Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences.

Abstract:

:Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician-parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.

journal_name

Cardiol Young

journal_title

Cardiology in the young

authors

Neubauer K,Williams EP,Donohue PK,Boss RD

doi

10.1017/S1047951118001233

subject

Has Abstract

pub_date

2018-10-01 00:00:00

pages

1088-1092

issue

10

eissn

1047-9511

issn

1467-1107

pii

S1047951118001233

journal_volume

28

pub_type

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