Review of 103 Swedish Healthcare Quality Registries.

Abstract:

BACKGROUND AND OBJECTIVES:In the past two decades, an increasing number of nationwide, Swedish Healthcare Quality Registries (QRs) focusing on specific disorders have been initiated, mostly by physicians. Here, we describe the purpose, organization, variables, coverage and completeness of 103 Swedish QRs. METHODS:From March to September 2013, we examined the 2012 applications of 103 QRs to the Swedish Association of Local Authorities and Regions (SALAR) and also studied the annual reports from the same QRs. After initial data abstraction, the coordinator of each QR was contacted at least twice between June and October 2013 and asked to confirm the accuracy of the data retrieved from the applications and reports. RESULTS:About 60% of the QRs covered ≥80% of their target population (completeness). Data recorded in Swedish QRs include aspects of disease management (diagnosis, clinical characteristics, treatment and lead times). In addition, some QRs retrieve data on self-reported quality of life (EQ5D, SF-36 and disease-specific measures), lifestyle (smoking) and general health status (World Health Organization performance status, body mass index and blood pressure). CONCLUSION:Detailed clinical data available in Swedish QRs complement information from government-administered registries and provide an important source not only for assessment and development of quality of care but also for research.

journal_name

J Intern Med

authors

Emilsson L,Lindahl B,Köster M,Lambe M,Ludvigsson JF

doi

10.1111/joim.12303

subject

Has Abstract

pub_date

2015-01-01 00:00:00

pages

94-136

issue

1

eissn

0954-6820

issn

1365-2796

journal_volume

277

pub_type

杂志文章,评审
  • Brain regulation of food intake and appetite: molecules and networks.

    abstract::In the clinic, obesity and anorexia constitute prevalent problems whose manifestations are encountered in virtually every field of medicine. However, as the command centre for regulating food intake and energy metabolism is located in the brain, the basic neuroscientist sees in the same disorders malfunctions of a mod...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2796.2005.01553.x

    authors: Broberger C

    更新日期:2005-10-01 00:00:00

  • 'Vitamin D and cognition in older adults': updated international recommendations.

    abstract:BACKGROUND:Hypovitaminosis D, a condition that is highly prevalent in older adults aged 65 years and above, is associated with brain changes and dementia. Given the rapidly accumulating and complex contribution of the literature in the field of vitamin D and cognition, clear guidance is needed for researchers and clini...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/joim.12279

    authors: Annweiler C,Dursun E,Féron F,Gezen-Ak D,Kalueff AV,Littlejohns T,Llewellyn DJ,Millet P,Scott T,Tucker KL,Yilmazer S,Beauchet O

    更新日期:2015-01-01 00:00:00

  • Twenty-four hour ambulatory blood pressure in the population.

    abstract:OBJECTIVES:To establish a population-based 24-h ambulatory blood pressure (ABP) reference material with day/night mean BP calculated by standardized and true bedtimes. DESIGN:A cross-sectional study of 200 randomly selected subjects (20 men and 20 women in each 10-year age interval 20-70 years) in Linköping, Sweden. ...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1046/j.1365-2796.1996.322856000.x

    authors: Nyström F,Malmström O,Karlberg BE,Ohman KP

    更新日期:1996-11-01 00:00:00

  • Effects of isometric exercise and heart rate on left ventricular filling pattern assessed by pulsed Doppler echocardiography.

    abstract::Left ventricular filling pattern was assessed by pulsed Doppler echocardiography at rest and during handgrip exercise in 33 healthy middle-aged subjects. The peak mitral flow-velocities during the early rapid filling phase (E) and during late (atrial) filling (A) were measured and the ratio of these peak flow-velociti...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1989.tb01388.x

    authors: Airaksinen KE,Ikäheimo MJ,Huikuri HV,Koistinen MJ,Linnaluoto M,Takkunen JT

    更新日期:1989-10-01 00:00:00

  • Chronic mesenteric ischaemia: diagnostic challenges and treatment options.

    abstract:OBJECTIVES:A description of the clinical presentation, diagnostic procedure and mode of therapy in three patients suffering from chronic mesenteric ischaemia. DESIGN AND INTERVENTIONS:In all cases, the diagnosis was made on the basis of abdominal complaints in combination with angiographic findings. The primary treatm...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1995.tb01178.x

    authors: Hoogenberg K,Van Essen LH,Van den Dungen JJ,Limburg AJ,Boeve WJ,Kleibeuker JH

    更新日期:1995-03-01 00:00:00

  • Acute papillary muscle rupture in a patient with clostridial sepsis.

