Omics research ethics considerations.

Abstract:

BACKGROUND:Pending revisions to the Common Rule include topics consistent with respect for persons, justice, and beneficence for research subjects in studies using omics technologies and are relevant to omics research. PURPOSE:Synthesize trends in bioethics, precision health, and omics nursing science for novice and experienced nursing scholars from which to consider bioethics questions. METHODS:Review topics addressed in the National Institute of Nursing Research (NINR) strategic plan, Common Rule pending revisions, and publications regarding human subjects protection policies. DISCUSSION:Omics research involves decisions regarding understandable informed consent, broad consent, data sharing, trust, equal benefit, equal access, societal variables, privacy, data security, and return of findings to participants. CONCLUSION:Principles of respect for persons, justice, and beneficence as articulated in the Belmont report and reflected in the American Nurses Association (ANA) Code of Ethics provide guidance for human subjects protection procedures to advance omics and nursing science.

journal_name

Nurs Outlook

journal_title

Nursing outlook

authors

Williams JK,Anderson CM

doi

10.1016/j.outlook.2018.05.003

subject

Has Abstract

pub_date

2018-01-01 00:00:00

pages

386-393

issue

4

eissn

0029-6554

issn

1528-3968

pii

S0029-6554(18)30061-7

journal_volume

66

pub_type

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