How HIV patients construct liveable identities in a shame based culture: the case of Singapore.

Abstract:

:This article interrogates the mainstream healthcare narrative that frames human immunodeficiency virus (HIV) as a chronic disease, and triangulates it with the lived experiences of people with HIV in Singapore. It also examines how HIV patients reconstruct their identities after the diagnosis of HIV. Four HIV patients (two males and two females) were interviewed in depth by an experienced medical social worker. Findings revealed that even as the illness trajectory of HIV has shifted from a terminal condition to a chronic one, living with HIV continues to be fraught with difficulty as society, especially in the Asian context, perceives HIV with much fear and disapproval. The participants had an overwhelming sense of shame when they were initially diagnosed with HIV and they had to reconstruct a liveable identity by containing the shroud of shame, reinforcing their normative identities and constructing new ones. These strategies help them to keep their shame at bay. This paper also unpacks nuanced insights of shame experienced by Chinese HIV patients in an Asian city dominated by Confucian values.

authors

Ho LP,Goh ECL

doi

10.1080/17482631.2017.1333899

subject

Has Abstract

pub_date

2017-12-01 00:00:00

pages

1333899

issue

1

eissn

1748-2623

issn

1748-2631

journal_volume

12

pub_type

杂志文章
  • A trustful relationship--the importance for relatives to actively participate in the meeting with the physician.

    abstract::In previous research, no uniform picture emerged of the role of relatives in the meeting between an elderly patient and a physician. Knowledge about relatives' experiences of the meeting between an elderly patient and a physician will help healthcare practitioners better understand the role of relatives during the mee...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.20608

    authors: Pennbrant S

    更新日期:2013-05-20 00:00:00

  • Struggling for recognition and inclusion-parents' and pupils' experiences of special support measures in school.

    abstract::During the last decade an increasing use of differentiated support measures for pupils with special educational needs, indicative of a discrepancy between educational policies and practices, has been witnessed in Sweden. Another trend has been the increased use of medical diagnoses in school. The aim of this study was...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i1.4646

    authors: Isaksson J,Lindqvist R,Bergström E

    更新日期:2010-02-08 00:00:00

  • Experiences with using an idiographic assessment procedure in primary mental health care services for adolescents.

    abstract::Purpose: This article aims to explore counsellor experiences using an idiographic assessment procedure implemented in adolescent mental health services. The procedure, Assert, is based on asking the adolescents the question "What matters to you?" to define important topics to address in treatment.Methods: Focus groups...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2020.1763741

    authors: Tollefsen TK,Darrow SM,Lohne V,Berg-Nielsen TS

    更新日期:2020-12-01 00:00:00

  • An occupational therapy approach to the support of a young immigrant female's mental health: A story of bicultural personal growth.

    abstract::Young immigrants who suffer from psychosis perceive their illness from the outlook of at least two cultures, which is often a source of confusion and misunderstanding for clients, their families, and clinicians. This article presents a case study with a narrative approach, aiming to illustrate how an occupational ther...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i3.7084

    authors: Pooremamali P,Ostman M,Persson D,Eklund M

    更新日期:2011-01-01 00:00:00

  • "My quality of life is worse compared to my earlier life": Living with chronic problems after weight loss surgery.

    abstract::Weight loss surgery is commonly regarded as improving individuals' health and social life, and resulting in a happier and more active life for those defined as "morbidly obese." However, some researchers have started to doubt whether these positive outcomes apply to everyone and this article explores this doubt furthe...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i4.5553

    authors: Groven KS,Råheim M,Engelsrud G

    更新日期:2010-11-18 00:00:00

  • "Time after time": a Quali-T method for assessing music's impact on well-being.

    abstract::This article considers the question of how to produce ecologically valid assessments of music's role as a health technology. To address this question, I consider critically some of the standard quantitative instruments used to assess well-being and quality of life. I suggest that these instruments do not lend themselv...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.20611

    authors: DeNora T

    更新日期:2013-08-07 00:00:00

  • Methodology or method? A critical review of qualitative case study reports.

    abstract::Despite on-going debate about credibility, and reported limitations in comparison to other approaches, case study is an increasingly popular approach among qualitative researchers. We critically analysed the methodological descriptions of published case studies. Three high-impact qualitative methods journals were sear...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章,评审

    doi:10.3402/qhw.v9.23606

    authors: Hyett N,Kenny A,Dickson-Swift V

    更新日期:2014-05-07 00:00:00

  • Experiences of living with persisting post-stroke dysphagia and of dysphagia management - a qualitative study.

    abstract:PURPOSE:The aim of this study was to investigate people's experiences of living with dysphagia after stroke, and their experiences of dysphagia management. METHODS:The study design was qualitative, and an open-ended approach to data collection was used, with follow-up probing questions to gain more information as need...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2018.1522194

    authors: Helldén J,Bergström L,Karlsson S

    更新日期:2018-01-01 00:00:00

  • Becoming a parent to a child with birth asphyxia-From a traumatic delivery to living with the experience at home.

