, which can affect symptom severity. Friends are a key source of social support for young adults with CFS, but there is limited research on friends' responses to the CFS label. We explored the potential benefits or harms of the CFS label for shaping the potential for social support from a friend's perspective. Method 207 university students responded to hypothetical scenarios about a close friend experiencing CFS. Participants were randomly allocated to either the CFS-label or no-label conditions. The potential for social support was operationalised as attitude (sympathetic or hostile), intended treatment support and intended behavioural support. Results The CFS label elicited a greater potential for social support, with significantly higher sympathetic responses, lower rejecting responses and greater support for active treatment. These effects were significantly greater in men compared to women. There was no effect on intended behavioural support. Conclusion This study suggests the CFS label may increase the potential for social support. Young adults, particularly men, held more supportive attitudes towards their friend when the CFS label was used. Practical Implications The effects of labels on the potential for social support need to be considered when evaluating the usefulness of a disease label.

journal_name

Patient Educ Couns

authors

Noble S,Bonner C,Hersch J,Jansen J,McGeechan K,McCaffery K

doi

10.1016/j.pec.2018.10.011

subject

Has Abstract

pub_date

2019-03-01 00:00:00

pages

486-493

issue

3

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(18)30883-8

journal_volume

102

pub_type

杂志文章,随机对照试验
  • Enhancing the relationship and improving communication between adolescents and their health care providers: a school based intervention by medical students.

    abstract:OBJECTIVE:To develop, implement and evaluate a workshop to help adolescents develop independent and active relationships with their physicians. METHODS:A needs-assessment survey informed the development of a workshop delivered by medical student volunteers and incorporated into the career and personal planning curricu...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.07.007

    authors: Towle A,Godolphin W,Van Staalduinen S

    更新日期:2006-08-01 00:00:00

  • The influence of medical students' and doctors' attachment style and emotional intelligence on their patient-provider communication.

    abstract:OBJECTIVE:Attachment style and emotional intelligence (EI) have been highlighted as potential factors influencing the variation in medical students' and doctors' patient-provider communication (PPC), particularly in relation to emotive issues. The objective of this review is to systematically review and synthesise the ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2013.05.010

    authors: Cherry MG,Fletcher I,O'Sullivan H

    更新日期:2013-11-01 00:00:00

  • A questionnaire study of GPs' and patients' beliefs about the different components of patient centredness.

    abstract::Much research has explored the interaction between doctor and patient in the consultation and patient centredness has generally emerged as the preferred mode of consultation style. The present study aimed to examine and compare general practitioners' (GPs) and patients' beliefs about the importance of the different as...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(01)00200-2

    authors: Ogden J,Ambrose L,Khadra A,Manthri S,Symons L,Vass A,Williams M

    更新日期:2002-07-01 00:00:00

  • Men considering a hypothetical treatment for prostate cancer: a comparison to patients.

    abstract:BACKGROUND:In facilitating informed decision making about PSA screening, men are often asked to consider the potential consequences of the test, including a diagnosis of prostate cancer and how they would want to be treated. However, there is no empirical evidence thus far demonstrating that men are able to consider th...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.02.002

    authors: Van Manen L,Feldman-Stewart D,Brundage MD

    更新日期:2006-04-01 00:00:00

  • Follow-up of a web-based tailored intervention promoting the Mediterranean diet in Scotland.

    abstract:OBJECTIVE:To assess the impact of a 3-month follow-up of a 6-month quasi-experimental study conducted to evaluate a web-based, tailored-feedback intervention promoting four key components of the Mediterranean diet. METHODS:Fifty-three (intervention) and nineteen (control) healthy females, 25-55 years, employed at two ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2008.05.030

    authors: Papadaki A,Scott JA

    更新日期:2008-11-01 00:00:00

  • The impact of descriptive norms on motivation to participate in cancer screening - Evidence from online experiments.