    abstract::We describe the clinical course of a 58-year-old man who died from acute papillary muscle rupture as a complication of clostridial sepsis. There was no evidence for myocardial infarction, infective endocarditis, prior chest trauma or other known causes of papillary muscle rupture. Histological specimens taken at autop...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1046/j.1365-2796.1997.100115000.x

    authors: Schulz R,Andreas S,Weise B,Werner GS

    更新日期:1997-03-01 00:00:00

  • Primary and secondary prevention in cardiovascular disease: an old-fashioned concept?

    abstract:OBJECTIVE:Is the concept of primary and secondary cardiovascular prevention an old-fashioned concept that needs to be re-defined? DESIGN:Discussion paper. RESULTS:Cardiovascular prevention means reduction of absolute risk for cardiovascular disease (CVD), irrespective of clinical stage. CONCLUSION:For the calculatio...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1046/j.1365-2796.2002.00962.x

    authors: van Venrooij FV,Stolk RP,Banga JD,Erkelens DW,Grobbee DE

    更新日期:2002-04-01 00:00:00

  • Autoimmune progesterone dermatitis.

    abstract::Hypersensitivity to progesterone is rare, but the occurrence of skin rash in the luteal phase of the menstrual cycle or during pregnancy should alert one to this possibility. The diagnosis can be readily confirmed by intradermal testing and is eminently treatable by ovulation suppression. ...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1990.tb00133.x

    authors: Teelucksingh S,Edwards CR

    更新日期:1990-02-01 00:00:00

  • Dental infections in association with cerebral infarction in young and middle-aged men.

    abstract::The association between dental infections and cerebral infarction was investigated in a case-control study involving 40 patients with ischaemic cerebral infarction under the age of 50, and 40 randomly selected community controls matched for sex and age. Poor oral health, as assessed by two indices measuring the severi...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1989.tb00060.x

    authors: Syrjänen J,Peltola J,Valtonen V,Iivanainen M,Kaste M,Huttunen JK

    更新日期:1989-03-01 00:00:00

  • Angiotensin-converting enzyme gene polymorphism in relation to HLA-DR in sarcoidosis.

    abstract:OBJECTIVES:To investigate if an insertion/deletion (I/D) polymorphism in the angiotensin-converting enzyme (ACE) gene associates with HLA-DR alleles previously found to be of prognostic interest in Scandinavian sarcoidosis patients. This may contribute to characteristics associated with these HLA-DR alleles, such as a ...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1046/j.1365-2796.2002.00946.x

    authors: Planck A,Eklund A,Yamaguchi E,Grunewald J

    更新日期:2002-03-01 00:00:00

  • Constitutive RET tyrosine kinase activation in hereditary medullary thyroid cancer: clinical opportunities.

    abstract::The ground-breaking discovery of genotype-phenotype relationships in hereditary medullary thyroid cancer has greatly facilitated early prophylactic thyroidectomy. Its timing depends not solely on a positive gene test but, more importantly, on the type of the REarranged during Transfection (RET) mutation and its underl...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2796.2009.02113.x

    authors: Machens A,Lorenz K,Dralle H

    更新日期:2009-07-01 00:00:00

  • The effect of metformin on blood pressure, plasma cholesterol and triglycerides in type 2 diabetes mellitus: a systematic review.

    abstract:BACKGROUND:The UKPDS 34 showed that intensive treatment with metformin significantly reduces macrovascular end-points and mortality in individuals with newly diagnosed type 2 diabetes compared with intensive treatment with insulin or sulphonylurea derivatives, despite similar glycaemic control. How this should be expla...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,meta分析,评审

    doi:10.1111/j.1365-2796.2004.01328.x

    authors: Wulffelé MG,Kooy A,de Zeeuw D,Stehouwer CD,Gansevoort RT

    更新日期:2004-07-01 00:00:00

  • Pro-inflammatory genetic profiles in subjects with peripheral arterial occlusive disease and critical limb ischemia.

    abstract:OBJECTIVES:Single nucleotide polymorphisms in genes encoding inflammatory molecules may determine genetic profiles associated with increased risk of development and progression of cardiovascular diseases. In this study, we evaluated distribution and reciprocal interaction of a set of functionally important polymorphism...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.2007.01791.x

    authors: Flex A,Gaetani E,Angelini F,Sabusco A,Chillà C,Straface G,Biscetti F,Pola P,Castellot JJ Jr,Pola R

    更新日期:2007-07-01 00:00:00

  • Rapid and correct diagnosis of myocardial infarction: standardized case history and clinical examination provide important information for correct referral to monitored beds.

