Family-Centered Care and Positive Developmental Outcomes for Youth With Special Health Care Needs: Variations Across Family Structures.

abstract：:The number of medically fragile children cared for at home is increasing; however, there are few studies about the professional support these families receive in their homes. The aim of the study was to understand the meanings that parents had about the support they received from health care professionals who offered ...

journal_title：Journal of family nursing

authors： Lindahl B,Lindblad BM

更新日期：2013-11-01 00:00:00

abstract：:Dignity is an important component of quality of life and a core value of family nursing care. Few studies have explored dignity in community-dwelling adults with dementia. This study used blogs written by caregivers to explore the concept of dignity in dementia caregiving. A template analysis of blogs written by famil...

journal_title：Journal of family nursing

authors： Anderson JG,Bartmess M,Hundt E,Jacelon C

更新日期：2020-12-04 00:00:00

abstract：:The provision of care work by families plays an integral role in the quality of life of older adults living in a nursing home setting. This critical interpretive synthesis examines family members' perceptions of their roles and responsibilities in nursing home settings and interrogates the structural and relational ba...

journal_title：Journal of family nursing

authors： Puurveen G,Baumbusch J,Gandhi P

更新日期：2018-02-01 00:00:00

abstract：:Traditionally, family-focused care extends to parents and siblings of children with life-limiting conditions. Only a few studies have focused on the needs of grandparents, who play an important role in the families of children with illness and with life-limiting conditions, in particular. Interpretative phenomenologic...

journal_title：Journal of family nursing

authors： Tatterton MJ,Walshe C

更新日期：2019-02-01 00:00:00

abstract：:Maternal postpartum depression (PPD) and mother-infant relationship dysfunction have reciprocal effects on each other and thus an integrated approach that addresses both problems simultaneously may lead to improved outcomes. This study aimed to determine the feasibility, acceptability, and preliminary efficacy of a ne...

journal_title：Journal of family nursing

authors： Goodman JH,Guarino AJ,Prager JE

更新日期：2013-08-01 00:00:00

abstract：:The instrument called Families Importance in Nursing Care-Nurses' Attitudes (FINC-NA) is used to measure nurses' attitudes toward involving families in their nursing care. The aim of this study is to evaluate the FINC-NA scale in a population of Dutch nurses and add new psychometric information to existing knowledge a...

journal_title：Journal of family nursing

authors： Hagedoorn EI,Paans W,Jaarsma T,Keers JC,van der Schans CP,Luttik ML,Krijnen WP

更新日期：2018-11-01 00:00:00

abstract：:Family satisfaction is an important outcome of palliative care and is a critical measure for health care professionals to address when assessing quality of care. The FAMCARE-2 is a widely used measure of family satisfaction with the health care received by both patient and family in palliative care. In this study, a t...

journal_title：Journal of family nursing

authors： D'Angelo D,Punziano AC,Mastroianni C,Marzi A,Latina R,Ghezzi V,Piredda M,De Marinis MG

更新日期：2017-05-01 00:00:00

abstract：:Children's experiences of information and family communication when a parent has a life-threatening illness have been sparsely studied, though such information is important for the child's wellbeing. The aim of this study was to explore children's reports of illness-related information and family communication when li...

journal_title：Journal of family nursing

authors： Eklund R,Kreicbergs U,Alvariza A,Lövgren M

更新日期：2020-05-01 00:00:00

abstract：:The nursing home placement process is complex and difficult for family caregivers. This qualitative descriptive study examines the experiences of caregivers involved in the management of care and placement of an older family member using the Family Management Style Framework. Ten caregivers were recruited from four nu...

journal_title：Journal of family nursing

authors： Koplow SM,Gallo AM,Knafl KA,Vincent C,Paun O,Gruss V

更新日期：2015-08-01 00:00:00

abstract：:Evidence suggests that intergenerational caregiving between mothers and daughters will become increasingly common, and yet, we know very little about the specific relationships between adult daughters and their mothers with dementia. Guided by socialist-feminist theory and a life-course perspective, 15 mother-adult da...

