Endocrinal complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease.

Abstract:

:A complication is an event or occurrence that is associated with a disease or a healthcare intervention, is a departure from the desired course of events, and may cause, or be associated with, suboptimal outcome. A complication does not necessarily represent a breech in the standard of care that constitutes medical negligence or medical malpractice. An operative or procedural complication is any complication, regardless of cause, occurring (1) within 30 days after surgery or intervention in or out of the hospital, or (2) after 30 days during the same hospitalization subsequent to the operation or intervention. Operative and procedural complications include both intraoperative/intraprocedural complications and postoperative/postprocedural complications in this time interval. The MultiSocietal Database Committee for Pediatric and Congenital Heart Disease has set forth a comprehensive list of complications associated with the treatment of patients with congenital cardiac disease, related to cardiac, pulmonary, renal, haematological, infectious, neurological, gastrointestinal, and endocrinal systems, as well as those related to the management of anaesthesia and perfusion, and the transplantation of thoracic organs. The objective of this manuscript is to examine the definitions of operative morbidity as they relate specifically to the endocrine system. These specific definitions and terms will be used to track morbidity associated with surgical and transcatheter interventions and other forms of therapy in a common language across many separate databases. As surgical survival in children with congenital cardiac disease has improved in recent years, focus has necessarily shifted to reducing the morbidity of congenital cardiac malformations and their treatment. A comprehensive list of endocrinal complications is presented. This list is a component of a systems-based compendium of complications that will standardize terminology and thereby allow the study and quantification of morbidity in patients with congenital cardiac malformations. Clinicians caring for patients with congenital cardiac disease will be able to use this list for databases, initiatives to improve quality, reporting of complications, and comparing strategies of treatment.

journal_name

Cardiol Young

journal_title

Cardiology in the young

authors

Dickerson H,Cooper DS,Checchia PA,Nelson DP

doi

10.1017/S1047951108002990

subject

Has Abstract

pub_date

2008-12-01 00:00:00

pages

256-64

eissn

1047-9511

issn

1467-1107

pii

S1047951108002990

journal_volume

18 Suppl 2

pub_type

杂志文章,评审
  • Single-centre experience in stenting arterial shunts for adult CHD patients with single-ventricle physiology and pulmonary blood flow dependent on arterial shunts.

    abstract:OBJECTIVES:The objectives of this study were to describe the approach to stenting arterial shunts in adult congenital patients with single-ventricle physiology and to assess the medium-term clinical and haemodynamic outcomes following stent insertion. BACKGROUND:Adult patients with single-ventricle physiology and pulm...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951118001464

    authors: Kasem M,Bentham J,Thomson J

    更新日期:2018-12-01 00:00:00

  • More lessons learned from the Pediatric Heart Transplant Study.

    abstract::Paediatric heart transplantation has evolved over the last 3 decades. The research group, Pediatric Heart Transplant Study, has been in step with that evolution over the nearly 20 years of its existence by utilising its registry to contribute a wealth of clinical research to the field. The highlights of its studies wi...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951115000931

    authors: Law YM

    更新日期:2015-08-01 00:00:00

  • The registry of anomalous aortic origin of the coronary artery of the Congenital Heart Surgeons' Society.

    abstract::The anomalous aortic origin of a coronary artery from the wrong sinus of Valsalva with interarterial, intramural, and/or intraconal course is a rare congenital anomaly that is associated with a high risk of sudden death in children. The Congenital Heart Surgeons' Society established the Registry of Anomalous Aortic Or...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951110001095

    authors: Brothers JA,Gaynor JW,Jacobs JP,Caldarone C,Jegatheeswaran A,Jacobs ML,Anomalous Coronary Artery Working Group.

    更新日期:2010-12-01 00:00:00

  • Weight impacts 1-year congenital heart surgery outcomes independent of race/ethnicity and payer.

    abstract::Body mass index, race/ethnicity, and payer status are associated with operative mortality in congenital heart disease (CHD). Interactions between these predictors and impacts on longer term outcomes are less well understood. We studied the effect of body mass index, race/ethnicity, and payer on 1-year outcomes followi...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951120003911

    authors: Siddiqui S,Anderson BR,LaPar DJ,Kalfa D,Chai P,Bacha E,Freud L

    更新日期:2020-11-19 00:00:00

  • Individual and joint effects of genetic polymorphisms in microRNA-machinery genes on congenital heart disease susceptibility.

