Abstract:
:Patients receiving home care are becoming increasingly dependent upon competent caregivers' 24-h availability due to their substantial care needs, often with advanced care and home care technology included. In Sweden, care is often carried out by municipality-employed paraprofessionals such as health care assistants (HC assistants) with limited or no health care training, performing advanced care without formal training or support. The aim of this study was to investigate the work experience of the HC assistants and to explore how they manage when delivering 24-h home care to patients with substantial care needs. Grounded theory methodology involving multiple data sources comprising interviews with HC assistants (n=19) and field observations in patients' homes was used to collect data and constant comparative analysis was used for analysis. The initial analysis revealed a number of barriers, competence gap; trapped in the home setting; poor supervision and unconnected to the patient care system, describing the risks associated with the situations of HC assistants working in home care, thus affecting their working conditions as well as the patient care. The core process identified was the HC assistants' strivings to combine safe home care with good working conditions by using compensatory processes. The four identified compensatory processes were: day-by-day learning; balancing relations with the patient; self-managing; and navigating the patient care system. By actively employing the compensatory processes, the HC assistants could be said to adopt an inclusive approach, by compensating for their own barriers as well as those of their colleagues' and taking overall responsibility for their workplace. In conclusion, the importance of supporting HC assistants in relation to their needs for training, supervision,and support from health care professionals must be addressed when organising 24-h home care to patients with substantial care needs in the future.
journal_name
Int J Qual Stud Health Well-beingauthors
Swedberg L,Chiriac EH,Törnkvist L,Hylander Idoi
10.3402/qhw.v8i0.20758subject
Has Abstractpub_date
2013-05-23 00:00:00pages
20758eissn
1748-2623issn
1748-2631pii
20758journal_volume
8pub_type
杂志文章abstract::Mental health providers are increasingly coming into contact with large and growing multi-racial/ethnic and immigrant patient populations in the United States. Knowledge of patient perspectives on what constitutes quality mental health care is necessary for these providers. The aim of this study was to identify indica...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v9.22839
更新日期:2014-01-21 00:00:00
abstract:OBJECTIVE:As physical activity can improve health and reduce the risk of chronic disease, it is important to understand the contributing factors to physical activity engagement among older adults, particularly those living in rural communities to assist in remaining active and healthy as long as possible. The purpose o...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v11.32914
更新日期:2016-11-09 00:00:00
abstract::There is a demand for interventions aimed at adolescent girls with psychosomatic problems. In 2013, positive results were reported from a dance intervention programme addressing girls with internalizing problems. The research team behind the intervention immediately received requests from municipalities and county cou...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2018.1438697
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparitie...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2018.1549920
更新日期:2018-12-01 00:00:00
abstract::In this article, we identify some worrying problems in the contemporary practice of qualitative research, such as the confusion regarding content and meaning in content analysis, the frequent use of standardized methods that avoids philosophy, as well as the description/interpretation dichotomy in empirical research. ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2019.1598723
更新日期:2019-12-01 00:00:00
abstract:AIM:To add to our knowledge concerning the key elements involved in the individual's experience of growing up with substance abusing parents and the resulting challenges this involved for their own parenthood. METHODS:In-depth interviews were conducted with 19 parents who had participated in a mental health interventi...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2018.1435100
更新日期:2018-12-01 00:00:00
abstract::The aim of this study was to explore the meaning of suffering and relief from suffering as described in autobiographies by tourists who experienced the tsunami on 26 December 2004 and lost loved ones. A lifeworld approach, inspired by the French philosopher Merleau-Ponty's phenomenology of perception, was chosen for t...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v5i3.5323
更新日期:2010-10-14 00:00:00
abstract:OBJECTIVE:Intimate partner violence (IPV) is a large public health problem with far-reaching consequences for those involved. The aim of this study was to explore fathers' experiences of change during pregnancy and early parenthood in the context of IPV. METHODS:The methodological approach in this interview study was ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v11.30935
更新日期:2016-06-16 00:00:00
abstract::There is a growing recognition of the need for health promotion interventions in all health care today. In spite of this, health promotion interventions among patients with mental illnesses have been scarce in research, practice, and policies. There is also an ambiguous interpretation of the definition of health promo...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v6i2.7118
更新日期:2011-01-01 00:00:00
abstract::Purpose: Emotional instability and self-harm pose major problems for society and health care. There are effective interventions in outpatient care, but when patients need inpatient care, nurses often struggle meeting their patient's needs. Brief admission (BA) is a newly implemented crisis intervention and novel form ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2019.1667133
更新日期:2019-12-01 00:00:00
abstract::Emotional support is considered to be important to older patients because it is a contributing factor to experiencing good health and it has been shown that it can prevent depression after a hip fracture. Opinions differ on whether emotional support falls within the field of nursing, and studies also show that nurses ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v7i0.19613
更新日期:2012-12-13 00:00:00
abstract:INTRODUCTION:The negative impact of paediatric cancer on parents is well known and is even greater when intensive treatments are used. This study aimed to describe how couples whose child has received a transplant for the treatment of leukaemia view conjugal resilience and to evaluate the role of we-ness as a precursor...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v11.32423
更新日期:2016-09-28 00:00:00
abstract::The aim of this paper is to discuss how everyday life changes for the family in the event of chronic illness or disability. It changes physically due to loss of body function and socially due to time and other constraints related to treatment or lack of mobility. Equally important, there is a psychological impact due ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v6i2.7206