    abstract::The aim of this study is to describe the experiences of becoming a parent to a child with birth asphyxia treated with hypothermia in the neonatal intensive care unit (NICU). In line with the medical advances, the survival of critically ill infants with increased risk of morbidity is increasing. Children who survive bi...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.20539

    authors: Heringhaus A,Blom MD,Wigert H

    更新日期:2013-04-30 00:00:00

  • Dealing with daily emotions-supportive activities for the elderly in a municipal care setting.

    abstract::There are diverse descriptions of supportive activities in nursing to be found in the literature. What they have in common is their association with good care outcomes, but they may differ depending on the context in which the care is given. In a Swedish municipal elderly care setting, registered nurses (RN) work in a...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.9510

    authors: Norell M,Ziegert K,Kihlgren A

    更新日期:2012-01-01 00:00:00

  • Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care - a discussion paper.

    abstract::Purpose: Children's perspectives in the context of health service delivery have historically been seen as unimportant. They have been viewed as unintelligent, unable to effectively share or tell of their experiences or fully participate in their care, potentially resulting in a sense of dehumanisation. Method: The pre...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2019.1675354

    authors: Karlsson K,Galvin K,Darcy L

    更新日期:2019-12-01 00:00:00

  • Perspectives on quality mental health care from Brazilian and Cape Verdean outpatients: implications for effective patient-centered policies and models of care.

    abstract::Mental health providers are increasingly coming into contact with large and growing multi-racial/ethnic and immigrant patient populations in the United States. Knowledge of patient perspectives on what constitutes quality mental health care is necessary for these providers. The aim of this study was to identify indica...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.22839

    authors: De Jesus M,Earl TR

    更新日期:2014-01-21 00:00:00

  • Feeling confident in burdensome yet enriching care: Community nurses describe the care of patients with hard-to-heal wounds.

    abstract::Treating patients with hard-to-heal wounds is a complex task that requires a holistic view. Therefore this study focuses on the nurse's perspective with the aim on describing how community nurses experience the phenomenon the care of patients with hard-to-heal wounds. The method used was a reflective lifeworld approac...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i3.5415

    authors: Eskilsson C,Carlsson G

    更新日期:2010-10-18 00:00:00

  • Brief admission (BA) for patients with emotional instability and self-harm: nurses' perspectives - person-centred care in clinical practice.

    abstract::Purpose: Emotional instability and self-harm pose major problems for society and health care. There are effective interventions in outpatient care, but when patients need inpatient care, nurses often struggle meeting their patient's needs. Brief admission (BA) is a newly implemented crisis intervention and novel form ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2019.1667133

    authors: Eckerström J,Allenius E,Helleman M,Flyckt L,Perseius KI,Omerov P

    更新日期:2019-12-01 00:00:00

  • Trying to cope with everyday life--emotional support in municipal elderly care setting.

    abstract::Emotional support is considered to be important to older patients because it is a contributing factor to experiencing good health and it has been shown that it can prevent depression after a hip fracture. Opinions differ on whether emotional support falls within the field of nursing, and studies also show that nurses ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.19613

    authors: Pejner MN,Ziegert K,Kihlgren A

    更新日期:2012-12-13 00:00:00

  • Preparing for a paradigm shift in aging populations: listen to the oldest old.

    abstract:PURPOSE:Current healthcare systems are not suitable for serving future societies in which the oldest old are commonplace. The objective of this study was to understand what the oldest old care most about in their daily lives. METHODS:Semi-structured in-depth interviews and thematic analysis were used. Face-to-face int...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2018.1511768

    authors: Komatsu H,Yagasaki K,Kida H,Eguchi Y,Niimura H

    更新日期:2018-12-01 00:00:00

  • The question of meaning-a momentous issue for qualitative research.

    abstract::In this article, we identify some worrying problems in the contemporary practice of qualitative research, such as the confusion regarding content and meaning in content analysis, the frequent use of standardized methods that avoids philosophy, as well as the description/interpretation dichotomy in empirical research. ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2019.1598723

    authors: Dahlberg H,Dahlberg K

    更新日期:2019-12-01 00:00:00

  • How visiting nurses detect symptoms of disease progression in patients with chronic heart failure.

    abstract::Purpose: Chronic heart failure patients are often rehospitalized because they fail to seek appropriate, timely care. However, both patients and nurses experience difficulties in detecting signs of heart failure exacerbation. We aimed to qualitatively investigate how visiting nurses detect symptoms of disease progressi...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2020.1735768

    authors: Taniguchi C,Okada A,Seto N,Shimizu Y

    更新日期:2020-12-01 00:00:00

  • Striving for a silent knee: a qualitative study of patients' experiences with knee replacement surgery and their perceptions of fulfilled expectations.

    abstract::Purpose: Fifteen to twenty percent of patients with a knee arthroplasty are dissatisfied with their replaced joint. This study aimed to describe patients' experiences of undergoing knee replacement surgery, both total- and unicompartmental knee replacement, and post-operative recovery, and to determine whether expecta...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2019.1620551

    authors: Skogö Nyvang J,Hedström M,Iversen MD,Andreassen Gleissman S

    更新日期:2019-12-01 00:00:00

  • It's not just a knee, but a whole life: A qualitative descriptive study on patients' experiences of living with knee osteoarthritis and their expectations for knee arthroplasty.

