Multiculturalism, chronic illness, and disability.

Abstract:

:To gain at least an initial understanding of the underlying beliefs and attitudes in a cross-cultural situation, we believe that the three key points discussed in this paper should prove a significant point of departure: 1. Traditional beliefs about the cause of chronic illness or disability will play a significant role in determining family and community attitudes toward individuals with a disability and will influence when, how, and why medical input is sought. 2. The expectation of survival on the part of parents and community will have an effect on the amount of time, energy, and cooperation shown by family and community for the individual who has an impairment. 3. The expectations by family and community for the social role(s) and individual with a chronic illness or disability will hold will affect a broad range of issues, including education, social integration, and independence. Furthermore, although chronic illness and disability are often considered as issues distinct from the full range of problems encountered in society for immigrant and minority groups, in fact, these issues could not be more closely tied. The frequently discussed concerns within the ethnic and minority community about the role of the family, integration and acculturation, social articulation with the greater American society, stress, cross-cultural misunderstanding, and outright prejudice can all compound the problems encountered for the chronically ill or disabled individual in a multicultural society.

journal_name

Pediatrics

journal_title

Pediatrics

authors

Groce NE,Zola IK

subject

Has Abstract

pub_date

1993-05-01 00:00:00

pages

1048-55

issue

5 Pt 2

eissn

0031-4005

issn

1098-4275

journal_volume

91

pub_type

杂志文章
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    abstract:OBJECTIVES:More than 500,000 adolescents with special health care needs age into adulthood each year in the United States, and there is growing recognition of the need for support of their transition to adult-oriented health care. Because of improved survival, cystic fibrosis has experienced this increasing transition ...

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    pub_type: 杂志文章

    doi:10.1542/peds.2007-2217

    authors: McLaughlin SE,Diener-West M,Indurkhya A,Rubin H,Heckmann R,Boyle MP

    更新日期:2008-05-01 00:00:00

  • Intrapartum antibiotic exposure and early neonatal, morbidity, and mortality in Africa.

    abstract:BACKGROUND:Infants born to women who receive intrapartum antibiotics may have higher rates of infectious morbidity and mortality than unexposed infants. OBJECTIVE:Our goal was to determine the association of maternal intrapartum antibiotics and early neonatal morbidity and mortality. METHODS:We performed secondary an...

    journal_title:Pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1542/peds.2008-1873

    authors: Kafulafula G,Mwatha A,Chen YQ,Aboud S,Martinson F,Hoffman I,Fawzi W,Read JS,Valentine M,Mwinga K,Goldenberg R,Taha TE

    更新日期:2009-07-01 00:00:00

  • Acquired immunodeficiency syndrome transmission: changes in knowledge and behaviors among teenagers, Massachusetts statewide surveys, 1986 to 1988.

    abstract::Despite substantial progress, adolescents remain at high risk for human immunodeficiency virus (HIV) infection. Two independent random digit dial statewide Massachusetts surveys of 16- to 19-year-old persons conducted August through September 1986 and 1988 revealed that the proportion of teenagers who had discussed ac...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Hingson R,Strunin L,Berlin B

    更新日期:1990-01-01 00:00:00

  • Hepatitis C Testing Among Perinatally Exposed Infants.

    abstract:BACKGROUND:Hepatitis C virus (HCV) prevalence doubled among pregnant women from 2009 to 2014, reaching 3.4 per 1000 births nationwide. Infants exposed to HCV may acquire HCV by vertical transmission. National guidelines recommend that infants exposed to HCV be tested; however, it is unclear if these recommendations are...

    journal_title:Pediatrics

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    doi:10.1542/peds.2019-2482

    authors: Lopata SM,McNeer E,Dudley JA,Wester C,Cooper WO,Carlucci JG,Espinosa CM,Dupont W,Patrick SW

    更新日期:2020-03-01 00:00:00

  • Eosinophilic Pneumonia and Lymphadenopathy Associated With Vaping and Tetrahydrocannabinol Use.

    abstract::Idiopathic acute eosinophilic pneumonia is a rare and potentially life-threatening condition that is defined by bilateral pulmonary infiltrates and fever in the presence of pulmonary eosinophilia. It often presents acutely in previously healthy individuals and can be difficult to distinguish from infectious pneumonia....

