Health-related quality of life in children with achalasia.

Abstract:

AIMS:To assess self-reported QoL in children with achalasia aged 5-18 and compare this with both disease and healthy control children in a prospective study. METHODS:All children diagnosed with achalasia at one hospital were asked to participate in this study by completing the self-report module of the validated PedsQL™ generic QoL assessment. All children attending a tertiary paediatric gastroenterology clinic from February 2009 to May 2009 with chronic constipation or inflammatory bowel disease were asked to participate in this study as disease controls. The PedsQL™ considers physical, emotional, social and school domains and is scored from 0-100. Healthy children were also recruited from the same site. Groups were compared using Analysis of Variance with Tukey's post-hoc test. RESULTS:One hundred and sixty one children completed the assessment (90 (56%) male, mean age 11.3 yrs ± 3.4 years) including 17 children with achalasia, 44 with chronic constipation, 59 with inflammatory bowel disease and 41 healthy children. QoL was significantly lower in the achalasia group compared to both children with IBD (73 vs. 82, p = 0.035) and healthy children (73 vs. 84, p = 0.005), and was comparable to that of children with chronic constipation (73 vs. 74, p = 0.99). CONCLUSION:Children with achalasia report a significantly lower QoL compared to children with inflammatory bowel disease and healthy children.

authors

Marlais M,Fishman JR,Fell JM,Rawat DJ,Haddad MJ

doi

10.1111/j.1440-1754.2010.01884.x

subject

Has Abstract

pub_date

2011-01-01 00:00:00

pages

18-21

issue

1-2

eissn

1034-4810

issn

1440-1754

journal_volume

47

pub_type

杂志文章
  • Idiopathic necrotizing dermatitis: current management.

    abstract:OBJECTIVES:To identify and demonstrate necrotizing dermatitis in infancy; an uncommon, puzzling syndrome, in which anecdotal reporting and personal experience indicates that one third of cases may require skin grafting. Much informed discussion about the pathogenesis of this distressing syndrome centres on the role of ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2005.00531.x

    authors: Lui PC,Petersen D,Kimble RM,Raven RJ,Pearn JH

    更新日期:2005-01-01 00:00:00

  • The relationship between children's treatment-related behaviour problems, age and clinical status in cystic fibrosis.

    abstract::This study examined the relationship between parents' and physicians' reports of treatment-related behaviour and adjustment problems of children with cystic fibrosis (CF), and children's clinical status as assessed by measures of pulmonary functioning and global ratings of clinical status. Parents completed a Cystic F...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.1991.tb02540.x

    authors: Sanders MR,Gravestock FM,Wanstall K,Dunne M

    更新日期:1991-10-01 00:00:00

  • Role of upper gastrointestinal contrast studies for suspected malrotation in neonatal population.

    abstract:AIM:Upper gastrointestinal (UGI) contrast study is the preferred radiological investigation to diagnose malrotation of intestine. We aimed to review the role of UGI contrast in neonates (term and preterm) who were clinically suspected to have malrotation. METHODS:The study included a retrospective review of medical ch...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13515

    authors: Birajdar S,Rao SC,Bettenay F

    更新日期:2017-07-01 00:00:00

  • Opportunities taken: the need for and effectiveness of secondary care opportunistic immunisation.

    abstract:AIM:To evaluate the effectiveness of a formalised opportunistic immunisation (OI) system in a hospital setting. METHODS:Pre-post implementation audit of missed immunisation opportunities. RESULTS:Of 5583 children in the National Immunisation Register cohort seen in a hospital setting, 1641 (29.4%) were under-immunise...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2011.02231.x

    authors: Shingler S,Hunter K,Romano A,Graham D

    更新日期:2012-03-01 00:00:00

  • Use of propranolol for treatment of infantile haemangiomas in an outpatient setting.

    abstract:INTRODUCTION:Propranolol has recently emerged as an effective drug treatment for infantile haemangiomas. The side effect profile of the drug and the safety of administering propranolol in outpatient settings in this age group remain uncertain. We report our experience with 200 infants and children prescribed propranolo...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2012.02521.x

    authors: Phillips RJ,Penington AJ,Bekhor PS,Crock CM

    更新日期:2012-10-01 00:00:00

  • A multicentre randomized placebo-controlled double-blind study on the efficacy of Ketotifen in infants with chronic cough or wheeze.

