Quality of Life in Head and Neck Cancer Patient-Caregiver Dyads: A Systematic Review.

Abstract:

BACKGROUND:As we learn about patient experiences with head and neck cancer, it is also important to consider caregivers so that family-centered care can be improved. OBJECTIVES:The purpose of this systematic review was to (a) identify the research questions, methods, and measures that have been examined in quality-of-life studies with head and neck cancer patients and their caregivers (dyads) and (b) identify gaps and future directions for research and practice. METHODS:We conducted a systematic search of electronic databases using keywords (head and neck cancer, caregiver, quality of life) and included studies that assessed quality of life-related constructs in both patients and caregivers. A dyadic quality-of-life conceptual model guided the summary of observations. RESULTS:Thirteen studies met eligibility criteria. The most common research questions included comparing patient and caregiver quality of life, examining relationships between personal and clinical factors in 1 dyad member and a quality-of-life outcome in the other, and exploring relationships between interpersonal processes and quality of life. Psychological quality-of-life constructs were most commonly studied. There was substantial variability in study findings, in part due to differences in study questions and samples. CONCLUSIONS:Future research is needed to examine longitudinal interpersonal processes in head and neck cancer. Unique caregiving tasks should be inventoried, and dyadic data analysis techniques should be used. IMPLICATIONS FOR PRACTICE:Head and neck cancer dramatically affects quality of life in patients and caregivers, and quality clinical care requires a dyadic focus. Oncology nurses have a unique opportunity to develop and implement dyadic illness management models for head and neck cancer.

journal_name

Cancer Nurs

journal_title

Cancer nursing

authors

Sterba KR,Zapka J,Cranos C,Laursen A,Day TA

doi

10.1097/NCC.0000000000000281

subject

Has Abstract

pub_date

2016-05-01 00:00:00

pages

238-50

issue

3

eissn

0162-220X

issn

1538-9804

journal_volume

39

pub_type

杂志文章,评审
  • Research priorities of Korean oncology nurses.

    abstract::Systematic nursing research activities in South Korea began in the 1970s, but research into oncology did not begin until the mid-1980s. Although the number of Korean oncology nursing studies has increased steadily since then, no national agenda exists for future research in oncology nursing. This study involved a desc...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/00002820-200310000-00007

    authors: Lee EH,Kim JS,Chung BY,Bok MS,Song BE,Kong SW,Lee EO

    更新日期:2003-10-01 00:00:00

  • Personal financial effects of multiple myeloma and its treatment.

    abstract:BACKGROUND:Improvements in some treatment programs for multiple myeloma (MM) are increasing survival. As patients live longer with MM as a chronic disease, the personal financial effects of MM treatment become a serious concern. OBJECTIVE:The objective of this study was to identify the personal financial effects of MM...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e3182693522

    authors: Goodwin JA,Coleman EA,Sullivan E,Easley R,McNatt PK,Chowdhury N,Stewart CB

    更新日期:2013-07-01 00:00:00

  • Cancer patients' experiences of their personal strengths through illness and recovery.

    abstract:BACKGROUND:Cancer patients' strengths and capabilities have received little attention from healthcare providers whose primary focus is on patients' problems. Thus, providers miss an important opportunity to build on cancer patients' strengths. New care approaches are needed that nourish patients' strengths and encourag...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e3182116497

    authors: Rotegård AK,Fagermoen MS,Ruland CM

    更新日期:2012-01-01 00:00:00

  • "Beyond the Boundaries of Care Dependence": A Phenomenological Study of the Experiences of Palliative Care Nurses.

    abstract:BACKGROUND:Dependence is a common life experience and innate condition for human beings due to their bodily and relational essence, but in contemporary society, it has become a stressful condition. Care dependence is central to nursing, and patients with advanced cancer are often dependent on care. Understanding nurses...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000701

    authors: Piredda M,Candela ML,Mastroianni C,Marchetti A,D'Angelo D,Lusignani M,De Marinis MG,Matarese M

    更新日期:2020-07-01 00:00:00

  • Caregivers' descriptions of patients with advanced breast cancer in connection with supervision sessions in a surgical ward.

