Adolescents living with a parent with advanced cancer: a review of the literature.

Abstract:

OBJECTIVE:Families and children facing the death of a parent from cancer constitute a vulnerable population often overlooked by healthcare professionals and researchers. The purpose of this review is to provide a systematic analysis of the literature that examines the experiences of parents diagnosed with advanced cancer and their adolescent children. METHODS:Reviews of quantitative, qualitative, and mixed method publications between 2000 and 2013 were selected in order to obtain the most current and timely studies. Articles published before 2000 but found to be seminal works on this topic were also included. No time limits were set on intervention studies. RESULTS:Eighteen studies met the criteria for the content of this review, indicating the limited number of studies conducted on this topic. Articles were summarized using the following categories: original research on the impact on the family and parenting, original research on the impact on the child/adolescent, and interventions for families facing incurable cancer. The analysis was organized around the major themes found in the literature within each category. CONCLUSIONS:These themes will allow healthcare professionals to understand implications for clinical practice and apply the knowledge gained from this analysis of literature to guide future research.

journal_name

Psychooncology

journal_title

Psycho-oncology

authors

Phillips F

doi

10.1002/pon.3570

subject

Has Abstract

pub_date

2014-12-01 00:00:00

pages

1323-39

issue

12

eissn

1057-9249

issn

1099-1611

journal_volume

23

pub_type

杂志文章,评审
  • Does depression decrease the moderating effect of self-efficacy in the relationship between illness perception and fear of progression in breast cancer?

    abstract:OBJECTIVE:Fear of progression (FOP) is a prevalent concern among breast cancer patients that affect their adjustment to disease. This study examined whether self-efficacy moderates the effect of illness perception (IP) on FOP and whether the moderating effect of self-efficacy depends on the level of depressive symptoms...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4532

    authors: Shim EJ,Lee JW,Min YH

    更新日期:2018-02-01 00:00:00

  • Dyadic associations between psychological distress and sleep disturbance among Chinese patients with cancer and their spouses.

    abstract:BACKGROUND:Patients with cancer and their spouses usually both suffer, but the dyadic effects have not been thoroughly investigated. This study examined the dyadic effects of psychological distress on sleep disturbance in Chinese couples affected by cancer. METHODS:Patients with cancer and their spouses (N = 135) part...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4240

    authors: Chan JSM,Yu NX,Chow AYM,Chan CLW,Chung KF,Ho RTH,Ng SM,Yuen LP,Chan CHY

    更新日期:2017-06-01 00:00:00

  • Perceptions of cancer as a death sentence: Tracking trends in public perceptions from 2008 to 2017.

    abstract:OBJECTIVE:There has been steady progress in reducing cancer mortality in the United States; however, this progress hasn't been evenly distributed across regions. This paper assesses trends in cancer mortality salience (CMS), that is, agreeing that getting cancer is a death sentence, over time in the United States and e...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5596

    authors: Moser RP,Arndt J,Jimenez T,Liu B,Hesse BW

    更新日期:2020-11-18 00:00:00

  • Next of kin's motives for psychosocial consultation-Oncology social workers' perceptions of 54 next of kin cases.

    abstract:OBJECTIVE:Although oncology social workers (OSWs) have emerged as a core profession in the provision of psychosocial services, there is a lack of empirical studies that describe their daily clinical work with next of kin (NOK). The overall aim of this study was to explore NOK's motives for consulting an OSW. This can p...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4925

    authors: Isaksson J,Lilliehorn S,Salander P

    更新日期:2019-01-01 00:00:00

  • Patterns and covariates of benefit finding in young Black breast cancer survivors: A longitudinal, observational study.

    abstract:OBJECTIVE:To examine the patterns and covariates of benefit finding over time among young Black breast cancer (BC) survivors. METHODS:Black women (N = 305) with invasive BC diagnosed ≤50 years were recruited an average of 1.9 years post-BC diagnosis. Participants completed self-report questionnaires of benefit finding...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5398

    authors: Conley CC,Small BJ,Christie J,Hoogland AI,Augusto BM,Garcia JD,Pal T,Vadaparampil ST

    更新日期:2020-07-01 00:00:00

  • Supporting 'work-related goals' rather than 'return to work' after cancer? A systematic review and meta-synthesis of 25 qualitative studies.

