Living with side effects from cancer treatment--a challenge to target information.

Abstract:

BACKGROUND:Patients with cancer experience side effects related to their antineoplastic treatment. Demands for efficiency limit the time patients spend with health professionals. This requires that professionals are able to offer adequate support to patients in coping with side effects of treatment in everyday life. However, it appears that the level of information about and support in living with side effects may be insufficient. OBJECTIVE:To explore patients' experiences of how side effects from chemotherapy and radiotherapy impact everyday life as well as the information needs in coping with these side effects. METHODS:Nine patients' experiences were analysed and interpreted using a phenomenological-hermeneutical approach. Data were collected through semi-structured interviews. FINDINGS:The patients are deeply impacted by side effects in their everyday life. They struggle to take power but experience loss of control. They feel inexperienced without knowledge in an 'ongoing system', and because of lack of continuity, they do not come up with their real needs. To avoid pitfalls in the information, the patients need individualized support from the professionals. CONCLUSION:If the patients have to be supported during everyday life with side effects from cancer treatment in an individualized way, the professional must be aware that the patients risk adapting to the busy healthcare system. To empower the patient, the professional must be able to sense the patients' appeal for help and enter into caring relationships. IMPLICATIONS FOR PRACTICE:To ensure targeted information, the relationship between nurse and patient must build on nursing values including the patients' illness - perspective. However, the professionals must take a critical look at how they provide information and how they act to empower the patients.

journal_name

Scand J Caring Sci

authors

Pedersen B,Koktved DP,Nielsen LL

doi

10.1111/j.1471-6712.2012.01085.x

subject

Has Abstract

pub_date

2013-09-01 00:00:00

pages

715-23

issue

3

eissn

0283-9318

issn

1471-6712

journal_volume

27

pub_type

杂志文章
  • Validation of the Parents' Postoperative Pain Measure in Finnish children aged 1-6 years.

    abstract::The Canadian Parents' Postoperative Pain Measure (PPPM) is a behavioural pain measure for children. The purpose of this study was to test validity and reliability of this measure in 1-6-year-old Finnish children at home after minor day surgery. Children (n = 85) and their parents from four hospitals were included in t...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1046/j.1471-6712.2003.00104.x

    authors: Kokki A,Kankkunen P,Pietilä AM,Vehviläinen-Julkunen K

    更新日期:2003-03-01 00:00:00

  • Patient care encounters with the MCHL: a questionnaire study.

    abstract:BACKGROUND:Both internationally and nationally, the medical care help line (MCHL) is a growing operation within the healthcare field. In Sweden, approximately 5 million calls per year are processed. The service is managed by specially trained nurses. AIM:  To describe how patients' sex, age, education level and care l...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2010.00858.x

    authors: Ström M,Baigi A,Hildingh C,Mattsson B,Marklund B

    更新日期:2011-09-01 00:00:00

  • Significant others' perceptions of being taken seriously by the Swedish Ambulance Service when the patient is assessed as nonurgent.

    abstract:BACKGROUND:At least 50% of all ambulance assignments are deemed nonurgent, while 47-96% are initiated by someone other than the patient. Previous research has highlighted the importance of being taken seriously. However, additional knowledge of how significant others experience the situation when a patient is assessed ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12811

    authors: Rantala A,Ekwall A,Forsberg A

    更新日期:2020-12-01 00:00:00

  • Adapting incontinent patients incontinence aids to their leakage volumes.

    abstract::The importance of adapting incontinence aids according to the patients leakage volume and comfort was investigated in 28 urinary incontinent 85-year-old men and women who were living at home. The patients incontinence was quantified by a 48-hour pad test and was graded as slight (max. leakage per pad < 5 g; total leak...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1993.tb00168.x

    authors: Hellström L,Ekelund P,Larsson M,Milsom I

    更新日期:1993-01-01 00:00:00

  • Human love--the inner essence of nursing ethics according to Estrid Rodhe. A study using the approach of history of ideas.

