Comparing Perspectives of Patients, Caregivers, and Clinicians on Heart Failure Management.


BACKGROUND:Although substantial effort has been devoted to reducing readmissions among heart failure (HF) patients, little is known about factors identified by patients and caregivers that may contribute to readmissions. The goal of this study was to compare the perspectives of HF patients, their caregivers, and their care team on HF management and hospital admissions. Understanding these perspectives may lead to better strategies for improving care during the post-hospital transition and for reducing preventable readmissions. METHODS AND RESULTS:We performed freelisting, an anthropologic technique in which participants list items in response to a question, with hospitalized HF patients (n = 58), their caregivers (n = 32), and clinicians (n = 67). We asked about home HF management tasks, difficulties in managing HF, and perceived reasons for hospital admission. Results were analyzed with the use of Anthropac. Salience indices (measures of the most important words for defining the domain of interest) were calculated. Patients and clinicians described similar home HF management tasks, whereas caregivers described tasks related to activities of daily living. Clinicians cited socioeconomic factors as challenges to HF management, whereas patients and caregivers cited limited functional status and daily activities. When asked about reasons for hospitalization, patients and caregivers listed distressing symptoms and illness, whereas clinicians viewed patient behaviors to be primarily responsible for admission. CONCLUSIONS:These findings highlight that although some similarities exist, there are important differences among patients, caregivers, and clinicians in how they perceive the challenges of HF management and reasons for readmission. Understanding these differences may be critical to developing strategies to reduce readmissions.


J Card Fail


Ahmad FS,Barg FK,Bowles KH,Alexander M,Goldberg LR,French B,Kangovi S,Gallagher TR,Paciotti B,Kimmel SE




Has Abstract


2016-03-01 00:00:00














  • Peak oxygen consumption and outcome in heart failure patients chronically treated with beta-blockers.

    abstract:BACKGROUND:Peak oxygen consumption (VO(2)) is an important criterion for listing patients for cardiac transplantation. Beta-blockers improve survival without affecting peak VO(2). We questioned the value of peak VO(2) in predicting outcome in patients treated with beta-blockers. METHODS AND RESULTS:We reviewed the rec...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Shakar SF,Lowes BD,Lindenfeld J,Zolty R,Simon M,Robertson AD,Bristow MR,Wolfel EE

    更新日期:2004-02-01 00:00:00

  • Risk Prediction Models for Incident Heart Failure: A Systematic Review of Methodology and Model Performance.

    abstract:BACKGROUND:Numerous models predicting the risk of incident heart failure (HF) have been developed; however, evidence of their methodological rigor and reporting remains unclear. This study critically appraises the methods underpinning incident HF risk prediction models. METHODS AND RESULTS:EMBASE and PubMed were searc...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Sahle BW,Owen AJ,Chin KL,Reid CM

    更新日期:2017-09-01 00:00:00

  • Proposal for a new clinical end point to evaluate the efficacy of drugs and devices in the treatment of chronic heart failure.

    abstract::Clinical trials designed to evaluate the effect of drugs and devices on the symptoms and clinical status in chronic heart failure have frequently produced conflicting, inconclusive, or misleading results. These difficulties can be explained by the fact that previous studies have relied on efficacy measures that have i...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Packer M

    更新日期:2001-06-01 00:00:00

  • Identification of Heart Failure Events in Medicare Claims: The Atherosclerosis Risk in Communities (ARIC) Study.

    abstract:BACKGROUND:We examined the accuracy of Medicare heart failure (HF) diagnostic codes in the identification of acute decompensated (ADHF and chronic stable (CSHF) HF. METHODS AND RESULTS:Hospitalizations were identified from medical discharge records for Atherosclerosis Risk in Communities (ARIC) study participants with...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Kucharska-Newton AM,Heiss G,Ni H,Stearns SC,Puccinelli-Ortega N,Wruck LM,Chambless L

    更新日期:2016-01-01 00:00:00

  • Intravenous salt supplementation with low-dose furosemide for treatment of acute decompensated heart failure.

    abstract:BACKGROUND:Theoretically, salt supplementation should promote diuresis through increasing the glomerular filtration rate (GFR) during treatment of acute decompensated heart failure (ADHF) even with low-dose furosemide; however, there is little evidence to support this idea. METHODS AND RESULTS:This was a prospective, ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,随机对照试验


    authors: Okuhara Y,Hirotani S,Naito Y,Nakabo A,Iwasaku T,Eguchi A,Morisawa D,Ando T,Sawada H,Manabe E,Masuyama T

    更新日期:2014-05-01 00:00:00

  • Autoantibodies Specifically Against β1 Adrenergic Receptors and Adverse Clinical Outcome in Patients With Chronic Systolic Heart Failure in the β-Blocker Era: The Importance of Immunoglobulin G3 Subclass.

