Abstract:
AIMS:To explore the concerns and experiences of parents of children scheduled to receive allogeneic haematopoietic stem cell transplantation. DESIGN:A qualitative secondary analysis of interview data from an intervention study. METHODS:A total of 28 parents (4 fathers and 24 mothers) were recruited from a children's hospital, which performs approximately one-third of all paediatric haematopoietic stem cell transplantation cases in Taiwan. Data were collected between September 2015-August 2018 by one researcher with face-to-face interviews, which were tape-recorded and transcribed verbatim. The data were analysed using inductive content analysis to extract the main themes. RESULTS:Five themes describing parental concerns prior to paediatric haematopoietic stem cell transplantation were identified: the child became their first priority, seeking solutions, an interweaving of hope and uncertainty, grateful for the chance of a cure and the long road to recovery. CONCLUSION:Understanding the concerns and experiences of our participants as they navigated the pre-transplantation period could reduce parents' uncertainty and improve the care of their child. IMPACT:These experiences provide information that could be used by healthcare professionals to develop support interventions and strategies tailored to the individual needs of each parent, which could prepare parents for their child's haematopoietic stem cell transplantation. :目的: 探讨计划接受异基因造血干细胞移植的患儿家长的顾虑与经历。 设计: 对介入治疗研究中的访谈数据进行定性的二次分析。 方法: 从某儿童医院招募28位家长(4位父亲,24位母亲),约占台湾儿童造血干细胞移植病例的1/3。收集于2015年9月至2018年8月期间的数据,由一名研究人员进行面对面访谈,录音并完成文字转录。采用归纳内容分析法对数据进行分析以摘录主旨内容。 结果: 确定了儿童造血干细胞移植前家长关心的五个主题:围着孩子的病情转,寻求解决办法,希望与不确定感的交替,感恩获得治愈的机会以及漫长的康复之路。 结论: 了解受试者在移植前的顾虑和经历,可以减少家长的不确定感,改进对孩子的照顾。 影响: 这些经历提供的信息可供医疗专业人员用于制定针对每个父母个人需求的支持性介入治疗和策略,帮助父母做好为孩子移植造血干细胞的准备。.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Liu YM,Wen YC,Weng PY,Jaing TH,Chen SHdoi
10.1111/jan.14386subject
Has Abstractpub_date
2020-07-01 00:00:00pages
1737-1745issue
7eissn
0309-2402issn
1365-2648journal_volume
76pub_type
杂志文章abstract::Research in nurses' communications has concentrated on nurse to patient interactions. Those few studies which focus on nurse to nurse communications seem to be generated by a pragmatic and normative concern with effective information sharing. In this paper, which describes one aspect of a larger case study of a hospit...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1988.tb01415.x
更新日期:1988-03-01 00:00:00
abstract::In this paper, the author attempts to describe, through human ecology, the theoretical origins of healthy lifestyles in people of all societies followed by an exploration of how such lifestyles can be replaced by unhealthy ones. He has identified physical and mental injury, disease or illness, as the causes of these u...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1991.tb01658.x
更新日期:1991-03-01 00:00:00
abstract::Nurse education has been transformed over the last decade and continuing change is likely. Nurse educators are responsible for meeting the quality assurance standards of local stakeholders and student retention and progress are important aspects of this process. As part of a monitoring exercise, an enquiry was set up ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1999.01175.x
更新日期:1999-10-01 00:00:00
abstract:AIM:This study explores the current state of collaboration and communication between nurses and general practitioners in nursing homes, as well as needs and expectations of nursing home residents and their families. Finally, we aim to develop a new model of collaboration and communication. BACKGROUND:Rising numbers of...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,多中心研究
doi:10.1111/jan.12545
更新日期:2015-02-01 00:00:00
abstract:AIMS:The aim of this study was to compare across different service configurations the acceptability of containment methods to acute ward staff and the speed of initiation of manual restraint. BACKGROUND:One of the primary remits of acute inpatient psychiatric care is the reduction in risks. Where risks are higher than...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13197
更新日期:2017-04-01 00:00:00
abstract:AIM:To explore from a personal and historical perspective key career trends of UK graduate nurses qualifying between 1970 and 1989. BACKGROUND:During the 1970s and 1980s, graduate nurses qualifying from UK academic institutions with nursing and degree qualifications were a controversial minority. Concerns about their ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2002.02362.x
更新日期:2002-10-01 00:00:00
abstract:AIM:To report the first large-scale realistic nurse-led implementation, optimization and evaluation of a complex children's continuing-care policy. BACKGROUND:Health policies are increasingly complex, involve multiple Government departments and frequently fail to translate into better patient outcomes. Realist methods...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12169
