Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease.

Abstract:

OBJECTIVE:To examine the current subjective state of health, and the longitudinal course of psychological well-being, in adult patients with congenital cardiac malformations. METHODS:Our study concerns the second follow-up of a cohort of patients with congenital cardiac malformations. We examined 362 consecutive patients, aged from 20 to 46 years, who underwent surgical procedures for treatment of congenital cardiac disease between 1968 and 1980, specifically for treatment of atrial and ventricular septal defects, tetralogy of Fallot, transposition, and pulmonary stenosis. The patients were submitted to extensive medical and psychological examination. During psychological examination, in which all patients were seen by the same psychologist (EvR), patients filled in questionnaires concerning their current subjective state of health, using the 36-item Short Form Health Survey (SF-36), and psychological well-being, answering the Heart Patients Psychological Questionnaire. The data we acquired at their first follow-up was used to measure the longitudinal course of psychological well-being over the intervening period of 10 years. RESULTS:When compared to a reference group, the patients assessed their state of health less favourably concerning physical functioning, but more favourable with regard to social functioning, bodily pain, and limitations of role due to emotional problems. Younger female patients reported more limitations of role due to physical functioning than did the female patients who were older. Patients with transposition showed a negative trend for their subjective state of health, but reported the least bodily pain. Within the overall group of patients, displeasure had increased, while social inhibition had decreased, over the intervening period of 10 years. CONCLUSION:Extra attention should be paid to the subjective experiences of young female patients with congenital cardiac disease. The patients with transposed arterial trunks seem overall to experience poorer physical health.

journal_name

Cardiol Young

journal_title

Cardiology in the young

authors

van Rijen EH,Utens EM,Roos-Hesselink JW,Meijboom FJ,van Domburg RT,Roelandt JR,Bogers AJ,Verhulst FC

doi

10.1017/S1047951105000351

keywords:

subject

Has Abstract

pub_date

2005-04-01 00:00:00

pages

168-75

issue

2

eissn

1047-9511

issn

1467-1107

pii

S1047951105000351

journal_volume

15

pub_type

杂志文章
  • Propofol as a bridge to extubation for high-risk children with congenital cardiac disease.

    abstract:BACKGROUND:Children with congenital cardiac defects may have associated chromosomal anomalies, airway compromise, and/or pulmonary hypertension, which can pose challenges to adequate sedation, weaning from mechanical ventilation, and successful extubation. Propofol, with its unique properties, may be used as a bridge t...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951110001344

    authors: Teng SN,Kaufman J,Czaja AS,Friesen RH,da Cruz EM

    更新日期:2011-02-01 00:00:00

  • Cardiac surgery in adults with high-surgical complexity CHD: results of a network collaborative programme.

    abstract:BACKGROUND:Adults with CHD often exhibit complex cardiac abnormalities, whose management requires specific clinical and surgical expertise. To enable easier access of these patients to highly specialised care, we implemented a collaborative programme that incorporates medical and surgical specialists belonging to both ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951117001664

    authors: Gilad V,Santoro F,Ribera E,Calevo MG,Cipriani A,Pasquè A,Chierchia SL

    更新日期:2018-01-01 00:00:00

  • De novo aortopathy and cardiovascular outcomes in paediatric liver transplant recipients.

    abstract::With the increase in long-term survival of post-transplant children, there is a paradigm shift in the emphasis of post-transplant care. We describe de novo cardiovascular abnormalities, which occurred in otherwise asymptomatic paediatric liver transplant recipients, who received liver allografts between 1991 and 2014 ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S104795111800063X

    authors: Huang JG,Lim T,Quek SC,Quak SH,Aw MM

    更新日期:2018-08-01 00:00:00

  • Determination of dynamic thiol/disulphide homeostasis in children with tetralogy of Fallot and ventricular septal defect.

    abstract::Oxidative stress may contribute to the pathogenesis of congenital heart defects, but the role of dynamic thiol/disulphide homeostasis has not been evaluated. The objective of this study was to assess whether there are changes in thiol/disulphide homeostasis and nitric oxide levels in children with tetralogy of Fallot ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S104795111900012X

    authors: Temel MT,Demiryürek S,Saracaloglu A,Ozer CH,Kahraman HN,Coskun ME,Başpınar O,Demiryürek AT

    更新日期:2019-04-01 00:00:00

  • Seahorse left atrial appendage diverticula mimicking a coronary fistula.