    abstract:OBJECTIVE:To elucidate the prevalence and role of β1 adrenergic receptor autoantibodies (β1AR-AAb) belonging to the immunoglobulin (Ig)G3 subclass in patients with heart failure (HF) treated with β-adrenergic blockers. BACKGROUND:Several cardiac AAbs have been reported to be present in sera from patients with dilated ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Nagatomo Y,Li D,Kirsop J,Borowski A,Thakur A,Tang WH

    更新日期:2016-06-01 00:00:00

  • Removal from the "waiting list" for heart transplantation: a risk factor for sudden death?

    abstract:METHODS AND RESULTS:Over an 18-month period, the patients on the heart transplantation waiting list at our institution were evaluated to determine if continued listing was appropriate. Ten patients were removed because of significant improvement in clinical status and exercise capacity (n = 9) or because of criteria vi...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Leier CV,Whitby G,Kennedy RA,Binkley PF

    更新日期:1997-06-01 00:00:00

  • Time Course of Electrical Remodeling of Native Conduction After Cardiac Resynchronization Therapy and Its Impact on Clinical Outcome.

    abstract:BACKGROUND:Cardiac resynchronization therapy (CRT) induces structural and electrical remodeling (ER) in heart failure (HF) patients. Our aim was to assess time course of ER of native conduction and mechanical remodeling after CRT and impact of CRT-induced ER on clinical outcome. METHODS AND RESULTS:We prospectively in...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Cvijić M,Žižek D,Antolič B,Zupan I

    更新日期:2017-03-01 00:00:00

  • The prevalence and pattern of complementary and alternative supplement use in individuals with chronic heart failure.

    abstract:BACKGROUND:There are few data on the prevalence and pattern of complementary and alternative medicine (CAM) supplement use among people with chronic heart failure (CHF). The aim of this survey was to characterize the prevalence, pattern, and reasons for use of CAM supplements among those with CHF. METHODS AND RESULTS:...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Zick SM,Blume A,Aaronson KD

    更新日期:2005-10-01 00:00:00

  • Prospective evaluation of beta-blocker use at the time of hospital discharge as a heart failure performance measure: results from OPTIMIZE-HF.

    abstract:BACKGROUND:The objective of this study was to prospectively evaluate beta-blocker use at hospital discharge as an indicator of quality of care and outcomes in patients with heart failure (HF). METHODS AND RESULTS:Data from the Organized Program to Initiate Lifesaving Treatment in Hospitalized Patients with Heart Failu...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Fonarow GC,Abraham WT,Albert NM,Stough WG,Gheorghiade M,Greenberg BH,O'Connor CM,Sun JL,Yancy CW,Young JB,OPTIMIZE-HF Investigators and Coordinators.

    更新日期:2007-11-01 00:00:00

  • Can Biomarkers Provide Right Ventricular-Specific Prognostication in the Perioperative Setting?

    abstract::Since the introduction of biomarkers in the late 1980s, considerable research has been dedicated to their validation and application. As a result, many biomarkers are now commonly used in clinical practice. However, the role of biomarkers in the prediction of right ventricular failure (RVF) and in the prognostication ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Jabagi H,Ruel M,Sun LY

    更新日期:2020-09-01 00:00:00

  • Impaired glucose tolerance and insulin resistance in heart failure: underrecognized and undertreated?

    abstract:BACKGROUND:A link between diabetes mellitus (DM) and heart failure (HF) has been well-recognized for more than a century. HF is also closely linked to abnormal glucose regulation (AGR) and insulin resistance (IR) in patients without DM and, similarly, these conditions commonly coexist. In epidemiological studies, each ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Mamas MA,Deaton C,Rutter MK,Yuille M,Williams SG,Ray SG,New J,Gibson JM,Neyses L

    更新日期:2010-09-01 00:00:00

  • Incident Hyperkalemia, Hypokalemia, and Clinical Outcomes During Spironolactone Treatment of Heart Failure With Preserved Ejection Fraction: Analysis of the TOPCAT Trial.

    abstract:BACKGROUND:In patients with heart failure and preserved ejection fraction (HF-PEF) randomized in the Americas as part of the Treatment of Preserved Cardiac Function Heart Failure with an Aldosterone Antagonist (TOPCAT) trial, treatment with spironolactone enhanced the risk of hyperkalemia but reduced the risk of hypoka...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究,随机对照试验


    authors: Desai AS,Liu J,Pfeffer MA,Claggett B,Fleg J,Lewis EF,McKinlay S,O'Meara E,Shah SJ,Sweitzer NK,Solomon S,Pitt B

