Comparing Perspectives of Patients, Caregivers, and Clinicians on Heart Failure Management.


BACKGROUND:Although substantial effort has been devoted to reducing readmissions among heart failure (HF) patients, little is known about factors identified by patients and caregivers that may contribute to readmissions. The goal of this study was to compare the perspectives of HF patients, their caregivers, and their care team on HF management and hospital admissions. Understanding these perspectives may lead to better strategies for improving care during the post-hospital transition and for reducing preventable readmissions. METHODS AND RESULTS:We performed freelisting, an anthropologic technique in which participants list items in response to a question, with hospitalized HF patients (n = 58), their caregivers (n = 32), and clinicians (n = 67). We asked about home HF management tasks, difficulties in managing HF, and perceived reasons for hospital admission. Results were analyzed with the use of Anthropac. Salience indices (measures of the most important words for defining the domain of interest) were calculated. Patients and clinicians described similar home HF management tasks, whereas caregivers described tasks related to activities of daily living. Clinicians cited socioeconomic factors as challenges to HF management, whereas patients and caregivers cited limited functional status and daily activities. When asked about reasons for hospitalization, patients and caregivers listed distressing symptoms and illness, whereas clinicians viewed patient behaviors to be primarily responsible for admission. CONCLUSIONS:These findings highlight that although some similarities exist, there are important differences among patients, caregivers, and clinicians in how they perceive the challenges of HF management and reasons for readmission. Understanding these differences may be critical to developing strategies to reduce readmissions.


J Card Fail


Ahmad FS,Barg FK,Bowles KH,Alexander M,Goldberg LR,French B,Kangovi S,Gallagher TR,Paciotti B,Kimmel SE




Has Abstract


2016-03-01 00:00:00














  • The propionyl-L-carnitine hypothesis: an alternative approach to treating heart failure.

    abstract::Propionyl-L-carnitine (PLC) is a naturally occurring compound that has been considered for the treatment of congestive heart failure (CHF). The rationale for its use in this pathology is related to its effects on cardiac and skeletal muscle. Chronic treatment with PLC improves the contraction of isolated and aerobic p...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Ferrari R,De Giuli F

    更新日期:1997-09-01 00:00:00

  • Anabolics and cardiomyopathy in a bodybuilder: case report and literature review.

    abstract:BACKGROUND:Athletes use androgenic-anabolic steroids to increase strength and muscle mass. Several case reports suggest that it may lead to dilated cardiomyopathy. METHODS AND RESULTS:We report a case of a 41-year-old bodybuilder with severe systolic dysfunction and Class IV heart failure despite maximal medical thera...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Ahlgrim C,Guglin M

    更新日期:2009-08-01 00:00:00

  • Association of functional and health status measures in heart failure.

    abstract:BACKGROUND:A wide variety of instruments have been used to assess the functional capabilities and health status of patients with chronic heart failure (HF), but it is not known how well these tests are correlated with one another, nor which one has the best association with measured exercise capacity. METHODS AND RESU...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Myers J,Zaheer N,Quaglietti S,Madhavan R,Froelicher V,Heidenreich P

    更新日期:2006-08-01 00:00:00

  • Soluble Receptor for advanced glycation end products (RAGE) is a prognostic factor for heart failure.

    abstract:BACKGROUND:We recently reported that serum levels of pentosidine, one of the well-defined advanced glycation end products (AGE), was an independent prognostic factor for heart failure. Receptor for AGEs (RAGE) is expressed in a variety of tissues, and RAGE has a C-truncated secretory isoform of the receptor protein, te...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Koyama Y,Takeishi Y,Niizeki T,Suzuki S,Kitahara T,Sasaki T,Kubota I

    更新日期:2008-03-01 00:00:00

  • Tissue kallikrein and kinin infusion rescues failing myocardium after myocardial infarction.