    abstract::We report a left atrial appendage diverticulum in close proximity to the left coronary artery, thereby mimicking a fistulous connection between the two structures. ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S104795111400211X

    authors: Cantinotti M,Giordano R,Murzi B

    更新日期:2015-03-01 00:00:00

  • Infective endocarditis in infants and children in the Western Cape, South Africa: a retrospective analysis.

    abstract::Infective endocarditis is a microbial infection of the endothelial surface of the heart, predominantly the heart valves, that is associated with high mortality and morbidity. Few contemporary data exist regarding affected children in our context. AIMS AND OBJECTIVES:We aimed to describe the profile and treatment outc...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,多中心研究

    doi:10.1017/S1047951119002154

    authors: Willoughby ML,Basera W,Perkins SR,Comitis GAM,Fourie B,Lawrenson JB,Zühlke LJ

    更新日期:2019-10-01 00:00:00

  • Sports participation in long QT syndrome.

    abstract::Untreated congenital long QT syndrome may result in potentially lethal ventricular tachycardia. In the most common type, risk of such an event has been linked to exercise. This originally resulted in very restrictive guidelines for sports participation in affected individuals. Although the complex interactions of a sp...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951116002225

    authors: Aziz PF,Saarel EV

    更新日期:2017-01-01 00:00:00

  • Psychometric testing of the developmental care scale for neonates with congenital heart disease.

    abstract:PURPOSE:Developmental care of neonates with CHD is essential for proper neurodevelopment. Measurement of developmental care specific to these neonates is needed to ensure consistent implementation within and across cardiac ICUs. The purpose of this study was to psychometrically test the Developmental Care Scale for Neo...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951119000337

    authors: Arter S,Miller E,Bakas T,Cooper DS

    更新日期:2019-06-01 00:00:00

  • The effect of paediatric syncope on health-related quality of life.

    abstract:BACKGROUND:Syncope is common in children and adolescents and most commonly represents neurocardiogenic syncope. No information has been reported regarding the effect of syncope on health-related quality of life in children. METHODS:This was a retrospective cohort study of patients seen in the Heart Institute Syncope C...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951112000133

    authors: Anderson JB,Czosek RJ,Knilans TK,Marino BS

    更新日期:2012-10-01 00:00:00

  • Coarctation of the aorta in dizygotic twins.

    abstract::The incidence of congenital heart disease is higher in monozygotic than dizygotic twins, with a higher concordance rate. Although coarctation of the aorta has previously been reported in monozygotic twins, to the best of our knowledge it has not been described in dizygotic twins. We report here such a concurrence in d...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/s1047951100006375

    authors: Caldas M,Dhillon R

    更新日期:2000-01-01 00:00:00

  • Systemic hypertension in an infant with unrepaired tetralogy of Fallot: case report.

    abstract::Patients with severe right ventricular outflow tract obstruction in tetralogy of Fallot typically have right-to-left shunting, resulting in low pulmonary blood flow and cyanosis. Here we present the case of an infant with tetralogy of Fallot and severe pulmonary valve stenosis, complicated by systemic hypertension, th...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951112001837

    authors: Khoury M,Kallile M,May J,Punn R

    更新日期:2013-10-01 00:00:00

  • Weight impacts 1-year congenital heart surgery outcomes independent of race/ethnicity and payer.

    abstract::Body mass index, race/ethnicity, and payer status are associated with operative mortality in congenital heart disease (CHD). Interactions between these predictors and impacts on longer term outcomes are less well understood. We studied the effect of body mass index, race/ethnicity, and payer on 1-year outcomes followi...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951120003911

    authors: Siddiqui S,Anderson BR,LaPar DJ,Kalfa D,Chai P,Bacha E,Freud L

    更新日期:2020-11-19 00:00:00

  • Spontaneous aortic thrombosis in neonates: a case report and review of literature.

    abstract::Neonatal aortic thrombosis is a rare occurrence but can be life-threatening. Most aortic thrombosis in neonates is related to umbilical artery catheters. A case of a neonate with a spontaneous aortic thrombosis is described here along with a comprehensive review of the literature for cases of neonatal aortic thrombosi...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951119003093

    authors: Mulcaire-Jones JP,Bailly DK,Frank DU,Verma AR,Barney BJ,Siefkes HM

    更新日期:2020-01-01 00:00:00

  • A rare case report of corrected transposition of the great arteries in association with tuberous sclerosis and cardiac rhabdomyomas.