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2019-3007

    authors: Mull ES,Erdem G,Nicol K,Adler B,Shell R

    更新日期:2020-04-01 00:00:00

  • Haemophilus influenzae type b conjugate vaccine (meningococcal protein conjugate): immunogenicity and safety at various doses.

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    journal_title:Pediatrics

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:

    authors: Yogev R,Arditi M,Chadwick EG,Amer MD,Sroka PA

    更新日期:1990-04-01 00:00:00

  • Association between diabetes control and visits to a multidisciplinary pediatric diabetes clinic.

    abstract:OBJECTIVE:To determine if there is a relationship between diabetes outcome as measured by HbA1C and the number of multidisciplinary clinic visits per year in children and youth with diabetes. RESEARCH DESIGN AND METHODS:The number of clinic visits per year, the mean HbA1C (by DCA 2000, Miles, Tarrytown, NY), type of i...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.103.5.948

    authors: Kaufman FR,Halvorson M,Carpenter S

    更新日期:1999-05-01 00:00:00

  • Efficacy of psychosocial group intervention for children with chronic illness and their parents.

    abstract:OBJECTIVE:To investigate the efficacy of a cognitive-behavioral group intervention for children with chronic illnesses and to test the effect of an added parent component. METHODS:Children (n = 194) and their parents participated in a multicenter randomized clinical trial comparing a child-only intervention and a pare...

    journal_title:Pediatrics

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1542/peds.2012-2222

    authors: Scholten L,Willemen AM,Last BF,Maurice-Stam H,van Dijk EM,Ensink E,Zandbelt N,van der Hoop-Mooij A,Schuengel C,Grootenhuis MA

    更新日期:2013-04-01 00:00:00

  • Urgent and emergent embolization of lesions of the head and neck in children: indications and results.

    abstract::Indications for and results and complications of embolization of lesions of the head and neck were analyzed retrospectively. The procedures were performed since 1980 on an emergent or urgent basis in 30 infants and children by an experienced interventional neuroradiologist in Bicetre, France. Indications for embolizat...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Burrows PE,Lasjaunias PL,Ter Brugge KG,Flodmark O

    更新日期:1987-09-01 00:00:00

  • Relief of pain and anxiety in pediatric patients in emergency medical systems.

    abstract::Whether a component of a disease process, the result of acute injury, or a product of a diagnostic or therapeutic procedure, pain should be relieved and stress should be decreased for pediatric patients. Control of pain and stress for children who enter into the emergency medical system, from the prehospital arena to ...

    journal_title:Pediatrics

    pub_type: 指南,杂志文章,实务指引

    doi:10.1542/peds.2004-1752

    authors: Zempsky WT,Cravero JP,American Academy of Pediatrics Committee on Pediatric Emergency Medicine and Section on Anesthesiology and Pain Medicine.

    更新日期:2004-11-01 00:00:00

  • Probability of coincident vaccination in the 24 or 48 hours preceding sudden infant death syndrome death in Australia.

    abstract:OBJECTIVE:Vaccination does not cause sudden infant death syndrome (SIDS). However, SIDS peaks at 2 months of age, when vaccination encounters are frequent. There are no published estimates using population data on age of death and immunization coverage to indicate to practitioners how often coincident vaccination may o...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2004-2185

    authors: Brotherton JM,Hull BP,Hayen A,Gidding HF,Burgess MA

    更新日期:2005-06-01 00:00:00

  • The Seattle children's bicycle helmet campaign: changes in helmet use and head injury admissions.

    abstract:OBJECTIVE:To describe the impact of a community bicycle helmet campaign on helmet use and the incidence of bicycle-related head injuries. SETTING:Metropolitan community and a large health maintenance organization. INTERVENTIONS:Communitywide bicycle helmet campaign. OUTCOMES:Rate of observed bicycle helmet use in th...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Rivara FP,Thompson DC,Thompson RS,Rogers LW,Alexander B,Felix D,Bergman AB

    更新日期:1994-04-01 00:00:00

  • Relative importance of bacteremia and viremia in the course of acute fevers of unknown origin in outpatient children.

    abstract::During a 12-month period 80 children greater than 3 months of age seen at an emergency room with acute fevers greater than or equal to 39.7 C (103.5 F) and no localizing signs of infection were studied using blood and buffy coat cultures to isolate bacteria and viruses. Bacteremia was identified in three children (3.8...