    abstract:BACKGROUND:Tissue kallikrein is a serine proteinase that generates the vasoactive kinin peptide, which produces vasodilatory, angiogenic, and antiapoptotic effects. In this study, we investigated the effect of a stable supply of kallikrein and kinin on ventricular remodeling and blood vessel growth in rats after myocar...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Yao YY,Yin H,Shen B,Chao L,Chao J

    更新日期:2007-09-01 00:00:00

  • Heart Failure With Midrange Ejection Fraction in Patients Admitted for Acute Decompensation: A Report from the Japanese Multicenter Registry.

    abstract:BACKGROUND:Patients having heart failure with midrange ejection fraction (HFmrEF: 40% ≤ EF < 50%) are increasingly being considered a new subset of the population with heart failure. Despite recent advances in heart-failure treatment strategies, the prognosis of these patients has not improved substantially over time. ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Takei M,Kohsaka S,Shiraishi Y,Goda A,Nagatomo Y,Mizuno A,Suzino Y,Kohno T,Fukuda K,Yoshikawa T

    更新日期:2019-08-01 00:00:00

  • Did Frédéric Chopin Die From Heart Failure?

    abstract::On October 17, 1849, Poland's greatest composer, Frédéric Chopin (1810-1849) died aged 39. His cause of death remains unknown. An investigation of the documental sources was performed to reconstruct the medical history of the artist. Since his earliest years, his life had been dominated by poor health. Recurrent episo...

    journal_title:Journal of cardiac failure

    pub_type: 传,历史文章


    authors: Perciaccante A,Charlier P,Negri C,Coralli A,Appenzeller O,Bianucci R

    更新日期:2018-05-01 00:00:00

  • Elevated Heart Rate Following Heart Transplantation Is Associated With Increased Graft Vasculopathy and Mortality.

    abstract:BACKGROUND:The effect of elevated heart rate (HR) on outcomes after heart transplantation (HT) has not been well established. The aim of this study was to assess predictors of elevated HR following HT and its impact on outcomes. METHODS AND RESULTS:We retrospectively evaluated 394 patients who underwent HT at 2 academ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Liebo M,Newman J,Joshi A,Lowes BD,Peled-Potashnik Y,Basha HI,Zolty R,Um JY,McGee E Jr,Heroux A,Raichlin E

    更新日期:2019-04-01 00:00:00

  • Extending the boundaries of cardiac resynchronization therapy: efficacy in atrial fibrillation, New York heart association class II, and narrow QRS heart failure patients.

    abstract:BACKGROUND:Large-scale clinical trials have demonstrated the benefits of cardiac resynchronization therapy (CRT) in patients with New York Heart Association (NYHA) Class III/IV heart failure, systolic left ventricular dysfunction, and a wide QRS. However, additional patient groups may also benefit from CRT. METHODS AN...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,meta分析


    authors: Wein S,Voskoboinik A,Wein L,Billah B,Krum H

    更新日期:2010-05-01 00:00:00

  • Peak oxygen consumption and outcome in heart failure patients chronically treated with beta-blockers.

    abstract:BACKGROUND:Peak oxygen consumption (VO(2)) is an important criterion for listing patients for cardiac transplantation. Beta-blockers improve survival without affecting peak VO(2). We questioned the value of peak VO(2) in predicting outcome in patients treated with beta-blockers. METHODS AND RESULTS:We reviewed the rec...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Shakar SF,Lowes BD,Lindenfeld J,Zolty R,Simon M,Robertson AD,Bristow MR,Wolfel EE

    更新日期:2004-02-01 00:00:00

  • Impact of Obesity on Volume Status in Patients With Ambulatory Chronic Heart Failure.

    abstract:BACKGROUND:Fluid overload is common in heart failure (HF) and obesity; however, the relationship between the extent of intravascular volume expansion and indices such as body mass index (BMI) in obese and non-obese patients with HF has not been defined to address the issue of a HF obesity phenotype. METHODS:Total bloo...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Miller WL,Borlaug BA