更新日期:2014-01-01 00:00:00
abstract:AIMS:The purpose of this investigation is to describe Scottish health visitors (HVs) experience of changes in their work and compare these with their Norwegian counterparts. BACKGROUND:The renewed emphasis on community health care, health promotion and illness prevention is a strong reason to focus on health visiting ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2001.01764.x
更新日期:2001-05-01 00:00:00
abstract:AIM:This paper is a report of a study to explore nurses' perceptions of health promotion and health education practice in a Chinese provincial hospital. BACKGROUND:Health promotion and health education practices are based on universal constructs. Therefore, such practices should share common principles. To date, most ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2007.04479.x
更新日期:2008-01-01 00:00:00
abstract::An unanticipated finding of a small exploratory study of the health of never-married women in old age is discussed. Focused conversational interviews yielded evidence of the potent effect the mother-daughter relationship had in a group of women who had lived for all their adult lives in the parental home. Usually moth...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1992.tb01856.x
更新日期:1992-11-01 00:00:00
abstract:AIMS:The aims of this paper are to: (1) describe work characteristics that nurse faculty report encourage them to remain in or leave their academic positions; and (2) determine if there are generational differences in work characteristics selected. BACKGROUND:Nurse faculty play key roles in preparing new nurses and gr...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12582
更新日期:2015-05-01 00:00:00
abstract::Patients' sexual concerns and problems are a focus for nursing care. Research studies with nurses, patients and healthy adults support this assertion. However, investigations also identify that specific teaching, supporting and/or counselling interventions aimed at managing the effects of illness and treatment on sexu...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1046/j.1365-2648.1993.18081219.x
更新日期:1993-08-01 00:00:00
abstract:AIM:This paper reports a study to examine the effectiveness of a 12-session mutual support group for Chinese families caring for a relative with schizophrenia compared with a psycho-educational group and routine family support services in Hong Kong. BACKGROUND:Schizophrenia is a disruptive and distressing illness for ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,随机对照试验
doi:10.1111/j.1365-2648.2005.03545.x
更新日期:2005-09-01 00:00:00
abstract::Considerable attention has focused on describing ethical issues that critical care nurses face in their practice: however, less attention has been directed at describing the process of ethical decision-making. Systematic research linking aspects of ethical-decision making and stress is lacking. This cross-sectional st...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1997.00418.x
更新日期:1997-11-01 00:00:00
abstract:AIMS:To explore the impact of bracing on the perceptions of body image, happiness and satisfaction of adolescents with scoliosis. DESIGN:The study was designed as compare of 134 girls and 16 boys who wore a Boston type brace for scoliosis treatment and a control group of 99 healthy girls and 51 healthy boys. All them ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2001.01900.x
更新日期:2001-09-01 00:00:00
abstract:AIM:The aim of this study was to explore the experience of loneliness among frail older people living at home. BACKGROUND:Loneliness is a threat to the physical and psychological well-being with serious consequences if left unattended. There are associations between frailty and poor psychological well-being, implying ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12853
更新日期:2016-03-01 00:00:00
abstract:AIM:To provide an overview, summary of key features and evaluation of usefulness of six evidence-based practice models frequently discussed in the literature. BACKGROUND:The variety of evidence-based practice models and frameworks, complex terminology and organizational culture challenges nurses in selecting the model...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1111/j.1365-2648.2012.06122.x
更新日期:2013-05-01 00:00:00
abstract::The use of the two principle types of reality orientation with the confused elderly has been the subject of research by nurses, psychiatrists and psychologists. Reviews of this research suggest that the effects of these therapies on patient outcomes are extremely limited. However, a number of writers advocate their us...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1988.tb00559.x
更新日期:1988-11-01 00:00:00
