Continuity, coordination, and transitions of care for patients with serious and advanced illness: a systematic review of interventions.

Abstract:

OBJECTIVES:Continuity, coordination, and transitions of care are key to high-quality medical care for patients with serious and advanced illness. We conducted a systematic review to evaluate the impact of interventions targeting these areas in this population. METHODS:We searched PubMed, CINAHL, PsycINFO, Cochrane, and DARE from 2000 through 2011. We included prospective controlled studies targeting continuity, coordination, and transitions for patients with advanced illness that reported patient centered outcomes. Of 13,014 citations, 23 studies met inclusion criteria. Two investigators extracted and checked data on population, interventions, methods, outcomes, and methodological quality. RESULTS:Four of the six studies evaluating patient satisfaction (67%) and four of the six studies evaluating caregiver satisfaction (67%) showed statistically significant improvements in these outcomes in the intervention compared to the control group. Only three of the nine studies (33%) measuring quality of life and five of the 16 (31%) measuring health care utilization showed improvement. Results were similar across different types of interventions. CONCLUSIONS:Many studies were limited by methodologic issues such as use of measurement tools not developed for patients with advanced disease and small sample size. Interventions and outcomes were too heterogeneous for meta-analysis. We found moderate evidence that interventions targeting continuity, coordination, and transitions in patients with advanced and serious illness improve patient and caregiver satisfaction, but low evidence for other outcomes. Further research is needed on how to target these domains for outcomes such as health care utilization.

journal_name

J Palliat Med

authors

Dy SM,Apostol C,Martinez KA,Aslakson RA

doi

10.1089/jpm.2012.0317

subject

Has Abstract

pub_date

2013-04-01 00:00:00

pages

436-45

issue

4

eissn

1096-6218

issn

1557-7740

journal_volume

16

pub_type

杂志文章,meta分析,评审
  • It is Electric! Electroconvulsive Therapy for Refractory Central Pain and Comorbid Psychiatric Disease.

    abstract::Central pain syndromes are a complex, diverse group of clinical conditions that are poorly understood. We present a patient with progressive, debilitating central pain and co-existing mood disorders that was refractory to multimodal pharmacologic and nonpharmacologic therapies, but that ultimately responded to electro...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2017.0344

    authors: Strand JJ,Warner LL,Kamdar MM,Flaherty AW,Jackson VA

    更新日期:2018-02-01 00:00:00

  • Clinicians' Perceptions of Futile or Potentially Inappropriate Care and Associations with Avoidant Behaviors and Burnout.

    abstract:: Background: Futile or potentially inappropriate care (futile/PIC) for dying inpatients leads to negative outcomes for patients and clinicians. In the setting of rising end-of-life health care costs and increasing physician burnout, it is important to understand the causes ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2018.0385

    authors: Chamberlin P,Lambden J,Kozlov E,Maciejewski R,Lief L,Berlin DA,Pelissier L,Yushuvayev E,Pan CX,Prigerson HG

    更新日期:2019-09-01 00:00:00

  • A comparison of sennosides-based bowel protocols with and without docusate in hospitalized patients with cancer.

    abstract:BACKGROUND:Constipation is a common and distressing condition in patients with cancer, especially those taking opioid analgesics. Many institutions prevent and treat constipation with titrated laxatives, which is known as a bowel protocol. An effective and well-tolerated bowel protocol is a very important component of ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2007.0178

    authors: Hawley PH,Byeon JJ

    更新日期:2008-05-01 00:00:00

  • Time to Death after Terminal Withdrawal of Mechanical Ventilation: Specific Respiratory and Physiologic Parameters May Inform Physician Predictions.

    abstract:BACKGROUND:Discussions about withdrawal of life-sustaining therapies often include family members of critically ill patients. These conversations should address essential components of the dying process, including expected time to death after withdrawal. OBJECTIVES:The study objective was to aid physician communicatio...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2015.0115

    authors: Long AC,Muni S,Treece PD,Engelberg RA,Nielsen EL,Fitzpatrick AL,Curtis JR

    更新日期:2015-12-01 00:00:00

  • Feasibility of Delivering an Avatar-Facilitated Life Review Intervention for Patients with Cancer.