    abstract:OBJECTIVE:The current study tested in two online experiments whether manipulating normative beliefs about cancer screening uptake increases intention to attend colorectal screening among previously disinclined individuals. METHODS:2461 men and women from an Internet panel (Experiment 1 N = 1032; Experiment 2, N = 1423...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.04.001

    authors: von Wagner C,Hirst Y,Waller J,Ghanouni A,McGregor LM,Kerrison RS,Verstraete W,Vlaev I,Sieverding M,Stoffel ST

    更新日期:2019-09-01 00:00:00

  • Approaches to patient and family education with affective disorders.

    abstract::This paper provides an overview of prevalence, types, effects and treatment for affective disorders, with particular emphasis on educational and psychoeducational interventions. It reviews several models of psychoeducation including the approaches used in various programs at the Psychiatric hospital in which the autho...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/0738-3991(92)90195-o

    authors: Daley DC,Bowler K,Cahalane H

    更新日期:1992-04-01 00:00:00

  • Increasing patient activation through diabetes self-management education: Outcomes of DESMOND in regional Western Australia.

    abstract:OBJECTIVE:To evaluate the effects of the Diabetes Education and Self-Management for Ongoing and Newly Diagnosed (DESMOND) program on patient activation in adults living with type 2 diabetes (T2D). METHODS:233 individuals attended a DESMOND program in 26 locations across regional Western Australia. Individuals complete...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.10.013

    authors: Miller VM,Davies MJ,Etherton-Beer C,McGough S,Schofield D,Jensen JF,Watson N

    更新日期:2020-04-01 00:00:00

  • What are the external influences on information exchange and shared decision-making in healthcare consultations: a meta-synthesis of the literature.

    abstract:OBJECTIVE:To review the literature to identify external influences on information exchange and shared decision-making in healthcare consultations and conceptualise how information is used both outside and within a consultation. METHODS:A 'meta-study' approach (meta-data-analysis, meta-theory, meta-method, and meta-syn...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.pec.2008.09.025

    authors: Edwards M,Davies M,Edwards A

    更新日期:2009-04-01 00:00:00

  • South Asian womens' views on the causes of breast cancer: images and explanations.

    abstract::Using ethnoscience methods, interviews with 50 South Asian women living in Western Canada were conducted and analyzed to explore explanations and images of breast cancer. Embedded in the women's stories of breast cancer were distinctive, often vivid and fear-provoking images of abnormal growth. Explanations about the ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(98)00118-9

    authors: Johnson JL,Bottorff JL,Balneaves LG,Grewal S,Bhagat R,Hilton BA,Clarke H

    更新日期:1999-07-01 00:00:00

  • Do gender-dyads have different communication patterns? A comparative study in Western-European general practices.

    abstract::From the viewpoint of quality of care, doctor-patient communication has become more and more important. Gender is an important factor in communication. Besides, cultural norms and values are likely to influence doctor-patient communication as well. This study examined (1). whether or not communication patterns of gend...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(02)00178-7

    authors: Brink-Muinen Av,van Dulmen S,Messerli-Rohrbach V,Bensing J

    更新日期:2002-12-01 00:00:00

  • Effectiveness of a communication skills training program for medical students to identify patients communicative clues.

    abstract:OBJECTIVE:This study explores whether an Experiential Training Programme (ETP) in communication skills (CS) improves students' ability to identify patients clues compared to those who follow a non-experiential training throughout their medical studies. METHOD:Intervention Group (IG): 85 4th-year medical students who r...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.05.018

    authors: Moral RR,Andrade-Rosa C,Martín JDM,Barba EC,de Torres LP,Martín DM

    更新日期:2020-11-01 00:00:00

  • Coping with new treatments for cancer: a feasibility study of daily diary measures.

    abstract::This article describes a study of the feasibility and value of using daily diary measures to assess coping, adjustment and symptoms in patients participating in phase I clinical trials of new anticancer drugs. Ten patients (six women, four men) with advanced metastatic cancer were studied during a four-week phase I tr...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0738-3991(99)00047-6

    authors: Sherliker L,Steptoe A

    更新日期:2000-04-01 00:00:00

  • Treatment decision making experiences of migrant cancer patients and their families in Australia.