abstract:AIM:This paper is a report of an investigation into the factors associated with laxative-taking by older people in care homes. BACKGROUND:Constipation is a common source of discomfort, pain and morbidity for care home residents, and laxative-taking is prevalent. Differences in the extent to which older people suffer f...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2010.05297.x
更新日期:2010-06-01 00:00:00
abstract:AIM:The aim of the study was to explore the menopausal symptom experience of White midlife women. BACKGROUND:Recent cross-cultural investigations have indicated important ethnic differences in menopausal symptoms and have challenged the universality of these symptoms. Currently available cultural knowledge on menopaus...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2008.04624.x
更新日期:2008-06-01 00:00:00
abstract:AIM:The aim of this study was to explore the information needs of parents of infants with an intellectual disability in the first year of life. BACKGROUND:Parents whose infant has an intellectual disability need access to information if they are to facilitate optimal care for their child. A lack of timely, accurate in...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13321
更新日期:2017-11-01 00:00:00
abstract::People who suffer from long term mental illness may be vulnerable to loneliness and isolation when living in community settings. Befriending by volunteers may be an effective way of combating such problems and helping clients to develop social networks. The findings of a small scale project to evaluate the views of pe...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1998.00618.x
更新日期:1998-04-01 00:00:00
abstract:BACKGROUND:A tool to assist in optimal allocation of available nursing resources is of paramount importance. AIMS:The goals of this study were as follows: (1) to determine whether the standard time values of the Belgian Nursing Minimum Dataset are a valid basis for the development of a Workload Indicator for Nursing; ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12232
更新日期:2014-03-01 00:00:00
abstract:AIM:Drawing upon the selected findings from a multidisciplinary study that sought to explore the meaning of master's level performance in health professional practice, the characteristics which nurse educators attributed to the practice of master's level nursing graduates are analysed to reveal underlying discourses. ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2001.01791.x
更新日期:2001-06-01 00:00:00
abstract::This paper discusses the Verbal Protocol technique as presently used in the fields of psychology and computer sciences. It proposes that the technique is an appropriate design tool for studying clinical reasoning in many nursing contexts. An example is given, taken from a pilot study of a larger research project, of t...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1989.tb01518.x
更新日期:1989-12-01 00:00:00
abstract::Clients suffering from the fasting and gorging syndromes of anorexia and bulimia nervosa are at significant risk of self-harm even if treated with apparent success in hospital. Two major issues (not inevitably co-existing) appear to be at work in these illnesses; distorted perception by the sufferer of his or her own ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1993.18030364.x
更新日期:1993-03-01 00:00:00
abstract::Eight first-time and eight second-time working class mothers were observed interacting with their newborn babies during the first half-hour of life. In all cases the father was present for at least some of this period. The interactions were notable for their passivity, mothers looked for long periods at their babies a...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1981.tb03222.x
更新日期:1981-07-01 00:00:00
abstract:AIM:This paper is a report of a study to explore nurses' competence as revealed during an admission assessment. BACKGROUND:Studies of nursing competence and of models of competence have become virtually synonymous with the five-stage developmental model applied to nursing by Benner. However, the model has been critici...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2007.04543.x
更新日期:2008-03-01 00:00:00
abstract:AIM:To test the Rapid Response Systems programme theory against actual practice components of the Rapid Response Systems implemented to identify those contexts and mechanisms which have an impact on the successful achievement of desired outcomes in practice. BACKGROUND:Rapid Response Systems allow deteriorating patien...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13367
更新日期:2017-12-01 00:00:00
abstract:AIMS:To clarify the subgroups of overtime work motivations and to determine how fatigue, mental status, and work engagement differ among the subgroups. DESIGN:Cross-sectional. METHODS:Questionnaires were distributed to 1,075 full-time nurses working in four hospitals in Japan from October 2015 - February 2016. Nurses...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13991
更新日期:2019-10-01 00:00:00