    abstract:: Background: Life review, a narrative-based intervention, helps individuals organize memories into a meaningful whole, providing a balanced view of the past, present, and future. Examining how the content of memories contributes to life's meaning improves some clinical outc...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2020.0020

    authors: Dang M,Noreika D,Ryu S,Sima A,Ashton H,Ondris B,Coley F,Nestler J,Fabbro ED

    更新日期:2020-09-03 00:00:00

  • Improving advance care planning by accommodating family preferences.

    abstract:CONTEXT:Family members often lack the knowledge of patients' values and preferences needed to function well as surrogate decision-makers. OBJECTIVE:To determine whether differences in values and preferences for the advance care planning process may be reasons family members are inadequately informed to act as surrogat...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/109662101753381629

    authors: Hines SC,Glover JJ,Babrow AS,Holley JL,Badzek LA,Moss AH

    更新日期:2001-01-01 00:00:00

  • Is Care for the Dying Improving in the United States?

    abstract:BACKGROUND:Striking changes occurred in health care in the United States between 2000 and 2013, including growth of hospice and hospital-based palliative care teams, and changes in Medicare payment policies. OBJECTIVE:The aim of this study was to compare informants' reports and ratings of the quality of end-of-life ca...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2015.0039

    authors: Teno JM,Freedman VA,Kasper JD,Gozalo P,Mor V

    更新日期:2015-08-01 00:00:00

  • Why the Interdisciplinary Team Approach Works: Insights from Complexity Science.

    abstract:BACKGROUND:Although an interdisciplinary approach is considered best practice for caring for patients at the end of life, or in need of palliative care (PC) services, there is growing tension between healthcare organizations' need to contain costs and the provision of this beneficial, yet resource-intensive service. O...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2015.0398

    authors: Ciemins EL,Brant J,Kersten D,Mullette E,Dickerson D

    更新日期:2016-07-01 00:00:00

  • Exploring Nonresponse Bias in the Department of Veterans Affairs' Bereaved Family Survey.

    abstract:BACKGROUND:Patients' and families' evaluations of health care, including palliative care, are widely used as performance measures. Survey scores may be affected by nonresponse bias, resulting in inaccurate performance evaluation. OBJECTIVES:Our aim was to examine nonresponse bias for the mailed version of the Departme...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2015.0050

    authors: Smith D,Kuzla N,Thorpe J,Scott L,Ersek M

    更新日期:2015-10-01 00:00:00

  • End-of-life decision-making confidence in surrogates of African-American dialysis patients is overly optimistic.

    abstract:BACKGROUND:Recent studies suggest that surrogate decision makers may be too optimistic about their end-of-life decision making abilities for loved ones. We examined surrogates' decision making confidence with an emphasis on its linkages to their understandings of patients' values and goals for end-of-life care. METHOD...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2011.0330

    authors: Song MK,Ward SE,Lin FC

    更新日期:2012-04-01 00:00:00

  • Outcome evaluation of the Palliative care Emphasis program on symptom management and Assessment for Continuous Medical Education: nationwide physician education project for primary palliative care in Japan.

    abstract:OBJECTIVE:Palliative care is an essential part of medicine, but most physicians have had no formal opportunity to acquire basic skills in palliative care. In Japan, the Palliative care Emphasis program on symptom management and Assessment for Continuous Medical Education (PEACE) was launched to provide formal primary p...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2014.0122

    authors: Yamamoto R,Kizawa Y,Nakazawa Y,Ohde S,Tetsumi S,Miyashita M

    更新日期:2015-01-01 00:00:00

  • Supporting In-Home Caregivers in Symptom Assessment of Frail Older Adults with Serious Illness: A Pilot Study.

    abstract:: Background: Many older adults with serious illness who depend on others for care have symptoms that are difficult to manage. Supporting caregivers in symptom assessment (SA) may reduce suffering. Objective: Pilot an SA-Toolkit ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2020.0103

    authors: Nouri S,Ritchie C,Chen P,Volow A,Li B,Tellez I,Sudore RL

    更新日期:2020-12-01 00:00:00

  • Epidemiology of renal palliative care.

    abstract::The need for palliative care for patients with end-stage renal disease (ESRD) is increasingly recognized. Patients starting renal replacement therapy are now elderly, with a median age of 65 years, and with multiple comorbid conditions. Quality of life is often poor and with advance care planning, patients can be enab...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2007.0033

    authors: Brown EA

    更新日期:2007-12-01 00:00:00

  • Hidden patients: the relatives of patients in need of palliative care.

