Predictive genetic testing of children for adult-onset diseases and psychological harm.

abstract：:Elaborating on the concept of confidentiality of medical records and interdisciplinary communication discussed in earlier articles by D.J. Kenny and Derek F.H. Pheby, the author expresses concern about written communications to professional colleagues and verbal revelations to colleagues or to persons outside the ther...

journal_title：Journal of medical ethics

authors： Green M

更新日期：1982-03-01 00:00:00

abstract：:Although an invasive medical intervention, Deep Brain Stimulation (DBS) has been regarded as an efficient and safe treatment of Parkinson's disease for the last 20 years. In terms of clinical ethics, it is worth asking whether the use of DBS may have unanticipated negative effects similar to those associated with othe...

journal_title：Journal of medical ethics

authors： Gilbert F

更新日期：2012-07-01 00:00:00

abstract：:In his critical comment on our paper in this journal, Shaw argues that 'false assumptions' which we have criticised are in fact correct ('Neuroenhancers, addiction and research ethics'). He suggests that the risk of addiction to neuroenhancers may not be relevant, and that safety and research in regard to neuroenhance...

journal_title：Journal of medical ethics

authors： Heinz A,Kipke R,Müller S,Wiesing U

更新日期：2014-04-01 00:00:00

abstract：:In debates over life and death it is often said that one should err on the side of caution--that is, on the side of life. In the light of the recent case of Terri Schiavo, it is explained how the "err-on-the-side-of-life" argument proceeds, and an objection to it is offered. ...

journal_title：Journal of medical ethics

authors： Merrell DA

更新日期：2009-05-01 00:00:00

abstract：:"Terminal sedation" refers to the use of sedation as palliation in dying patients with a terminal diagnosis. Although terminal sedation has received widespread legal and ethical justification, the practice remains ethically contentious, particularly as some hold that it foreseeably hastens death. It has been proposed ...

journal_title：Journal of medical ethics

authors： Cellarius V

更新日期：2008-02-01 00:00:00

abstract：:Dr Neil Campbell suggests that when patients suffering extremes of protracted pain ask for help to end their lives, their requests should be discounted as made under compulsion. I contend that the doctors concerned should be referred to and then act upon advance directives made by those patients when of sound and calm...

journal_title：Journal of medical ethics

authors： Flew A

更新日期：1999-06-01 00:00:00

abstract：INTRODUCTION:Future HIV vaccine efficacy trials with adolescents will need to ensure that participants comprehend study concepts in order to confer true informed assent. A Hepatitis B vaccine trial with adolescents offers valuable opportunity to test youth understanding of vaccine trial requirements in general. METHOD...

journal_title：Journal of medical ethics

authors： Lee S,Kapogiannis BG,Flynn PM,Rudy BJ,Bethel J,Ahmad S,Tucker D,Abdalian SE,Hoffman D,Wilson CM,Cunningham CK,Adolescent Medicine Trials Network for HIV\/AIDS Interventions.

更新日期：2013-06-01 00:00:00

abstract：:Article 3.4 of EC directive 89/381 requires member states to take "all necessary measures to promote Community self-sufficiency in human blood or human plasma" and, for this purpose, to "encourage the voluntary unpaid donation of blood and plasma". This paper presents an ethical case in support of the policy of volunt...

journal_title：Journal of medical ethics

authors： Keown J

更新日期：1997-04-01 00:00:00

abstract：:Court-ordered caesarean sections against the explicit wishes of the pregnant woman have been criticised as violations of the woman's fundamental right to autonomy and to the inviolability of the person--particularly, so it is argued, because the fetus in utero is not yet a person. This paper examines the logic of this...

journal_title：Journal of medical ethics

authors： Kluge EH

更新日期：1988-12-01 00:00:00

abstract：:The Belgian model of 'integral' end-of-life care consists of universal access to palliative care (PC) and legally regulated euthanasia. As a first worldwide, the Flemish PC organisation has embedded euthanasia in its practice. However, some critics have declared the Belgian-model concepts of 'integral PC' and 'palliat...