    abstract::The efficacy of Ketotifen was examined in the treatment of 113 infants between 6 and 36 months of age presenting with a history of cough and/or wheeze in a multicentre randomized placebo-controlled double-blind study. A 4 week no-medication baseline phase preceded the 16 week treatment phase in which infants took 2.5 ...

    journal_title:Journal of paediatrics and child health

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1111/j.1440-1754.1992.tb02714.x

    authors: van Asperen PP,McKay KO,Mellis CM,Loh RK,Harth SC,Thong YH,Harris M,Robertson IF,Gibbeson M,Rhodes L

    更新日期:1992-12-01 00:00:00

  • Closing the evidence-practice gap for newborn pain using clinical networks.

    abstract:AIM:The Australian New Zealand Neonatal Network undertook a project to close the evidence practice gap for the management of newborn pain in neonatal units within Australia. The aim was to establish a process for using evidence to support practice change and in doing so close the existing practice evidence gap for newb...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2010.01895.x

    authors: Spence K,Henderson-Smart D

    更新日期:2011-03-01 00:00:00

  • Early intervention for the ocular and neurodevelopmental sequelae of Fetal Valproate Syndrome.

    abstract::The established teratogenicity of antiepileptic drugs raises important issues in women of child-bearing age. While the association between neural tube defects and antiepileptic drugs is well recognised, other congenital malformations are known to occur. We report two siblings with characteristic craniofacial features ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2007.01176.x

    authors: Carrim ZI,McKay L,Sidiki SS,Lavy TE

    更新日期:2007-09-01 00:00:00

  • Comparison of the pharyngeal pressure provided by two heated, humidified high-flow nasal cannulae devices in premature infants.

    abstract:AIMS:This study aims to determine if there is a difference in the pharyngeal pressure, measured as a surrogate for continuous positive distending airway pressure, delivered to premature infants between two commonly used heated, humidified high-flow nasal cannulae (HHHFNC) devices: Fisher & Paykel Healthcare HHHFNC and ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/jpc.12277

    authors: Collins CL,Holberton JR,König K

    更新日期:2013-07-01 00:00:00

  • Botulinum toxin A versus fixed cast stretching for dynamic calf tightness in cerebral palsy.

    abstract:OBJECTIVE:To compare botulinum toxin A injections with fixed plaster cast stretching in the management of cerebral palsied children with dynamic (i.e. non-fixed) calf tightness. METHODS:The settings were the Women's and Children's Hospital (WCH) and the Crippled Children's Association of South Australia (CCA), Adelaid...

    journal_title:Journal of paediatrics and child health

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1046/j.1440-1754.1999.00330.x

    authors: Flett PJ,Stern LM,Waddy H,Connell TM,Seeger JD,Gibson SK

    更新日期:1999-02-01 00:00:00

  • Barriers to the use of interpreters in emergency room paediatric consultations.

    abstract:OBJECTIVE:To identify barriers to the use of trained interpreters in emergency department (ED) paediatric consultations. METHODS:A cross-sectional survey of non-English-speaking-background (NESB) carers who presented a child aged 14 years or less to the Fairfield Hospital ED during a 3-month period was undertaken usin...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2003.00135.x

    authors: Bonacruz Kazzi G,Cooper C

    更新日期:2003-05-01 00:00:00

  • Soy protein supplement intake for 12 months has no effect on sexual maturation and may improve nutritional status in pre-pubertal children.

    abstract:AIM:To evaluate the intake of a soy protein-based supplement (SPS) and its effects on the sexual maturation and nutritional status of prepubertal children who consumed it for a year. METHODS:Healthy children (n = 51) were recruited and randomly assigned to consume the lunch fruit juice with (n = 29) or without (n = 22...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13934

    authors: Duitama SM,Zurita J,Cordoba D,Duran P,Ilag L,Mejia W

    更新日期:2018-09-01 00:00:00

  • Peer review of rural and tertiary Queensland paediatric diabetes services: A pilot project from the National Health Service.

    abstract:AIM:Peer review is one component of the improvement of diabetes care delivered by the National Health Service (NHS) in England and Wales. Queensland has a decentralised model of service provision with an established state diabetes network. METHODS:The NHS scheme was adapted for use in Australia, and seven trained revi...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.14281

    authors: Wales J,Yates J

    更新日期:2019-06-01 00:00:00

  • Fifty years of allergy: 1965-2015.