    abstract::The aim of this study is to describe the idea pattern of nursing ethics in the textbook written by the Swedish nurse Estrid Rodhe (1911). The purpose is to increase understanding of the ideas in early written history of nursing ethics by using the method of history of ideas. A theoretical premise, but also a fascinati...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2012.01010.x

    authors: Kangasniemi M,Haho A

    更新日期:2012-12-01 00:00:00

  • The significance of patient participation in nursing care - a concept analysis.

    abstract:OBJECTIVE:The purpose of this study was to report on a concept analysis of the meaning of patients' participation. Participation is commonplace in many areas of health care and has become an important issue in healthcare services. Participation is essential when giving nursing care. Challenges exist throughout clinical...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,评审

    doi:10.1111/scs.12609

    authors: Nilsson M,From I,Lindwall L

    更新日期:2019-03-01 00:00:00

  • A review of the psychotherapeutic 'common factors' model and its application in physical therapy: the need to consider general effects in physical therapy practice.

    abstract::This article explores the common factors model of psychotherapeutic intervention and discusses its relevance for physical therapy practice. The model provides an explanation for why the effects associated with specific technical approaches only minimally explain successful psychotherapy clinical outcomes. It postulate...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,评审

    doi:10.1111/j.1471-6712.2011.00923.x

    authors: Miciak M,Gross DP,Joyce A

    更新日期:2012-06-01 00:00:00

  • Job rotation approach in nursing profession.

    abstract:BACKGROUND:The nursing profession still needs more attention from decision-makers to enhance satisfaction and commitment in the work environment. AIMS AND OBJECTIVES:This study aims to explore the perceived level of job rotation, job satisfaction, job commitment, job turnover and job conflict among nurses who previous...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12947

    authors: Alfuqaha OA,Al-Hairy SS,Al-Hemsi HA,Sabbah AA,Faraj KN,Assaf EM

    更新日期:2020-12-16 00:00:00

  • The content and effectiveness of home-based nursing interventions to promote health and well-being in families with small children: a systematic review.

    abstract:BACKGROUND:Although the use of preventive family nursing interventions in the home is increased, the literature on the content and effectiveness of these interventions remains fragmented. AIM:The aim of this review was to identify and describe the content of preventive family nursing interventions in families' homes a...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,评审

    doi:10.1111/scs.12251

    authors: Tanninen HM,Häggman-Laitila A,Pietilä AM,Kangasniemi M

    更新日期:2016-06-01 00:00:00

  • Relaxation training as an integral part of caring activities for cancer patients: effects on wellbeing.

    abstract::The purposes of this study were twofold. The first was to investigate if relaxation training conducted by nurses as an integral part of their caring activities affected breast cancer patients' experiences of radiotherapy sessions as well as their general wellbeing. Second was to evaluate a pedagogical model for large ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1992.tb00149.x

    authors: Larsson G,Starrin B

    更新日期:1992-01-01 00:00:00

  • Connectedness, belonging and feelings about school among healthy and chronically ill Icelandic schoolchildren.

    abstract::The purpose of this research was to evaluate the level of school connectedness and feelings about school among Icelandic preteenagers who were either with or without a chronic health condition. The study is cross-sectional with 480 children of 10-12 years old (209 boys and 271 girls) and 38 teachers participating from...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2007.00553.x

    authors: Svavarsdottir EK

    更新日期:2008-09-01 00:00:00

  • Cancer patients who prefer to die at home. Characterizations of municipalities with several or few occurrences of home deaths.

    abstract::This article presents a descriptive study based on quantitative and qualitative methods. We wished to determine factors that promote or restrict home deaths. The Norwegian Central Bureau of Statistics released non-identifiable data for the time period 1990-1994 for all municipalities in Norway. Relevant health and soc...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:

    authors: Sørbye LW

    更新日期:1999-01-01 00:00:00

  • Ranked motives of long-term care providing family caregivers.

    abstract::Family caregivers provide long-term care to their chronically ill loved ones and as a consequence they experience physical, relational and financial problems. This study investigates how long-term family caregivers rank 12 motives for caregiving. Motives are derived from the views of four philosophical anthropologists...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2007.00516.x

    authors: Beneken Genaamd Kolmer D,Tellings A,Gelissen J,Garretsen H,Bongers I

    更新日期:2008-03-01 00:00:00

  • Structuring moral meaning in psychiatric nursing practice.