journal_title：Journal of medical ethics

authors： Bernheim JL,Raus K

更新日期：2017-08-01 00:00:00

abstract：:Recognising that offers of payment to research participants can serve various purposes-reimbursement, compensation and incentive-helps uncover differences between participants, which can justify differential payment of participants within the same study. Participants with different study-related expenses will need dif...

journal_title：Journal of medical ethics

authors： Persad G,Fernandez Lynch H,Largent E

更新日期：2019-05-01 00:00:00

abstract：:Dr Wells, a general practitioner, looks at the problem of barbiturate dependence from the point of view of the prescribing doctor who has to choose for his patients - of all ages - the drug, usually a hypnotic, which is sought for insomnia or states of anxiety and stress. He argues that it is wise to prescribe non-bar...

journal_title：Journal of medical ethics

authors： Wells F

更新日期：1976-06-01 00:00:00

abstract：:Since Bennett, Draper, and Frith published a paper in this journal in 2000 considering the possible criminalisation of HIV transmission, an important legal development has taken place. February 2001 saw the first successful United Kingdom prosecution for the sexual transmission of disease for over a century, when Step...

journal_title：Journal of medical ethics

authors： Chalmers J

更新日期：2002-06-01 00:00:00

abstract：:Conflicts between the ethical values of an organisation and the ethical values of the employees of that organisation can often lead to conflict. When the ethical values of the employee are considerably higher than those of the organisation the potential for catastrophic results is enormous. In recent years several hig...

journal_title：Journal of medical ethics

authors： Faunce T,Bolsin S,Chan WP

更新日期：2004-02-01 00:00:00

abstract：OBJECTIVES:To explore mental health service users' views of existing and proposed compulsory powers. DESIGN:A qualitative study employing in-depth interviews. Participants were asked to respond to hypothetical questions regarding the application of compulsory powers under the Mental Health Act 1983 for people other th...

journal_title：Journal of medical ethics

authors： Canvin K,Bartlett A,Pinfold V

更新日期：2005-08-01 00:00:00

abstract：:Human embryo models formed from stem cells-known as embryoids-allow scientists to study the elusive first stages of human development without having to experiment on actual human embryos. But clear ethical guidelines for research involving embryoids are still lacking. Previously, a handful of researchers put forward n...

journal_title：Journal of medical ethics

authors： Piotrowska M

更新日期：2021-01-05 00:00:00

abstract：:This article discusses what level of consent is needed from a child or parent before a primary-school medical can take place (i.e. where children are aged under 12). It also considers whether there are occasions when a doctor can see a child if the parents have failed to give consent or have explicitly refused consent...

journal_title：Journal of medical ethics

authors： Bradley P

更新日期：2000-12-01 00:00:00

abstract：:In their paper 'The "serious" factor in germline modification', Kleiderman, Ravitsky and Knoppers rightly highlight the ambiguity in the oft-utilised term 'serious' in legal discussions of human germline genome modification.1 They suggest interpretation of this term may benefit from a framework based on human rights r...

journal_title：Journal of medical ethics

authors： Kalsi S

更新日期：2020-02-01 00:00:00

abstract：:This personal narrative tugs at the heart strings. However, personal narratives are not sufficient to justify public funding for any screening policy. We have to take seriously the 'just caring' problem. We have only limited resources to meet virtually unlimited health care needs. No doubt, screening tests often save ...

journal_title：Journal of medical ethics

authors： Fleck LM

更新日期：2020-04-01 00:00:00

abstract：:Developing residents' communication skills has been a goal of residency training programmes since the Accreditation Council for Graduate Medical Education codified it as a core competency. In this article, a case that features problematic communication between a generalist and specialist physician is drawn upon, and i...