    abstract::The last 50 years in allergy could almost be considered the first 50 years. Over this time period, we have witnessed the emergence of allergy as a subspecialty, have seen and continue to observe a tremendous change in prevalence of allergic disease and have gained insight into the mechanisms that underlie allergic pre...

    journal_title:Journal of paediatrics and child health

    pub_type: 历史文章,杂志文章

    doi:10.1111/jpc.12806

    authors: Campbell DE,Mehr S

    更新日期:2015-01-01 00:00:00

  • The relationship between birth weight, oxidative stress and bone mineral status in newborn infants.

    abstract:BACKGROUND:It was shown that oxygen-derived free radicals, and particularly the superoxide anion, are intermediaries in the formation and activation of osteoclasts. Many antioxidant defence systems depend on micronutrients or are micronutrients themselves. Oxidative stress might be related to bone indices in newborn in...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2007.01184.x

    authors: Koklu E,Akcakus M,Narin F,Saraymen R

    更新日期:2007-10-01 00:00:00

  • Evaluating Canadian children: WHO, NHANES or what?

    abstract:AIM:The 2006 World Health Organization (WHO) growth charts have been widely adopted by Canadian dieticians for growth monitoring of Canadian children rather than the National Health and Nutrition Examination Survey (NHANES III) reference data. It has been unclear as to which is the most appropriate. METHODS:We calcula...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.12152

    authors: Yasin A,Filler G

    更新日期:2013-04-01 00:00:00

  • Evolution and significance of the triple risk model in sudden infant death syndrome.

    abstract::Sudden infant death syndrome (SIDS) is a leading cause of death in infants, although the mechanisms leading to death remain unclear. Multiple theories have emerged over time, with one of the most influential hypotheses being the triple risk model. This model, first devised in 1972 and later revised in 1994 by Filiano ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,评审

    doi:10.1111/jpc.13429

    authors: Spinelli J,Collins-Praino L,Van Den Heuvel C,Byard RW

    更新日期:2017-02-01 00:00:00

  • Aorta coarctation presenting with intracranial aneurysm rupture.

    abstract::Most vascular diseases have a tendency to affect both heart and the brain. Intracranial aneurysms are more often found in patients with aorta coarctation than in general population, and aneurysm rupture occurs much earlier in these patients. Here, we report a case of aorta coarctation which was diagnosed with its cere...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2006.00903.x

    authors: Hüdaoğlu O,Kurul S,Cakmakci H,Men S,Yiş U,Dirik E

    更新日期:2006-07-01 00:00:00

  • Outcome and recurrence in treatment of phimosis using topical betamethasone in children in Hong Kong.

    abstract:AIM:To study the efficacy of treating phimosis with topical steroid, and its long-term outcome and side effects. We also looked into the effect of daily retraction and cleansing of prepuce on preventing recurrence of phimsosis. METHODS:This prospective study comprised 138 boys who were prescribed 0.05% betamethasone o...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2007.01006.x

    authors: Ku WH,Chiu BS,Huen KF

    更新日期:2007-01-01 00:00:00

  • Hypoallergenic formula prescribing practices in Australia.

    abstract:AIM:To gain insight into the use of hypoallergenic formula in Australia by analysis of prescribing statistics. METHODS:Statistics on supply of amino acid and extensively hydrolyzed formula were obtained from the Health Insurance Commission web site. The number of prescriptions supplied in 2003 and 2004 per 1000 childr...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2006.00828.x

    authors: Kemp A

    更新日期:2006-04-01 00:00:00

  • Second intracranial neoplasms following treatment of childhood acute lymphoblastic leukaemia.

    abstract::We report a boy with acute lymphoblastic leukaemia (ALL) treated with chemotherapy and prophylactic cranial irradiation to a dose of 24 Gy. Six years after diagnosis he developed a glioma and died. Prior to 1979, four cases of second malignant neoplasm (SMN) of the brain had been reported in children treated for ALL. ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,评审

    doi:10.1111/j.1440-1754.1991.tb00344.x

    authors: Vowels MR,Tobias V,Mameghan H

    更新日期:1991-02-01 00:00:00

  • Intussusception in the Northern Territory: the incidence is low in Aboriginal and Torres Strait Islander children.

