Abstract:
:The purpose of this report is to describe caregiving by teens for family members with Huntington disease (HD). Thirty-two teens in HD families in the United States and Canada participated in focus groups from 2002 to 2005 in a study to identify concerns and strategies to manage concerns. An unexpected finding was 24 (77%) described caregiving activities. Descriptive analysis of caregiving statements identified themes of Tasks and Responsibilities, Subjective Burden, Caregiving in Context of Personal Risk for HD, and Decisional Responsibility. Teens took an active part in nearly all aspects of care with the exception of contacting health care providers and attending doctors' appointments. Some described emotional distress, and many provided care knowing they had the potential to develop HD. Teens recognized the need for decisions but lacked the authority to make these decisions. Findings may be relevant for other teens who strive to meet caregiver and student roles and developmental tasks.
journal_name
J Fam Nursjournal_title
Journal of family nursingauthors
Williams JK,Ayres L,Specht J,Sparbel K,Klimek MLdoi
10.1177/1074840709337126subject
Has Abstractpub_date
2009-08-01 00:00:00pages
273-94issue
3eissn
1074-8407issn
1552-549Xpii
1074840709337126journal_volume
15pub_type
杂志文章,多中心研究abstract::The purpose of this project was to examine parents' descriptions of the ways family and friends supported them after they had experienced a perinatal loss. For this project, a secondary analysis of data from two phenomenological studies on perinatal loss was performed. A combined total of 62 interview transcripts from...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840703260905
更新日期:2004-02-01 00:00:00
abstract::Little is known about changes in family life perceived by mothers of young adult survivors of a traumatic brain injury (TBI). A phenomenological method was used to describe the changes that seven mothers of TBI survivors perceived in family life 6 months or more after the TBI. The five basic changes in family life rep...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840708321473
更新日期:2008-08-01 00:00:00
abstract::The "One Question Question," first coined by Dr. Lorraine M. Wright in 1989, is an interventive question designed to elicit family members' most pressing needs or concerns within the context of a therapeutic conversation. In this article, two clinical projects analyzed the responses to this unique interventive questio...
journal_title:Journal of family nursing
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doi:10.1177/1074840709350606
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abstract::Evidence suggests that intergenerational caregiving between mothers and daughters will become increasingly common, and yet, we know very little about the specific relationships between adult daughters and their mothers with dementia. Guided by socialist-feminist theory and a life-course perspective, 15 mother-adult da...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840706297424
更新日期:2007-02-01 00:00:00
abstract::Primary brain cancer is a diagnosis that can have drastic health impacts on patient and caregiver alike. In high-stress situations, dyadic coping can improve psychosocial and health outcomes and communication about personal life goals maybe one way to facilitate this coping. In this study, we describe the feasibility ...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840720913963
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abstract::In this grounded theory study, informed by symbolic interactionism, we explain how nurses, patients, and family members construct relationships in acute care settings, including managing effects of work environments. We recruited participants from 10 acute care units across four community hospitals in a Western Canadi...
journal_title:Journal of family nursing
pub_type: 杂志文章,多中心研究
doi:10.1177/1074840714564787
更新日期:2015-02-01 00:00:00
abstract::Dignity is an important component of quality of life and a core value of family nursing care. Few studies have explored dignity in community-dwelling adults with dementia. This study used blogs written by caregivers to explore the concept of dignity in dementia caregiving. A template analysis of blogs written by famil...
journal_title:Journal of family nursing
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abstract::A survey of six Nigerian nursing program curricula was conducted to determine the extent to which family nursing theory was used as a reference for conceptualizing nursing care in Nigeria. In addition, 25 nurse clinicians were purposely selected from three levels of primary, secondary, and tertiary health care units i...
journal_title:Journal of family nursing
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doi:10.1177/1074840706296000
更新日期:2006-11-01 00:00:00
abstract::Divorced parents face distinct challenges in providing care for chronically ill children. Children's residence in two households necessitates the development of family-specific strategies to ensure coparents' supervision of regimen adherence and the management of children's health care. Utilizing a risk and resilience...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840716639909
更新日期:2016-05-01 00:00:00
abstract::The provision of care work by families plays an integral role in the quality of life of older adults living in a nursing home setting. This critical interpretive synthesis examines family members' perceptions of their roles and responsibilities in nursing home settings and interrogates the structural and relational ba...
journal_title:Journal of family nursing
pub_type: 杂志文章,评审
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更新日期:2018-02-01 00:00:00
abstract::Drawing on a social determinants of health framework, we evaluated associations between perceived family-centered care (FCC) and positive developmental outcomes for youth with special health care needs across six different family structures (married biological families, cohabiting biological families, married stepfami...
journal_title:Journal of family nursing
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更新日期:2018-02-01 00:00:00
abstract::The goal of this project was to explore family communication dynamics and their implications for smoking cessation. We conducted 39 in-depth dyadic and individual qualitative interviews with 13 immigrant smoker-family member pairs of Vietnamese ( n = 9 dyads, 18 individuals) and Chinese ( n = 4 dyads, 8 individuals) d...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840715618194
更新日期:2016-02-01 00:00:00
abstract::The study aim was to describe displaced Bosnian mothers' experiences caring for their children during and immediately after the war (1992-1995). Mothers described their progression into war, through war, and into vastly changed lives. Using ethnographic methods, narrative data were collected near Sarajevo, Bosnia, fro...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840707309350
更新日期:2007-11-01 00:00:00
abstract::In this Canadian study, a participatory action research approach was used to examine the relationships between families of residents of traditional continuing care facilities and the health care team. The objectives were to (a) explore the formation and maintenance of family-staff relationships, with attention paid to...