journal_title：Journal of medical ethics

authors： Rentmeester CA

更新日期：2007-05-01 00:00:00

abstract：:To many in India and elsewhere, the life and thoughts of Mohandas Karamchand Gandhi are a source of inspiration. The idea of non-violence was pivotal in his thinking. In this context, Gandhi reflected upon the possibility of what is now called 'euthanasia' and 'assisted suicide'. So far, his views on these practices h...

journal_title：Journal of medical ethics

authors： Gielen J

更新日期：2012-07-01 00:00:00

abstract：BACKGROUND:Financial conflict of interest in clinical research is an area of active debate. While data exist on the perspectives and roles of academic institutions, investigators, industry sponsors, and scientific journals, little is known about the perspectives of potential research participants. METHODS:The authors ...

journal_title：Journal of medical ethics

authors： Kim SY,Millard RW,Nisbet P,Cox C,Caine ED

更新日期：2004-02-01 00:00:00

abstract：:Reflecting on the contribution by Rahul Kumar to the symposium, I consider the following topics in relation to risks in research: (1) treating someone as a mere means; (2) aggregation; (3) different conceptions of contractualism; (4) uncertainty; (5) paternalism and complicity. ...

journal_title：Journal of medical ethics

authors： Kamm FM

更新日期：2017-02-01 00:00:00

abstract：:This paper examines one particular justification for the screening and termination of embryos/fetuses which possess genetic features known to cause disability. The particular case is that put forward in several places by John Harris. He argues that the obligation to prevent needless suffering justifies the prevention ...

journal_title：Journal of medical ethics

authors： Edwards SD

更新日期：2001-12-01 00:00:00

abstract：OBJECTIVE:To determine the views of people with multiple sclerosis (MS) and professionals in relation to confidentiality, consent and access to data within a proposed MS register in the UK. DESIGN:Qualitative study using focus groups (10) and interviews (13). SETTING:England and Northern Ireland. PARTICIPANTS:68 peo...

journal_title：Journal of medical ethics

authors： Baird W,Jackson R,Ford H,Evangelou N,Busby M,Bull P,Zajicek J

更新日期：2009-02-01 00:00:00

abstract：PURPOSE:Many research ethics committees (RECs) have been established in low- and middle-income countries (LMICs) in response to increased research in these countries. How well these RECs are functioning remains largely unknown. Our objective was to assess the usefulness of a self-assessment tool in obtaining benchmarki...

journal_title：Journal of medical ethics

authors： Silverman H,Sleem H,Moodley K,Kumar N,Naidoo S,Subramanian T,Jaafar R,Moni M

更新日期：2015-04-01 00:00:00

abstract：INTRODUCTION:Understanding the views of the public is essential if generally acceptable policies are to be devised that balance research access to general practice patient records with protection of patients' privacy. However, few large studies have been conducted about public attitudes to research access to personal h...

journal_title：Journal of medical ethics

authors： Buckley BS,Murphy AW,MacFarlane AE

更新日期：2011-01-01 00:00:00

abstract：:This paper is a response to Dr Shinebourne's response to my recent paper assessing the relative merits of the Staffordshire Protocol on covert video surveillance. Dr Shinebourne does not take the opportunity to rebut the criticisms made of the text of the protocol. It is further suggested that judicial oversight of th...

journal_title：Journal of medical ethics

authors： Thomas T

更新日期：1996-12-01 00:00:00

abstract：:According to a recent convention on human rights and biomedicine, coercive treatment of psychiatric patients may only be given if, without such treatment, serious harm is likely to result to the health of the patient; it must not be given in the interest of other people. In the present article a discussion is undertak...

journal_title：Journal of medical ethics

authors： Tannsjo T

更新日期：2004-10-01 00:00:00

abstract：:With the recent Clinical Trials Directive, a degree of harmonisation into research ethics committees (RECs) across Europe, including the time taken to assess a trial proposal and the kinds of issues a committee should take into account, has been introduced by the European Union (EU). How four different member states-H...

journal_title：Journal of medical ethics

authors： Hedgecoe A,Carvalho F,Lobmayer P,Raka F

更新日期：2006-08-01 00:00:00