Abstract:
:ABSTRACT Families raising a young child with multiple disabilities are charged with significant responsibilities such as learning about their child's condition and navigating mainstream and alternative services. Aim: Describe service choices, costs, out of pocket expenses, and the impact on families. Methods: Survey design using a custom questionnaire was used to collect extensive retrospective and current data. Purposive sampling (N = 29) occurred from one early intervention facility specialized in servicing children with cerebral palsy (CP) and, or multiple disabilities in Australia. Descriptive statistics were used for analysis of data. Results: Twenty-three (79%) families reported caring for a child with CP. Twenty-three families reported using at least one complementary/alternative intervention. Out-of-pocket amounts were reported including: chiropractic services (10 families); naturopathy (9 families); point percussion therapy (7 families), and Chinese medicine (6 families). Expenses resulted in families reporting forgoing clothing items, family entertainment, recreation/hobbies for parents (55%); family holidays (59%); time for parents alone (66%); and health services for parents (38%). Conclusions: Families of young children with multiple disabilities select a wide range of services for their child, with consequential out of pocket expenses. Early intervention professionals can be an important resource for families as they evaluate their choices and select interventions for their child.
journal_name
Phys Occup Ther Pediatrjournal_title
Physical & occupational therapy in pediatricsauthors
Bourke-Taylor H,Cotter C,Stephan Rdoi
10.3109/01942638.2014.975312subject
Has Abstractpub_date
2014-11-03 00:00:00eissn
0194-2638issn
1541-3144pub_type
杂志文章abstract:AIMS:To evaluate the effects of hippotherapy on physical capacities of children with cerebral palsy. METHODS:Thirteen children (4-12 years old) with cerebral palsy classified in Gross Motor Function Classification System Level I or II were included in this prospective quasi-experimental ABA design study. Participants ...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942638.2015.1129386
更新日期:2017-02-01 00:00:00
abstract::This study aimed to identify barriers and enablers experienced by occupational therapists to delivering evidence-based upper limb intervention for children with unilateral cerebral palsy. Semistructured interviews informed by the Theoretical Domains Framework were conducted with nine occupational therapists from three...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942638.2013.861890
更新日期:2014-11-01 00:00:00
abstract:AIMS:To develop a hand function test for children with bilateral cerebral palsy (CP) measuring bimanual performance, including quantification of possible asymmetry of hand use. METHOD:The Both Hands Assessment (BoHA) content was developed through adaptation of the Assisting Hand Assessment (version 5.0). Data from 171...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2017.1318431
更新日期:2018-05-01 00:00:00
abstract:AIMS:To pilot the practicality of administering the Prechtl General Movements Assessment of infants (GMA) in the Neonatal Intensive Care Unit (NICU) setting and at home to infants at risk for developing cerebral palsy (CP). Additional aims included assessing inter-rater reliability and comparing GMA predictions to AIMS...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2017.1395380
更新日期:2018-08-01 00:00:00
abstract::Federal law mandates that early intervention (EI) programs provide care using a family-centered model. The purpose of this preliminary study was to investigate (a) the relationship that develops between physical therapists and parents during EI and (b) a possible link between this relationship and EI outcomes. Thirty-...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942631003757602
更新日期:2010-08-01 00:00:00
abstract:PURPOSE:Pain associated with hypermobility of wrist and hand joints can contribute to decreased handwriting output. This study examined the effectiveness of a neoprene wrist/hand splint in reducing pain and increasing handwriting speed and endurance for students with joint hypermobility syndrome. METHODS:Multiple base...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章,随机对照试验
doi:10.3109/01942638.2011.622035
更新日期:2012-08-01 00:00:00
abstract::Aims: To examine and compare sensory processing in children diagnosed with Fetal Alcohol Spectrum Disorder (FASD) to children designated as "at risk" for neurodevelopmental disorders and FASD, associated with Prenatal Alcohol Exposure (PAE). Method: A retrospective chart review methodology was applied to examine senso...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2019.1573775
更新日期:2019-01-01 00:00:00