journal_title：Journal of family nursing

authors： Ward-Griffin C,Oudshoorn A,Clark K,Bol N

更新日期：2007-02-01 00:00:00

abstract：:Confucianism is the central philosophic background for much of the culture in East Asia (EA), particularly for understanding family and social context. The purpose of this article is to examine more fully Confucianism as a conceptual framework for understanding EA family processes and health practices. Confucianism st...

journal_title：Journal of family nursing

authors： Park M,Chesla C

更新日期：2007-08-01 00:00:00

abstract：:Health care providers, policy makers, and investigators are dependent upon the quality and accuracy of published research findings to inform and guide future practice and research in their field. Systematic reviews, the synthesis of outcomes across studies are increasingly more common in the family literature; however...

journal_title：Journal of family nursing

authors： Gilliss CL,Pan W,Davis LL

更新日期：2019-02-01 00:00:00

abstract：:This article is the first of a three-part report of a research study that used hermeneutic inquiry to examine the effects of childhood cancer on the relationship between the parents of the child. In Part 1, we identity the topic of investigation and the relevant literature; describe the research question, method, and ...

journal_title：Journal of family nursing

authors： Moules NJ,Estefan A,McCaffrey G,Tapp DM,Strother D

更新日期：2016-11-01 00:00:00

abstract：:The purpose of this report is to describe caregiving by teens for family members with Huntington disease (HD). Thirty-two teens in HD families in the United States and Canada participated in focus groups from 2002 to 2005 in a study to identify concerns and strategies to manage concerns. An unexpected finding was 24 (...

journal_title：Journal of family nursing

authors： Williams JK,Ayres L,Specht J,Sparbel K,Klimek ML

更新日期：2009-08-01 00:00:00

abstract：:The "One Question Question," first coined by Dr. Lorraine M. Wright in 1989, is an interventive question designed to elicit family members' most pressing needs or concerns within the context of a therapeutic conversation. In this article, two clinical projects analyzed the responses to this unique interventive questio...

journal_title：Journal of family nursing

authors： Duhamel F,Dupuis F,Wright L

更新日期：2009-11-01 00:00:00

abstract：:The study aim was to describe displaced Bosnian mothers' experiences caring for their children during and immediately after the war (1992-1995). Mothers described their progression into war, through war, and into vastly changed lives. Using ethnographic methods, narrative data were collected near Sarajevo, Bosnia, fro...

journal_title：Journal of family nursing

authors： Robertson CL,Duckett L

更新日期：2007-11-01 00:00:00

abstract：:The purpose of this project was to examine parents' descriptions of the ways family and friends supported them after they had experienced a perinatal loss. For this project, a secondary analysis of data from two phenomenological studies on perinatal loss was performed. A combined total of 62 interview transcripts from...

journal_title：Journal of family nursing

authors： Kavanaugh K,Trier D,Korzec M

更新日期：2004-02-01 00:00:00

abstract：:The purpose of this secondary analysis was to develop an enhanced understanding of the experiences of parents who have children in treatment for cancer. Data collected from 16 parents (12 mothers and 4 fathers) were analyzed using Frank's dialogical narrative analysis. Findings demonstrated that parents' experiences w...

journal_title：Journal of family nursing

authors： Bally JM,Holtslander L,Duggleby W,Wright K,Thomas R,Spurr S,Mpofu C

更新日期：2014-08-01 00:00:00

abstract：:Families with children who have developmental disabilities and complex communication needs (CCNs) face challenging demands affecting family adaptation. Many children with CCNs use augmentative and alternative communication (AAC) devices to support communication, yet little is known about family adaptation to such tech...

journal_title：Journal of family nursing

authors： West P,Van Riper M,Wyatt G,Lehto R,Douglas SN,Robbins L

更新日期：2020-05-01 00:00:00

abstract：:The lack of family research documenting the changes that occur and the capacity of families to support individuals with chronic pain effectively is a major limitation in the application of the biopsychosocial model of pain. This study investigated the lived experience of older African Americans (N = 18) with chronic p...

