Abstract:
PURPOSE:To create a data management system that: (1) standardizes antecedent, program, and outcome variables relevant to the shared goals of adolescent-oriented maternity programs while allowing users to add variables pertaining to unique aspects of their work; (2) cues providers to physiologic and psychosocial characteristics that predispose teenagers to adverse pregnancy and parenting outcomes, (3) standardizes patient care by guiding providers through adolescent-oriented prenatal, postpartum, and well baby visits, and (4) establishes the infrastructure to collect data from a nationally representative sample of pregnant and parenting teens. METHOD:We adapted a powerful, state-of-the-art relational database framework (Microsoft Access 2000) to create an easy-to-use data management system-The Electronic Report on Adolescent Pregnancy (ERAP)-that requires minimal training to use on a personal computer. RESULTS:ERAP is designed to meet the administrative and analytic needs of adolescent-oriented maternity programs. It consists of six linked core data tables (teen, pregnancy, prenatal visits, child, interconception interval, and interconception interval visits), that allow users to analyze data from these multiple views while preserving the family structure. In addition, the database standardizes methods for collecting and storing the information and automatically computing the variables needed to monitor and evaluate an adolescent-oriented maternity program. Since by adding variables and appending supplementary tables, users can modify the core database to accommodate unique aspects of their programs and/or research, ERAP is also an ideal conduit for translating research findings into clinical practice. Similarly, because ERAP actually structures the care patients receive, the database provides the infrastructure needed to develop and implement best practice guidelines for treating teen-headed families. Finally, the confidentiality of all subject data is assured because ERAP is password-protected and automatically prepares files for batched external analyses by removing personal identifiers. CONCLUSIONS:ERAP provides the infrastructure needed to create a teen-pregnancy databank at the national level and an efficient patient monitoring system at the program level. By standardizing variable definitions and data collection techniques, serving as a repository for data collected at multiple sites, and tracking the multidisciplinary aspects of the care patients receive, ERAP has the potential to facilitate collaboration between adolescent-oriented maternity programs, increase the scientific rigor of teen pregnancy research, and improve the quality of care individual teen-headed families receive by prompting compliance with best practice guidelines.
journal_name
J Pediatr Adolesc Gynecoljournal_title
Journal of pediatric and adolescent gynecologyauthors
Sheeder J,Scott S,Stevens-Simon Cdoi
10.1016/j.jpag.2004.07.005subject
Has Abstractpub_date
2004-10-01 00:00:00pages
341-6issue
5eissn
1083-3188issn
1873-4332pii
S1083-3188(04)00154-8journal_volume
17pub_type
杂志文章abstract:BACKGROUND:Alkaline batteries are known to cause caustic burns to the esophagus when ingested. We report a case of alkaline burns to the vagina. CASE:A 13-year-old female presented to the Emergency Department with abdominal pain. She was admitted for necrotic vaginal burns after batteries were removed from her vagina....
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2008.10.009
更新日期:2009-10-01 00:00:00
abstract:STUDY OBJECTIVE:To characterize menstrual health issues and their effect in young women with Angelman syndrome (AS). Our secondary objective was to compare them with young women with autism spectrum disorders (ASDs). DESIGN:Cross-sectional convenience sample survey. SETTING:An institutional review board-approved Web-...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2015.12.004
更新日期:2016-08-01 00:00:00
abstract:STUDY OBJECTIVE:Intrauterine device (IUD) utilization in the United States is low among adolescent and young adult women. Longer procedure duration has been proposed as one potential barrier to IUD insertion in this population. We hypothesized that procedure duration would be longer in adolescents compared to young adu...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1016/j.jpag.2019.01.002
更新日期:2019-06-01 00:00:00
abstract:STUDY OBJECTIVE:Education materials detailing fertility preservation options geared towards pediatric oncology patients are inadequately available, particularly materials that are culturally tailored. An English language pediatric fertility preservation brochure was developed in 2011, and given the significance of fami...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2013.10.004
更新日期:2014-08-01 00:00:00
abstract:STUDY OBJECTIVE:To develop and evaluate an educational activity designed to teach the adolescent Home, Education and employment, Eating, Activities, Drugs, Sexuality, Suicide/depression, and Safety (HEADS) examination. DESIGN, SETTING, PARTICIPANTS, INTERVENTIONS, AND MAIN OUTCOME MEASURES: Participants were third-year...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2017.11.003
更新日期:2018-04-01 00:00:00