    更新日期:2020-02-01 00:00:00

  • Rationale and design of the enoximone clinical trials program.

    abstract:BACKGROUND:Chronic heart failure is a disease syndrome characterized in its advanced stages by a poor quality of life, frequent hospitalizations, and a high risk of mortality. In advanced and ultra-advanced chronic heart failure, many treatment options, such as cardiac transplantation and mechanical devices, are severe...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Lowes BD,Shakar SF,Metra M,Feldman AM,Eichhorn E,Freytag JW,Gerber MJ,Liard JF,Hartman C,Gorczynski R,Evans G,Linseman JV,Stewart J,Robertson AD,Roecker EB,Demets DL,Bristow MR

    更新日期:2005-12-01 00:00:00

  • Multiple neurohumoral modulating agents in systolic dysfunction heart failure: are we lowering blood pressure too much?

    abstract:BACKGROUND:Disease-modifying drug treatment in heart failure (HF) reduces blood pressure. Titration of these agents is guided by clinic blood pressure readings; however, the impact of such treatment on blood pressure is unknown because diurnal blood pressure patterns remain poorly described. The aim of this study was t...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Mak G,Murphy NF,Ali A,Walsh A,O'Loughlin C,Conlon C,McCaffrey D,Ledwidge M,McDonald K

    更新日期:2008-09-01 00:00:00

  • Racial differences in response to therapy for heart failure: analysis of the vasodilator-heart failure trials. Vasodilator-Heart Failure Trial Study Group.

    abstract:BACKGROUND:Heart failure in blacks has been associated with a poorer prognosis than in whites. In such diseases as hypertension, blacks show pathophysiological differences and respond differently to some therapies than whites. The aim of this study is to evaluate the clinical characteristics and response to therapy of ...

    journal_title:Journal of cardiac failure

    pub_type: 临床试验,杂志文章,随机对照试验


    authors: Carson P,Ziesche S,Johnson G,Cohn JN

    更新日期:1999-09-01 00:00:00

  • The relationship between anemia, change in hematocrit over time and change in health status in patients with heart failure after myocardial infarction.

    abstract:BACKGROUND:Studies have identified anemia as a potential therapeutic target in patients with heart failure, with the goal of improving survival and health status. However, whether changes in hematocrit are associated with changes in health status is unknown. METHODS AND RESULTS:We studied 1382 patients with heart fail...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Kosiborod M,Krumholz HM,Jones PG,Pitt B,Spertus JA

    更新日期:2008-02-01 00:00:00

  • Atrial natriuretic peptide ANP(1-98) and ANP(99-126) in patients with severe chronic congestive heart failure: relation to echocardiographic measurements. A subgroup analysis from the Cooperative North Scandinavian Enalapril Survival Study (CONSENSUS).

    abstract::Studies in patients with moderate heart failure have shown a positive relation between atrial size and plasma atrial natriuretic peptide (ANP)(99-126) concentrations; however, the relation of the hormone level and left atrial size and left ventricular function in patients with severe chronic heart failure has not been...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Eriksson SV,Caidahl K,Hall C,Eneroth P,Kjekshus J,Offstad J,Swedberg K

    更新日期:1995-03-01 00:00:00

  • Patient-reported economic burden and the health status of heart failure patients.

    abstract:BACKGROUND:Heart failure (HF) guidelines recommend treatment with multiple medications to improve survival, functioning, and quality of life. Yet, HF treatments can be costly, resulting in significant economic burden for some patients. To date, there are few data on the impact of patients' perceived difficulties in aff...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Conard MW,Heidenreich P,Rumsfeld JS,Weintraub WS,Spertus J,Cardiovascular Outcomes Research Consortium.