journal_title:Journal of family nursing
pub_type: 杂志文章
doi:10.1177/1074840709339781
更新日期:2009-08-01 00:00:00
abstract::Individual behavior affects and is affected by other people. The aim of this study was to examine if emotional distress in patients with atrial fibrillation (AF) and their spouses was associated with their own and their partner's perceived health. Participants included 91 dyads of patients and their spouses. Emotional...
journal_title:Journal of family nursing
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doi:10.1177/1074840716656815
更新日期:2016-08-01 00:00:00
abstract::Family satisfaction is an important outcome of palliative care and is a critical measure for health care professionals to address when assessing quality of care. The FAMCARE-2 is a widely used measure of family satisfaction with the health care received by both patient and family in palliative care. In this study, a t...
journal_title:Journal of family nursing
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doi:10.1177/1074840717697538
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abstract::The purpose of this secondary analysis was to develop an enhanced understanding of the experiences of parents who have children in treatment for cancer. Data collected from 16 parents (12 mothers and 4 fathers) were analyzed using Frank's dialogical narrative analysis. Findings demonstrated that parents' experiences w...
journal_title:Journal of family nursing
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更新日期:2014-08-01 00:00:00
abstract::Maternal postpartum depression (PPD) and mother-infant relationship dysfunction have reciprocal effects on each other and thus an integrated approach that addresses both problems simultaneously may lead to improved outcomes. This study aimed to determine the feasibility, acceptability, and preliminary efficacy of a ne...
journal_title:Journal of family nursing
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abstract::Health care providers, policy makers, and investigators are dependent upon the quality and accuracy of published research findings to inform and guide future practice and research in their field. Systematic reviews, the synthesis of outcomes across studies are increasingly more common in the family literature; however...
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abstract::American Indian (AI) communities experience a disproportionate rate of Type 2 diabetes (T2D) and cumulative exposure to stress. Although this link is well researched among various populations, it has not been examined among AI communities. Path analysis was used to examine a multiple-mediator model to explain how care...
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abstract::Research exploring the parents' experience of their child undergoing gender transition is almost nonexistent. However, as the number of individuals who identify as transgender increases, gender identity will continue to evolve; therefore, supporting families of these individuals is paramount. Parents of transgender ch...
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abstract::This exploratory case study of the role of the clinical laboratory in teaching and learning family nursing skills was undertaken at the Family Nursing Unit (FNU), University of Calgary. Qualitative data were gathered from current graduate students, graduates of the Master of Nursing program, faculty members, and clien...
journal_title:Journal of family nursing
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abstract::This study tested the hypothesis that various components of the stress process model were related to negative outcomes (depression, guilt, negative health) in cancer caregivers. This study also tested the hypothesis that psychosocial resources (mastery, socioemotional support) mediated the relationship between the var...
journal_title:Journal of family nursing
pub_type: 杂志文章,多中心研究
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abstract::In this article, the authors offer what they believe to be the three most common errors or mistakes in relational family nursing practice. Each error is described, followed by practical suggestions on how the mistake or error can be avoided. A clinical case vignette for each error is also given, with useful ideas of h...
journal_title:Journal of family nursing
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abstract::Because the structure, development, and functioning of a family plays an important role in health and illness, preparing nursing students to assess families in health care settings is of critical importance. A quasi-experimental design using a pre- and postcourse questionnaire was used to examine students' perceived k...
journal_title:Journal of family nursing
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abstract::This cross-sectional, mixed-method study examined factors associated with parent perceptions of child vulnerability and protectiveness in three groups: cystic fibrosis (CF-group, n = 40), intermediate CF classification (I-group, n = 20), and healthy (H-group, n = 50). A composite indicator structural equation (CISE) u...
journal_title:Journal of family nursing
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更新日期:2019-05-01 00:00:00
abstract::Confucianism is the central philosophic background for much of the culture in East Asia (EA), particularly for understanding family and social context. The purpose of this article is to examine more fully Confucianism as a conceptual framework for understanding EA family processes and health practices. Confucianism st...
journal_title:Journal of family nursing
pub_type: 杂志文章,评审
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更新日期:2007-08-01 00:00:00
abstract::Family members caring for aging parents experience both negative and positive outcomes from providing care. Theoretical explanations for negative outcomes have been developed. There is need for models that explain and predict positive outcomes. This article describes the evolution of the Caregiver Empowerment Model (C...
journal_title:Journal of family nursing
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更新日期:2011-02-01 00:00:00
abstract::Nurses have a key role to play in therapeutic interventions for bereaved and grieving families. In this article, hermeneutic inquiry is used to uncover what families found helpful or useful with respect to therapeutic conversations with advanced practice registered nurses. The findings show that nursing expertise is i...
journal_title:Journal of family nursing
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abstract::Families with children who have developmental disabilities and complex communication needs (CCNs) face challenging demands affecting family adaptation. Many children with CCNs use augmentative and alternative communication (AAC) devices to support communication, yet little is known about family adaptation to such tech...
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