abstract:BACKGROUND:A case of vaginal endodermal sinus (yolk sac) tumor resulting in hydrometra in a 9-month-old female infant is reported. CASE:The patient presented with an intermittent bloody discharge on her diapers and a lower abdominal mass on palpation. Multidetector-row computed tomography showed an irregular, dense so...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2009.10.005
更新日期:2010-06-01 00:00:00
abstract:OBJECTIVE:Female childhood cancer survivors are at an increased risk of reproductive health impairment. We compared reproductive health outcomes with the recommended standard in a cohort of childhood cancer survivors. STUDY DESIGN AND PARTICIPANTS:A retrospective chart review of 222 female childhood cancer survivors a...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2014.05.012
更新日期:2015-04-01 00:00:00
abstract:BACKGROUND:Recurrent adnexal torsion rarely affects girls. Various surgical techniques for its prevention are available. We describe a case of recurrent asynchronous bilateral torsions in a prepubertal patient. CASE:An 8-year-old girl first presented with a right adnexal torsion and underwent a laparoscopic untwisting...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,评审
doi:10.1016/j.jpag.2013.01.060
更新日期:2013-06-01 00:00:00
abstract::Over a 2-month period, a 16-yr-old African-American female presented with recurrent episodes of severe, migratory limb pain. Sickle cell C disease was ultimately diagnosed. She adamantly denied sexual activity but was found to be 28 weeks pregnant. Her limb pain was probably triggered by the metabolic and hemodynamic ...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/s1083-3188(01)00149-8
更新日期:2002-04-01 00:00:00
abstract:BACKGROUND:Embryonal rhabdomyosarcoma, the most common soft tissue malignancy in childhood, is treated with surgery and chemotherapy. Because of the young age at the time of presentation, a discussion of future reproduction is appropriate and conservative management should be considered. We present a case of embryonal ...
journal_title:Journal of pediatric and adolescent gynecology
pub_type:
doi:10.1016/j.jpag.2020.03.004
更新日期:2020-10-01 00:00:00
abstract:STUDY OBJECTIVE:Long-acting reversible contraceptive (LARC) methods are the most effective forms of reversible contraception but adolescents often opt for other, less effective methods. In this study we explored how adolescents viewed LARC as an innovation to be adopted or rejected, and how their assessment of innovati...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2016.11.005
更新日期:2017-08-01 00:00:00
abstract:PURPOSE:To assess resident physicians' clinical recognition skills in Pediatric and Adolescent Gynecology. MATERIALS:1) A questionnaire to identify demographic data and self-assessment as to the ability to perform a gynecologic evaluation of children. 2) Twenty color photographs of normal genitalia and common gynecolo...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/s1083-3188(96)70004-9
更新日期:1996-02-01 00:00:00
abstract:STUDY OBJECTIVE:The purpose of this study was to understand how health care providers use and distribute oral contraceptive pill (OCP) sample packs to adolescents. DESIGN:Qualitative study involving face-to-face structured interviews. SETTING:Interviews lasted approximately 20-30 minutes and were done in the health c...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/s1083-3188(00)00046-2
更新日期:2000-08-01 00:00:00
abstract:BACKGROUND:Although paratubal cysts are common, borderline paratubal cysts are extremely rare. We describe the case of a large borderline paratubal cyst in a 17-year-old adolescent female treated with laparo-endoscopic single-site surgery (LESS), and review the literature. CASE:A 17-year-old female was referred due to...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,评审
doi:10.1016/j.jpag.2014.07.012
更新日期:2016-02-01 00:00:00
abstract:OBJECTIVE:To investigate the effects of 4-month treatment of medroxyprogesterone acetate (MPA) and Diane-35 on the clinical and biochemical features of hyperandrogenism and quality of life of adolescent girls with polycystic ovarian syndrome (PCOS). DESIGN:A prospective, randomized, cross-over study. SETTING:An accre...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.jpag.2013.09.011
更新日期:2014-06-01 00:00:00
abstract:STUDY OBJECTIVE:To determine pelvic inflammatory disease (PID) incidence and recurrence rates in an urban teen clinic. DESIGN/SETTING:A retrospective chart review of female patients seen as outpatients over an 18-month period at an urban teen clinic. 192 patients were diagnosed with PID, and the charts of these patien...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2004.09.017
更新日期:2004-12-01 00:00:00
abstract:STUDY OBJECTIVES:To assess the effectiveness of fennel on primary dysmenorrhea symptoms and menorrheal duration. DESIGN:Clinical trial study. SETTING:Islamic Azad University, Toyserkan. PARTICIPANTS:80 female students were randomly divided in to two groups of intervention (n = 40) and control (n = 40). INTERVENTION...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.jpag.2013.12.003
更新日期:2014-10-01 00:00:00
abstract:BACKGROUND:A rare disorder of sex development is 45,X/46,XY mosaicism, which is phenotypically very heterogenous, ranging from normal male (or female) to that of genital ambiguity of varying degrees. CASE:We report a case of a neonate with 45,X/46,XY mosaicism and hydrocolpos, and we point out the dilemma and the diff...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2018.09.001