    abstract::The purpose of this study was to describe the content of caregivers' (health care professionals') presentation of care situations as told at supervision sessions. For 1 year, 21 caregivers in a surgical ward of a county hospital in the middle of Sweden participated in a clinical supervision session 2 hours every third...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/00002820-200102000-00005

    authors: Odling G,Danielson E,Jansson L

    更新日期:2001-02-01 00:00:00

  • Factors related to practice of breast self-examination in rural women.

    abstract::The purpose of this study was to examine variables related to breast self-examination (BSE) in rural women. The sample of convenience consisted of 347 women who were members of selected county-extension homemaker clubs. Champion's Health Belief Model Scale was used to measure susceptibility, seriousness, benefits, bar...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:

    authors: Gray ME

    更新日期:1990-04-01 00:00:00

  • Symptom monitoring and self-care practices among oncology adults in China.

    abstract:BACKGROUND:Cancer is a major health problem in Asia. OBJECTIVE:This study's purpose was to examine patient-reported symptoms and self-care strategies of Chinese adults during cancer treatments. METHODS:A cross-sectional, descriptive study in cancer centers in Hong Kong and Xi'an, China, was conducted. A total of 222 ...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e3181c29598

    authors: Williams PD,Lopez V,Ying CS,Piamjariyakul U,Wenru W,Hung GT,Kim M,Park L,Shen Q,Williams AR

    更新日期:2010-05-01 00:00:00

  • African American cancer patients' pain experience.

    abstract::Although very little is known about African American cancer patients' pain experience, a few studies have indicated that their cancer pain experience is unique and somewhat different from that of other ethnic groups. The purpose of the study reported in this article was to explore African American cancer patients' pai...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/01.NCC.0000305685.59507.9e

    authors: Im EO,Lim HJ,Clark M,Chee W

    更新日期:2008-01-01 00:00:00

  • The relationship between meaning of illness, social support, coping strategies, and quality of life for lung cancer patients and their family members.

    abstract::This article explores the relationship between meaning of illness, perceived social support resources, coping strategies used, and quality of life (QOL) by patients with lung cancer and their family members. The study was cross-sectional using interview data from 85 patients and associated family members. Regression r...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/00002820-200603000-00006

    authors: Downe-Wamboldt B,Butler L,Coulter L

    更新日期:2006-03-01 00:00:00

  • Living with cancer. Family experiences.

    abstract::The focus of this paper is to describe what it is like to live with cancer from the perspective of families. Recent studies indicate that family members' concerns vary with their roles as family members and patient/nonpatient status. Moreover, concerns vary with stage of illness and time since diagnosis. Not all conce...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:

    authors: Woods NF,Lewis FM,Ellison ES

    更新日期:1989-02-01 00:00:00

  • Coping Strategies for Self-perceived Burden Among Advanced Cancer Patients.

    abstract:BACKGROUND:Self-perceived burden (SPB) causes stress and negatively impacts the quality of life and mental health of patients. It is important to identify effective coping methods to reduce SPB when supporting advanced cancer patients. OBJECTIVE:To qualitatively elucidate advanced cancer patients' strategies for copin...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000723

    authors: Oeki M,Takase M

    更新日期:2020-11-01 00:00:00

  • Coping with breast cancer survivorship in Chinese women: the role of fatalism or fatalistic voluntarism.

    abstract:BACKGROUND:The existing knowledge on fatalism in the field of cancer has arisen largely from the cancer prevention and screening literature. Little is known about the role of fatalism in cancer survivorship, particularly within Chinese population. OBJECTIVE:This study aimed to explore the role of fatalism in coping wi...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e31826542b2

    authors: Cheng H,Sit JW,Twinn SF,Cheng KK,Thorne S

    更新日期:2013-05-01 00:00:00

  • Nurses' perceptions of the meaning of quality of life for bone marrow transplant survivors.

    abstract::Nurses play an integral role in the care of bone marrow transplant (BMT) patients from pre-transplant to posttransplant. The purpose of this study was to explore the nurses' perceptions of the impact of transplant on the quality of life (QOL) of survivors. The conceptual framework for the study was the model of QOL de...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:

    authors: King CR,Ferrell BR,Grant M,Sakurai C

    更新日期:1995-04-01 00:00:00

  • Enhancing self-efficacy for optimized patient outcomes through the theory of symptom self-management.