    abstract::The neuro-cutaneous syndrome tuberous sclerosis is commonly associated with rhabdomyomas in various organs including the heart. We are reporting a rare case of a 7-month old male child with congenitally corrected transposition of the great arteries associated with tuberous sclerosis and cardiac rhabdomyomas. To our kn...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951113002047

    authors: Garg R,Thakkar B,Oswal N

    更新日期:2014-10-01 00:00:00

  • Cardiopulmonary exercise performance in adult survivors of the Mustard procedure.

    abstract::Most patients with the Mustard procedure are now adults. To date, however, there have been few reports on resting and exercise hemodynamics in a large population of adults with this circulation. The aim of this study is to describe such parameters in one of the largest and oldest populations of adults with the Mustard...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/s104795110100052x

    authors: Hechter SJ,Webb G,Fredriksen PM,Benson L,Merchant N,Freeman M,Veldtman G,Warsi MA,Siu S,Liu P

    更新日期:2001-07-01 00:00:00

  • Does milk fortification increase the risk of necrotising enterocolitis in preterm infants with congenital heart disease?

    abstract::Prematurity and low birth weight adds to the risk of serious congenital heart disease in infants. It may also delay surgical intervention, especially when cardiopulmonary bypass is required, or where an aortopulmonary shunt is necessary to maintain adequate oxygenation. In this setting, neonatologists are faced with t...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951112000947

    authors: Malhotra A,Veldman A,Menahem S

    更新日期:2013-06-01 00:00:00

  • Successful surgical repair of Uhl's anomaly.

    abstract::We report a case of Uhl's anomaly in a 5-month-old cyanotic infant who presented with thromboembolic stroke and acute hemiparesis. The patient underwent successfully an initial surgical repair, which included exclusion of the right ventricle by patch closure of the tricuspid valve, atrial septectomy and construction o...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/s1047951102000410

    authors: Azhari N,Assaqqat M,Bulbul Z

    更新日期:2002-03-01 00:00:00

  • Living the heart in three dimensions: applications of 3D printing in CHD.

    abstract::Advances in biomedical engineering have led to three-dimensional (3D)-printed models being used for a broad range of different applications. Teaching medical personnel, communicating with patients and relatives, planning complex heart surgery, or designing new techniques for repair of CHD via cardiac catheterisation a...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951119000398

    authors: Forte MNV,Hussain T,Roest A,Gomez G,Jongbloed M,Simpson J,Pushparajah K,Byrne N,Valverde I

    更新日期:2019-06-01 00:00:00

  • Primary care management of patients with common arterial trunk and transposition of the great arteries.

    abstract::Primary care cardiology, also known as ambulatory or outpatient cardiology, for the longitudinal management of patients with common arterial trunk or with transposition of the great arteries is both poorly described and has limited evidence to justify its basis. This article discusses some of the various complications...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951112001588

    authors: Boris JR

    更新日期:2012-12-01 00:00:00

  • Recanalization of an occluded modified Blalock-Taussig shunt by balloon angioplasty within 12 hours of its construction.

    abstract::An infant developed severe desaturation within a few hours of construction of a modified Blalock-Taussig shunt. Echocardiography revealed that the shunt had become occluded, and this was confirmed angiographically. At catheterisation, therefore, we passed a 0.014" percutaneous transluminal coronary angioplasty wire th...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/s1047951100008957

    authors: Galal MO,Attas K,Baslaim G

    更新日期:2000-11-01 00:00:00

  • Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease--the perspective of cardiac surgery.

    abstract::This review includes a brief discussion, from the perspective of cardiac surgeons, of the rationale for creation and maintenance of multi-institutional databases of outcomes of congenital heart surgery, together with a history of the evolution of such databases, a description of the current state of the art, and a dis...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,评审

    doi:10.1017/S1047951108002813

    authors: Jacobs ML,Jacobs JP,Franklin RC,Mavroudis C,Lacour-Gayet F,Tchervenkov CI,Walters H,Bacha EA,Clarke DR,William Gaynor J,Spray TL,Stellin G,Ebels T,Maruszewski B,Tobota Z,Kurosawa H,Elliott M

    更新日期:2008-12-01 00:00:00

  • Styles of coping and social support in a cohort of adults with congenital heart disease.

    abstract:OBJECTIVE:To determine styles of coping, that is personal ways of dealing with problems, and social support, or support from the social environment, in a cohort of adults with congenital heart disease. METHODS:We subjected 362 patients with congenital heart disease, aged from 20 to 46 years, belonging to five diagnost...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951104002033

    authors: van Rijen EH,Utens EM,Roos-Hesselink JW,Meijboom FJ,van Domburg RT,Roelandt JR,Bogers AJ,Verhulst FC