    abstract::Single-nucleotide polymorphisms in miRNA-machinery genes may alter the biogenesis of miRNAs affecting disease susceptibility. In this case-control study, we aimed to evaluate the impact of three single-nucleotide polymorphisms (DICER rs1057035, DROSHA rs10719, and XPO5 rs11077) and their combined effect in a genetic r...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951120004874

    authors: Borghini A,Vecoli C,Mercuri A,Turchi S,Andreassi MG

    更新日期:2021-01-11 00:00:00

  • Ebstein's malformation in the setting of Down's syndrome.

    abstract::We report a patient with Down's syndrome referred to our Department of Echocardiography for evaluation after an episode of tachyarrhythmia. We diagnosed Ebstein's malformation. As far as we know, this association has been reported previously on only three occasions. We review these previous cases, describe our echocar...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:

    authors: Bauk L,Espinola-Zavaleta N,Muñoz-Castellanos L

    更新日期:2003-08-01 00:00:00

  • Development and preliminary testing of the Brief Developmental Assessment: an early recognition tool for children with heart disease.

    abstract::Introduction Neurodevelopmental abnormalities are common in children with CHD and are the highest-priority concerns for parents and professionals following cardiac surgery in childhood. There is no additional routine monitoring of development for children with CHD in the United Kingdom; hence, neurodevelopmental conce...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951117002918

    authors: Wray J,Brown KL,Ridout D,Lakhanpaul M,Smith L,Scarisbrick A,O'Curry S,Hoskote A

    更新日期:2018-04-01 00:00:00

  • Endocarditis of a congenital coronary fistula in a child.

    abstract::Endocarditis of congenital coronary fistulas in the cardiac chambers is rare, especially in the paediatric age group. We describe the case of a 9-year-old boy with a fistula from the dilated right coronary artery to the junction of the superior caval vein to the right atrium, complicated by endocarditis. Treatment con...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951117001846

    authors: Krasemann T,van Beynum IM,Frohn-Mulder IME,Dalinghaus M

    更新日期:2018-02-01 00:00:00

  • Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences.

    abstract::Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in childre...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,meta分析,评审

    doi:10.1017/S1047951118001233

    authors: Neubauer K,Williams EP,Donohue PK,Boss RD

    更新日期:2018-10-01 00:00:00

  • Counselling strategies for parents of infants with congenital heart disease.

    abstract::Congenital heart disease is a significant cause of morbidity and mortality in the newborn. Its diagnosis may lead to a crisis in the affected families; there are the perceived implications of having an abnormality of so vital an organ. To that may be added the assumed guilt or blame, grief and at times anger, frequent...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/s104795110000696x

    authors: Menahem S

    更新日期:1998-07-01 00:00:00

  • Novel percutaneous femoral arterial-transthoracic approach for closure of ascending aortic pseudoaneurysm with a septal occluder device in a child.

    abstract::Ascending aortic pseudoaneurysms are a rare complication following cardiac surgery. Their traditional surgical management carries high morbidity and mortality, especially in patients with multiple comorbidities. Transcatheter closure of these pseudoaneurysms using a septal occluder device has been previously reported ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951113001170

    authors: Masri SI,Majdalani MN,Bitar FF

    更新日期:2014-08-01 00:00:00

  • Severe cardiac involvement in Gaucher type IIIC: a case report and review of the literature.

    abstract::Gaucher disease is an autosomal-recessive lysosomal storage disease characterised by the accumulation of glucocerebroside in macrophages; it is caused by mutations in glucocerebrosidase gene-1 in many organ tissues such as the liver, spleen, and bone marrow. Its different clinical subtypes, according to the presence a...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951117000579

    authors: Kör Y,Keskin M,Başpınar O

    更新日期:2017-09-01 00:00:00

  • Quality of life of Malaysian children with CHD.

    abstract:OBJECTIVES:The objectives of this study were to compare the quality-of-life scores of Malaysian children with CHD and their healthy siblings, to determine the level of agreement between proxy-reports and child self-reports, and to examine variables that have an impact on quality of life in those with CHD. METHODS:Pare...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951117000166

    authors: Ong LC,Teh CS,Darshinee J,Omar A,Ang HL

    更新日期:2017-09-01 00:00:00

  • Transcatheter closure of a multiperforated atrial septal defect extending from the oval fossa to the mouth of the inferior caval vein.