    abstract::Comparatively little is known about the experiential aspect of moral decision making in psychiatric nursing. Earlier research in this area has mainly focused on the cognitive aspects of moral reasoning, using hypothetical cases. The purpose of this study was to examine the experience of moral decision making in psychi...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1993.tb00196.x

    authors: Lützen K,Nordin C

    更新日期:1993-01-01 00:00:00

  • Determinants of work satisfaction among Swedish dental hygienists.

    abstract::This study examines factors that contribute to work satisfaction among Swedish dental hygienists. A questionnaire was used to collect data on health, demographics, work-history, work characteristics, work satisfaction and social support at work. The questionnaire was mailed to 471 hygienists; 77.3% responded. 70% of t...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1996.tb00344.x

    authors: Ylipää V,Arnetz BB,Preber H,Benkö SS

    更新日期:1996-01-01 00:00:00

  • Health resources and health strategies among older Swedish-speaking Finns--a hermeneutic study.

    abstract::Research has shown that the Swedish-speaking Finns have better health than the Finnish-speaking majority. The aim of this paper was to explore the health resources and health strategies among home-dwelling Swedish-speaking Finns aged 75 or older. The objective was to develop health-promotive nursing care for this grou...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2006.00379.x

    authors: Kulla G,Sarvimäki A,Fagerström L

    更新日期:2006-03-01 00:00:00

  • The role of ICU nurses in the spiritual aspects of end-of-life care in the ICU: an explorative study.

    abstract:AIM:The aim of this study was to examine the role and responsibilities of intensive care unit (ICU) nurses regarding the spiritual aspects of end-of-life care in the ICU, from the chaplains' perspectives. METHOD:An explorative study including inductive thematic analysis was used. Two focus group interviews with in tot...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12371

    authors: Noome M,Beneken Genaamd Kolmer DM,van Leeuwen E,Dijkstra BM,Vloet LCM

    更新日期:2017-09-01 00:00:00

  • Reliability and validity of the Norwegian WHOQOL-OLD module.

    abstract::The aim of this study was to examine the validity and reliability of the Norwegian WHOQOL-OLD six-facet, 24-item module designed for assessing generic quality of life cross-culturally among the elderly. Using quota-stratified sampling defined on the basis of sex, age and geographical representation, 401 respondents we...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2007.00523.x

    authors: Halvorsrud L,Kalfoss M,Diseth A

    更新日期:2008-06-01 00:00:00

  • Self-assessed quality of sleep, occupational health, working environment, illness experience and job satisfaction of female nurses working different combination of shifts.

    abstract:AIM:The aim of this study was to describe and compare the self-assessed quality of sleep, occupational health, working environment, illness experience and job satisfaction among female nurses working different combinations of shifts. BACKGROUND:Evidence from several studies indicates that there is an association betwe...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2006.00402.x

    authors: Sveinsdóttir H

    更新日期:2006-06-01 00:00:00

  • Constructing content validity of clinical nurse specialist core competencies: exploratory sequential mixed-method study.

    abstract:RATIONAL:The demand to increase nursing competence is brought on by the requirement of safe, accessible and more effective use of healthcare provider expertise. Clinical nurse specialist competency development dates back to the late 20th century; however, an examination of the literature reveals a lack of research and ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12588

    authors: Jokiniemi K,Meretoja R,Pietilä AM

    更新日期:2018-12-01 00:00:00

  • Factors related to perceived caring among older people residing in long-term care facilities: a cross-sectional study.

    abstract:BACKGROUND:Healthcare providers who exhibit caring behaviours promote quality of care. Theoretical and empirical models have promoted a three-dimensional paradigm of care perception. However, the perception of elderly residents in long-term care facilities related to caring has not been investigated. OBJECTIVES:This s...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12804

    authors: Hwang HL,Tu CT

    更新日期:2020-12-01 00:00:00

  • The magnitude of reciprocity in chronic pain management: experiences of dispersed ethnic populations of Muslim women.

