Abstract:
:Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician-parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.
journal_name
Cardiol Youngjournal_title
Cardiology in the youngauthors
Neubauer K,Williams EP,Donohue PK,Boss RDdoi
10.1017/S1047951118001233subject
Has Abstractpub_date
2018-10-01 00:00:00pages
1088-1092issue
10eissn
1047-9511issn
1467-1107pii
S1047951118001233journal_volume
28pub_type
杂志文章,meta分析,评审abstract::We assessed the thickness of the normal left ventricular wall according to gender by performing two-dimensional echocardiography in children. While a few studies have evaluated left ventricular wall thicknesses in children using two-dimensional echocardiography, there is little information related to the influence of ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/s1047951102000070
更新日期:2002-01-01 00:00:00
abstract:BACKGROUND:There is a great need for echocardiographic criterions for accurate diagnosis of carditis in acute rheumatic fever. AIM:To test the efficacy of proposed echocardiographic criterions for the diagnosis of carditis. MATERIALS AND METHODS:We studied 333 patients suspected of having acute rheumatic fever, under...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951108003107
更新日期:2008-12-01 00:00:00
abstract::Only few reports have described successful simultaneous transcatheter intervention for CHD in infants. We present an infant with secundum atrial septal defect complicated by valvular pulmonary stenosis. Percutaneous transcatheter pulmonary valvuloplasty was performed first, followed by transcatheter closure of the sec...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951118000896
更新日期:2018-10-01 00:00:00
abstract:BACKGROUND:Anomalous left coronary artery from the pulmonary artery is a rare congenital heart disease (CHD) with diverse clinical presentations despite the same anatomy. Factors determining this heterogeneous presentation are not well understood. METHOD AND RESULTS:We retrospectively investigated 14 patients (12 fema...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951119003299
更新日期:2020-03-01 00:00:00
abstract:OBJECTIVE:We aimed to apply systems engineering principles to address hospital-acquired infections in the paediatric intensive care setting. DESIGN:Mixed method approach involving four steps: perform time-motion study of cardiac intensive care unit (CICU) care processes, establish a meaningful schema to classify obser...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120003777
更新日期:2020-11-10 00:00:00
abstract::Dysfunction of the autonomic nervous system, or dysautonomia, is an uncommon disease. Postural orthostatic tachycardia syndrome is one of the several types of dysautonomia. Postural orthostatic tachycardia syndrome, also known as chronic orthostatic intolerance, is the most common but least severe of the dysautonomic ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951110001198
更新日期:2010-12-01 00:00:00
abstract::Several surgical approaches for completion of a total cavopulmonary connection have been established for patients with anomalies of systemic venous connection in association with a functionally univentricular heart. We report an alternative technique designed to address the problem of widely separated inferior systemi...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951116001311
更新日期:2017-03-01 00:00:00
abstract:BACKGROUND:Patients with CHD exhibit reduced isometric muscle strength and muscle mass; however, little is known how these parameters relate. Therefore, the aim was to investigate the relation between isometric limb muscle strength and muscle mass for patients in comparison to age- and sex-matched control subjects. ME...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120004709
更新日期:2021-01-18 00:00:00
abstract::The mitral-aortic intervalvular fibrosa is an area of fibrous continuity between the mitral and aortic valves. We present the first case of a congenital pseudoaneurysm in this region, detected prenatally as an isolated cardiac defect, which was followed-up conservatively postnatally. The diagnosis was confirmed by ech...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951117000890
更新日期:2017-05-29 00:00:00
abstract::A 31-year-old patient previously underwent a Mustard operation presented with palpitations. Atrial tachycardia and paroxysmal atrial fibrillation were documented on the surface electrocardiogram. Under the guidance of a three-dimensional electroanatomic mapping system, ablation of the isolated left-sided pulmonary vei...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951114001851
更新日期:2015-08-01 00:00:00
abstract::Infants with hypoplastic left heart syndrome often experience difficulty with oral feeding, which contributes to growth failure, morbidity, and mortality. In response to feeding difficulty, clinicians often change the bottle nipple, and thus milk flow rate. Slow-flow nipples have been found to reduce the stress of fee...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951116000251
更新日期:2017-01-01 00:00:00
abstract::We describe a case of transcatheter occlusion of a large and tortuose coronary artery fistula in an 8-year-old girl. During 2.5 years' of follow-up, she had no complaints and developed normally. This method of reserving the guide wire in cardiac catheterisation is extremely useful. Through the application of a patent ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S104795111000137X
更新日期:2011-02-01 00:00:00
abstract::Correction of tetralogy of Fallot during infancy usually eliminates the risks associated with general anaesthesia. In rare cases of uncorrected defects persisting into adulthood, anaesthetic management during non-cardiac surgery may therefore be challenging. We describe the use of continuous spinal anaesthesia to succ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951119000994
更新日期:2019-06-01 00:00:00
abstract::Noonan's syndrome involves the association of multiple congenital abnormalities, with a variety of cardiac defects. We describe here the association of Noonan's syndrome with multiple pulmonary arteriovenous fistulas and bilateral duplicated renal collecting systems. To the best of our knowledge, this is the first rep...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951107000352
更新日期:2007-04-01 00:00:00
abstract:OBJECTIVES:The aims of this study were to investigate risk factors for the development of postoperative chylothorax following paediatric congenital heart surgery and to investigate the impact of a management guideline on management strategies and patient outcome. METHODS:All patients with chylothorax following cardiac...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951117001731