更新日期:2019-02-01 00:00:00
abstract::The proportion of child and adolescent obesity in the United States has dramatically increased over the past few decades, challenging public health strategies and medical needs of the individual. The medical consequences of obesity include metabolic syndrome, polycystic ovary syndrome, and cardiovascular disease. Ther...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,评审
doi:10.1016/j.jpag.2010.08.017
更新日期:2011-04-01 00:00:00
abstract:BACKGROUND:Giant paratubal cysts are rare lesions that can present management challenges due to their enormous size. We present a modified minimally invasive approach for effective surgical management of giant paratubal cysts. CASE:A 19-year-old adolescent with worsening abdominal distention and metrorrhagia was diagn...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,评审
doi:10.1016/j.jpag.2014.11.002
更新日期:2015-10-01 00:00:00
abstract:BACKGROUND:Ewing sarcoma is considered to have a poor prognosis. Recent advances in multidisciplinary management have resulted in a marked improvement in long-term survival. CASE:We describe a case of successful pregnancy in a patient who underwent sacrectomy combined with multi-agent chemotherapy and radiotherapy for...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,评审
doi:10.1016/j.jpag.2014.06.009
更新日期:2015-06-01 00:00:00
abstract:STUDY OBJECTIVE:To learn the relationship between X;autosome chromosome translocation and hypoplastic external genitalia. BACKGROUND:An X;autosome translocation usually presents with phenotypic features similar to Turner syndrome. PARTICIPANTS:We present three female siblings and their mother with X;autosome transloc...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/s1038-3188(99)00011-x
更新日期:1999-08-01 00:00:00
abstract:STUDY OBJECTIVE:To investigate the attitudes and practices of cystic fibrosis (CF) providers toward sexual and reproductive health (SRH) care in young women with CF. DESIGN, SETTING, PARTICIPANTS, AND INTERVENTIONS:Adult and pediatric US CF providers were sent an online survey exploring their attitudes toward SRH impo...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2017.01.009
更新日期:2017-10-01 00:00:00
abstract:PURPOSE:Despite hypothesized relationships between lack of partner support during a woman's pregnancy and adverse birth outcomes, few studies have examined partner support among teens. We examined a potential proxy measure of partner support and its impact on adverse birth outcomes (low birth weight (LBW), preterm birt...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2013.08.002
更新日期:2014-02-01 00:00:00
abstract:STUDY OBJECTIVE:To identify clinical features associated with primary ovarian insufficiency (POI) and collect data on the evaluation and treatment received. DESIGN:Retrospective chart review. Data were abstracted on etiology of POI, history, laboratory evaluation, imaging results, return for clinical care, and treatme...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2017.07.005
更新日期:2018-02-01 00:00:00
abstract:STUDY OBJECTIVE:Polycystic ovarian syndrome (PCOS) is a major endocrine disorder afflicting women of reproductive age group. Women with PCOS suffer from depressive and anxiety disorders and they are more likely to be depressed compared to healthy women. However, no studies have assayed the perception of the clinical ma...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2013.04.005
更新日期:2013-10-01 00:00:00
abstract:STUDY OBJECTIVE:To document an unusual presentation of a pure Sertoli Cell tumor. DESIGN:Case report. RESULTS:We present a 10-year-old female who presented with abdominal pain and diarrhea with no symptoms of puberty. Surgical exploration revealed a metastatic pure Sertoli Cell tumor, which was treated with resection...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2007.04.009
更新日期:2007-08-01 00:00:00
abstract:BACKGROUND:The number of adolescents who are prescribed hormonal contraception (HC) for contraceptive and noncontraceptive indications is increasing. Approximately 1 of 4 female adolescents will use some form of HC by age 19 years. Venous thromboembolism (VTE) is a rare, but life-threatening complication associated wit...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章,评审
doi:10.1016/j.jpag.2015.05.007
更新日期:2016-10-01 00:00:00
abstract:STUDY OBJECTIVE:To determine follow-up rates for adolescent patients who underwent medical abortion compared with adult patients, identify patient factors associated with follow-up, and evaluate contraceptive choices at the time of follow-up. DESIGN, SETTING, AND PARTICIPANTS:A retrospective cohort study of adolescent...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2019.04.006
更新日期:2019-08-01 00:00:00
abstract:STUDY OBJECTIVE:To investigate an association between pubertal development and timing of menarche with glycemic control, disease duration, and body mass index (BMI) in patients diagnosed with diabetes mellitus type 1 (DM1) before puberty. DESIGN:Retrospective study. SETTING:The study was performed at the diabetes out...
journal_title:Journal of pediatric and adolescent gynecology
pub_type: 杂志文章
doi:10.1016/j.jpag.2014.08.009
更新日期:2015-02-01 00:00:00