    abstract::Dispersed ethnic populations believe their health to be worse than the ethnic majority group in Sweden. Most studies in rehabilitation exclude dispersed ethnic populations who can not read or speak the national language although this group seems to be in need of rehabilitation to a larger extent than privileged majori...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2011.00872.x

    authors: Müllersdorf M,Zander V,Eriksson H

    更新日期:2011-12-01 00:00:00

  • Evidence of clinical competence.

    abstract::This cross-sectional research used a qualitative questionnaire to explore clinical competence in nursing. The aim was to look for evidence of how clinical competence showed itself in practice. In the research, the views from both education and working life are combined to broadly explore and describe clinical competen...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2011.00939.x

    authors: Lejonqvist GB,Eriksson K,Meretoja R

    更新日期:2012-06-01 00:00:00

  • Sleep quality, use of hypnotics and sleeping habits in different age-groups among older people.

    abstract:BACKGROUND:Sleep disturbances are common among older people (>65 years). Further, long-term use of sedative hypnoticsin older people is associated with morbidity and mortality. However, older people represent a large span of life years, and few studies have included the oldest-old above 85 years. AIM:To investigate an...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12119

    authors: Hägg M,Houston B,Elmståhl S,Ekström H,Wann-Hansson C

    更新日期:2014-12-01 00:00:00

  • Reliability and validity of a Swedish version of Kogan's Old People Scale.

    abstract::Standardized and well-tested instruments are needed in order to study attitudes toward old people. One scale that has been widely used is Kogan's Old People scale. A Swedish version of the scale has been available since 1987. The aim of this study was to test this Swedish version of the scale for reliability and valid...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:

    authors: Söderhamn O,Gustavsson SM,Lindencrona C

    更新日期:2000-01-01 00:00:00

  • Physicians' attitudes about interprofessional treatment of chronic pain: family physicians are considered the most important collaborators.

    abstract:AIMS AND OBJECTIVES:Interprofessional collaboration is the process in which different professional groups work together to positively impact health care. We aimed to explore physicians' attitudes toward interprofessional collaboration in the context of chronic pain management with the implication that if attitudes are ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2012.01039.x

    authors: Klinar I,Ferhatovic L,Banozic A,Raguz M,Kostic S,Sapunar D,Puljak L

    更新日期:2013-06-01 00:00:00

  • Nursing staff and nursing students' emotions towards homosexual patients and their wish to refrain from nursing, if the option existed.

    abstract::Studies have reported that homosexual patients fear they will not receive adequate care if they openly show their sexual orientation, for example, when introducing their partner. The aims of this study were to investigate the emotions of nursing staff and nursing students, and possible relations to cultural background...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2004.00263.x

    authors: Röndahl G,Innala S,Carlsson M

    更新日期:2004-03-01 00:00:00

  • Managing the first period at home with a newborn: a grounded theory study of mothers' experiences.

    abstract:AIM:The article aims to present a theoretical account of mothers' first period at home with their newborn in Norway. BACKGROUND:Mothers' well-being affects their babies and is therefore an important priority for public health. Early discharge after childbirth is common in many countries. In Norway, this has been pract...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2012.00974.x

    authors: Hjälmhult E,Lomborg K

    更新日期:2012-12-01 00:00:00

  • Meaning of dependency on care as narrated by nurses.

    abstract::This article is part of an ongoing study aimed at illuminating the meaning of dependency on care. The aim of this particular study is to illuminate the meaning of the phenomenon 'dependency on care' as narrated by nurses. Interviews with 20 nurses were conducted, tape-recorded and transcribed verbatim. A phenomenologi...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1046/j.1471-6712.2003.00213.x

    authors: Strandberg G,Jansson L

    更新日期:2003-03-01 00:00:00

  • The 'good mother'--a comparative study of Swedish, Italian and American maternal behavior and goals.

    abstract::This paper is based on a comparative, psychologically informed ethnographic study of maternal goals and infant care during the first year of life for 20 mothers and infants in each of three Western settings: Stockholm, Sweden, outside Rome, Italy, and suburban Boston, in the United States. Two research questions were ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1994.tb00233.x

    authors: Welles-Nyström B,New R,Richman A

    更新日期:1994-01-01 00:00:00