The experience of cancer cachexia: a qualitative study of advanced cancer patients and their family members.

Abstract:

BACKGROUND:Cachexia in advanced malignancy is a debilitating syndrome which contributes to approximately two million deaths worldwide annually. In spite of advances in understanding the biomedical aspects of cancer cachexia, little attention has been paid to exploring its holistic impact on patients and those who care for them. OBJECTIVE:The aim of this paper is to describe the lived experience of cachexia from the perspective of patients with cancer and their family members. DESIGN:An interpretative phenomenological approach was employed. SETTING AND PARTICIPANTS:A purposive sampling strategy recruited 15 patients and 12 family members from the Regional Cancer Centre in Northern Ireland. METHOD:Each participant was interviewed during 2004/2005 using an unstructured interview. All interviews were recorded and transcribed verbatim. Analysis combined a two stage approach using thematic and interpretative phenomenological analysis. RESULTS:Analysis generated six superordinate themes that reflected the complex dynamics of the cachexia experience. Themes were: physiological changes in appetite; visuality of cachexia; weight loss interpreted as a bad sign; response from health care professionals; conflict over food; and coping responses. CONCLUSIONS:Findings confirmed that cancer cachexia has far reaching implications for patients and their families, extending beyond physical problems into psychological, social and emotional issues. This insight is a critical first step in the development of more responsive care for these clients.

journal_name

Int J Nurs Stud

authors

Reid J,McKenna H,Fitzsimons D,McCance T

doi

10.1016/j.ijnurstu.2008.10.012

subject

Has Abstract

pub_date

2009-05-01 00:00:00

pages

606-16

issue

5

eissn

0020-7489

issn

1873-491X

pii

S0020-7489(08)00307-6

journal_volume

46

pub_type

杂志文章
  • The quality of life of renal dialysis patients: trying to find the missing measurement.

    abstract::The physiological status of the individual renal patient is monitored regularly to ensure adequate dialysis is maintained, however, the psychosocial status of the renal patient is not subject to the same amount of attention. This study aimed to determine the Quality of Life and psychosocial needs of a sample of renal ...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/0020-7489(95)00040-2

    authors: Killingworth A,van den Akker O

    更新日期:1996-02-01 00:00:00

  • Developing the role of the generic healthcare support worker: phase 1 of an action research study.

    abstract::This paper reports on the first phase of an action research practice development project to explore, develop and evaluate the role of the generic healthcare support worker in a high dependency rehabilitation service. The project is being jointly conducted by staff from the University of Southampton, the University of ...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/s0020-7489(99)00026-7

    authors: Rolfe G,Jackson N,Gardner L,Jasper M,Gale A

    更新日期:1999-08-01 00:00:00

  • Effect of reminiscence therapy on depression in older adults: a systematic review.

    abstract::The objective of this systematic review is to provide healthcare professionals with information to assist in their decision to utilize reminiscence therapy for depression reduction in older adults outside of the primary care setting. Nine reviewed studies that were randomized controlled trials not only varied in perso...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,评审

    doi:10.1016/s0020-7489(02)00101-3

    authors: Hsieh HF,Wang JJ

    更新日期:2003-05-01 00:00:00

  • Improving insomnia in primary care patients: A randomized controlled trial of nurse-led group treatment.

    abstract:BACKGROUND:Insomnia is a common health problem, and most people who seek help for insomnia consult primary care. In primary care, insomnia treatment typically consists of hypnotic drugs, although cognitive behavioral therapy for insomnia is the recommended treatment. However, such treatment is currently available to fe...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.ijnurstu.2017.03.007

    authors: Sandlund C,Hetta J,Nilsson GH,Ekstedt M,Westman J

    更新日期:2017-07-01 00:00:00

  • The effect of early post-partum mother-infant contact and breast-feeding promotion on the incidence and continuation of breast-feeding.

    abstract::Three maternity hospital practices of post-partum mother-infant contact and breast-feeding promotion on the incidence and continuation of breast-feeding among 375 urban poor healthy Nicaraguan primigravid women were investigated. Infant feeding patterns were evaluated at 1 week and 4 months post-partum. Eighty-seven p...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/0020-7489(90)90033-f

    authors: Lindenberg CS,Cabrera Artola R,Jimenez V

    更新日期:1990-01-01 00:00:00

  • Describing chronic pain: towards bilingual practice.