    abstract:AIM:To describe the epidemiology, immunisation status and management of children with intussusception in the Northern Territory (NT), 1993-2003. METHODS:Intussusception data were obtained from all NT hospitals using the International Classification of Diseases (ICD 9/10) codes for children under 18 years of age betwee...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2006.00844.x

    authors: Webby RJ,Bines JE,Barnes GL,Tindall H,Krause V,Patel M

    更新日期:2006-05-01 00:00:00

  • Diagnostic accuracy of paediatric echocardiograms interpreted by individuals other than paediatric cardiologists.

    abstract:OBJECTIVE:To assess the diagnostic error rate among echocardiograms undertaken by individuals other than paediatric cardiologists in our referral area. METHODOLOGY:External group: The charts and echocardiographic results of all patients who had undergone outside echocardiograms between January 1996 and December 1999 w...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2001.00695.x

    authors: Ward CJ,Purdie J

    更新日期:2001-08-01 00:00:00

  • National birthweight percentiles by gestational age for twins born in Australia.

    abstract:OBJECTIVE:To develop national charts of birthweight percentiles by gestational age and infant sex for liveborn twins born in Australia. METHODOLOGY:National data on live twin births to non-Indigenous Australian-born mothers during 1991-94 were derived from perinatal data collected by midwives in each State and Territo...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.1999.00354.x

    authors: Roberts CL,Lancaster PA

    更新日期:1999-06-01 00:00:00

  • Reference ranges for blood pressure in preschool Australians, obtained by oscillometry.

    abstract:OBJECTIVE:To derive reference centiles for blood pressure in children aged 1-6 years which seek to address shortcomings in available reference ranges. METHODS:Prospective cohort study of 2876 children in Perth, Western Australia, commenced in 1989 with serial blood pressure measurements through early childhood obtaine...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2000.00445.x

    authors: Blake KV,Gurrin LC,Evans SF,Newnham JP,Landau LI,Stanley FJ,Beilin LJ

    更新日期:2000-02-01 00:00:00

  • Predictors of medication adherence in children receiving psychotropic medication.

    abstract:AIM:Medication adherence is poor in many young people with chronic illness. However, little research has examined medication adherence in clinic samples of young people receiving psychotropic medication, and whether factors such as disorder or drug type influence adherence. This study aimed to examine medication adhere...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2010.01985.x

    authors: Dean AJ,Wragg J,Draper J,McDermott BM

    更新日期:2011-06-01 00:00:00

  • Asthma and sleep disturbance in adolescents and young adults: A cohort study.

    abstract:AIMS:A longitudinal birth cohort provides an opportunity to study the impact of childhood conditions persisting into adulthood. This study examines the cross-sectional association of asthma with sleep quality and snoring in the adolescent and young adult population and the extent to which asthma, sleep quality and snor...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13234

    authors: Garden M,O'Callaghan M,Suresh S,Mamum AA,Najman JM

    更新日期:2016-11-01 00:00:00

  • Participation in research: informed consent, motivation and influence.

    abstract:OBJECTIVE:To investigate the process and quality of informed consent, motivation and influence in parents who were invited to enroll their baby in a research project. METHODOLOGY:A mixed quantitative/qualitative questionnaire was sent to a cohort invited to participate in a physiological research project on sudden inf...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2001.00612.x

    authors: Hayman RM,Taylor BJ,Peart NS,Galland BC,Sayers RM

    更新日期:2001-02-01 00:00:00

  • Development of psoriatic lesions during acute and convalescent phases of Kawasaki disease.

    abstract::A 7-month-old infant developed a discrete pustular rash confined to both soles during the acute phase of Kawasaki disease. Histological examination of a pustular lesion from the sole of a foot showed subcorneal neutrophilic microabscesses, psoriasiform acanthosis with a thin granular layer and mononuclear perivascular...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2003.00117.x

    authors: Zvulunov A,Greenberg D,Cagnano E,Einhorn M

    更新日期:2003-04-01 00:00:00

  • Association between waist circumference and childhood-masked hypertension: A community-based study.

    abstract:AIM:The aim of this study is to determine the association between waist circumference (WC) and childhood-masked hypertension. METHODS:A territory-wide, school-based cohort of 1385 Hong Kong students (672 boys and 713 girls) aged 8-17 years was analysed. The ambulatory blood pressure-monitoring assessment was performed...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13121

    authors: So HK,Yip GW,Choi KC,Li AM,Leung LC,Wong SN,Sung RY,Hong Kong ABP Working Group.

    更新日期:2016-04-01 00:00:00