    abstract::The value of thorough examination of the case history as a diagnostic tool on hospitalization of patients with suspected myocardial infarction was investigated in three independent prospective studies. Use of a limited number of pain-related elements (= 'criteria'), that had already been obtained in the emergency room...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1991.tb00322.x

    authors: Jonsbu J,Rollag A,Aase O,Lippestad CT,Arnesen KE,Erikssen J,Koss A

    更新日期:1991-02-01 00:00:00

  • Physical activity and risk of cognitive decline: a meta-analysis of prospective studies.

    abstract:OBJECTIVE:The relationship between physical activity and cognitive function is intriguing but controversial. We performed a systematic meta-analysis of all the available prospective studies that investigated the association between physical activity and risk of cognitive decline in nondemented subjects. METHODS:We con...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,meta分析,评审

    doi:10.1111/j.1365-2796.2010.02281.x

    authors: Sofi F,Valecchi D,Bacci D,Abbate R,Gensini GF,Casini A,Macchi C

    更新日期:2011-01-01 00:00:00

  • Left atrioventricular plane displacement determined by echocardiography: a clinically useful, independent predictor of mortality in patients with stable coronary artery disease.

    abstract:BACKGROUND:Echocardiographically determined left atrioventricular plane displacement (AVPD) is strongly related to prognosis in patients with chronic heart failure and in postmyocardial infarction patients. We aimed at exploring whether AVPD, unlike ejection fraction, is related to mortality in patients with stable cor...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1046/j.1365-2796.2003.01218.x

    authors: Rydberg E,Erhardt L,Brand B,Willenheimer R

    更新日期:2003-11-01 00:00:00

  • Hallucinogenic mushroom use by Danish students: pattern of consumption.

    abstract::A survey among Danish students revealed that 33 (7.2%) of the respondents had experience with hallucinogenic mushrooms (HM). Afterwards these students answered an extended questionnaire about habits and pattern of consumption. It seems that mushroom use is experimental and may be due to risk-seeking behaviour but is m...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1993.tb00661.x

    authors: Lassen JF,Lassen NF,Skov J

    更新日期:1993-02-01 00:00:00

  • Reversal of apparent AIDS dementia complex following treatment with vitamin B12.

    abstract::The human immunodeficiency virus (HIV)-associated dementia complex is characterized by difficulties in concentration and memory followed by apathy, social withdrawal and motor dysfunction. Decreased serum vitamin B12 levels occur in up to 20% of patients with acquired immune deficiency syndrome (AIDS) and may adversel...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1993.tb01005.x

    authors: Herzlich BC,Schiano TD

    更新日期:1993-06-01 00:00:00

  • Strategies for the prevention of senile (type II) osteoporosis: an update.

    abstract::Hip fractures in the elderly represent a global issue, associated with significant morbidity and mortality. Considering the magnitude of the problem, any substantial reduction in the hip fracture burden depends on prevention. In view of the complex pathogenesis of senile (type II) osteoporosis, preventive strategies s...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1046/j.1365-2796.1996.427779000.x

    authors: Boonen S,Dequeker J

    更新日期:1996-05-01 00:00:00

  • What will whole genome searches for susceptibility genes for common complex disease offer to clinical practice?

    abstract::In the developed world the majority of disease results from common, but complex disorders such as diabetes, obesity and cancer. Genetic variation explains a large proportion of an individual's risk of developing these diseases; however, success in identifying the particular gene variants involved has been limited. Rec...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2796.2007.01895.x

    authors: Lango H,Weedon MN

    更新日期:2008-01-01 00:00:00

  • Cold exposure increases cyclic guanosine monophosphate in healthy women but not in women with Raynaud's phenomenon.

    abstract:OBJECTIVE:To investigate influence of whole-body cooling on cyclic GMP (cGMP) in women with Raynaud's phenomenon and in healthy women. DESIGN:The study was performed as an open, parallel-group comparison between women with Raynaud's phenomenon and healthy women during the winter month of February. SETTING:The municip...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1995.tb00875.x

    authors: Leppert J,Ringqvist A,Ahlner J,Myrdal U,Sørensen S,Ringqvist I

    更新日期:1995-05-01 00:00:00

  • Treatment of benign nodular goitre with mildly suppressive doses of L-thyroxine: effects on bone mineral density and on nodule size.

    abstract:OBJECTIVES:To evaluate (i) the demineralizing effect of L-thyroxine (LT4) therapy at doses mildly inhibiting serum thyroid stimulating hormone (TSH) in patients with benign nodular goitre; (ii) the efficacy of treatment on nodule size. DESIGN:Cross-sectional study comparing euthyroid women with nodular goitre treated ...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1046/j.1365-2796.2002.00977.x

    authors: Baldini M,Gallazzi M,Orsatti A,Fossati S,Leonardi P,Cantalamessa L

    更新日期:2002-05-01 00:00:00

  • Plasma zinc concentrations during the first 2 years after diagnosis of insulin-dependent diabetes mellitus: a prospective study.