    更新日期:2006-06-01 00:00:00

  • Inotropes and beta-blockers: is there a need for new guidelines?

    abstract::Beta-adrenergic blocking agents are standard treatment for patients with mild-to-moderate heart failure. When patients receiving beta-blockers decompensate they often need treatment with a positive inotropic agent. The beta-agonist dobutamine may not produce much increase in cardiac output during full-dose beta-blocke...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Bristow MR,Shakar SF,Linseman JV,Lowes BD

    更新日期:2001-06-01 00:00:00

  • Electroanatomic Properties of the Myocardium Predict Response to CD34+ Cell Therapy in Patients With Ischemic and Nonischemic Heart Failure.

    abstract:BACKGROUND:We investigated a correlation between electromechanical properties of the myocardium and response to CD34+ cell therapy in patients with chronic heart failure. METHODS AND RESULTS:We enrolled 40 patients with ischemic cardiomyopathy (ICM) and 40 with nonischemic dilated cardiomyopathy (DCM). All patients we...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Zemljic G,Poglajen G,Sever M,Cukjati M,Frljak S,Androcec V,Cernelc P,Haddad F,Vrtovec B

    更新日期:2017-02-01 00:00:00

  • Sacubitril/Valsartan Therapy Ameliorates Ventricular Tachyarrhythmia Inducibility in a Rabbit Myocardial Infarction Model.

    abstract:BACKGROUND:Coronary artery disease is the most common cause of heart failure (HF) in developed countries. The aim of this study was to elucidate the mechanisms of reduction of arrhythmias after sacubitril/valsartan (LCZ696) therapy in a myocardial infarction (MI)-HF rabbit model. METHODS AND RESULTS:Chronic MI in rabb...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Chang PC,Wo HT,Lee HL,Lin SF,Chu Y,Wen MS,Chou CC

    更新日期:2020-06-01 00:00:00

  • Tolerability to beta-blocker therapy among heart failure patients in clinical practice.

    abstract:BACKGROUND:Although beta-blockers were well-tolerated by heart failure (HF) patients in clinical trials, tolerability of these drugs in a general population of HF patients is not well-described. METHODS:We studied a total of 308 encounters with beta-blockers therapy in 268 ambulatory HF patients. Side effects and freq...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Butler J,Khadim G,Belue R,Chomsky D,Dittus RS,Griffin M,Wilson JR

    更新日期:2003-06-01 00:00:00

  • Incident Heart Failure and Cognitive Decline: The Atherosclerosis Risk in Communities Study.

    abstract:BACKGROUND:Cognitive impairment is found in a significant proportion of patients with heart failure (HF). Although cognitive impairment may be a consequence of HF, early signs of cognitive impairment may also indicate subclinical vascular disease, and thus a risk factor for future cardiovascular events. METHODS AND RE...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Bressler J,Knopman DS,Sharrett AR,Gottesman RF,Penman A,Chang PP,Rosamond WD,Boerwinkle E,Mosley TH

    更新日期:2017-01-01 00:00:00

  • Alterations of alpha-adrenergic modulations of coronary microvascular tone in dogs with heart failure.

    abstract:BACKGROUND:It remains unclear whether coronary microvascular response to alpha-adrenergic activation alters in chronic heart failure (CHF). METHODS AND RESULTS:We investigated the alpha-adrenergic receptor-mediated effects on coronary pressure-flow relationship (CPFR) in a tachycardia-induced canine heart failure mode...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Tamagawa K,Saito T,Oikawa Y,Maehara K,Yaoita H,Maruyama Y

    更新日期:2005-06-01 00:00:00

  • The relationship between aldosterone, oxidative stress, and inflammation in chronic, stable human heart failure.

    abstract:BACKGROUND:Aldosterone antagonists reduce morbidity and mortality in patients with severe heart failure, but the mechanisms responsible are not fully understood. Observations in animal models suggest that elevated levels of aldosterone promote oxidative stress and inflammation in the myocardium. It is unknown if these ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Kotlyar E,Vita JA,Winter MR,Awtry EH,Siwik DA,Keaney JF Jr,Sawyer DB,Cupples LA,Colucci WS,Sam F