    abstract:OBJECTIVE:To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives. METHODS:73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2015.01.012

    authors: Shaw J,Zou X,Butow P

    更新日期:2015-06-01 00:00:00

  • An online support group for problem drinkers: AlcoholHelpCenter.net.

    abstract:OBJECTIVE:Social support networks have been identified as one factor that can help people resolve their problem drinking. A relatively new phenomenon is online support groups, such as the one provided on the Alcohol Help Center (AHC; http://www.alcoholhelpcenter.net). Preliminary use of the AHC support group will be su...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2007.10.003

    authors: Cunningham JA,van Mierlo T,Fournier R

    更新日期:2008-02-01 00:00:00

  • Improving youth question-asking and provider education during pediatric asthma visits.

    abstract:OBJECTIVE:We conducted a pragmatic randomized controlled trial to test the effectiveness of an asthma question prompt list with video intervention to increase youth question-asking and provider education during visits. METHODS:English or Spanish-speaking youth ages 11-17 with persistent asthma and their parents were e...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2018.01.013

    authors: Sleath B,Carpenter DM,Davis SA,Watson CH,Lee C,Loughlin CE,Garcia N,Reuland DS,Tudor G

    更新日期:2018-06-01 00:00:00

  • Implementation and effectiveness of a hospital smoking cessation service in Germany.

    abstract:OBJECTIVE:Hospitalized smokers are often highly motivated to quit and receptive to assistance. There are few published accounts of hospital-based smoking cessation programmes implemented outside of a trial setting, particularly outside North America. We describe the implementation and effectiveness of a dedicated smoki...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.09.024

    authors: Balmford J,Leifert JA,Schulz C,Elze M,Jaehne A

    更新日期:2014-01-01 00:00:00

  • Averting adverse events in communication skills training: a case series.

    abstract:OBJECTIVE:To document cases of adverse or near adverse events in communication skills training (CST) and to identify risk factors and strategies to reduce the likelihood of their occurrence. METHODS:Six physician CST cases meeting criteria for an adverse or near adverse collected from experienced facilitators are anal...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.12.009

    authors: Levin T,Horner J,Bylund C,Kissane D

    更新日期:2010-10-01 00:00:00

  • Evaluation of an evidence-based education package for men with prostate cancer on hormonal manipulation therapy.

    abstract::Prostate cancer has become a public health problem worldwide with considerable social and economic consequences. Many men have extraprostatic spread at diagnosis, and treatment usually involves hormonal manipulation therapy, which can challenge the stereotypical male image. It is often assumed that merely the provisio...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2003.07.005

    authors: Templeton H,Coates V

    更新日期:2004-10-01 00:00:00

  • A tale of two studies: the importance of setting, subjects and context in two randomized, controlled trials of a web-based decision support for perimenopausal and postmenopausal health decisions.

    abstract:OBJECTIVE:Knowledge relevant to women's peri- and postmenopausal health decisions has been evolving rapidly. Web-based decision supports can be rapidly updated and have the potential to improve the quality of patients' decisions. We developed and tested a web-based decision support for peri- and postmenopausal health d...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2006.12.004

    authors: Saver BG,Gustafson D,Taylor TR,Hawkins RP,Woods NF,Dinauer S,Casey S,MacLaren-Loranger A

    更新日期:2007-05-01 00:00:00

  • Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions.

    abstract:OBJECTIVE:A comprehensive review was conducted of the theoretical and empirical work that addresses the preference-match strategy in physician-patient communication. METHODS:Searches were conducted on Medline, PsychINFO, InFoTrac One File Plus, Sociological Abstracts, and Dissertation Abstracts through 2004. The follo...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2005.08.002

    authors: Kiesler DJ,Auerbach SM

    更新日期:2006-06-01 00:00:00

  • Perception of diagnosis and openness of patients about infertility.

    abstract::The perception of the diagnosis of infertility and the openness of patients about infertility was investigated among 108 infertile couples. Husbands and wives answered a structured questionnaire. The perception of diagnosis was in 38% of the cases different from the medical diagnosis. Patients perceived the diagnosis ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(95)00852-7

    authors: van Balen F,Trimbos-Kemper T,Verdurmen J

    更新日期:1996-08-01 00:00:00

  • What employees with diabetes mellitus need to cope at work: views of employees and health professionals.