    abstract::Studies of zinc status in insulin-dependent diabetes mellitus (IDDM) have shown contradictory results. Zinc is essential for many enzymes involved in the human metabolism and may play a role in the biosynthesis and storage of insulin in the B-cell. We therefore prospectively followed 26 patients (14 males and 12 femal...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.1989.tb01353.x

    authors: Melchior T,Simonsen KW,Johannessen AC,Binder C

    更新日期:1989-07-01 00:00:00

  • The 21-year follow-up of the Cardiovascular Risk in Young Finns Study: risk factor levels, secular trends and east-west difference.

    abstract:OBJECTIVES:The Cardiovascular Risk in Young Finns Study is an on-going multicentre study of atherosclerosis precursors in Finnish children and young adults. We have collected risk factor data in the 21-year follow-up performed in 2001. The aims of this analysis were to examine the levels, secular trends and east-west d...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,多中心研究

    doi:10.1111/j.1365-2796.2004.01308.x

    authors: Juonala M,Viikari JS,Hutri-Kähönen N,Pietikäinen M,Jokinen E,Taittonen L,Marniemi J,Rönnemaa T,Raitakari OT

    更新日期:2004-04-01 00:00:00

  • Utility of genome-wide association study findings: prostate cancer as a translational research paradigm.

    abstract::Genome-wide association studies have identified thousands of consistently replicated associations between genetic markers and complex disease risk, including cancers. Alone, these markers have limited utility in risk prediction; however, when several of these markers are used in combination, the predictive performance...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章

    doi:10.1111/j.1365-2796.2012.02522.x

    authors: Turner AR,Kader AK,Xu J

    更新日期:2012-04-01 00:00:00

  • Autoimmunity in atherosclerosis: a protective response losing control?

    abstract::Atherosclerosis is a chronic inflammatory disease characterized by accumulation of oxidized lipoproteins, increased cell death and hypertrophic degeneration of the arterial intima. The disease process is associated with local formation of modified self antigens that are targeted by both innate and adaptive immune resp...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2796.2008.01945.x

    authors: Nilsson J,Hansson GK

    更新日期:2008-05-01 00:00:00

  • Does fish oil protect renal function in cyclosporin-treated psoriasis patients?

    abstract::In order to study the influence of fish oil on CyA-induced renal dysfunction, 13 patients with psoriasis (CyA group) received cyclosporin A (CyA) alone, and seven patients (CyA/EPA + DHA group) received a combination of cyclosporin A and fish oil (6g eicosapentaenoic acid, C20:5 omega-3, and docosahexaenoic acid, C22:...

    journal_title:Journal of internal medicine

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1111/j.1365-2796.1989.tb01421.x

    authors: Stoof TJ,Korstanje MJ,Bilo HJ,Starink TM,Hulsmans RF,Donker AJ

    更新日期:1989-12-01 00:00:00

  • Ebola virus disease: societal challenges and new treatments.

    abstract::Ebola virus disease (EVD) is a zoonotic disease that causes severe haemorrhagic fever, with high fatality rates of up to 90% in humans. Today, there is no effective treatment available. Person-to-person transmission occurs through exposure to blood or body fluids, which can threaten other household members and first-l...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/joim.12386

    authors: Mirazimi A

    更新日期:2015-09-01 00:00:00

  • Coeliac disease and noncoeliac wheat or gluten sensitivity.

    abstract::Coeliac disease (CD) and noncoeliac wheat or gluten sensitivity (NCWS/NCGS) are common gluten-related disorders. Both conditions can present with gastrointestinal and extraintestinal manifestations, which can be a challenge for physicians to discern between. Whilst coeliac serology and histological assessment are requ...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/joim.13120

    authors: Rej A,Aziz I,Sanders DS

    更新日期:2020-11-01 00:00:00

  • Climate change: present and future risks to health, and necessary responses.

    abstract::Recent observed changes in Earth's climate, to which humans have contributed substantially, are affecting various health outcomes. These include altered distributions of some infectious disease vectors (ticks at high latitudes, malaria mosquitoes at high altitudes), and an uptrend in extreme weather events and associa...

    journal_title:Journal of internal medicine

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2796.2011.02415.x

    authors: McMichael AJ,Lindgren E

    更新日期:2011-11-01 00:00:00