Abstract:
BACKGROUND:Clinical guidelines informed by patient preferences are more likely to be used and widely advocated, yet research shows that few guidelines reflect patient preferences. OBJECTIVE:Explore how developers generate guidelines informed by patient preferences. PATIENT INVOLVEMENT:Seventeen patients were involved as interview participants. METHODS:Using a basic descriptive approach, we conducted and analyzed semi-structured telephone interviews with 50 participants who were involved in developing guidelines on various topics. The sample included 17 patients, 16 clinicians and 17 managers from a total of 7 countries. RESULTS:Participants used one or more approaches to identify preferences, patient panelists, focus groups, surveys and review of published research, despite acknowledging they identified similar preferences. Participants said they incorporated preferences in all guideline development steps, but provided little detail of specific processes. Few participants said their guidelines explicitly reported how patients were engaged, preferences identified, or how preferences influenced development processes or the guideline. Enablers were patient and clinician training, supportive coordinators and chairs, involving experienced patients, and assistance from qualitative and review experts. Barriers were finding and preparing patients, clinician skepticism about benefits, and token patient involvement. Participants recommended research on how to generate preference-informed guidelines. DISCUSSION:Ideal approaches to identify, incorporate and report patient preferences in guidelines are unclear and unproven. PRACTICAL VALUE:Findings revealed specific ways that developers can enhance their processes (e.g. patient training, supportive coordinators and chairs, involve experts in qualitative researcher and systematic reviews) and key issues that warrant ongoing research (e.g. how best to incorporate and report preferences).
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Kim C,Berta WB,Gagliardi ARdoi
10.1016/j.pec.2020.10.001subject
Has Abstractpub_date
2020-10-07 00:00:00eissn
0738-3991issn
1873-5134pii
S0738-3991(20)30536-Xpub_type
杂志文章abstract::This study aimed to identify factors which predict participation of drug users in HIV-1 antibody testing. The study was part of a randomized controlled trial of three small group AIDS educational programs, in a 21-day in-patient drug detoxification and rehabilitation program. Subjects (n = 497) were clients admitted t...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/0738-3991(94)90070-1
更新日期:1994-12-01 00:00:00
abstract:OBJECTIVE:To describe the characteristics of primary care attendees with depressive symptoms who use mental health websites. METHODS:789 individuals with depressive symptoms recruited and followed up annually for nine years. Self-reported written surveys included mental health, professional and self-help use, e-mental...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.07.008
更新日期:2018-01-01 00:00:00
abstract::Patient autonomy is a guiding principle in medical decision-making in America. This is challenging when patients become mentally incapacitated and cannot express their preferences. Advance care planning (ACP) addresses this challenge. ACP is a deliberative and communicative process that helps people formulate and comm...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/0738-3991(95)00739-m
更新日期:1995-09-01 00:00:00
abstract::The goal of this paper is to examine emerging issues in consumer-provider communication and patient adherence to cancer prevention, screening, diagnosis, treatment, and coping with survivorship. Many factors that have been shown to affect adherence can be supported or hindered by provider-patient communication, includ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(03)00075-2
更新日期:2003-05-01 00:00:00
abstract:OBJECTIVE:In 2013, the USPSTF issued a Grade B recommendation that long-term current and former smokers receive lung cancer screening. Shared decision-making is important for individuals considering screening, and patient-provider discussions an essential component of the process. We examined prevalence and predictors ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.05.014
更新日期:2016-11-01 00:00:00
abstract::Minority peoples like the Romanies have divergent cultures. Typical cultural aspects for medical personnel to consider would include greetings and other communication, family and social support, dressing and habits of cleanliness, marriage and sexuality, honor, and other issues of importance to any human being. Some m...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(97)00993-2
更新日期:1997-06-01 00:00:00
abstract:OBJECTIVE:To support families with a chronically ill child, a modular curriculum and new healthcare structures (trainer education, quality management) for a group self-management program (ModuS) were developed. ModuS focuses on common psychosocial aspects of chronic conditions and comprises generic and disease-specific...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2017.01.001
更新日期:2017-06-01 00:00:00
abstract:OBJECTIVE:To determine the relative contributions of health literacy (HL) and illness and medication beliefs to medication adherence among older COPD patients and determine the pathways through which they operate. METHODS:The study was conducted using data from a prospective cohort of COPD patients in New York City an...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.024
更新日期:2020-11-25 00:00:00
abstract:OBJECTIVES:To evaluate the Flinders Program in improving self-management in common chronic conditions. To examine properties of the Partners in Health scale (PIH). METHODS:Participants were randomized to usual care or Flinders Program plus usual care. Self-management competency, quality of life, and other outcomes wer...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2015.06.003
更新日期:2015-11-01 00:00:00
abstract::Females, especially older women, historically have been excluded from coronary heart disease (CHD) studies. The PrimeTime program was a randomized clinical trial designed to study the effects of a comprehensive lifestyle management program (very low-fat vegetarian diet, smoking cessation, stress-management training, m...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(98)00074-3
更新日期:1998-11-01 00:00:00
abstract:OBJECTIVE:To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD). METHODS:91 first year psychology students and 91 RA pat...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2011.06.001
更新日期:2012-03-01 00:00:00
abstract:OBJECTIVE:There is some evidence for biomarker feedback when combined with cessation counseling for reducing smoking in pregnancy. This randomized controlled pilot study evaluated feasibility and potential efficacy of a social-cognitive theory (SCT)-based biomarker feedback intervention among pregnant Alaska Native (AN...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2018.10.009
更新日期:2019-03-01 00:00:00
abstract::Patient-clinician communication that promotes patient engagement enhances health care quality. Yet, disseminating effective communication interventions to practicing clinicians remains challenging. Current methods do not have large and sustainable effects. In this paper, we argue that both top-down approaches (mandate...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.05.015
更新日期:2017-10-01 00:00:00
abstract:OBJECTIVE:We don´t know how positive emotions are being expressed by patients and health care providers in consultations. The aim of this study is to identify positive emotions expressed by older people and nurse assistants to discuss the function of these in the visits. METHOD:This paper presents secondary analysis o...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.05.020
更新日期:2017-11-01 00:00:00
abstract:OBJECTIVE:Few patients participate in cancer support groups despite their benefits. This study investigated the importance of Theory of Planned Behaviour variables in predicting group participation, relative to disease impact, existing support, coping and demographic variables. METHODS:Longitudinal study of patients w...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.05.003
更新日期:2014-08-01 00:00:00
abstract:OBJECTIVE:With increased recognition of the importance of sound communication skills and communication skills education, reliable assessment tools are essential. This study reports on the psychometric properties of an assessment tool based on the Kalamazoo Consensus Statement Essential Elements Communication Checklist....