    abstract:OBJECTIVE:To identify and compare patient and professional perspectives on what enables employees with diabetes mellitus (DM) to maintain their position in the workplace. To provide information on how professionals can help DM patients cope at work. METHODS:Qualitative study using concept-mapping sessions involving 23...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.12.015

    authors: Detaille SI,Haafkens JA,Hoekstra JB,van Dijk FJ

    更新日期:2006-12-01 00:00:00

  • The influence of a question prompt list on patient-oncologist information exchange in an African-American population.

    abstract:OBJECTIVES:Question Prompt Lists (QPL) increase patient active participation in oncology interactions, but questions remain regarding how QPLs influence patient-oncologist information exchange. We examined how a QPL influenced information exchange during oncology interactions with African-American patients. METHODS:Da...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.09.020

    authors: Barton E,Moore TF,Hamel L,Penner L,Albrecht T,Eggly S

    更新日期:2020-03-01 00:00:00

  • Effect of nurse-led program on the exercise behavior of coronary artery patients: Pender's Health Promotion Model.

    abstract:OBJECTIVE:To determine the effect of nurse-led program based on Pender's Health Promotion Model on the exercise behaviors of coronary artery patients. METHODS:The two-arm parallel, single-blind, randomized controlled trial was conducted with a total of 62 patients, intervention (n = 32) and control group (n = 30). Int...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.10.003

    authors: Karataş T,Polat Ü

    更新日期:2020-10-10 00:00:00

  • Predicting health-related quality of life in dialysis patients: Factors related to negative outcome expectancies and social support.

    abstract:OBJECTIVES:Dialysis patients report a low health-related quality of life (HRQOL) due to high disease burden and far-reaching consequences of dialysis treatment. This study examined several cognitive-behavioral and social factors, with a focus on negative outcome expectancies, that might be relevant for HRQOL in end-sta...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.11.019

    authors: Tommel J,Evers AWM,van Hamersvelt HW,Jordens R,van Dijk S,Hilbrands LB,van Middendorp H,E-HELD Study Group.

    更新日期:2020-11-25 00:00:00

  • Effective chronic disease management: patients' perspectives on medication-related problems.

    abstract:OBJECTIVE:To examine medication-related problems from the perspective of patients with a chronic condition and to identify how they may be supported in managing their medication. METHODS:Patients prescribed medication for cardiovascular disease were recruited through five general medical surgeries and four community p...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2006.09.012

    authors: Gordon K,Smith F,Dhillon S

    更新日期:2007-03-01 00:00:00

  • Effect of educational counseling alone on people with tinnitus: Meta-analysis of randomized controlled trials.

    abstract:OBJECTIVE:To review and meta-analyze the efficacy of educational counseling alone in tinnitus. METHODS:We collected randomized controlled trials (RCTs) adhered to PRISMA guidelines. Analyzed the effect of educational counseling alone versus other forms of therapy (psychological or combination) with RevMan 5.3. RESULT...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2019.07.031

    authors: Xiang T,Zhong J,Lu T,Pu JM,Liu L,Xiao Y,Lai D

    更新日期:2020-01-01 00:00:00

  • A systematic review of the literature reporting on studies that examined the impact of interactive, computer-based patient education programs.

    abstract:OBJECTIVE:To evaluate studies that examined the impact of interactive, computer-based education (ICBE) programs on patient education. METHODS:The Medline and CINAHL databases were searched to identify randomized controlled studies that evaluated the impact of ICBE programs. RESULTS:The 25 studies that met the selecti...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2009.02.011

    authors: Fox MP

    更新日期:2009-10-01 00:00:00

  • Shared decision making: What is the work?

    abstract::Cooperation has emerged as a fundamental characteristic of human society, and many argue that this ability is the basis for the phenomenal development in our capability as a species. When we focus our attention to the interactions that occur in healthcare, we inevitably notice power asymmetry due to unequal knowledge,...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.11.032

    authors: Elwyn G

    更新日期:2020-12-01 00:00:00