    abstract:BACKGROUND:This study aimed to systematically review and synthesise qualitative studies of employment and cancer. METHODS:A rigorous systematic review and meta-synthesis process was followed. A total of 13,233 papers were retrieved from eight databases; 69 were deemed relevant following title and abstract appraisal. F...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,meta分析,评审

    doi:10.1002/pon.3148

    authors: Wells M,Williams B,Firnigl D,Lang H,Coyle J,Kroll T,MacGillivray S

    更新日期:2013-06-01 00:00:00

  • Correlates of psychological distress immediately following colposcopy.

    abstract:OBJECTIVE:Women are at risk for prolonged psychological distress following attendance at colposcopy for cervical abnormalities, with potentially negative consequences. Little is presently known about the correlates of post-colposcopy distress. The present study aimed to extend knowledge of correlates of post-colposcopy...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3738

    authors: Kola-Palmer S,Walsh JC

    更新日期:2015-07-01 00:00:00

  • Does pharmacological castration as adjuvant therapy for prostate cancer after radiotherapy affect anxiety and depression levels, cognitive functions and quality of life?

    abstract:INTRODUCTION:Adjuvant hormonotherapy for prostate cancer patients after radical radiotherapy has a well-established value. However, the impact of such treatment on the patients' quality of life remains to be elucidated. OBJECTIVE:The objective is to assess the impact of adjuvant hormonotherapy with luteinizing hormone...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.2095

    authors: Wiechno PJ,Sadowska M,Kalinowski T,Michalski W,Demkow T

    更新日期:2013-02-01 00:00:00

  • Providing care to parents dying from cancer with dependent children: Health and social care professionals' experience.

    abstract:OBJECTIVE:Parents often feel ill-equipped to prepare their dependent children (<18 years old) for the death of a parent, necessitating support from professionals. The aim of this study is to explore health and social care professionals' (HSCPs) experiences and perceptions of providing supportive care to parents regardi...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5581

    authors: Hanna JR,McCaughan E,Beck ER,Semple CJ

    更新日期:2020-10-22 00:00:00

  • Determinants of physical activity among women treated for breast cancer in a 5-year longitudinal follow-up investigation.

    abstract:OBJECTIVE:To estimate the 5-year trajectory of physical activity among women with breast cancer, and to evaluate biopsychosocial variables (health status, physical symptoms, health-related quality of life (HRQL), depressive symptoms, and social support), measured soon after breast cancer diagnosis, as predictors of the...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,随机对照试验

    doi:10.1002/pon.1519

    authors: Emery CF,Yang HC,Frierson GM,Peterson LJ,Suh S

    更新日期:2009-04-01 00:00:00

  • On the clinical psychologist's role in the time of COVID-19, with particular reference to experience gained in pediatric oncology.

    abstract:OBJECTIVE:The COVID-19 pandemic seems to be developing into a planetary-scale mental health experiment, undermining the foundations of our being human, obliging us to keep physically apart from one another, and inducing us to see other people as a potential threat. METHODS:In the world of pediatric oncology, we have f...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5418

    authors: Clerici CA,Massimino M,Ferrari A

    更新日期:2020-09-01 00:00:00

  • Information needs of the Chinese community affected by cancer: A systematic review.

    abstract:OBJECTIVE:The information needs of patients and carers from culturally and linguistically diverse backgrounds, including from the Chinese community, are not well understood, and there has been no previous synthesis of the literature. We conducted a systematic review of the information needs of the Chinese community aff...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.4347

    authors: Lim BT,Butow P,Mills J,Miller A,Goldstein D

    更新日期:2017-10-01 00:00:00

  • Sexual issues among cervical cancer survivors: how can we help women seek help?

    abstract:OBJECTIVE:Many women treated for cervical cancer (CC) report sexual complaints and sexual distress. It is important to assess these women's and their partners' sexual healthcare needs. This study aims to (a) investigate the prevalence of psychosexual healthcare needs and help-seeking behaviour among CC survivors, (b) i...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,多中心研究

    doi:10.1002/pon.3663

    authors: Vermeer WM,Bakker RM,Kenter GG,de Kroon CD,Stiggelbout AM,ter Kuile MM

    更新日期:2015-04-01 00:00:00

  • Predictors of breast cancer-related distress following mammography screening in younger women on a family history breast screening programme.

    abstract:OBJECTIVE:This longitudinal study investigated pre-screening factors that predicted breast cancer-specific distress among 1286 women who were undergoing annual mammography screening as part of a UK programme for younger women (i.e., under 50) with a family history of breast cancer. METHODS:Women completed questionnair...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1355

    authors: Brain K,Henderson BJ,Tyndel S,Bankhead C,Watson E,Clements A,Austoker J,PIMMS Study Management Group.