    abstract:BACKGROUND:When identifying patients for palliative care, medical specialists find it necessary to disclose "hidden" patients: the patient's relatives. The issue has been discussed sporadically in Bulgaria; the present study was part of a larger investigation that examined the opinion of medical specialists, patients, ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0333

    authors: Foreva G,Assenova R

    更新日期:2014-01-01 00:00:00

  • Antimicrobial use for symptom management in patients receiving hospice and palliative care: a systematic review.

    abstract:BACKGROUND:Patients receiving hospice or palliative care often receive antimicrobial therapy; however the effectiveness of antimicrobial therapy for symptom management in these patients is unknown. OBJECTIVE:The study's objective was to systematically review and summarize existing data on the prevalence and effectiven...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1089/jpm.2013.0276

    authors: Rosenberg JH,Albrecht JS,Fromme EK,Noble BN,McGregor JC,Comer AC,Furuno JP

    更新日期:2013-12-01 00:00:00

  • Maslow's hierarchy of needs: a framework for achieving human potential in hospice.

    abstract::Although the widespread implementation of hospice in the United States has led to tremendous advances in the care of the dying, there has been no widely accepted psychological theory to drive needs assessment and intervention design for the patient and family. The humanistic psychology of Abraham Maslow, especially hi...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2006.9.1120

    authors: Zalenski RJ,Raspa R

    更新日期:2006-10-01 00:00:00

  • Provision of Services in Perinatal Palliative Care: A Multicenter Survey in the United States.

    abstract:BACKGROUND:Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy affected by a life-limiting diagnosis. OBJECTIVE:To examine characteristics...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,多中心研究

    doi:10.1089/jpm.2015.0266

    authors: Wool C,Côté-Arsenault D,Perry Black B,Denney-Koelsch E,Kim S,Kavanaugh K

    更新日期:2016-03-01 00:00:00

  • Advance directives for older adults in the emergency department: a systematic review.

    abstract:BACKGROUND:It has been more than two decades since the passage of the Patient Self-Determination Act (PSDA) of 1991, an act that requires many medical points of care, including emergency departments (EDs), to provide information to patients about advance directives (ADs). OBJECTIVE:The study objective was to determine...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1089/jpm.2014.0368

    authors: Oulton J,Rhodes SM,Howe C,Fain MJ,Mohler MJ

    更新日期:2015-06-01 00:00:00

  • Goal-Concordant Care in the Era of Advanced Stroke Therapies.

    abstract::Stroke is a leading cause of disability and mortality worldwide. Recent advances in stroke care now enable patients with severe ischemic stroke owing to large vessel occlusion to safely undergo endovascular thrombectomy (EVT) up to 24 hours since their time of last known well, with the goal of improving functional out...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2019.0667

    authors: Sokol LL,Hauser JM,Lum HD,Forlizzi J,Cerf M,Caprio FZ,Young MJ

    更新日期:2020-05-14 00:00:00

  • The palliative performance scale applied in high-care residential hospice: a retrospective study.

    abstract:BACKGROUND:The Palliative Performance Scale (PPS) is a tool that is widely used to predict end of life. In Ontario, Canada, the PPS is used to mark the terminal phase of life and eligibility for terminal care. OBJECTIVE:The aim of this retrospective study was to confirm that a PPS level of 40% can be used as a marker ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0645

    authors: Jansen WJ,Buma S,Gootjes JR,Zuurmond WW,Perez RS,Loer SA

    更新日期:2015-01-01 00:00:00

  • Rehospitalization of older adults discharged to home hospice care.

    abstract:BACKGROUND:Acute hospital readmission of older adults receiving hospice care is not aligned with hospice goals. OBJECTIVE:To identify factors associated with 30-day readmission among older adults newly discharged to hospice. DESIGN/SUBJECTS:Medical record review of 59 patients, 19 readmitted within 30 days and 40 ran...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0224

    authors: Goldenheim A,Oates D,Parker V,Russell M,Winter M,Silliman RA

    更新日期:2014-07-01 00:00:00

  • How do we talk to the children? Child life consultation to support the children of seriously ill adult inpatients.

