Abstract:
:Compared with data that is initially collected for research purposes, the mandatory authorization of a government database for secondary use deserves greater scrutiny because it consists of information that is collected initially for administrative purposes. Using the case of Taiwan's National Health Insurance (NHI) Database as an example, this paper analyzes the ethical issues that emerge when the research participants are "participated" in studies without their consent, according to the current policy. The proponents of secondary use for research purposes maintain that the authorized use of the NHI Database is necessary for public interests, while the opponents argue that the potential lack of democratic accountability and the infringement on people's rights to privacy and information autonomy is unwarranted. Drawing on the solidarity-based approach, this paper proposes a temporal solution as a possible reform direction for better ethical justification of the secondary use of the NHI Database.
journal_name
Dev World Bioethjournal_title
Developing world bioethicsauthors
Yeh MJdoi
10.1111/dewb.12259subject
Has Abstractpub_date
2020-12-01 00:00:00pages
200-208issue
4eissn
1471-8731issn
1471-8847journal_volume
20pub_type
杂志文章abstract::One effect of late capitalism--the commodification of practically everything--is to knock down the Chinese walls between the natural and productive realms, to use a Marxist framework. Women's labour in egg extraction and 'surrogate' motherhood might then be seen as what it is, labour which produces something of value....
journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/1471-8847.00035
更新日期:2002-05-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/1471-8847.00017
更新日期:2001-11-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章,评审
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更新日期:2015-12-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2012.00332.x
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2007.00221.x
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12283
更新日期:2020-08-15 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2010.00292.x
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2007.00200.x
更新日期:2007-08-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 评论,杂志文章
doi:10.1111/j.1471-8847.2006.00141.x
更新日期:2006-05-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12112
更新日期:2017-04-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12034
更新日期:2015-04-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 信件
doi:10.1111/dewb.12276
更新日期:2020-08-02 00:00:00
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journal_title:Developing world bioethics
pub_type: 评论,杂志文章
doi:10.1111/j.1471-8847.2007.00184.x
更新日期:2007-04-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12079
更新日期:2015-08-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2005.00117.x
更新日期:2005-09-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1046/j.1471-8731.2003.00074.x
更新日期:2003-12-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2011.00299.x
更新日期:2011-08-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2010.00284.x
更新日期:2011-04-01 00:00:00
abstract::Currently, health systems research (HSR) is reviewed by the same ethical standards as clinical research, which has recently been argued in the literature to be an inappropriate standard of evaluation. The issues unique to HSR warrant a different review by research ethics committees (RECs), as it does not impose the sa...
journal_title:Developing world bioethics
pub_type: 杂志文章,评审
doi:10.1111/dewb.12117
更新日期:2016-12-01 00:00:00
abstract::Kidney transplantation is a lifesaving medical treatment. However, very high demand for kidneys with low kidney donation causes a black market that exploits patients' desperation and donors' vulnerability. The current kidney donation programs fail to produce promising results to avoid illegal and unethical kidney traf...
journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12192
更新日期:2018-09-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2007.00217.x
更新日期:2008-08-01 00:00:00
abstract:BACKGROUND:This article describes the types of community-wide benefits provided by investigators conducting public health research in South Asia as well as their self-reported reasons for providing such benefits. METHODS:We conducted 52 in-depth interviews to explore how public health investigators in low-resource set...
journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2012.00333.x
更新日期:2012-12-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12289
更新日期:2020-09-03 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12179
更新日期:2018-09-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 历史文章,杂志文章
doi:10.1111/dewb.12198
更新日期:2020-03-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/dewb.12139
更新日期:2018-06-01 00:00:00
abstract::There is little published literature on the ethical concerns of stakeholders in HIV vaccine trials. This study explored the ethical challenges identified by various stakeholders, through an open-ended, in-depth approach. While the few previous studies have been largely quantitative, respondents in this study had the o...
journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2009.00254.x
更新日期:2010-04-01 00:00:00
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journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2009.00267.x
更新日期:2010-12-01 00:00:00
abstract::The objective of this module is to cover ground that was not covered in-depth in any of the other modules, including: scientific misconduct, issues concerning the publication and ownership of research results (authorship guidelines - who is eligible to be considered an author, or contributor to a scientific paper etc....
journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2005.00104.x
更新日期:2005-03-01 00:00:00
abstract::Since the development of assisted reproductive technologies, infertile individuals have crossed borders to obtain treatments unavailable or unaffordable in their own country. Recent media coverage has focused on the outsourcing of surrogacy to developing countries, where the cost for surrogacy is significantly less th...
journal_title:Developing world bioethics
pub_type: 杂志文章
doi:10.1111/j.1471-8847.2009.00257.x
更新日期:2009-12-01 00:00:00