    journal_title:Pediatrics

    pub_type: 杂志文章

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    authors: Murray DL,Zonana J,Seidel JS,Yoshimori RN,Imagawa DT,St Geme JW Jr

    更新日期:1981-08-01 00:00:00

  • Safety of the 9-Valent Human Papillomavirus Vaccine.

    abstract:BACKGROUND:The 9-valent human papillomavirus vaccine (9vHPV) was approved for females and males aged 9 to 26 years in 2014. We analyzed postlicensure surveillance reports to the Vaccine Adverse Event Reporting System (VAERS). METHODS:We searched VAERS data for US reports of adverse events (AEs) after 9vHPV from Decemb...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2019-1791

    authors: Shimabukuro TT,Su JR,Marquez PL,Mba-Jonas A,Arana JE,Cano MV

    更新日期:2019-12-01 00:00:00

  • Streptococcus pneumoniae--associated hemolytic uremic syndrome: classification and the emergence of serotype 19A.

    abstract::Streptococcus pneumoniae-associated hemolytic uremic syndrome (HUS) is an underrecognized condition that mainly occurs in young children. Early diagnosis is important because of the potential to improve morbidity and mortality rates. The purposes of this report are to review the clinical and laboratory features of 14 ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2007-2017

    authors: Copelovitch L,Kaplan BS

    更新日期:2010-01-01 00:00:00

  • Apnea, hypoxemia, and aborted sudden infant death syndrome.

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    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Brady JP,Ariagno RL,Watts JL,Goldman SL,Dumpit FM

    更新日期:1978-11-01 00:00:00

  • New intrauterine growth curves based on United States data.

    abstract:OBJECTIVE:The objective of this study was to create and validate new intrauterine weight, length, and head circumference growth curves using a contemporary, large, racially diverse US sample and compare with the Lubchenco curves. METHODS:Data on 391 681 infants (Pediatrix Medical Group) aged 22 to 42 weeks at birth fr...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2009-0913

    authors: Olsen IE,Groveman SA,Lawson ML,Clark RH,Zemel BS

    更新日期:2010-02-01 00:00:00

  • Rhabdomyolysis and myoglobinemia in neonates.

    abstract::Serial myoglobin determinations were made in 20 neonates during the first week of life to determine whether birth asphyxia results in ischemic damage to muscle with the subsequent pathologic release of myoglobin. Serum myoglobin values were significantly elevated in asphyxiated infants compared with control infants. H...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Kasik JW,Leuschen MP,Bolam DL,Nelson RM

    更新日期:1985-08-01 00:00:00

  • Yield of diagnostic testing in infants who have had an apparent life-threatening event.

    abstract:OBJECTIVE:Many infants who have experienced an apparent life-threatening event (ALTE) seem normal by the time they reach the hospital. Nevertheless, they typically undergo an extensive evaluation to rule out serious underlying conditions. The purpose of the present investigation was to determine the yield of different ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2004-0847

    authors: Brand DA,Altman RL,Purtill K,Edwards KS

    更新日期:2005-04-01 00:00:00

  • A rose by any other name? Objective knowledge, perceived knowledge, and adolescent male condom use.

    abstract:OBJECTIVE:To investigate the role of objective and perceived knowledge about condoms in adolescent males' condom use at first intercourse. METHODS:A longitudinal analysis was conducted of data from a nationally representative sample of 404 virgin male adolescents who were aged 15 to 17 years at wave 1 and reported bec...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2004-0139

    authors: Rock EM,Ireland M,Resnick MD,McNeely CA

    更新日期:2005-03-01 00:00:00

  • Unilateral pulmonary interstitial emphysema: a surgical approach to treatment.

    abstract::Pulmonary interstitial emphysema is a condition that has become a significant problem chiefly as a complication of mechanical ventilation of the newborn. In its severe forms, it may compromise ventilation and restrict pulmonary blood flow to the degree that it becomes a significant cause of mortality. When its occurre...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Levine DH,Trump DS,Waterkotte G

    更新日期:1981-10-01 00:00:00

  • Incidence of mitral valve prolapse in adolescent scoliosis and thoracic hypokyphosis.