    更新日期:2006-03-01 00:00:00

  • Low-to-moderate alcohol intake and health status in heart failure patients.

    abstract:BACKGROUND:Although heart failure (HF) guidelines recommend alcohol abstinence, existing evidence indicates that alcohol may not worsen survival and no data about associations between alcohol and health status (patients' symptoms, function, and quality of life) exist. METHODS AND RESULTS:Alcohol use was quantified in ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究


    authors: Salisbury AC,House JA,Conard MW,Krumholz HM,Spertus JA

    更新日期:2005-06-01 00:00:00

  • Effect of left ventricular assist device placement on preexisting implantable cardioverter-defibrillator leads.

    abstract:BACKGROUND:The left ventricular assist device (LVAD) is a therapy for patients with end-stage heart failure, many of whom have a preexisting implantable cardioverter-defibrillator (ICD). We investigated whether the implantation of a LVAD affects ICD function. METHODS AND RESULTS:Patients implanted with a LVAD between ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Ambardekar AV,Lowery CM,Allen LA,Cannon AP,Cleveland JC Jr,Lindenfeld J,Brieke A,Sauer WH

    更新日期:2010-04-01 00:00:00

  • Intravenous salt supplementation with low-dose furosemide for treatment of acute decompensated heart failure.

    abstract:BACKGROUND:Theoretically, salt supplementation should promote diuresis through increasing the glomerular filtration rate (GFR) during treatment of acute decompensated heart failure (ADHF) even with low-dose furosemide; however, there is little evidence to support this idea. METHODS AND RESULTS:This was a prospective, ...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,随机对照试验


    authors: Okuhara Y,Hirotani S,Naito Y,Nakabo A,Iwasaku T,Eguchi A,Morisawa D,Ando T,Sawada H,Manabe E,Masuyama T

    更新日期:2014-05-01 00:00:00

  • Ultrafiltration for the management of acute decompensated heart failure.

    abstract::Heart failure is a major public health problem and is increasing in incidence throughout the industrialized world. Despite recent advances in pharmacotherapy, the overall mortality remains high and largely unchanged. Ultrafiltration has received increased attention in the treatment of acute decompensated congestive he...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,评审


    authors: Wertman BM,Gura V,Schwarz ER

    更新日期:2008-11-01 00:00:00

  • Association between prehospital delay and subsequent clinical course in patients with/hospitalized for heart failure.

    abstract:BACKGROUND:The clinical consequences of prehospital delay in heart failure (HF) patients are unknown. This study explores the relationship between prehospital delay of HF patients and length of hospital stay, plasma values of brain natriuretic peptides (BNP) as well as the association of delay with all-cause mortality,...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章,多中心研究,随机对照试验


    authors: Johansson P,van der Wal M,van Veldhuisen DJ,Jaarsma T

    更新日期:2012-03-01 00:00:00

  • Influence of Donor Transmitted and Rapidly Progressive Coronary Vascular Disease on Long-Term Outcomes After Heart Transplantation: A Contemporary Intravascular Ultrasound Analysis.

    abstract:BACKGROUND:Donor-transmitted atherosclerosis (DTA) and rapidly progressive cardiac allograft vasculopathy (CAV) at 1 year are intravascular ultrasound (IVUS)-derived measures shown to predict adverse cardiovascular outcomes in the setting of early generation immunosuppressive agents. Given the paucity of data on the pr...

    journal_title:Journal of cardiac failure

    pub_type: 杂志文章


    authors: Sperry BW,Qarajeh R,Omer MA,Brandt H,Safley D,Borkon AM,Everley MP,Fendler TJ,Khumri TM,Lawhorn SL,Magalski A,Nassif ME,Vodnala D,Kao AC,Austin BA

    更新日期:2021-01-20 00:00:00