    更新日期:2018-05-01 00:00:00

  • Decreases in daily physical activity predict acute decline in attention and executive function in heart failure.

    abstract:BACKGROUND:Reduced physical activity (PA) may be one factor that contributes to cognitive decline and dementia in heart failure (HF). Yet, the longitudinal relationship between PA and cognition in HF is poorly understood owing to limitations of past work, including single-time assessments of PA. This is the first study...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Alosco ML,Spitznagel MB,Cohen R,Sweet LH,Hayes SM,Josephson R,Hughes J,Gunstad J

    更新日期:2015-04-01 00:00:00

  • Left ventricular assist device support and myocardial recovery in recent onset cardiomyopathy.

    abstract:BACKGROUND:Left ventricular assist device (LVAD) support as bridge to recovery (BTR) is uncommon for subjects with chronic heart failure. Myocardial recovery is more evident in recent onset nonischemic cardiomyopathy (ROCM); however, the prevalence of BTR in this subset has not been addressed. METHODS AND RESULTS:We e...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Boehmer JP,Starling RC,Cooper LT,Torre-Amione G,Wittstein I,Dec GW,Markham DW,Zucker MJ,Gorcsan J 3rd,McTiernan C,Kip K,McNamara DM,IMAC Investigators.

    更新日期:2012-10-01 00:00:00

  • Bariatric Surgery in End-Stage Heart Failure: Feasibility in Successful Attainment of a Target Body Mass Index.

    abstract:INTRODUCTION:Orthotopic heart transplantation (OHT) is contraindicated in morbidly obese patients with end-stage heart failure (HF), for whom cardiac allograft is the only means for long-term survival. Bariatric surgery may allow them to achieve target body mass index (BMI) for OHT METHODS: From 4/2014 to 12/2018, 26 m...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Val FRD,Cheon O,Menser T,Kash B,Jones SL,Baek J,Bhimaraj A,Estep J,Sherman V,Tariq N

    更新日期:2020-11-01 00:00:00

  • Aldosterone antagonism improves endothelial-dependent vasorelaxation in heart failure via upregulation of endothelial nitric oxide synthase production.

    abstract:BACKGROUND:Altering the renin-angiotensin aldosterone system improve mortality in heart failure (HF) in part through an improvement in nitric oxide (NO)-mediated endothelial function. This study examined if spironolactone affects endothelial nitric oxide synthase (eNOS) and NO-mediated vasorelaxation in HF. METHODS AN...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Thai HM,Do BQ,Tran TD,Gaballa MA,Goldman S

    更新日期:2006-04-01 00:00:00

  • Levels of circulating pro-angiogenic cells predict cardiovascular outcomes in patients with chronic heart failure.

    abstract:BACKGROUND:Circulating pro-angiogenic cells (PACs) contribute to vascular and myocardial regeneration. A low level of PACs is associated with worse outcome in patients with coronary heart disease. However, little is known about PACs in heart failure (HF). METHODS AND RESULTS:Blood was sampled at baseline in 111 patien...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Balconi G,Lehmann R,Fiordaliso F,Assmus B,Dimmeler S,Sarto P,Carbonieri E,Gualco A,Campana C,Angelici L,Masson S,Mohammed SA,Dejana E,Gorini M,Zeiher AM,Latini R,GISSI-HF Investigators.

    更新日期:2009-11-01 00:00:00

  • Incident Heart Failure and Cognitive Decline: The Atherosclerosis Risk in Communities Study.

    abstract:BACKGROUND:Cognitive impairment is found in a significant proportion of patients with heart failure (HF). Although cognitive impairment may be a consequence of HF, early signs of cognitive impairment may also indicate subclinical vascular disease, and thus a risk factor for future cardiovascular events. METHODS AND RE...

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    pub_type: 杂志文章,多中心研究


    authors: Bressler J,Knopman DS,Sharrett AR,Gottesman RF,Penman A,Chang PP,Rosamond WD,Boerwinkle E,Mosley TH

    更新日期:2017-01-01 00:00:00

  • Brief Report: Patient Activation Among Urban Hospitalized Patients With Heart Failure.

    abstract:BACKGROUND:Patient activation influences patients' ability to meaningfully engage in critical heart failure self-care. The purpose of this study was to identify whether patient activation is associated with patient-reported health outcomes in an urban and racially diverse inpatient sample of patients with heart failure...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Masterson Creber R,Chen T,Wei C,Lee CS

    更新日期:2017-11-01 00:00:00

  • The extracellular connections: the role of integrins in myocardial remodeling.