    abstract:BACKGROUND:Families with young children often struggle to talk about and cope with a parent's life-threatening illness and potential death. Adult interdisciplinary palliative medicine teams often feel unprepared to facilitate the open communication with these children that has been shown to reduce anxiety, depression, ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2012.0019

    authors: Sutter C,Reid T

    更新日期:2012-12-01 00:00:00

  • The Impact of Integrated Home Palliative Care Services on Resource Use and Place of Death.

    abstract:: Background: Specialized home-based palliative care (HPC) services aim at reducing the number of visits to emergency departments (EDs) and hospitalizations at end of life. In addition, it offers patients the possibility to die at home. Objective: ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2018.0639

    authors: Bergqvist J,Ljunggren G

    更新日期:2020-01-01 00:00:00

  • Place of care in advanced cancer: a qualitative systematic literature review of patient preferences.

    abstract:BACKGROUND:It is commonly written that more patients wish to die at home than currently achieve this. However, the evidence for preferences for place of terminal care and death has not been systematically reviewed. AIM:To carry out a systematic literature review of the preferences for place of care and death among adv...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2000.3.287

    authors: Higginson IJ,Sen-Gupta GJ

    更新日期:2000-10-01 00:00:00

  • Place of death and its determinants for patients with cancer in Singapore: an analysis of data from the Singapore Cancer Registry, 2000-2009.

    abstract:AIMS:To describe the place of death for patients with cancer in Singapore from 2000 to 2009, and determinants of death at home and in in-patient hospice compared to death in hospital. METHOD:Cross-sectional analysis of all patients registered with the Singapore Cancer Registry who had died in the study period (N=52120...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2011.0092

    authors: Hong CY,Chow KY,Poulose J,Jin AZ,Devi A,Chee EM,Goh C

    更新日期:2011-10-01 00:00:00

  • A health economics response to the review of the Liverpool Care Pathway.

    abstract:BACKGROUND:In 2011 the Palliative Care Funding Review highlighted concerns about the funding, provision, and quality of care at the end of life. Two years on, an independent review of the Liverpool Care Pathway--prompted by a storm of negative media coverage--has raised concerns around a lack of funding, availability o...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0464

    authors: Kinghorn P,Coast J

    更新日期:2013-12-01 00:00:00

  • The impact of loneliness on the relationship between depression and pain of Hong Kong Chinese terminally ill patients.

    abstract:BACKGROUND:Depression and pain often coexist in terminally ill patients, but few studies have examined their relationship among larger samples. Other psychosocial factors experienced by patients may become barriers to pain management and affect the relationship between depression and pain. OBJECTIVE:This study aims to...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0555

    authors: Chan WC,Kwan CW,Chi I,Chong AM

    更新日期:2014-05-01 00:00:00

  • The Louisiana State Penitentiary: Angola prison hospice.

    abstract::Louisiana State Penitentiary (Angola) has a large population of aging men serving long sentences with little hope of reprieve. Eighty-five percent of the 5108 inmates currently incarcerated at Angola are expected to die there. The prison, in partnership with University Hospital Community Hospice in New Orleans, has cr...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/109662102760269797

    authors: Evans C,Herzog R,Tillman T

    更新日期:2002-08-01 00:00:00

  • A Canadian experience of integrating complementary therapy in a hospital palliative care unit.

    abstract:BACKGROUND:The provision of complementary therapy in palliative care is rare in Canadian hospitals. An Ontario hospital's palliative care unit developed a complementary therapy pilot project within the interdisciplinary team to explore potential benefits. Massage, aromatherapy, Reiki, and Therapeutic Touch™ were provid...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0295

    authors: Berger L,Tavares M,Berger B

    更新日期:2013-10-01 00:00:00

  • A Chinese version of the Spiritual Needs Assessment for patients survey instrument.

    abstract:CONTEXT:Unmet spiritual needs have been associated with decreased patient ratings of quality of care, satisfaction, and quality of life. Few instruments exist to measure spiritual needs particularly among non-English speaking patients in the U.S. OBJECTIVE:To develop an internally consistent and reliable Chinese versi...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2012.0131

    authors: Astrow AB,Sharma RK,Huang Y,Xu Y,Sulmasy DP

    更新日期:2012-12-01 00:00:00