    abstract::This paper reports on the findings of a pilot study that collated and categorised a range of Welsh-medium chronic pain descriptors and their conceptually equivalent English translations in order to provide a preliminary basis for chronic pain assessment amongst patients in the bilingual community of North West Wales. ...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/s0020-7489(03)00055-5

    authors: Roberts G,Kent B,Prys D,Lewis R

    更新日期:2003-11-01 00:00:00

  • Nurses' experiences of the encounter with elderly patients in acute confusional state in orthopaedic care.

    abstract::The aim of this study was to illuminate nurses' experiences of the encounter with elderly patients who developed acute confusional state (ACS) in orthopaedic care. Forty-eight nurses with professional background as registered (n=26) or licensed practical nurses (n=22) who took part in the nursing care of acute confuse...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/s0020-7489(02)00109-8

    authors: Andersson EM,Hallberg IR,Edberg AK

    更新日期:2003-05-01 00:00:00

  • Work-related factors and violence among nursing staff in the European NEXT study: a longitudinal cohort study.

    abstract:BACKGROUND:The occurrence of workplace violence is rather frequent within the nursing profession, with well-known consequences on the psychological health of victims. OBJECTIVES:This study is aimed at assessing the relationships between relevant individual, organizational, and psychosocial factors, and the frequency o...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2007.01.013

    authors: Camerino D,Estryn-Behar M,Conway PM,van Der Heijden BI,Hasselhorn HM

    更新日期:2008-01-01 00:00:00

  • Biosocial bases of aggressive and violent behavior--implications for nursing studies.

    abstract::Although aggression and violence have been increasingly viewed as a major public health problem with a biological and health basis, it has been under-researched in the nursing and health context. This paper reviews early biological risk factors for violence. These factors include pregnancy/birth complications, fetal e...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,评审

    doi:10.1016/j.ijnurstu.2004.06.007

    authors: Liu J,Wuerker A

    更新日期:2005-02-01 00:00:00

  • Nursing workload, nurse staffing methodologies and tools: A systematic scoping review and discussion.

    abstract:BACKGROUND:The importance of nurse staffing levels in acute hospital wards is widely recognised but evidence for tools to determine staffing requirements although extensive, has been reported to be weak. Building on a review of reviews undertaken in 2014, we set out to give an overview of the major approaches to assess...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2019.103487

    authors: Griffiths P,Saville C,Ball J,Jones J,Pattison N,Monks T,Safer Nursing Care Study Group.

    更新日期:2020-03-01 00:00:00

  • A longitudinal study of low back pain in student nurses.

    abstract::Results from a longitudinal study of low back pain in 199 student nurses followed up for 20 months show that 37% reported back pain which lasted for at least 3 consecutive days. The first incidence peaked markedly between 9 and 12 months into training, and coincided with work on wards described by the nurses as "heavy...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/0020-7489(93)90031-o

    authors: Klaber Moffett JA,Hughes GI,Griffiths P

    更新日期:1993-06-01 00:00:00

  • The work of auxiliary nurses in Mexico: stressors, satisfiers and coping strategies.

    abstract::Recruitment and retention of nursing personnel is a major problem in many parts of the world, particularly developing countries. Strategies for promoting job satisfaction can help reduce the costs of high turnover and increase the quality of patient care. As part of a larger international study on women's health, a co...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,多中心研究

    doi:10.1016/0020-7489(96)00001-6

    authors: Douglas MK,Meleis AI,Eribes C,Kim S

    更新日期:1996-10-01 00:00:00

  • Views of the Therapeutic Environment (VOTE): stakeholder involvement in measuring staff perceptions of acute in-patient care.

    abstract:BACKGROUND:The impact of staff perceptions of daily work pressures on burnout requires further exploration because both issues may be adversely affecting the quality of staff interactions with service users. OBJECTIVES:To use a model of 'stakeholder involvement' to develop and test a self-report instrument capturing n...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2012.06.001

    authors: Laker C,Rose D,Flach C,Csipke E,McCrone P,Craig T,Kelland H,Wykes T

    更新日期:2012-11-01 00:00:00

  • Patient and caregiver contributions to self-care in multiple chronic conditions: A multilevel modelling analysis.

    abstract:BACKGROUND:Multiple chronic conditions (MCC) are highly prevalent worldwide, especially among older populations. Patient self-care and care partner (or caregiver) contributions to self-care are recommended to reduce the impact of MCC and improve patients' outcomes. OBJECTIVES:To describe patient self-care and care par...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2020.103574

    authors: Iovino P,Lyons KS,De Maria M,Vellone E,Ausili D,Lee CS,Riegel B,Matarese M