    更新日期:2008-12-01 00:00:00

  • Low-income women with early-stage breast cancer: physician and patient decision-making styles.

    abstract:BACKGROUND:Poor women have low rates of breast conservation therapy not explained by differences in insurance status or treatment preferences. The purpose of this study was to explore how low-income women make decisions about breast cancer treatment. METHODS:Twenty-five women diagnosed with early-stage breast cancer t...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.503

    authors: McVea KL,Minier WC,Johnson Palensky JE

    更新日期:2001-03-01 00:00:00

  • Framing the onset of lung cancer biographically: narratives of continuity and disruption.

    abstract::Most patients are diagnosed with advanced lung cancer despite the presence of many and intense symptoms at diagnosis. This qualitative study aims to explore how people with inoperable lung cancer frame and conceptualize the onset of their sickness, to obtain knowledge which might facilitate earlier health care contact...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1080

    authors: Leveälahti H,Tishelman C,Ohlén J

    更新日期:2007-05-01 00:00:00

  • Use of antidepressants in women after prophylactic bilateral oophorectomy: A Danish national cohort study.

    abstract:OBJECTIVE:To investigate the association between prophylactic bilateral oophorectomy and use of antidepressants in women with a family history of cancer. METHODS:Nationwide population-based cohort study using Danish National Registries including women oophorectomized due to a family history of cancer (n = 2,002) and a...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5290

    authors: Abildgaard J,Ahlström MG,Nielsen DL,Daugaard G,Lindegaard B,Obel N,Lidegaard Ø

    更新日期:2020-04-01 00:00:00

  • Breaking bad news to cancer patients: survey and analysis.

    abstract:PURPOSE:To find out how patients perceived the disclosure of news about their cancer as regards the physician counselling and how they perceived the flow of information between hospital-based and family physicians. METHODS:272 cancer patients were polled with a 16-item questionnaire. RESULTS:252 cancer patients, 92.6...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1383

    authors: Spiegel W,Zidek T,Maier M,Vutuc C,Isak K,Karlic H,Micksche M

    更新日期:2009-02-01 00:00:00

  • An open-label study of the effects of bupropion SR on fatigue, depression and quality of life of mixed-site cancer patients and their partners.

    abstract::This preliminary study investigated whether bupropion sustained release (SR) improved symptomatic fatigue, depression and quality of life in cancer patients and caregiver quality of life. The sample consisted of a prospective open case series of 21 cancer patients, with fatigue and with or without depression at modera...

    journal_title:Psycho-oncology

    pub_type: 临床试验,杂志文章

    doi:10.1002/pon.952

    authors: Moss EL,Simpson JS,Pelletier G,Forsyth P

    更新日期:2006-03-01 00:00:00

  • Selective impairment of attention networks in breast cancer patients receiving chemotherapy treatment.

    abstract:INTRODUCTION:Complaints about attention disorders are common among breast cancer survivors who have undergone chemotherapy treatment. However, it is not known whether these complaints indicate a global attention deficit or the selective impairment of attention networks. OBJECTIVE:This study sought to investigate the a...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3539

    authors: Chen X,Li J,Ren J,Hu X,Zhu C,Tian Y,Hu P,Ma H,Yu F,Wang K

    更新日期:2014-10-01 00:00:00

  • Romantic relationships of emerging adult survivors of childhood cancer.

    abstract:OBJECTIVE:To assess whether childhood cancer survivors experience difficulties in their romantic relationships during emerging adulthood (18-25 years) and to identify who may be at risk for long-term social sequelae. METHODS:Emerging adult survivors of childhood cancer (n=60) and controls without a history of chronic ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1471

    authors: Thompson AL,Marsland AL,Marshal MP,Tersak JM

    更新日期:2009-07-01 00:00:00

  • Study of dyadic communication in couples managing prostate cancer: a longitudinal perspective.

    abstract:OBJECTIVE:Cancer patients and partners often report inadequate communication about illness-related issues, although it is essential for mutual support and informal caregiving. This study examined the patterns of change in dyadic communication between patients with prostate cancer and their partners, and also determined...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1861

    authors: Song L,Northouse LL,Zhang L,Braun TM,Cimprich B,Ronis DL,Mood DW

    更新日期:2012-01-01 00:00:00

  • A brief self-administered psychological intervention to improve well-being in patients with cancer: results from a feasibility study.