    abstract:BACKGROUND:In today's world, greater patient empowerment is imperative because 90 million Americans live with 1 or more chronic conditions such as cancer. Evidence reveals that healthy behaviors such as effective symptom self-management can prevent or reduce much of the suffering from cancer. Oncology nurses play a piv...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e31824a730a

    authors: Hoffman AJ

    更新日期:2013-01-01 00:00:00

  • Women with lung cancer: quality of life after thoracotomy: a 6-month prospective study.

    abstract:BACKGROUND:Data about health-related quality of life (QOL) after surgical treatment for lung cancer are limited. Such information can be valuable in developing appropriate nursing interventions for follow-up care for survivors. OBJECTIVES:The purposes of this study were to describe physical and emotional QOL of diseas...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e3181be5e51

    authors: Sarna L,Cooley ME,Brown JK,Chernecky C,Padilla G,Danao L,Chakravarty D,Elashoff D

    更新日期:2010-03-01 00:00:00

  • Impact of health information-seeking behavior and personal factors on preferred role in treatment decision making in men with newly diagnosed prostate cancer.

    abstract:BACKGROUND:Prostate cancer (PC) patients continue to have unmet information needs at the time of diagnosis and are often unable to communicate their preferences to physicians at the time of the treatment consultation. OBJECTIVE:The objective of the study was to determine the impact of health information-seeking behavi...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e318236565a

    authors: Davison BJ,Breckon EN

    更新日期:2012-11-01 00:00:00

  • Positive Psychological Change Following a Cancer Diagnosis in Old Age: A Mixed-Methods Study.

    abstract:BACKGROUND:Despite the stress inherent in a cancer diagnosis, many cancer survivors report benefits, including perceptions of personal growth and well-being. Among adults 60 years or older, for whom cancer diagnoses are most prevalent, there is a notable lack of research on positive psychological change. OBJECTIVE:Thi...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000766

    authors: Hoogland AI,Jim HSL,Schoenberg NE,Watkins JF,Rowles GD

    更新日期:2019-12-06 00:00:00

  • Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.

    abstract:BACKGROUND:Despite knowing the potential medical consequences of cancer treatment, little is known about how adolescents cognitively and emotionally frame, process, and manage in the early survivorship period. OBJECTIVE:The specific aims were to describe the worries, perceived challenges, and ways of dealing with thes...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000629

    authors: Walker AJ,Lewis FM,Lin Y,Zahlis E,Rosenberg AR

    更新日期:2019-07-01 00:00:00

  • The BRIGHTLIGHT National Survey of the Impact of Specialist Teenage and Young Adult Cancer Care on Caregivers' Information and Support Needs.

    abstract:BACKGROUND:Teenage and young adult cancer services in England are centralized in 13 principal treatment centers (TYA-PTC). These "specialist services" are designed to support caregivers as well as young people. OBJECTIVES:To evaluate whether caregivers of young people with cancer had fewer unmet information and suppor...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000771

    authors: Martins A,Alvarez-Galvez J,Fern LA,Vindrola-Padros C,Barber JA,Gibson F,Whelan JS,Taylor RM

    更新日期:2019-12-28 00:00:00

  • Adjustment process in Iranian women with breast cancer.

    abstract::Breast cancer is a devastating event for a woman. Physical changes and psychological problems, treatment to improve the patient's condition, and increased survival rates compared with other cancers manifest the importance of quality of life in these patients. This quality of life is affected by how the patients adjust...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/01.NCC.0000305720.98518.35

    authors: Taleghani F,Yekta ZP,Nasrabadi AN,Käppeli S

    更新日期:2008-05-01 00:00:00

  • Patient-related barriers to cancer pain management in a palliative care setting in Hong Kong.

    abstract::This article reviews a study of pain management and its barriers in Hong Kong. Using an interview technique, several measures were used to understand the level of concern in patients about pain, the patients' hesitancy in reporting pain, use of analgesics, and adequacy of medication for pain. A total of nine barriers ...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/00002820-199906000-00002

    authors: Chung TK,French P,Chan S

    更新日期:1999-06-01 00:00:00

  • Experiences of ethical issues when caring for children with cancer.

