Identifying the needs of brain tumor patients and their caregivers.


:The purpose of this study is to identify the needs of brain tumor patients and their caregivers to provide improved health services to these populations. Two different questionnaires were designed for patients and caregivers. Both questionnaires contained questions pertaining to three realms: disease symptoms/treatment, health care provider, daily living/finances. The caregivers' questionnaires contained an additional domain on emotional needs. Each question was evaluated for the degree of importance and satisfaction. Exploratory analyses determined whether baseline characteristics affect responder importance or satisfaction. Also, areas of high agreement/disagreement in satisfaction between the participating patient-caregiver pairs were identified. Questions for which >50% of the patients and caregivers thought were "very important" but >30% were dissatisfied include: understanding the cause of brain tumors, dealing with patients' lower energy, identifying healthful foods and activities for patients, telephone access to health care providers, information on medical insurance coverage, and support from their employer. In the emotional realm, caregivers identified 9 out of 10 items as important but need further improvement. Areas of high disagreement in satisfaction between participating patient-caregiver pairs include: getting help with household chores (P value = 0.006) and finding time for personal needs (P value < 0.001). This study provides insights into areas to improve services for brain tumor patients and their caregivers. The caregivers' highest amount of burden is placed on their emotional needs, emphasizing the importance of providing appropriate medical and psychosocial support for caregivers to cope with emotional difficulties they face during the patients' treatment process.


J Neurooncol


Parvataneni R,Polley MY,Freeman T,Lamborn K,Prados M,Butowski N,Liu R,Clarke J,Page M,Rabbitt J,Fedoroff A,Clow E,Hsieh E,Kivett V,Deboer R,Chang S




Has Abstract


2011-09-01 00:00:00












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    abstract:PURPOSE:White matter changes (WMCs) can develop following systemic chemotherapy in patients with primary central nervous system lymphomas (PCNSLs), but the frequency and extent of these changes is not well characterized. This single center retrospective semi-quantitative study was performed to determine the rate, timin...

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    更新日期:2019-12-01 00:00:00

  • Metabolic manipulation of glioblastoma in vivo by retrograde microdialysis of L-2, 4 diaminobutyric acid (DAB).

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    pub_type: 临床试验,杂志文章


    authors: Bergenheim AT,Roslin M,Ungerstedt U,Waldenström A,Henriksson R,Ronquist G

    更新日期:2006-12-01 00:00:00

  • Malignant intracranial epithelioid hemangioendothelioma presumably originating from the lung: case report.

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    pub_type: 杂志文章,评审


    authors: Endo T,Su CC,Numagami Y,Shirane R

    更新日期:2004-05-01 00:00:00

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    pub_type: 杂志文章


    authors: Kazimer RM,Whisler RL,Stephens RE,Pearl DK,Yates AJ

    更新日期:1989-07-01 00:00:00

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    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章


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    更新日期:2008-11-01 00:00:00

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    pub_type: 杂志文章


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    更新日期:2016-12-01 00:00:00

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    authors: Kaulen LD,Karschnia P,Dietrich J,Baehring JM

    更新日期:2020-08-01 00:00:00

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    authors: Epis MR,Giles KM,Candy PA,Webster RJ,Leedman PJ

    更新日期:2014-01-01 00:00:00

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    authors: Prada F,Sheybani N,Franzini A,Moore D,Cordeiro D,Sheehan J,Timbie K,Xu Z

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    authors: Lazareff JA,Gupta RK,Alger J

    更新日期:1999-02-01 00:00:00

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    journal_title:Journal of neuro-oncology

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    authors: de Groot JF,Piao Y,Lu L,Fuller GN,Yung WK

    更新日期:2008-06-01 00:00:00

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    authors: Mason M,Maurice C,McNamara MG,Tieu MT,Lwin Z,Millar BA,Menard C,Laperriere N,Milosevic M,Atenafu EG,Mason W,Chung C

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    authors: Lombardi G,Bellu L,Pambuku A,Della Puppa A,Fiduccia P,Farina M,D'Avella D,Zagonel V

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    更新日期:2011-05-01 00:00:00

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    authors: Richter A,Jenewein J,Krayenbühl N,Woernle C,Bellut D

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    authors: Scrideli CA,Carlotti CG Jr,Mata JF,Neder L,Machado HR,Oba-Sinjo SM,Rosemberg S,Marie SK,Tone LG

    更新日期:2007-07-01 00:00:00

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    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章


    authors: Xu Z,Yen CP,Schlesinger D,Sheehan J

    更新日期:2011-08-01 00:00:00

  • Long-term survivors of glioblastoma multiforme: clinical and molecular characteristics.

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    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章


    authors: Morita M,Rosenblum MK,Bilsky MH,Fraser RA,Rosenfeld MR

    更新日期:1996-03-01 00:00:00

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    pub_type: 杂志文章


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    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章,多中心研究


    authors: Czarnek N,Clark K,Peters KB,Mazurowski MA

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    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章,已发布勘误


    authors: Wee CW,Kim IH,Park CK,Kim N,Suh CO,Chang JH,Lim DH,Nam DH,Kim IA,Kim CY,Oh YT,Chung WK,Kim SH

    更新日期:2020-05-01 00:00:00

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    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章


    authors: Joshi S,Singh-Moon RP,Wang M,Chaudhuri DB,Holcomb M,Straubinger NL,Bruce JN,Bigio IJ,Straubinger RM

    更新日期:2014-05-01 00:00:00

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    abstract::Brain metastasis often has a poor prognosis in patients with advanced non-small cell lung cancer (NSCLC). Therefore, it is urgent to identify factors associated with lung cancer brain metastasis. Metastasis associated lung adenocarcinoma transcript 1 (MALAT1) also known as noncoding nuclear-enriched abundant transcrip...

    journal_title:Journal of neuro-oncology

    pub_type: 杂志文章


    authors: Shen L,Chen L,Wang Y,Jiang X,Xia H,Zhuang Z

    更新日期:2015-01-01 00:00:00