    更新日期:2020-03-14 00:00:00

  • Adolescents' smoking behavior and its relationships with psychological constructs based on transtheoretical model: a cross-sectional survey.

    abstract:BACKGROUND:Korean adolescents' smoking is currently being considered as a crucial factor determining the health status of adolescents and an important public health and social issue. OBJECTIVES:The purpose of the study was to test the applicability of the Transtheoretical model to gain an understanding of smoking beha...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2005.06.008

    authors: Kim YH

    更新日期:2006-05-01 00:00:00

  • A multi-center prevalence study and randomized controlled parallel-group pragmatic trial to compare the effectiveness of standardized skin care regimens on skin health in nursing home residents: a study protocol.

    abstract:BACKGROUND:Aged long-term residents suffer from a wide range of skin problems. Dry skin associated with severe pruritus, scratching and inflammation is the most prevalent, but exact figures are lacking. Maintaining skin and tissue health as well as enhancing the quality of life are major goals in institutional long-ter...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.ijnurstu.2014.11.007

    authors: Kottner J,Hahnel E,Trojahn C,Stroux A,Dobos G,Lichterfeld A,Richter C,Blume-Peytavi U

    更新日期:2015-02-01 00:00:00

  • The association between 12-hour shifts and nurses-in-charge's perceptions of missed care and staffing adequacy: a retrospective cross-sectional observational study.

    abstract:BACKGROUND:Due to worldwide nursing shortages and difficulty retaining staff, long shifts for nursing staff (both registered nurses and nursing assistants) working in hospitals have been adopted widely. Because long shifts reduce the daily number of shifts from three to two, many assume that long shifts improve product...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2020.103702

    authors: Saville C,Dall'Ora C,Griffiths P

    更新日期:2020-06-30 00:00:00

  • Experiences of a feasibility study of children with albinism in Zimbabwe: a discussion paper.

    abstract:BACKGROUND:Feasibility studies are often a helpful prelude to constructing fundable research proposals. Where the intended research is in a foreign country, focuses on a vulnerable population, and is aggravated by political and pragmatic challenges, feasibility studies become essential. Albinism, a genetic condition of...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2007.05.009

    authors: Taylor JS,Lund P

    更新日期:2008-08-01 00:00:00

  • The effect of play on immobilized children in hospital.

    abstract::Organized play is not always given a high priority in the hospitalized child's total care with the result that insufficient time is allocated to its provision in the nursing care plan. The effects of such incomplete patient care are far reaching for the immobilized child in hospital. The study was designed to determin...

    journal_title:International journal of nursing studies

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/0020-7489(89)90007-2

    authors: Gillis AJ

    更新日期:1989-01-01 00:00:00

  • Identifying associations between quality of life outcomes and healthcare-related variables among colorectal cancer survivors: A cross-sectional survey study.

    abstract:BACKGROUND:Follow-up care and surveillance are essential components of colorectal cancer survivorship. However, the relative contribution of healthcare experiences to quality of life in cancer survivorship is poorly understood. OBJECTIVES:This study explores associations between colorectal cancer survivors' healthcare...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2019.103434

    authors: Drury A,Payne S,Brady AM

    更新日期:2020-01-01 00:00:00

  • Predictors of RNs' intent to work and work decisions 1 year later in a U.S. national sample.

    abstract:BACKGROUND:Many studies have examined predictors of nurses' intention to work in their job, including desire to quit. Intent has been a good predictor of actual turnover. Few longitudinal studies exist that consider regional variables. OBJECTIVES:To extend the conceptual framework of turnover research to the whole nur...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2008.02.003

    authors: Brewer CS,Kovner CT,Greene W,Cheng Y

    更新日期:2009-07-01 00:00:00

  • The effectiveness of pelvic floor exercises, digital vaginal palpation and interpersonal support on stress urinary incontinence: an experimental study.

    abstract:BACKGROUND/AIMS:The objective of this study is to examine if interpersonal support and digital vaginal palpation (DVP) as part of the pelvic floor muscle exercise (PFME) training is more effective for stress urinary incontinence (SUI) than PFME with a printed handout instruction. METHODS:108 women who presented to the...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.ijnurstu.2009.03.003

    authors: Tsai YC,Liu CH

    更新日期:2009-09-01 00:00:00

  • Home-based deep breathing for depression in patients with coronary heart disease: a randomised controlled trial.