    abstract:BACKGROUND:The treatment for pediatric cancer is often physically, socially, and psychologically demanding and often gives rise to ethical issues. OBJECTIVE:The purpose of this study was to describe healthcare professionals' experiences of ethical issues and ways to deal with these when caring for children with cancer...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000130

    authors: Bartholdson C,Lützén K,Blomgren K,Pergert P

    更新日期:2015-03-01 00:00:00

  • Pain Management Experiences Among Hospitalized Postcraniotomy Brain Tumor Patients.

    abstract:BACKGROUND:Brain tumors account for the majority of central nervous system tumors, and most are removed by craniotomies. Many postcraniotomy patients experience moderate or severe pain after surgery, but patient perspectives on their experiences with pain management in the hospital have not been well described. OBJECT...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000851

    authors: Foust Winton RE,Draucker CB,Von Ah D

    更新日期:2020-07-09 00:00:00

  • The Meaning and Experience of Patients Undergoing Rectal High-Dose-Rate Brachytherapy.

    abstract:BACKGROUND:High-dose-rate (HDR) brachytherapy is a precise form of radiation therapy that targets cancerous tumors by directly applying the radiation source at the site or directly next to the tumor. Patients often experience but underreport pain and anxiety related to cancer treatments. At present, there is no researc...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000246

    authors: Perez S,Néron S,Benc R,Rosberger Z,Vuong T

    更新日期:2016-01-01 00:00:00

  • A peer education model for teaching breast self-examination to undergraduate college women.

    abstract::The incidence of breast cancer in women continues to rise, and there is no known cause or prevention. Additionally, > 70% of all diagnosed breast cancer has no known risk factor involved. Early detection is mandatory for survival from this disease, but only three imperfect methods are available: mammography, clinical ...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/00002820-199702000-00007

    authors: Maurer F

    更新日期:1997-02-01 00:00:00

  • Symptom, symptom experiences, and symptom distress encountered by women with breast cancer undergoing current treatment modalities.

    abstract::Adjuvant chemotherapy protocols used to treat women with breast cancer have evolved over the last decade and have dramatically altered the symptoms and symptom experiences of these women. The purpose of this study was to identify symptoms, symptom experiences, and resulting symptom distress encountered by women with b...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/00002820-200509000-00008

    authors: Boehmke MM,Dickerson SS

    更新日期:2005-09-01 00:00:00

  • Exploration of home care resources for rural families with cancer.

    abstract::The purpose of this qualitative study was to explore the availability and perceived adequacy of formal resources to assist family caregivers of rural persons with cancer. Ten participants who had provided home care for a family member with cancer throughout their illness and death were interviewed in two focus groups....

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:

    authors: Buehler JA,Lee HJ

    更新日期:1992-08-01 00:00:00

  • A cancer nursing curriculum guide for baccalaureate nursing education.

    abstract::Cancer is a leading cause of morbidity and mortality in the United States, affecting one of four Americans. Many nurses without specialized oncology preparation will provide counsel and care for people at risk for or with cancer. In recognition of the cancer-related educational needs for all nurses in the wide variety...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:

    authors: Sarna L,McCorkle R

    更新日期:1995-12-01 00:00:00

  • Efficacy of normal saline versus heparinized saline solution for locking catheters of totally implantable long-term central vascular access devices in adult cancer patients.

    abstract:BACKGROUND:Heparin solution is routinely used to maintain the patency of infusion devices. Literature supports the alternative use of normal saline solution for flushing and locking intravenous infusion devices especially for pediatric patients. There is uncertainty regarding safety and efficacy of this policy for inte...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0b013e31823312b1

    authors: Bertoglio S,Solari N,Meszaros P,Vassallo F,Bonvento M,Pastorino S,Bruzzi P

    更新日期:2012-07-01 00:00:00

  • Facilitators and Hindrances of Implementing Colorectal Cancer Screening Intervention Among Vietnamese Americans.

    abstract:BACKGROUND:Little is published about the factors that facilitate and hinder the intervention implementation process. OBJECTIVE:The aim of this study was to examine factors that facilitated and hindered the implementation of a culturally appropriate colorectal cancer screening intervention targeting Vietnamese American...

    journal_title:Cancer nursing

    pub_type: 杂志文章

    doi:10.1097/NCC.0000000000000384

    authors: Sin MK,Yip MP,Kimura A,Tu SP

    更新日期:2017-05-01 00:00:00