    abstract::Seventy-four patients with adolescent scoliosis underwent cardiac examination and M-mode echocardiography to detect the presence of mitral valve prolapse (MVP). Twenty-one (28%) had echocardiographic evidence of MVP, whereas 18 had auscultatory findings of a nonejection click or late systolic murmur. A subset of 41 pa...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Hirschfeld SS,Rudner C,Nash CL Jr,Nussbaum E,Brower EM

    更新日期:1982-09-01 00:00:00

  • Campylobacter jejuni-associated hemolytic-uremic syndrome in a mother and daughter.

    abstract::A mother and daughter with Campylobacter jejuni-associated hemolytic-uremic syndrome (HUS) are discussed. The mother was hospitalized with bloody diarrhea and HUS; C jejuni was isolated from her stool. The 2-year-old daughter had been admitted five days prior to her mother with HUS following a three-day prodrome of vo...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Chamovitz BN,Hartstein AI,Alexander SR,Terry AB,Short P,Katon R

    更新日期:1983-02-01 00:00:00

  • Water-absorbing balls: a "growing" problem.

    abstract::Foreign body ingestion is a potentially serious clinical problem in children. We report a case of an 8-month-old infant who developed complete bowel obstruction requiring laparotomy due to ingestion of a superabsorbent polymer ball with advertised growth up to 400 times its original size. Most ingested foreign bodies ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2011-3685

    authors: Zamora IJ,Vu LT,Larimer EL,Olutoye OO

    更新日期:2012-10-01 00:00:00

  • Low expression of human epithelial sodium channel in airway epithelium of preterm infants with respiratory distress.

    abstract:OBJECTIVE:Active ion transport is critical to postnatal clearance of lung fluid. The importance of epithelial sodium channel (ENaC) in this clearance has been demonstrated in animal studies in which alpha-ENaC knockout mice died postnatally as a result of respiratory insufficiency. In animals, the expression of alpha-E...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.113.5.1267

    authors: Helve O,Pitkänen OM,Andersson S,O'Brodovich H,Kirjavainen T,Otulakowski G

    更新日期:2004-05-01 00:00:00

  • Vaccination and Risk of Childhood IgA Vasculitis.

    abstract:BACKGROUND AND OBJECTIVES:Immunoglobulin A vasculitis (IgAV) might develop after vaccination. However, this potential relationship is essentially based on case reports, and robust pharmaco-epidemiologic data are scarce. We aimed to investigate the effect of vaccination on short-term risk of IgAV in children. METHODS:W...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2018-0841

    authors: Piram M,Gonzalez Chiappe S,Madhi F,Ulinski T,Mahr A

    更新日期:2018-11-01 00:00:00

  • Psychosocial outcomes of fetal alcohol syndrome in adulthood.

    abstract:BACKGROUND AND OBJECTIVE:Primary disabilities in children prenatally exposed to alcohol have a major impact on their daily life. It is suggested that these issues persist into adulthood, but few studies have addressed the outcome in adults with prenatal exposure, especially those with fetal alcohol syndrome (FAS). The ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2014-1915

    authors: Rangmar J,Hjern A,Vinnerljung B,Strömland K,Aronson M,Fahlke C

    更新日期:2015-01-01 00:00:00

  • Improved outcomes associated with medical home implementation in pediatric primary care.

    abstract:OBJECTIVE:The medical home model with its emphasis on planned care, care coordination, family-centered approaches, and quality provides an attractive concept construct for primary care redesign. Studies of medical home components have shown increased quality and reduced costs, but the medical home model as a whole has ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2008-2600

    authors: Cooley WC,McAllister JW,Sherrieb K,Kuhlthau K

    更新日期:2009-07-01 00:00:00

  • Outpatient Rehabilitation for Medicaid-Insured Children Hospitalized With Traumatic Brain Injury.

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    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2015-3500

    authors: Jimenez N,Symons RG,Wang J,Ebel BH,Vavilala MS,Buchwald D,Temkin N,Jaffe KM,Rivara FP

    更新日期:2016-06-01 00:00:00

  • Parental knowledge, attitudes, and practices associated with not receiving hepatitis A vaccine in a demonstration project in Butte County, California.

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    pub_type: 杂志文章

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    更新日期:2003-10-01 00:00:00