Health-related quality of life among siblings of kidney transplant recipients.

Abstract:

:Studies are increasingly recognizing health-related quality of life (HRQOL) as a key pediatric outcome in both clinical and research settings and an essential health outcome measure to assess the effectiveness of medical treatment. However, it has not yet been studied among the healthy siblings of kidney transplant recipients. The aim of this study, therefore, is to examine HRQOL among this population. We asked the following three groups to complete a validated measure of HRQOL among children (KIDSCREEN-52): siblings of children who had received kidney transplants (n = 50), kidney transplant recipients (n = 43), and a healthy control group (n = 84). We found that siblings of kidney transplant patients exhibited lower scores for financial resources and autonomy than kidney transplant recipients. They also served lower on physical well-being, financial resources, autonomy, and parent relations/home life than the control group. However, they scored higher on social acceptance than kidney transplant recipients. Our study underscores the importance of assessing HRQOL in families including a child diagnosed with a chronic illness. Siblings require social and psychological support to promote coping and adaptation.

journal_name

Pediatr Transplant

authors

Velasco J,Ferraris JR,Eymann A,Ghezzi LFR,Coccia PA,Ferraris V

doi

10.1111/petr.13734

subject

Has Abstract

pub_date

2020-08-01 00:00:00

pages

e13734

issue

5

eissn

1397-3142

issn

1399-3046

journal_volume

24

pub_type

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