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The purpose of this study is to illustrate a theoretical value framework for humanisation of healthcare, a lifeworld-led care that has the potential to support nurses in acute medical units in addressing and meeting both challenges and care needs expressed by patients suffering from alcohol use disorders. Provi...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2020.1783860
更新日期:2020-12-01 00:00:00
abstract::South African studies have suggested that street children are resilient but also suicidal, engage in unprotected sex and other high risk sexual behaviour as a means of survival, have high rates of substance abuse and are physically abused and stigmatized due to their state of homelessness. However, few studies have ex...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v11.30302
更新日期:2016-06-09 00:00:00
abstract::The aim of this article is to shed light on contemporary forensic psychiatric care through a philosophical examination of the empirical results from two lifeworld phenomenological studies from the perspective of patients and carers, by using the French philosopher Michel Foucault's historical-philosophical work. Both ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v10.28703
更新日期:2015-08-27 00:00:00
abstract::This article focuses on Danish patients' experience of autonomy and its interplay with dignity and integrity in their meeting with health professionals. The aim is to chart the meanings and implications of autonomy for persons whose illness places them in a vulnerable life situation. The interplay between autonomy and...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v6i2.6045
更新日期:2011-01-01 00:00:00
abstract::The aim of this study is to describe the experiences of becoming a parent to a child with birth asphyxia treated with hypothermia in the neonatal intensive care unit (NICU). In line with the medical advances, the survival of critically ill infants with increased risk of morbidity is increasing. Children who survive bi...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v8i0.20539
更新日期:2013-04-30 00:00:00
abstract::Childhood narratives are essential to identifying critical issues in their development and developing strategies to reduce risk and build resilience. Ambiguous loss, a psychological risk factor, has emerged as a critical issue among families with uncertain immigration statuses including the recipients of the Deferred ...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2020.1822620
更新日期:2020-12-01 00:00:00
abstract::Young immigrants who suffer from psychosis perceive their illness from the outlook of at least two cultures, which is often a source of confusion and misunderstanding for clients, their families, and clinicians. This article presents a case study with a narrative approach, aiming to illustrate how an occupational ther...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v6i3.7084
更新日期:2011-01-01 00:00:00
abstract::Treating patients with hard-to-heal wounds is a complex task that requires a holistic view. Therefore this study focuses on the nurse's perspective with the aim on describing how community nurses experience the phenomenon the care of patients with hard-to-heal wounds. The method used was a reflective lifeworld approac...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v5i3.5415
更新日期:2010-10-18 00:00:00
abstract::Several work models for care improvement have been developed in order to meet the requirement for evidence-based care. This study examines a work model for reflection, entitled the reflective team (RT). The main idea behind RTs is that caring skills exist among those who work closest to the patients. The team leader (...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v9.23934
更新日期:2014-10-23 00:00:00
abstract::In this article, we discuss the challenges faced in recruiting "hard-to-reach" groups for interview studies, specifically those who do not access preventative healthcare services. We do this by reflecting on the varying success of different recruitment methods we have used in two recent studies; one investigating ethn...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2018.1479582
更新日期:2018-12-01 00:00:00
abstract::Although physical activity (PA) is an important and modifiable determinant of health, in Sweden only 15% of boys and 10% of girls aged 15 years old achieve the recommended levels of PA 7 days per week. Adolescents' PA levels are associated with social influence exerted by parents, friends, and teachers. The purpose of...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v10.27397
更新日期:2015-08-14 00:00:00
abstract::Purpose: Self-reliance and social participation are strongly promoted by social policy. Both concepts are linked to the concept of vulnerability, for people who do not meet these standards are labelled "vulnerable people". In this paper, the insider's perspective takes central stage by seeking to explore what it means...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2020.1863598
更新日期:2021-12-01 00:00:00
abstract::This article interrogates the mainstream healthcare narrative that frames human immunodeficiency virus (HIV) as a chronic disease, and triangulates it with the lived experiences of people with HIV in Singapore. It also examines how HIV patients reconstruct their identities after the diagnosis of HIV. Four HIV patients...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.1080/17482631.2017.1333899
更新日期:2017-12-01 00:00:00
abstract::Patients experience extreme difficulty when facing an intractable genetic disease. Herein, we examine the experiences of patients with Duchenne muscular dystrophy in facing and learning about their disease. A total of seven patients with Duchenne muscular dystrophy (age range: 20-48) participated. We conducted in-dept...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v11.32045
更新日期:2016-10-05 00:00:00
abstract::Social work counsellors, exposed to hardships of clients' lives, might, over time, experience strain as bodily reactions of muscle tension and pain. Within the framework of improving professional practice, the aim was to explore meanings attached to moving and breathing by studying the influence of supervision, encomp...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v10.28432
更新日期:2015-11-17 00:00:00
abstract::The aim of the present study is to explore interpersonal dimensions of the presence of older patients at team meetings. The theoretical foundation of the study is grounded in caring science and lifeworld phenomenology. The results from two empirical studies, that indicated the need for a more in-depth examination of t...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v10.26590
更新日期:2015-02-19 00:00:00
abstract:BACKGROUND:Travel to foreign countries involves the risk of becoming a carrier of antibiotic-resistant bacteria, especially when the destination is a country with a high prevalence of this type of bacteria. AIM AND METHODS:The aim of this study was to learn about the knowledge of antibiotic resistance, and the behavio...
journal_title:International journal of qualitative studies on health and well-being
pub_type: 杂志文章
doi:10.3402/qhw.v11.32378
更新日期:2016-11-01 00:00:00