    abstract::We report a novel technique using an Amplatzer atrial septal occluder to close a defect located in the inferior-posterior portion of the interatrial septum that extended into the mouth of the inferior caval vein. Because of the close relation of the defect to the inferior caval vein, the right atrial disc was opened i...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/s1047951103000386

    authors: Peuster M,Reckers J,Fink C

    更新日期:2003-04-01 00:00:00

  • Echocardiographic evaluation of cardiac structure and function in obese Egyptian adolescents.

    abstract:OBJECTIVE:The objective of this study was to detect structural and functional changes in the left and right ventricles in obese Egyptian adolescents. Methods and results Anthropometric and echocardiographic parameters, including tissue Doppler imaging, were obtained from 70 obese adolescents with average body mass inde...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951111001910

    authors: Kamal HM,Atwa HA,Saleh OM,Mohamed FA

    更新日期:2012-08-01 00:00:00

  • The quality, understandability, readability, and popularity of online educational materials for heart murmur.

    abstract:OBJECTIVE:Murmurs are abnormal audible heart sounds produced by turbulent blood flow. Therefore, murmurs in a child may be a source of anxiety for family members. Families often use online materials to explore possible reasons for these murmurs, given the accessibility of information on the Internet. In this study, we ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S104795111900307X

    authors: Arslan D,Sami Tutar M,Kozanhan B,Bagci Z

    更新日期:2020-03-01 00:00:00

  • Asymmetrically short tendinous cords causing congenital tricuspid regurgitation: improved understanding of tricuspid valvar dysplasia in the era of color flow echocardiography.

    abstract:BACKGROUND:Tricuspid regurgitation as a manifestation of an isolated congenital anomaly of the tricuspid valve is rare. Cross-sectional and color Doppler echocardiography allow improved evaluation of tricuspid valvar function. As a result, the heterogeneous category of congenital tricuspid valvar dysplasia may be bette...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/s1047951100004972

    authors: McElhinney DB,Silverman NH,Brook MM,Hanley FL,Stanger P

    更新日期:1999-05-01 00:00:00

  • An epicardial cyst in a child.

    abstract::An 8-year-old girl, without any previous medical history, presented with a first short syncope. Physical examination was unremarkable. Transthoracic echocardiography revealed a thin-walled, echo-free cystic structure adjacent to the posterior wall of the left ventricle, and compressing it moderately. Other echocardiog...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/s1047951101001056

    authors: Debus V,Krasemann T,Semik M

    更新日期:2001-11-01 00:00:00

  • Sudden improvement in ventricular repolarization abnormality after a short detraining period in an athlete.

    abstract::We describe the case of a 17-year-old male soccer player with T-wave inversion in precordial leads in resting electrocardiography, which also disclosed sinus bradycardia, early repolarization, and increased QRS voltage. These findings strongly suggested cardiomyopathy. The patient's T-wave inversion disappeared during...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951117001287

    authors: Motoki N,Akazawa Y,Hachiya A,Inaba Y

    更新日期:2017-11-01 00:00:00

  • Open anastomosis of extracardiac conduit for total cavopulmonary connection decreases post-operative pleural effusion.

    abstract:OBJECTIVE:The goal of this study was to see whether the open anastomosis technique using vacuum-assisted venous drainage at the time of the Fontan procedure was associated with decreased post-operative pleural effusion. METHODS:We analysed a subgroup of patients with a functional single ventricle who underwent non-fen...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951110001010

    authors: Aeba R,Morita M,Matayoshi T,Yozu R

    更新日期:2010-12-01 00:00:00

  • Out of many, one: integrating data in the paediatric cardiovascular environment.

    abstract::Large volumes of data and multiple computing platforms are now universal components of paediatric cardiovascular medicine, but are in a constant state of evolution. Often, multiple sets of related data reside in disconnected "silos", resulting in clinical, administrative, and research activities that may be duplicativ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951116001268

    authors: Bradley DJ,Wu DTY,Goldberg CS,Serwer GS,Lowery RE,Donohue JE,Hirsch-Romano JC,Zheng K,Pasquali SK

    更新日期:2017-05-01 00:00:00

  • Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease.

    abstract:OBJECTIVE:To examine the current subjective state of health, and the longitudinal course of psychological well-being, in adult patients with congenital cardiac malformations. METHODS:Our study concerns the second follow-up of a cohort of patients with congenital cardiac malformations. We examined 362 consecutive patie...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951105000351

    authors: van Rijen EH,Utens EM,Roos-Hesselink JW,Meijboom FJ,van Domburg RT,Roelandt JR,Bogers AJ,Verhulst FC