abstract::Aim: The purpose of this study was to evaluate the effects of video modeling - in the home setting - on food selectivity of three children with an autism spectrum disorder. Methods: Using a multiple baseline experimental design, the researcher implemented an in home video modeling intervention during dinner for all th...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2019.1610139
更新日期:2019-01-01 00:00:00
abstract:AIMS:The purposes were to examine construct validity of the Motor Planning Maze Assessment (Maze) and three items from the Functional Gait Assessment (FGA) that were modified for children (pediatric modified FGA, pmFGA), by comparing performance of children with DCD and age matched peers with typical development (TD); ...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2018.1477226
更新日期:2018-01-01 00:00:00
abstract:AIM:To create longitudinal trajectories and reference percentiles for frequency of participation in family and recreational activities for children with cerebral palsy (CP) by Gross Motor Function Classification System (GMFCS) level. METHODS:708 children with CP 18-months to 12-years of age and their families particip...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2020.1758984
更新日期:2021-01-01 00:00:00
abstract::Parents and school administrators commonly ask how long a child is likely to need school-based occupational therapy services. In an effort to provide a statistically supported answer, a record review of 464 cases of students discharged from school-based occupational therapy services in the past 7 years was performed. ...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:
更新日期:2003-01-01 00:00:00
abstract:AIMS:Rhizomelic chondrodysplasia punctata (RCDP) is an autosomal recessive inherited disorder. Individuals with RCDP have a wide range of neurodevelopmental outcomes, but there are limited descriptions of their early motor development before 5 months of age. This study aimed to describe in detail the age-specific spont...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2020.1841870
更新日期:2020-11-08 00:00:00
abstract:PURPOSE:To systematically examine the efficacy of lower extremity cycling interventions for youth with intellectual disability (ID). METHODS:Seven databases were searched from March 2000 to October 2019 for English-language articles on cycling interventions for youth with ID. The American Academy of Cerebral Palsy and...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2020.1862384
更新日期:2020-12-28 00:00:00
abstract:AIMS:This study provides information on how two standardized measures based on different theoretical frameworks can be used in collecting information on motor development and performance in 4- and 5-year-olds with autism spectrum disorder (ASD). The purpose of the study was to determine the concurrent validity of the M...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2018.1432006
更新日期:2019-01-01 00:00:00
abstract::This study examined changes in mobility methods of children with cerebral palsy (CP) over time and across environmental settings. Sixty-two children with CP, ages 6-14 years and classified as levels II-IV on the Gross Motor Function Classification System, were randomly selected from a larger data base and followed for...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1300/j006v24n01_05
更新日期:2004-01-01 00:00:00
abstract::Conductive education (CE) is an educational approach for children with cerebral palsy. This paper describes the history of conductive education, and the characteristics of current programs that exist in many countries. The underlying principles and the unique techniques used in CE programs are described. These include...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章,评审
doi:
更新日期:2007-01-01 00:00:00
abstract::The therapist is a neglected and poorly understood variable in pediatric rehabilitation. Much more attention has been paid to the role of intervention on client change than the role of therapist-related variables. This article synthesizes what is known in the adult and child mental health literature about the role of ...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章,评审
doi:10.1080/01942638.2016.1185508
更新日期:2017-05-01 00:00:00
abstract::Aims: To investigate inter-rater reliability, concurrent validity, and feasibility of the German Pediatric Evaluation of Disability Inventory (PEDI-G) using the mode of observation in a Swiss inpatient rehabilitation setting with the Functional Independence Measure for Children (WeeFIM®) as criterion.Methods: Cross-se...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2019.1695698
更新日期:2020-01-01 00:00:00
abstract:AIM:To examine the extent to which personal factors (age, socioeconomic grouping, and preterm birth) and adaptive behaviour explain the participation patterns of young children. METHODS:65 Children 2-5 years old with and without a history of preterm birth and no physical or intellectual disability were selected by con...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2017.1406428
