Addressing patient health care demands in systemic sclerosis: pre-post assessment of a psycho-educational group programme.

Abstract:

OBJECTIVES:Patients diagnosed with systemic sclerosis (SSc) report a high need for education and support. To address these needs, a short, group-based psycho-educational programme for patients with SSc was developed and evaluated. METHODS:A pre-post test design was utilised. Participants completed questionnaires on physical and psychological functioning. Furthermore, patients were asked to evaluate the content of the programme by questionnaire. RESULTS:Data from 41 patients were available for analysis. Patients reported less helplessness after the intervention, and higher acceptance of their limitations. However, no difference in depressed mood and physical functioning was observed. Patients reported high satisfaction with the content of the programme. CONCLUSIONS:Despite the limited changes in psychological and physical functioning, this psycho-educational programme addresses patients' needs reported in previous study and therefore contributes to the improvement of care for patients with SSc.

journal_name

Clin Exp Rheumatol

authors

Kwakkenbos L,Bluyssen SJ,Vonk MC,van Helmond AF,van den Ende CH,van den Hoogen FH,van Lankveld WG

subject

Has Abstract

pub_date

2011-03-01 00:00:00

pages

S60-5

issue

2 Suppl 65

eissn

0392-856X

issn

1593-098X

pii

4764

journal_volume

29

pub_type

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