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.013
更新日期:2014-09-01 00:00:00
abstract:OBJECTIVE:The smoking status of physicians can impact interactions with patients about smoking. The 'Smoking: The Opinions of Physicians' (STOP) survey examined whether an association existed between physician smoking status and beliefs about smoking and cessation and a physician's clinical interactions with patients r...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.07.042
更新日期:2009-01-01 00:00:00
abstract:OBJECTIVE:This systematic review aims to examine the roles of family members (FMs) in treatment decision-making for adult patients without cognitive or psychiatric disorders affecting their ability to participate in decision-making. METHODOLOGY:A comprehensive, systematic search of the Cochrane Library, PsycINFO, PubM...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2017.08.003
更新日期:2017-12-01 00:00:00
abstract:OBJECTIVE:This study applied an extended theory of planned behavior (E-TPB) model to investigate factors that contribute to the intention to use psychological cybercounseling in a Chinese sample. The moderating effects of intergenerational differences on relationships of E-TPB variables were also tested. METHODS:A tot...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.02.035
更新日期:2020-08-01 00:00:00
abstract:OBJECTIVE:To identify and describe the extent to which theory or theoretical frameworks informed the development and evaluation of decision support technologies (DSTs). METHODS:The analysis was based on the decision technologies used in studies included in the Cochrane systematic review of patient decision aids for pe...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2007.12.004
更新日期:2008-04-01 00:00:00
abstract:OBJECTIVE:To critically examine properties of clinician-patient communication measures and offer suggestions for selecting measures appropriate to the purposes of research or clinical practice assessment. METHODS:We analyzed different types of communication measures by focusing on their ontological properties. We desc...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.03.021
更新日期:2017-08-01 00:00:00
abstract:OBJECTIVE:To determine the association between the format of physicians' opening questions that solicit patients' presenting concerns and patients' post-visit evaluations of (i.e., satisfaction with) the affective-relational dimension of physicians' communication. METHODS:Videotape and questionnaire data were collecte...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.11.009
更新日期:2006-03-01 00:00:00
abstract:OBJECTIVE:To examine knowledge displays (KDs), a practice by which Therapeutic Community (TC) professionals exhibit previous knowledge about their clients' circumstances and experiences. METHODS:Conversation analysis is used to examine 12 staff-led meetings recorded in Italy (8 in a drug addiction TC; 4 in a mental he...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.10.006
更新日期:2016-06-01 00:00:00
abstract:OBJECTIVE:Leading health agencies recommend physicians to provide information regarding genetic testing for autism spectrum disorders (ASD) to parents of affected children. How to effectively provide this information, however, is unclear for physicians. This qualitative study examined the information needs regarding AS...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.12.023
更新日期:2016-06-01 00:00:00
abstract:OBJECTIVE:Patient education in children with rare chronic diseases like children's interstitial lung disease (chILD) remains a challenge. AIMS:To develop and evaluate a component-based educational program for individual counselling and to improve patients' and caregivers' self-efficacy and treatment satisfaction. Furt...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2019.01.016
更新日期:2019-06-01 00:00:00
abstract::This study compared the impact of three educational messages about hypertension used at a worksite blood pressure screening program. The messages sought to change beliefs and health behaviors related to hypertension. Each participant who had either been previously diagnosed as hypertensive or had an elevated blood pre...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/0738-3991(89)90007-4
更新日期:1989-08-01 00:00:00
abstract:OBJECTIVE:To examine the changes in performance on heart failure knowledge assessments administered before and after discharge education. METHODS:We conducted a randomized controlled trial comparing the effects of a 1-h, one-on-one teaching session with a nurse educator to the standard discharge process in patients wi...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2011.05.019
更新日期:2012-02-01 00:00:00
abstract::This study compared an activation intervention to passive education in a randomized attention-control trial of 232 patients with type 2 diabetes. The activation intervention was based on Expanding Patient Involvement in Care (EPIC) trials, and was compared to time-matched passive education viewing of ADA video-tapes. ...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/j.pec.2003.11.008
更新日期:2005-01-01 00:00:00
abstract::We must humbly acknowledge that the healthcare system is less and less about empathy despite interacting with patients is a prerequisite for care: shared decision making is the cornerstone for compliance to treatment and therefore its -effectiveness. Empathy is not about tricks, it is about "client-centred therapy" a ...
journal_title:Patient education and counseling
pub_type: 评论,信件
doi:10.1016/j.pec.2020.03.024
更新日期:2020-09-01 00:00:00
abstract:OBJECTIVE:Within the framework of a randomized, active treatment controlled trial, we used a mediation analysis to understand the mechanisms by which an intervention that uses confrontation with spirometry for smoking cessation achieves its effects. METHODS:Participants were 228 smokers from the general population wit...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2008.11.017
更新日期:2009-07-01 00:00:00