更新日期:2018-11-01 00:00:00
abstract::The major research data and findings related to aging among persons with developmental disabilities are discussed. Differences between the aging processes noted in the general population and individuals who have developmental disabilities are highlighted. Topics addressed include prevalence of developmental disabiliti...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章,评审
doi:10.1300/j006v21n04_03
更新日期:2001-01-01 00:00:00
abstract::Aim: To investigate the validity and reliability of the Portuguese version of the Test of Infant Motor Performance (TIMP) for Brazilian infants.Methods: The study was conducted with 20 health professionals and 655 Brazilian infants (between 34 weeks of Post-Menstrual Age and 17 weeks Corrected Age).Results: (1) Conten...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2020.1711843
更新日期:2020-01-01 00:00:00
abstract::ABSTRACT Children with cerebral palsy (CP) are likely to experience decreased participation in activities and less competence in activities of daily living. Studies of children with spastic CP have shown that strengthening programs produce positive results in strength, gait, and functional outcomes (measured by the Gr...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942638.2012.723116
更新日期:2013-05-01 00:00:00
abstract::Medical and technological advances in neonatology have prompted the initiation and expansion of developmentally supportive services for newborns and have incorporated rehabilitation professionals into the neonatal intensive care unit (NICU) multidisciplinary team. Availability of therapists specialized in the care of ...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942638.2012.729556
更新日期:2013-02-01 00:00:00
abstract::Improving parent-child interaction and play are important outcomes for children with autism spectrum disorder (ASD). Play is the primary occupation of children. In this pilot study conducted in Taiwan, we investigated the effects of the developmental, individual difference, and relationship-based (DIR)/Floortime home-...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942638.2014.918074
更新日期:2014-11-01 00:00:00
abstract::The use of current adaptive behavior measures in practice and research is limited by their length and need for a professional interviewer. There is a need for alternative measures that more efficiently assess adaptive behavior in children and youth with autism spectrum disorders (ASDs). The Pediatric Evaluation of Dis...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.3109/01942638.2011.606260
更新日期:2012-02-01 00:00:00
abstract:AIMS:There is limited research on the type and quantity of actions (activities) occupational therapy practitioners utilize when providing sensory integration treatment to children with Autism Spectrum Disorders (ASD). METHODS:A coding scheme identifying specific aspects of sensory integration treatment was developed a...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2020.1847235
更新日期:2020-11-18 00:00:00
abstract::Purpose: To identify and critically assess the evidence on the association between psychosocial variables and neck pain (NP) in adolescents.Methods: Searches were conducted using seven electronic databases. Two reviewers screened studies for inclusion and assessed the quality of included studies. A meta-analysis was p...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2019.1647328
更新日期:2020-01-01 00:00:00
abstract:AIMS:Cerebral palsy (CP) impacts motor functions such as balance, limits of stability and walking, and may also affect other functions such as attention and rhythm production. Motor and non-motor deficits lead to difficulties in daily life activities. The main objective of this study was to evaluate the effects of a da...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:10.1080/01942638.2020.1720053
更新日期:2020-01-01 00:00:00
abstract:AIM:To examine the evidence of the effectiveness of different feeding interventions for children with cerebral palsy. METHODS:A search of 12 electronic databases identified all relevant studies. For each study, the quality of the methods was assessed according to the study design. A total of 33 articles were retrieved...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章,评审
doi:10.3109/01942638.2010.523397
更新日期:2011-02-01 00:00:00
abstract::Youth En Route (YER) is a transition program for youth and young adults with multiple disabilities. It offers a multifaceted approach that includes self-discovery, skill development, and community experience. Underlying the service delivery model is a philosophy of self-determination. This program evaluation measured ...
journal_title:Physical & occupational therapy in pediatrics
pub_type: 杂志文章
doi:
更新日期:2006-01-01 00:00:00