    abstract:BACKGROUND:Patients with cancer have relatively high rates of anxiety and distress, adversely affecting their well-being and quality of life. Recent studies indicate that addressing these symptoms could result in better response to cancer treatment. Researchers have found that interventions that focus on increasing men...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,随机对照试验

    doi:10.1002/pon.1516

    authors: Ramachandra P,Booth S,Pieters T,Vrotsou K,Huppert FA

    更新日期:2009-12-01 00:00:00

  • Improving reporting of meta-ethnography: The eMERGe reporting guidance.

    abstract:AIMS:The aim of this study was to provide guidance to improve the completeness and clarity of meta-ethnography reporting. BACKGROUND:Evidence-based policy and practice require robust evidence syntheses which can further understanding of people's experiences and associated social processes. Meta-ethnography is a rigoro...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4915

    authors: France EF,Cunningham M,Ring N,Uny I,Duncan EAS,Jepson RG,Maxwell M,Roberts RJ,Turley RL,Booth A,Britten N,Flemming K,Gallagher I,Garside R,Hannes K,Lewin S,Noblit GW,Pope C,Thomas J,Vanstone M,Higginbottom GMA,N

    更新日期:2019-03-01 00:00:00

  • Resistance to discontinuing breast cancer screening in older women: A qualitative study.

    abstract:OBJECTIVE:Screening mammography is associated with reduced breast cancer-specific mortality; however, among older women, evidence suggests that the potential harms of screening may outweigh the benefits. We used a qualitative approach to examine the willingness of older women from different racial/ethnic groups to disc...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4708

    authors: Housten AJ,Pappadis MR,Krishnan S,Weller SC,Giordano SH,Bevers TB,Volk RJ,Hoover DS

    更新日期:2018-06-01 00:00:00

  • Naturalistically observing noncancer conversations among couples coping with breast cancer.

    abstract:OBJECTIVE:This study revealed the landscape of noncancer conversations, identifying topics and types of everyday conversation, and examined links to psychological adjustment among couples coping with breast cancer. METHODS:Fifty-two couples wore the Electronically Activated Recorder (EAR) over 1 weekend and self-repor...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4797

    authors: Robbins ML,Karan A,López AM,Weihs KL

    更新日期:2018-09-01 00:00:00

  • Physical activity in Black breast cancer survivors: implications for quality of life and mood at baseline and 6-month follow-up.

    abstract:BACKGROUND:The present study sought to examine the influence of physical activity on quality of life and negative mood in a sample of Black breast cancer survivors to determine if physical activity (dichotomized) predicted mean differences in negative mood and quality of life in this population. METHODS:Study particip...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4095

    authors: Diggins AD,Hearn LE,Lechner SC,Annane D,Antoni MH,Whitehead NE

    更新日期:2017-06-01 00:00:00

  • Lessons learned from the science of caring: Extending the reach of psychosocial oncology: The International Psycho-Oncology Society 2016 Sutherland Award Lecture.

    abstract::In medicine, referral to a medical oncology specialty is based on recent history, physical examination, pathology, surgery reports, imaging, blood work, and the patient's vital signs. By contrast, referral to a psychosocial specialist has typically been based on the patients expressed request for psychosocial support ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4398

    authors: Bultz BD

    更新日期:2017-06-01 00:00:00

  • Psychological distress and use of psychosocial support in familial adenomatous polyposis.

    abstract:OBJECTIVE:Familial adenomatous polyposis (FAP) is characterized by multiple adenomas in the colorectum with a high risk to develop colorectal cancer. It is unclear whether individuals at risk of FAP experience distress due to this potentially life-threatening disease. This nationwide study assessed: (1) the prevalence ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1570

    authors: Douma KF,Aaronson NK,Vasen HF,Gerritsma MA,Gundy CM,Janssen EP,Vriends AH,Cats A,Verhoef S,Bleiker EM

    更新日期:2010-03-01 00:00:00

  • Providing psychosocial support for breast cancer patients based on screening for distress within a consultation-liaison service.

    abstract::In a consecutive sample of 100 breast cancer patients undergoing radiotherapy, cancer-related distress was assessed with the Hospital Anxiety and Depression Scale and patients' interest in and acceptance of psychosocial support with the Questionnaire for Psychosocial Support and the European Consultation Liaison Workg...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.867

    authors: Söllner W,Maislinger S,König A,Devries A,Lukas P

    更新日期:2004-12-01 00:00:00