    更新日期:2005-04-01 00:00:00

  • Stenting across head and neck vessels using covered stents for persisting aortic arch obstruction.

    abstract:OBJECTIVE:To describe endovascular stent placement using partially covered stents to preserve flow in head and neck vessels. BACKGROUND:Endovascular stent placement has become established as a first-line therapy for native coarctation of the aorta or re-coarctation in older children and adults. Increasingly covered st...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951112000236

    authors: Bentham JR,Oswal N,Yates R

    更新日期:2012-10-01 00:00:00

  • Cardiovascular-associated tracheobronchial obstruction in children.

    abstract::Tracheobronchial compression of cardiovascular origin is an uncommon and frequently unrecognised cause of respiratory distress in children. The compression may be due to encircling vessels or dilated neighbouring cardiovascular structures. Bronchoscopy and detailed radiography, especially computed tomography and magne...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951112000765

    authors: Lai SH,Liao SL,Wong KS

    更新日期:2013-04-01 00:00:00

  • Transcatheter management of mid-aortic syndrome secondary to myofibroma presenting in infancy with severe left ventricular dysfunction: a case report.

    abstract::In this study, we summarise a case of a myofibroma causing mid-aortic syndrome due to obstruction of the distal thoracic and abdominal aorta leading to severe left ventricular dysfunction. The patient was managed with percutaneous intervention via balloon dilation and stent placement. On follow-up, the patient has nor...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951115001936

    authors: Callahan R,Kreutzer J,Debrunner M

    更新日期:2016-04-01 00:00:00

  • Objectively measured physical activity levels of young children with congenital heart disease.

    abstract:UNLABELLED:Physical activity tends to be lower in school-age children with congenital heart disease than in healthy controls. To the best of our knowledge, objectively measured physical activity levels of preschool-age children with congenital heart disease have not been studied. METHODS:A total of 10 children with ei...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951114000298

    authors: Stone N,Obeid J,Dillenburg R,Milenkovic J,MacDonald MJ,Timmons BW

    更新日期:2015-03-01 00:00:00

  • Cardiac MRI T1 mapping in unrepaired anomalous left coronary artery from the pulmonary artery.

    abstract::A 29-year-old gravida1 para1 woman presented with increasing fatigue. Multi-modality imaging demonstrated the left coronary artery arising from the main pulmonary artery with large collateral vessels in the interventricular septum, in keeping with unrepaired anomalous left coronary artery from the pulmonary artery. Ca...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951117000932

    authors: Hanneman K,Wald R

    更新日期:2017-11-01 00:00:00

  • Does milk fortification increase the risk of necrotising enterocolitis in preterm infants with congenital heart disease?

    abstract::Prematurity and low birth weight adds to the risk of serious congenital heart disease in infants. It may also delay surgical intervention, especially when cardiopulmonary bypass is required, or where an aortopulmonary shunt is necessary to maintain adequate oxygenation. In this setting, neonatologists are faced with t...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951112000947

    authors: Malhotra A,Veldman A,Menahem S

    更新日期:2013-06-01 00:00:00

  • The efficacy of echocardiographic criterions for the diagnosis of carditis in acute rheumatic fever.

    abstract:BACKGROUND:There is a great need for echocardiographic criterions for accurate diagnosis of carditis in acute rheumatic fever. AIM:To test the efficacy of proposed echocardiographic criterions for the diagnosis of carditis. MATERIALS AND METHODS:We studied 333 patients suspected of having acute rheumatic fever, under...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951108003107

    authors: Vijayalakshmi IB,Vishnuprabhu RO,Chitra N,Rajasri R,Anuradha TV

    更新日期:2008-12-01 00:00:00

  • Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease--the perspective of cardiac surgery.

    abstract::This review includes a brief discussion, from the perspective of cardiac surgeons, of the rationale for creation and maintenance of multi-institutional databases of outcomes of congenital heart surgery, together with a history of the evolution of such databases, a description of the current state of the art, and a dis...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951108002813

    authors: Jacobs ML,Jacobs JP,Franklin RC,Mavroudis C,Lacour-Gayet F,Tchervenkov CI,Walters H,Bacha EA,Clarke DR,William Gaynor J,Spray TL,Stellin G,Ebels T,Maruszewski B,Tobota Z,Kurosawa H,Elliott M

    更新日期:2008-12-01 00:00:00