    abstract:OBJECTIVES:The primary aim of this study was to examine the effect of a home-based deep-breathing training programme on depressive symptoms as compared with a control condition (i.e., weekly telephone support) in patients with coronary heart disease (CHD). DESIGN:This efficacy trial used a randomised controlled, paral...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.ijnurstu.2010.03.007

    authors: Chung LJ,Tsai PS,Liu BY,Chou KR,Lin WH,Shyu YK,Wang MY

    更新日期:2010-11-01 00:00:00

  • The relationship between nurse managers' leadership style and patients' perception of the quality of the care provided by nurses: Cross sectional survey.

    abstract:BACKGROUND:In healthcare systems, human resources play a strategic role that has a significant impact on the whole caring process. When the wellbeing of professionals is low their performance decreases, counterproductive work behaviours may became more likely, and as a result the quality of care is compromised. Studies...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.ijnurstu.2019.103446

    authors: Zaghini F,Fiorini J,Piredda M,Fida R,Sili A

    更新日期:2020-01-01 00:00:00

  • Nursing education and social constraints: an indepth analysis.

    abstract::This paper summarizes the results of a study analyzing the social, economic and political factors affecting the nursing education system in the Federal Republic of Germany (F.R.G.). Using a hermeneutic-dialectical approach the researcher examined the circumstances surrounding the conceptualization, implementation and ...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/0020-7489(87)90008-3

    authors: Hedin BA

    更新日期:1987-01-01 00:00:00

  • The number of Baby Friendly hospital practices experienced by mothers is positively associated with breastfeeding: a questionnaire survey.

    abstract:OBJECTIVES:The objective of this study was to examine the association between number of Baby Friendly hospital practices (based on World Health Organization/United Nations Children's Fund Ten Steps to successful breastfeeding) experienced by mothers and breastfeeding initiation during hospital stay, breastfeeding at 1 ...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2006.05.015

    authors: Chien LY,Tai CJ,Chu KH,Ko YL,Chiu YC

    更新日期:2007-09-01 00:00:00

  • A good quality of life under the influence of methadone: a qualitative study among opiate-dependent individuals.

    abstract:BACKGROUND:Attention from researchers and health care workers to the quality of life (QoL) of opiate users is growing, but most studies are quantitative, giving limited attention to the consumer's perspective. No information is available on how opiate-dependent individuals themselves perceive QoL and what they see as t...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2011.03.009

    authors: De Maeyer J,Vanderplasschen W,Camfield L,Vanheule S,Sabbe B,Broekaert E

    更新日期:2011-10-01 00:00:00

  • Clinical prediction of violence among inpatients with schizophrenia using the Chinese modified version of Violence Scale: a prospective cohort study.

    abstract:BACKGROUND:A standard measure to assess and predict violence is important for psychiatric services. No prospective study has examined the history of violence and heterogeneity of violence in predicting specific types of violence among inpatient with schizophrenia. OBJECTIVES:This study aimed to prospectively examine t...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2013.06.002

    authors: Chen SC,Hwu HG,Hu FC

    更新日期:2014-02-01 00:00:00

  • Pre-admission nursing assessment in a Welsh Medium Secure Unit (1991-2000): Part 2--comparison of traditional nursing assessment with the HCR-20 risk assessment tool.

    abstract::Pre-admission forensic nursing assessment is a tradition that has no research evidence base, little documentary support and is an expensive drain on nursing resources from clinical environments. Such an expensive practice warrants some evaluation of the quality of these nursing assessments. This study assessed the qua...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/s0020-7489(03)00017-8

    authors: Watt A,Topping-Morris B,Rogers P,Doyle M,Mason T

    更新日期:2003-08-01 00:00:00

  • Utility of the Oswestry Disability Index for studies of back pain related disability in nurses: evaluation of psychometric and measurement properties.

    abstract:BACKGROUND:Disability due to back pain in nurses results in reduced productivity, work absenteeism and attrition from the nursing workforce internationally. Consistent use of outcome measures is needed in intervention studies to enable meta-analyses that determine efficacy of back pain preventive programs. OBJECTIVE:T...

    journal_title:International journal of nursing studies

    pub_type: 杂志文章

    doi:10.1016/j.ijnurstu.2009.10.013

    authors: Dawson AP,Steele EJ,Hodges PW,Stewart S

    更新日期:2010-05-01 00:00:00