    更新日期:2004-04-01 00:00:00

  • Coronary sinus stenosis: an underdiagnosed cause for paediatric exertional chest pain.

    abstract::Undiagnosed coronary sinus obstruction can be a source of paediatric exertional chest pain and death. We present a case series of three interesting children who developed only exertional angina from various degrees of coronary sinus stenosis or atresia. We discuss the diagnosis and management of each case and the pote...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951120000918

    authors: Hegde SA,Moore J,Suarez WA

    更新日期:2020-06-01 00:00:00

  • Systematic psychosocial screening in a paediatric cardiology clinic: clinical utility of the Pediatric Symptom Checklist 17.

    abstract:OBJECTIVE:To examine the clinical utility of the Pediatric Symptom Checklist 17 for identifying psychosocial concerns and improving access to psychology services within a paediatric cardiology clinic. METHOD:Parents of 561 children (aged 4-17 years) presenting for follow-up of CHD, acquired heart disease, or arrhythmi...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951115001900

    authors: Struemph KL,Barhight LR,Thacker D,Sood E

    更新日期:2016-08-01 00:00:00

  • Closure of a secundum atrial septal defect in two infants with chronic lung disease using the Gore HELEX Septal Occluder.

    abstract::Children with a secundum atrial septal defect are usually asymptomatic and are referred for elective closure after 3-4 years of age; however, in premature infants with chronic lung disease, bronchopulmonary dysplasia, or pulmonary hypertension, increased pulmonary blood flow secondary to a left-to-right atrial shunt, ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951114002650

    authors: Zussman ME,Freire G,Cupp SD,Stapleton GE

    更新日期:2016-01-01 00:00:00

  • Echocardiographic screening for rheumatic heart disease in Turkish schoolchildren.

    abstract:BACKGROUND:The aim of this study is to investigate the prevalence of subclinical rheumatic heart disease in schoolchildren aged 5-18 by using portable echocardiography in Ankara, Turkey. METHODS:The portable echocardiography screening was performed by a paediatric cardiologist for all of the cases. The mean age of 255...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,多中心研究

    doi:10.1017/S1047951119002075

    authors: Atalay S,Tutar E,Uçar T,Topçu S,Köse SK,Doğan MT

    更新日期:2019-10-01 00:00:00

  • Prevalence of ophthalmological abnormalities in children and adolescents with CHD: systematic review and meta-analysis of observational studies.

    abstract:BACKGROUND:CHDs form a complex and heterogeneous group of clinical entities, with high morbidity and mortality. With the advancement of surgical and invasive techniques and clinical treatment, the survival of these patients has increased significantly, and there are reports of a high prevalence of ocular abnormalities ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章,meta分析,评审

    doi:10.1017/S104795111500044X

    authors: Vilela MA,Sbruzzi G,Pellanda LC

    更新日期:2016-03-01 00:00:00

  • Family history of associated disorders in patients with postural tachycardia syndrome.

    abstract:INTRODUCTION:Postural tachycardia syndrome is more frequently being recognised in adolescents and adults. However, its pathophysiology remains undefined. We evaluated our database for patterns in family history of clinical symptoms and associated disorders in these patients. MATERIALS AND METHODS:Patients with postura...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951120000165

    authors: Boris JR,Huang J,Shuey T,Bernadzikowski T

    更新日期:2020-03-01 00:00:00

  • An interarterial course of anomalous coronary artery and an alternative surgical option.

    abstract::An interarterial course of anomalous left main coronary artery originating from the right aortic coronary sinus of valsalva is a rare condition among anomalous aortic origin of the coronary artery. Various surgical options are available. We performed an alternative procedure, that is, mobilisation of the pulmonic root...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951111002113

    authors: Nimdet K,Soongswang J,Sriyodchati S

    更新日期:2012-10-01 00:00:00

  • Twiddler's syndrome with occult lead insulation damage in a child with epicardial pacemaker leads.

    abstract::We present a rare case of incidentally diagnosed Twiddler's syndrome in a child 7 years after implantation of a dual-chamber pacemaker system with epicardial leads. During revision, an insulation defect of the ventricular lead was evident, despite unremarkable prior pacemaker lead testing. The lead was repaired and a ...

    journal_title:Cardiology in the young

    pub_type: 杂志文章

    doi:10.1017/S1047951120001031

    authors: Kramer P,Berger F,Peters B

    更新日期:2020-06-01 00:00:00