    abstract:BACKGROUND:Integrins are a large family of heterodimeric cell surface receptors that are present on all cells. These molecules link the extracellular matrix to the intracellular cytoskeleton and are multifunctional, playing roles in cell organization and differentiation, migration, alteration of gene expression, and ce...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Ross RS

    更新日期:2002-12-01 00:00:00

  • Association of Wolff-Parkinson-White With Left Ventricular Noncompaction Cardiomyopathy in Children.

    abstract:BACKGROUND:Wolff-Parkinson-White (WPW) has been associated with left ventricular noncompaction (LVNC) in children. Little is known about the prevalence of this association, clinical outcomes, and treatment options. METHODS:Retrospective review of subjects with LVNC. LVNC was defined by established criteria; those with...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Howard TS,Valdes SO,Hope KD,Morris SA,Landstrom AP,Schneider AE,Miyake CY,Denfield SW,Pignatelli RH,Wang Y,Kim JJ

    更新日期:2019-12-01 00:00:00

  • Pulmonary hemodynamics and endothelin levels in pacing-induced heart failure: during rest and exercise.

    abstract::Elevated plasma levels of endothelin (ET) have been reported to accompany the development of heart failure (HF), and therefore, this potent vasoconstrictive peptide has been postulated to contribute to the altered pulmonary hemodynamics that occur in this disease process. The overall goal of this study was to examine ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Kribbs SB,Clair MJ,Krombach RS,Hendrick JW,Thomas PB,Keever AT,Houch WV,Mukherjee R,Spinale FG

    更新日期:1997-12-01 00:00:00

  • TRPM4 Modulates Right Ventricular Remodeling Under Pressure Load Accompanied With Decreased Expression Level.

    abstract:BACKGROUND:Survival of patients with congenital heart defects including increased right ventricular pressure load (ie, tetralogy of Fallot) or pulmonary hypertension is dependent on the function of the right ventricle (RV). RV remodeling has several effects with progressive transition from compensated status to heart f...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Frede W,Medert R,Poth T,Gorenflo M,Vennekens R,Freichel M,Uhl S

    更新日期:2020-07-01 00:00:00

  • Different substrates of non-sustained ventricular tachycardia in post-infarction patients with and without left ventricular dilatation.

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    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Di Bella G,Passino C,Aquaro GD,Rovai D,Strata E,Arrigo F,Emdin M,Lombardi M,Pingitore A

    更新日期:2010-01-01 00:00:00

  • Angiotensin receptor neprilysin inhibition in heart failure: mechanistic action and clinical impact.

    abstract::Heart failure (HF) is an increasingly common syndrome associated with high mortality and economic burden, and there has been a paucity over the past decade of new pharmacotherapies that improve outcomes. However, recent data from a large randomized controlled trial compared the novel agent LCZ696, a dual-acting angiot...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Buggey J,Mentz RJ,DeVore AD,Velazquez EJ

    更新日期:2015-09-01 00:00:00

  • Cardiovascular Magnetic Resonance May Avoid Unnecessary Coronary Angiography in Patients With Unexplained Left Ventricular Systolic Dysfunction: A Retrospective Diagnostic Pilot Study.

    abstract:BACKGROUND:Coronary angiography (CA) is usually performed in patients with reduced left ventricular ejection fraction (LVEF) to search ischemic cardiomyopathy. Our aim was to examine the agreement between CA and cardiovascular magnetic resonance (CMR) imaging among a cohort of patients with unexplained reduced LVEF, an...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Desroche LM,Milleron O,Safar B,Ou P,Garbarz E,Lavie-Badie Y,Abtan J,Millischer D,Pathak A,Durand-Zaleski I,Cattan S,Ronchard T,Jondeau G

    更新日期:2020-12-01 00:00:00

  • Body mass and survival in patients with chronic heart failure without cachexia: the importance of obesity.

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    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Davos CH,Doehner W,Rauchhaus M,Cicoira M,Francis DP,Coats AJ,Clark AL,Anker SD

    更新日期:2003-02-01 00:00:00

  • Comorbid diabetes and end-of-life expenditures among Medicare beneficiaries with heart failure.

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    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Blecker S,Herbert R,Brancati FL

    更新日期:2012-01-01 00:00:00

  • Association between prehospital delay and subsequent clinical course in patients with/hospitalized for heart failure.

    abstract:BACKGROUND:The clinical consequences of prehospital delay in heart failure (HF) patients are unknown. This study explores the relationship between prehospital delay of HF patients and length of hospital stay, plasma values of brain natriuretic peptides (BNP) as well as the association of delay with all-cause mortality,...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究,随机对照试验


    authors: Johansson P,van der Wal M,van Veldhuisen DJ,Jaarsma T

    更新日期:2012-03-01 00:00:00