    abstract:AIM:Knee arthroplasties are an increasingly common treatment for osteoarthritis (OA) and the main indication is pain. Previous research states, however, that 15-20% of the operated patients are dissatisfied and 20-30% have persistent pain after surgery. This study is aimed at describing patients' experiences of living ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v11.30193

    authors: Nyvang J,Hedström M,Gleissman SA

    更新日期:2016-03-31 00:00:00

  • Life situation and identity among single older home-living people: a phenomenological-hermeneutic study.

    abstract::Being able to continue living in their own home as long as possible is the general preference for many older people, and this is also in line with the public policy in the Nordic countries. The aim of this study was to elucidate the meaning of self-care and health for perception of life situation and identity among si...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.18456

    authors: Dale B,Söderhamn U,Söderhamn O

    更新日期:2012-01-01 00:00:00

  • The lived experiences of street children in Durban, South Africa: Violence, substance use, and resilience.

    abstract::South African studies have suggested that street children are resilient but also suicidal, engage in unprotected sex and other high risk sexual behaviour as a means of survival, have high rates of substance abuse and are physically abused and stigmatized due to their state of homelessness. However, few studies have ex...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v11.30302

    authors: Hills F,Meyer-Weitz A,Asante KO

    更新日期:2016-06-09 00:00:00

  • Exploring experiences among adopters during the diffusion of a novel dance intervention in Sweden.

    abstract::There is a demand for interventions aimed at adolescent girls with psychosomatic problems. In 2013, positive results were reported from a dance intervention programme addressing girls with internalizing problems. The research team behind the intervention immediately received requests from municipalities and county cou...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2018.1438697

    authors: Carlsson N,Kullberg A,Johansson IK,Bergman P,Skagerström J,Andersson A

    更新日期:2018-12-01 00:00:00

  • Encountering existential loneliness among older people: perspectives of health care professionals.

    abstract:PURPOSE:Existential loneliness is part of being human that is little understood in health care, but, to provide good care to their older patients, professionals need to be able to meet their existential concerns. The aim of this study was to explore health care professionals' experiences of their encounters with older ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2018.1474673

    authors: Sundström M,Edberg AK,Rämgård M,Blomqvist K

    更新日期:2018-12-01 00:00:00

  • Active-duty military service members' visual representations of PTSD and TBI in masks.

    abstract::Active-duty military service members have a significant risk of sustaining physical and psychological trauma resulting in traumatic brain injury (TBI) and post-traumatic stress disorder (PTSD). Within an interdisciplinary treatment approach at the National Intrepid Center of Excellence, service members participated in...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2016.1267317

    authors: Walker MS,Kaimal G,Gonzaga AML,Myers-Coffman KA,DeGraba TJ

    更新日期:2017-12-01 00:00:00

  • Being in a safe and thus secure place, the core of early labour: A secondary analysis in a Swedish context.

    abstract:BACKGROUND:Early labour is the very first phase of the labour process and is considered to be a period of time when no professional attendance is needed. However there is a high frequency of women who seek care at the delivery wards during this phase. When a woman is admitted to the delivery ward, one role for midwives...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v11.30230

    authors: Carlsson IM

    更新日期:2016-05-10 00:00:00

  • Young men's experiences of living with existential concerns: "living close to a bottomless darkness".

    abstract:INTRODUCTION:Young men may struggle in life with challenges of various concerns about their identity and who they want to be in life. Many health issues arise from social norms and wider societal determinations and for today's young men, following such norms poses a risk of losing oneself. An essential part of health a...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2020.1810947

    authors: Lundvall M,Hörberg U,Palmér L,Carlsson G,Lindberg E

    更新日期:2020-12-01 00:00:00

  • Vulnerable persons in society: an insider's perspective.

    abstract::Purpose: Self-reliance and social participation are strongly promoted by social policy. Both concepts are linked to the concept of vulnerability, for people who do not meet these standards are labelled "vulnerable people". In this paper, the insider's perspective takes central stage by seeking to explore what it means...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.1080/17482631.2020.1863598

    authors: Numans W,Regenmortel TV,Schalk R,Boog J

    更新日期:2021-12-01 00:00:00

  • "Hitting the wall": Lived experiences of mental health crises.

    abstract:BACKGROUND:As Norway moves toward the provision of home-based crisis response, knowledge is needed about understandings of mental health crisis and effective ways of addressing crises within the home. OBJECTIVE:To elicit and learn from service users' experiences about the subjective meanings of crisis and what kind of...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i4.7197

    authors: Borg M,Karlsson B,Lofthus AM,Davidson L

    更新日期:2011-01-01 00:00:00

  • In what direction should we go to promote health in mental health care?

    abstract::There is a growing recognition of the need for health promotion interventions in all health care today. In spite of this, health promotion interventions among patients with mental illnesses have been scarce in research, practice, and policies. There is also an ambiguous interpretation of the definition of health promo...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i2.7118

    authors: Svedberg P

    更新日期:2011-01-01 00:00:00