Abstract:
: Background: The aims of this study were to explore, using visual art methodology, how children and adolescents perceive their lymphedema and conceptualize the barriers and enablers in self-management and to explore the role of an educational camp in promoting self-efficacy. Methods: Participants (speaking English, French, and Italian) were recruited during an educational camp for children with lymphedema. Children and adolescents used different methodologies to depict living and self-managing their condition. Younger children (aged 5-12 years) drew pictures, and all children and adolescents (aged 5-18 years) were given cameras and asked to take photographs that depicted their experience of learning self-management of their condition during the camp. Rose's critical visual methodology framework was used for analysis. Results: Analysis of the data produced five categories: Normal versus altered childhood, living with lymphedema; perceptions of lymphedema and self-care in younger children; adolescents' perception of living and managing lymphedema; learning self-efficacy; and insights into cultural differences in self-care. Conclusions: The study has shown that self-management is complex. Children and adolescents face many daily challenges and frustrations in managing their condition in addition to the normal challenges of development and growth that impact on: home life, time with friends, school activities, and relationships. Children expressed a deep longing for cure and a recognition that their lives were altered by having the condition that led to limitations in sport and wearing fashionable clothes and shoes. The importance of relationships with professionals was critical as was the experience of meeting and learning with other children through the camp experience. Attempts to simplify self-management techniques would appear to be a key priority as would a greater understanding of the self-beliefs young people have of their ability to influence and control their condition and its impact on their life.
journal_name
Lymphat Res Bioljournal_title
Lymphatic research and biologyauthors
Moffatt C,Aubeeluck A,Stasi E,Mestre S,Rowan S,Murray S,Quere Idoi
10.1089/lrb.2018.0075subject
Has Abstractpub_date
2019-04-01 00:00:00pages
231-244issue
2eissn
1539-6851issn
1557-8585journal_volume
17pub_type
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journal_title:Lymphatic research and biology
pub_type: 杂志文章
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journal_title:Lymphatic research and biology
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journal_title:Lymphatic research and biology
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journal_title:Lymphatic research and biology
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journal_title:Lymphatic research and biology
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journal_title:Lymphatic research and biology
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journal_title:Lymphatic research and biology
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journal_title:Lymphatic research and biology
pub_type: 杂志文章
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journal_title:Lymphatic research and biology
pub_type: 临床试验,杂志文章,随机对照试验
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更新日期:2017-09-01 00:00:00
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journal_title:Lymphatic research and biology
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更新日期:2019-06-01 00:00:00
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journal_title:Lymphatic research and biology
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更新日期:2020-06-01 00:00:00
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更新日期:2011-01-01 00:00:00
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pub_type: 杂志文章,多中心研究
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更新日期:2018-06-01 00:00:00
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journal_title:Lymphatic research and biology
pub_type: 杂志文章
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更新日期:2019-10-01 00:00:00
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pub_type: 杂志文章
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更新日期:2013-06-01 00:00:00
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pub_type: 杂志文章,评审
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更新日期:2019-04-01 00:00:00
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更新日期:2020-12-01 00:00:00
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journal_title:Lymphatic research and biology
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