更新日期:2018-02-01 00:00:00
abstract::We report an unusual case of a 12-month-old boy diagnosed with anomalous origin of a single coronary artery from the pulmonary artery associated with patent ductus arteriosus. The patient survival was attributed to left-to-right shunt (patent ductus arteriosus) allowing for appropriate myocardial perfusion. Successful...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120001328
更新日期:2020-07-01 00:00:00
abstract:INTRODUCTION:We evaluated the safety and feasibility of high-intensity interval training via a novel telemedicine ergometer (MedBIKE™) in children with Fontan physiology. METHODS:The MedBIKE™ is a custom telemedicine ergometer, incorporating a video game platform and live feed of patient video/audio, electrocardiograp...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120002097
更新日期:2020-10-01 00:00:00
abstract::Right atrial isomerism is associated with complex cardiac malformations, particularly single-ventricle lesions; right atrial isomerism is rarely associated with aorto-pulmonary collateral arteries. We report a foetal diagnosis of right atrial isomerism, with an unbalanced atrioventricular septal defect, pulmonary sten...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120003649
更新日期:2020-11-26 00:00:00
abstract::We describe the case of a 17-year-old male soccer player with T-wave inversion in precordial leads in resting electrocardiography, which also disclosed sinus bradycardia, early repolarization, and increased QRS voltage. These findings strongly suggested cardiomyopathy. The patient's T-wave inversion disappeared during...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951117001287
更新日期:2017-11-01 00:00:00
abstract:OBJECTIVE:Cardiovascular morbidity is high in patients with coarctation of aorta even after successful repair. This study aimed to assess the frequency of late hypertension and the relationship between ambulatory hypertension and cardiovascular target organ damage in children and adolescents after early and successful ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S104795112000205X
更新日期:2020-09-01 00:00:00
abstract:OBJECTIVE:Protein-losing enteropathy is an infrequent but severe condition occurring after Fontan procedure. The multifactorial pathogenesis remains unclear and no single proposed treatment strategy has proven universally successful. Therefore, we sought to describe different treatment strategies and their effect on cl...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120000864
更新日期:2020-05-01 00:00:00
abstract::Plastic bronchitis is a severe complication after a Fontan procedure, with an estimated incidence around 1-2% and poor prognosis. We present the cases of four patients with plastic bronchitis after a total cavopulmonary connection with a stenosis of the left pulmonary artery that was stented successfully. In three of ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951113002163
更新日期:2015-01-01 00:00:00
abstract:OBJECTIVE:The aim of the present study was to determine the role of toxic elements and trace elements in the pathogenesis of conotruncal heart defects by measuring their concentrations in the first meconium specimens of the affected newborns. METHODS:Concentrations of lead, cadmium, iron, zinc, and copper were measure...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951116000536
更新日期:2017-03-01 00:00:00
abstract::We present an example of corrected transposition with twisted discordant atrioventricular connections in which both fetal and postnatal echocardiograms were obtained. We correlate the fetal echocardiograms with the postnatal echocardiograms, placing emphasis on the echocardiographic clues to the diagnosis which were p...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/s1047951100009732
更新日期:2000-10-01 00:00:00
abstract::With the increase in long-term survival of post-transplant children, there is a paradigm shift in the emphasis of post-transplant care. We describe de novo cardiovascular abnormalities, which occurred in otherwise asymptomatic paediatric liver transplant recipients, who received liver allografts between 1991 and 2014 ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S104795111800063X
更新日期:2018-08-01 00:00:00
abstract:BACKGROUND:Providing appropriate care for adults with congenital heart disease requires the evaluation of their current situation. There is limited research in Iran about these patients, particularly in relation to gender differences in the demographic/socio-economic and lifestyle factors, as well as disease parameters...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951112000625
更新日期:2013-04-01 00:00:00
abstract:OBJECTIVE:The policy of early repair of patients with tetralogy of Fallot, irrespective of age, as opposed to initial palliation with a shunt, remains controversial. The aim of our study was to analyze the midterm outcome of primary early correction of tetralogy of Fallot. METHODS:Between 1996 and 2005, a total of 61 ...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951108001960
更新日期:2008-04-01 00:00:00
abstract::Senning operation is a surgical treatment for transposition of great arteries that can be complicated by post-procedural atrial or caval baffle leaks. We present a 6-year-old boy with a history of Senning repair for transposition of great arteries, who developed a pulmonary venous baffle leak. Percutaneous baffle leak...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120002255
更新日期:2020-10-01 00:00:00
abstract::The SARS-CoV-2 (COVID-19) pandemic has challenged our initial predictions of its ramifications, both short and long term. Cardiovascular manifestations of COVID-19 in children remain a topic of investigation as literature is lacking. We describe new onset atrial fibrillation in a child with a history of COVID-19 infec...
journal_title:Cardiology in the young
pub_type: 杂志文章
doi:10.1017/S1047951120003893
更新日期:2020-10-19 00:00:00
abstract::This study was carried out to analyse seasonal variations in live births with congenital heart disease in the overall population of Malta. Included were all patients diagnosed as having congenital heart disease by echocardiography, cardiac catheterization, surgery or post mortem, by 1 year of age, and who were born be...
journal_title:Cardiology in the young
pub_type: 杂志文章,评审
doi:10.1017/s1047951100005205
更新日期:1999-07-01 00:00:00