journal_title：Journal of family nursing

authors： Booker SQ,Cousin L,Buck HG

更新日期：2019-11-01 00:00:00

abstract：:In this grounded theory study, informed by symbolic interactionism, we explain how nurses, patients, and family members construct relationships in acute care settings, including managing effects of work environments. We recruited participants from 10 acute care units across four community hospitals in a Western Canadi...

journal_title：Journal of family nursing

authors： Segaric CA,Hall WA

更新日期：2015-02-01 00:00:00

abstract：:American Indian (AI) communities experience a disproportionate rate of Type 2 diabetes (T2D) and cumulative exposure to stress. Although this link is well researched among various populations, it has not been examined among AI communities. Path analysis was used to examine a multiple-mediator model to explain how care...

journal_title：Journal of family nursing

authors： Coser A,Sittner KJ,Walls ML,Handeland T

更新日期：2018-11-01 00:00:00

abstract：:End-of-life caregiving is a highly stressful experience often fraught with conflict and tension. However, little is known about the ways family conflict manifests for informal caregivers of home hospice patients (IHCs). Framed by relational dialectics theory, the purpose of this study was to provide nurses and other h...

journal_title：Journal of family nursing

authors： Benson JJ,Parker Oliver D,Demiris G,Washington K

更新日期：2019-05-01 00:00:00

abstract：:This study tested the hypothesis that various components of the stress process model were related to negative outcomes (depression, guilt, negative health) in cancer caregivers. This study also tested the hypothesis that psychosocial resources (mastery, socioemotional support) mediated the relationship between the var...

journal_title：Journal of family nursing

authors： Gaugler JE,Linder J,Given CW,Kataria R,Tucker G,Regine WF

更新日期：2009-11-01 00:00:00

abstract：:Little is known about changes in family life perceived by mothers of young adult survivors of a traumatic brain injury (TBI). A phenomenological method was used to describe the changes that seven mothers of TBI survivors perceived in family life 6 months or more after the TBI. The five basic changes in family life rep...

journal_title：Journal of family nursing

authors： Wongvatunyu S,Porter EJ

更新日期：2008-08-01 00:00:00

abstract：:Many individuals, including dementia caregivers, use blogs to share their experiences. These blogs contain rich narratives representing an untapped resource for understanding the psychosocial impact of caring for a person with dementia at the family level. The present study used blogs written by caregivers of persons ...

journal_title：Journal of family nursing

authors： Anderson JG,Hundt E,Dean M,Keim-Malpass J,Lopez RP

更新日期：2017-02-01 00:00:00

abstract：:The goal of this project was to explore family communication dynamics and their implications for smoking cessation. We conducted 39 in-depth dyadic and individual qualitative interviews with 13 immigrant smoker-family member pairs of Vietnamese ( n = 9 dyads, 18 individuals) and Chinese ( n = 4 dyads, 8 individuals) d...

journal_title：Journal of family nursing

authors： Petersen AB,Tsoh JY,Nguyen TT,McPhee SJ,Burke NJ

更新日期：2016-02-01 00:00:00

abstract：:Individual behavior affects and is affected by other people. The aim of this study was to examine if emotional distress in patients with atrial fibrillation (AF) and their spouses was associated with their own and their partner's perceived health. Participants included 91 dyads of patients and their spouses. Emotional...

journal_title：Journal of family nursing

authors： Dalteg T,Benzein E,Sandgren A,Malm D,Årestedt K

更新日期：2016-08-01 00:00:00

abstract：:This article identifies the burgeoning field of positive psychology as an important extension to the knowledge base of family nursing. Representing a new emphasis from the traditional social and human sciences, which have largely focused on problem- and deficit-based approaches, positive psychology focuses on optimal ...

journal_title：Journal of family nursing

authors： Skerrett K

更新日期：2010-11-01 00:00:00

abstract：:Divorced parents face distinct challenges in providing care for chronically ill children. Children's residence in two households necessitates the development of family-specific strategies to ensure coparents' supervision of regimen adherence and the management of children's health care. Utilizing a risk and resilience...

journal_title：Journal of family nursing

authors： Russell LT,Coleman M,Ganong LH,Gayer D

更新日期：2016-05-01 00:00:00